r/EctopicSupportGroup

So I recently had an ectopic pregnancy that was luckily found early and successfully treated with methotrexate. This pregnancy loss had been one of the hardest things I’ve ever gone through though. I was thinking of doing something to honor the pregnancy, like something to sort of symbolize it or help to create some closure. Has anyone here done anything like that after your ectopic? Idk, I’m going to the beach next weekend and thought I could do something with that, and/or maybe a small tattoo. What do you think?

Hello!
I previously had an ectopic pregnancy that was treated with surgery but the tubes were left intact.

We have been TTC now , and I am ovulating from the ectopic side.

Did anyone have a successful pregnancy resulting from ovulating from the ectopic side?

Should we skip this cycle?

Hi, I’m 41, petite and 46.5 kgs, history of pcos and borderline type 2 diabetes.

- July 2024, I had my first ectopic which ruptured and I lost a my right tube subsequently.

- Feb 2025, I had an early miscarriage at 6 weeks. The doctors couldn’t see the pregnancy so we don’t know where it was.

- June 2026, I have another ectopic pregnancy in the left tube which is being cured with MTX as of now. This was conceived via Letrozole.

The doctor at the hospital on duty said I can try to have baby via IVF as my remaining tube is now compromised and that should get it removed as chances of ectopic with IVF are high for me.

This was definitely very scary to hear. I’ve ready stories where IVF hasn’t worked for women and they go ahead and have natural pregnancies. If I take out my remaining tube I’m left at the mercy of IVF.

If you had a live birth after two or more ectopics how did you get there? did you take any alternative treatments? Did you do IVF or did you have your baby naturally?
I would love to know your story. Thank you! 🙏🏽

Hi guys ❤️ Trying to get some opinions and perspectives because I can’t tell if I’m living in fear or if I’m justified here.

Long story short - I was treated with one dose of MTX on 3/6 for a PUL, we never found it or saw any signs of it anywhere other than a likely psuedosac in my uterus. I have one living child, and this was my second pregnancy. My HCG was 2800 on injection day and was 57 by day 7. Monday will be 4 months from the injection and I just took an ovulation test and it’s positive, and my ring predicts ovulation for tomorrow.

I got my hormones checked a couple of months ago and my folate has returned to normal, and I am supposed to do an HSG after my next period. I guess I am just trying to decide if I should go for it and try this cycle or if I should wait for my HSG. I’ve talked with a couple of my friends and they think I should just go for it, but they haven’t been through this before and I just want some other perspectives from people who have. I’m fighting with my gut so hard because my gut tells me if I do try I’m going to be terrified until we can confirm placement (to be fair I would be terrified even after an HSG anyway), but on the other hand what if this cycle everything turned out fine…

I think I know deep down the answer is to just wait simply for peace of mind, but I just wanted to talk through it with other people who have gone through this too. If you had a PUL, did you get an HSG and find that a tube was blocked? Thank you for reading this far ❤️

Hi, im 21y old and this is my first pregnancy. I found out i was pregnant with an ectopic on 29th june, i got my first shot of methotrexate on 30th june, my hcg levels were 1170 and my ectopic is 1.1cm (my doctor was pushing me for surgery from the start) after 48h in observation i tested my hcg again which was 2 july 1089,( my doctor was expecting a 50% decrease 🙄) anyway so she gave me another dose of methotrexate. She told me to test again on Saturday and monday so i did today… but it came out to be 2621… idk if it’s normal for it to go up twice as much. Im anxious and dont know what to do, i have no pain whatsoever and im feeling pretty fine but the waiting is just making me so much anxious. Is there anyone who’s had similar experience please tell me, i could really use some reassurance.

EDIT:- She even prescribed me with folic acid Tab to take 60 days one each day, but i didn’t take it.

On Thursday I was diagnosed with an ectopic pregnancy and opted to get MTX rather than surgery in hopes to save my tube (although I know there is still a chance it can rupture). I received 2 shots as my HCG was at 3000. I asked the gynaecologist a series of questions, but, honestly I was a bit out of it because everything was happening so fast. I remember essentially asking her if I would bleed out like a miscarriage and she said that it would be different as the body absorbs the pregnancy. I’ve been spotting brown very lightly for over a week (prior to being diagnosed) and still a few days after receiving the shots. My question is, did all of you experience heavy bleeding after the shot? I’ve read some people say they have but I don’t know if this is a normal experience. I’m not sure what to expect in the next coming weeks so any advice or experience would be appreciated.

I’m going through my second ectopic pregnancy. during my first one, I took two shots of methotrexate and it ended up rupturing anyway (levels were very low, about 190). this time around. my levels were in the 4000‘s when I took the shot on Thursday. today (Saturday) i feel super sensitive and tender on my left side where the ectopic is. I didn’t experience pain during my last rupture. just felt super bloated so i am super scared and unsure of how to know if this is a normal reaction from the medicine vs a rupture. anyone else experienced something similar ?

Good evening. what was supposed to be normal lab work today turned into a diagnosis of ectopic pregnancy and i am just so heartbroken… found out i was pregnant on june 14, have no idea how far along i was or would have been. last period was may 4th but i believe i ovulated the last week of may. my hcg levels never really doubled within the 48-72 hours expected except one time, in which they more than doubled, but then the rate they rose began to slow down…. today my doctor pulled a level of 3000, and i will be clear, we never ever found a sac anywhere. not in utero, not in a tube, ovaries, nowhere. i had my first ultrasound on june 22nd, another on june 30, and another today. never found anything anywhere. based on the fact we never found a sac, my hcg levels were not rising appropriately, and my progesterone level of about 5, dr came to conclusion of ectopic. not sure where baby was, but certain not in utero. she talked to me about the pros and cons of waiting and even if i would have waited, she advocated that it seemed very unlikely to be a viable, healthy pregnancy.

we did decide to take the MTX. i have no idea how far along i would have been, and i am so heartbroken and battling this mentally. i have no idea if this was the right choice, and something within me is so confused religiously if i should have accepted the mtx. I am heavily christian and i don’t know, before today, i didnt even know what mtx was, so i am struggling heavily. i ultimately do think i did the best thing for my health and safety since baby was not growing intrauterine, but i cant help but wonder about the what if.

**edit: i’ve read this a few times now, maybe i just needed to rant. my heart hurts a lot

I am looking for some people who have had a succesful pregnancy after a tube removal and those who had another ectopic. I had mine removed in october last year and currently pregnant again. It feels a lot different than my ectopic pregnancy but I have noticed I feel these cramps/stabby pains on the side where they removed my tube. I am trying not to stress too much, I'm super early, only 4 weeks in and I am getting an ultrasound at 5w6 so I just want some peoples real life stories that have experienced the same pains.

I went to the er last night and they for the most part couldn’t see much due to me being early Hcg on in the 800s at 5 ish weeks, all today I’ve had spotting and now back pain should I go back ?

TRIGGER WARNING: Potential ectopic

I am heartbroken went to my ultrasound today at 5 weeks and 3 days and they could not find the gestational sac. HCG was drawn after the ultrasound its 1501

This is my first time to get pregnant after 3 years. my second transfer! PGT tested embryo

10 dpt - 86

12 dpt - 132

14 dpt -257

17 dpt -692

19 dpt -1501

My doctor wants me to come back in 2 days

Over 2 weeks ago I was warned to prepare for miscarriage, which ended up in tube removal from an ectopic pregnancy. This is me sharing my data and experiences, since I spent most of my time on Reddit while in my own in-between. I hope something somewhere in here helps someone one day.

Background: I’m a 38yo female and husband is a 39yo male. We have tried to make a baby on and off since getting married 10 years ago, and started fertility care a year and a half ago (he had two kidney transplants during the first 10 years of our marriage which impacted trying timelines but surprisingly had no impact on male fertility). His fertility is well above average, mine is above average “for my age group.” We’ve been pregnant 4 times now with 0 live births.

Testing went well however we had 4 failed medicated timed intercourse cycles, and my HSG test suggested Hydrosalpinx. This and endometriosis were ruled out with antibody testing and a diagnostic laparoscopy. We progressed to IUI, and had an ectopic pregnancy our first cycle.

Timeline:
Cycle day 13: after using Letrazole, follicles were still not ready.
Cycle day 15: Follicles were 16mm and 18mm, trigger shot provided.
Cycle day 16: (“2w2d”) IUI was done with great sperm quality. Started progesterone suppositories.

4w4d I got positives.
4w6d clinical hCG is 126, progesterone is 28.
5w1d hcg is 368.
5w2d I had brown spotting and lost the only pregnancy symptom I had - gas. Called my fertility clinic.
5w4d hCG is 394, and I’m told to plan for miscarriage. After saying I was having pain in my left hip, they started ectopic protocol (basically just increased monitoring and guidance on what to watch for).
6w hCG is 1069. Pain still in my left hip, uterus is empty.
6w2d hCG is 1568. Pain still is in my left hip but they see a small mass by my right ovary. Uterus is empty. Left hip pain ends up just being an old lady sore hip haha.
6w6d hCG is 3306. Uterus is still empty but mass near right ovary has grown. I’m sent to the ER.
ER: the ER cannot conclude it’s ectopic, saying the mass could be ectopic or a corpus luteum (a cyst that develops and feeds the embryo until the placenta is formed, if I remember right). They say I may be wrong on my dates (I wasn’t!), congratulate me on my pregnancy, and tell me to follow up with my OB. My fertility clinic calls my OB directly who gets me in to see her (I was a new patient with my first scan scheduled weeks later).
7w2d at my OB hCG is 5700. Uterus is empty, there is a mass by my right ovary which is inconclusive but assumed to be ectopic. For personal-emotional and personal-logical reasons, my husband and I choose surgery over methotrexate. Surgery was scheduled for the next day.

Surgery: the plan was diagnostic laparoscopy, and tube removal if ectopic was confirmed. During surgery ectopic was confirmed, and I was already bleeding internally - the leaking of blood likely delayed rupture. My right tube was removed.

Recovery: physical recovery has been so easy! I was prescribed Oxycodone 5mg in addition to prescription-strength ibuprofen and in 24 hours I’ve only taken one of each. Pain is hardly perceptible and it’s surprising I feel absolutely nothing where the tube was removed - discomfort is entirely isolated to the largest 1” surgical site.

Meds: I was prescribed Tesslon Pearls since this overlapped an awful cold and we were worried about coughing after an abdominal wound. I was prescribed Lovanox related to a DVT I developed after a leg injury 9 years ago (a precaution). I was prescribed Oxycodone 5mg, Ibuprofen 600mg, and Zofran as part of standard treatment.

What I wish I’d known:

1. Unless medically unable to have flexibility, you can voice your opinion about methotrexate vs surgery. If time is on your side, research both to brainstorm questions to make informed decisions that make sense to you.
2. The hospital may ask what you want done with your “product of conception.” This was a very emotional question which caught us off guard.
3. The hospital may give you the option to have your embryo tested for genetic factors, and gender.
4. Pain is all over the map! I felt none before and after surgery, and I know that’s not a universal guarantee. Emotional and physical pain heal on different timelines but for the physical part, my bandages and medical records are the only signs anything happened at all.
5. Listen to your body. This absolutely would have ruptured if early and adamant efforts hadn’t happened. I’m also aware that my life-threatening emergency was prevented due to quick and easy medical access, and there are too many who don’t have that available. I’m always open to feedback on what I can do to better support all women (and people) having access to efficient healthcare.
6. A single fallopian tube can drift across to snag an egg from the opposite ovary!

Next steps: We’ll monitor hCG until it returns to pre-pregnancy levels, then will return to IUI treatment - as hard as it is to say “let’s do this again!” I’m in a US state which voted against mandated IVF coverage, though my employer-sponsored plan covers IUI at nearly 100%. We will continue IUI, and have more talking to do before my husband and I decide our opinions about the $31,000+ uncertain investment IVF is.

Anyway this is my objective journey. My numbers and timelines. While emotions exist, I’m still working to feel them through the medical crisis the last few weeks have been. It was helpful for me to type this out and I hope one day someone connects with any of this in a way which is helpful or makes them feel less alone in their own journey.

I’m nearing the end of my second ectopic journey, and I just want to hear similar stories and seek support. My HCG started off high, ~11,000, and I’ve had one Methotrexate injection. Right now as I approach week 5 post-MTX, I’m in the 100’s, and I’m feeling discouraged that the decline is slowing down. I know this is common, but I think I need someone on here to just say “hey, hang in there.”

Background:
1st pregnancy | Oct. 2025 | Ectopic, lost left tube
2nd pregnancy | Jan. 2026 | chemical
3rd pregnancy | Apr. 2026 | PUL, eventual diagnosis of Ectopic in right tube (ring of fire identified on US), treated with MTX

Levels (rounded)
Day 1 of MTX injection: 11,000
Day 7 MTX: 6,600
Day 14 MTX: 2,200
Day 14: extreme bleeding and large clots (one was the size of my palm). Had what felt like were contractions, waves of intense pain in my hips and lower back. Admitted in the hospital for overnight observation.
Day 21 MTX: 400
Day 31 MTX: 144
Day 37 MTX: 136

No one else I know personally has gone through this, and it’s so isolating. They don’t get it that this isn’t “one and done.” I still might have WEEKS of trending these labs, bleeding, pain, uncertainty. I’m honestly at a point that I just want my remaining tube gone. It’s already damaged, why even keep it? Not only am I terrified to conceive naturally again, but it would potentially cause issues if we pursued IVF, so why even keep it?

How much longer am I in this for? Is now the time to go get some green tea? Did you keep your tube or opt for removal?

I’d love to hear your stories and support.

Timeline of events for context
28th May - Positive pregnancy test
29th May - started bleeding, pretty similar to a normal period so assumed chemical pregnancy (I didn’t test again and I know I probably should have)
14th June - sharp stabbing pain on right side of abdomen prompted a visit to the go where a pregnancy test was done that was positive.
16th June - ultrasound scan confirmed no pregnancy in or out of the uterus. Blood hcg was 82 and progesterone was 0.3. Was declared a miscarriage.
Continued to have positive tests but the line was not as dark as the control line so fast forward to today when I was seen again
Another ultrasound confirmed no pregnancy in or out of the uterus, urine pregnancy test at the clinic was negative but blood hcg came back as 485 and progesterone was 0.4.

Clinic have said to repeat bloods in 48 hours.
I am beyond confused about what is going on, I’m terrified it’s an ectopic pregnancy and they just can’t find it because the hcg isn’t high enough to make it seen on ultrasound. Why would a urine test come back negative, apparently checked by 2 nurses who both confirmed there was no second line but yet hcg be 485?

Is there anybody who has experienced anything similar to this at all?

My childhood best friend and sister in law both had their babies this week. The week I was supposed to have my baby. With my three best childhood friends and sister in law. Our babies were supposed to walk behind our houses to the other. I had daycare lined up. And now it’s been nine months, and I’m still not pregnant, and I feel like a different person, and it is so lonely. I know I’m luckier than most, but I feel so fundamentally altered by grief after experiencing this ectopic and then a miscarriage in march. I try so hard to focus on all the beauty and joy around me, but I’m also so tired of crying when I get home after squeezing all of my friends babies, attending babies birthdays, and being told of more and more friends getting pregnant (though I also love baby hugs). How do we get through this? How do I move through it without losing all of myself? How do I still experience joy even though life feels so dang hard? How do I regain my hope that everything will be alright? I’ve been lucky to have not experienced a grief like this and boy does it change you.

8w3d AOG, transv says no extrauterine or intrauterine pregnancy, 3579bhcg. No pain so far. Any opinions?

A had a ruptured ectopic and my right tube was removed 3 weeks ago. About a week ago I was spotting but nothing alarming and OB said it’s normal until my cycle stabilizes. I’m now having right (ectopic) side cramping again. I’m wondering if I’m ovulating because I also have some vaginal mucus, but I’m confused as to why I’m ovulating on my right side again if this is the case. Anyone else experience cramping after their tube removal?

Hello, I am looking for someone who has had a similar experience to me in search for some answers.

I am currently 6 weeks 3 days pregnant. This is my second pregnancy with the first having been a healthy one. I have been tracking my menstrual cycle and ovulation, so am quite confident that the gestational age is accurate.

During the 4th week I experienced light pulling pains across my lower abdomen and had one very light spotting. Wanting to be safe than sorry, I referred myself to the local Early Pregnancy Assessment Unit (EPAU).

At 5 weeks 1 day, EPAU carried out a transvaginal ultrasound but they were not able to see anything, not even the sac. I was diagnosed with Pregnancy of Unknown Location and had a blood test that day and one more 48 hours later. My hcg levels were 7058 and then 13,605, indicating a developing pregnancy.

Around a week later at 6 weeks 2 days, I went in for another transvaginal scan and blood test. The scan showed nothing again but my hcg levels were at 34,584. The consultant told me that we should be seeing something with such high hcg levels and suspected the pregnancy to be ectopic, even though no unusual growth could be found on the ultrasound.

On the same day, I was rushed in for an emergency laparoscopy. I was in surgery for 4 hours with 3 surgeons, as they were not able to find the foetus. They searched up to my kidneys and nothing could be found. None of the doctors had ever come across a case like this.

I have another ultrasound booked in for a week’s time (at 7 weeks 3 days) to see if we can find the foetus in the uterus.

I am feeling terrified that if this turns out to be a viable pregnancy, the laparoscopy and all the chemicals I have had pumped through me has now harmed the foetus. I am also terrified that nothing will show up on the scan again, and worry about how long the search will go on for and what it will entail.

I am feeling extremely guilty, as I feel I was overly cautious in referring myself to the EPAU with such mild symptoms. A part of me feels it would have all been okay if I had just waited for the usual scan provided around 10 weeks. I feel the laparoscopy was an unnecessary and harmful intervention.

My questions are:
Has anyone had a viable pregnancy which did not show up at 6 to 7 weeks?

Has anyone had a laparoscopy during their first trimester and carried on to have a healthy baby?

Has anyone experienced missing foetus like I have, and if so, where did you end up finding it?

I would appreciate hearing from anyone with similar experiences. Thank you.

A week ago my first hcg bloods were 360 then two days later 450 then next day 220 next day 106 then two days later 17 and then two days later 7 anyone else had them go down like this good