r/EctopicSupportGroup

Hi! I am undergoing IVF and just had a Frozen Embryo Transfer that failed. My doctor thinks it's likely ectopic. My first beta was 2.2 and then 72 hours later it was 6.69. I go back tomorrow for another beta but the nurse at my clinic mentioned the possibility of taking Methotrexate. That seems like a heavy duty drug and it seems wild to me that they would suggest it based off beta levels alone.

I want to properly advocate for myself tomorrow after the results of my beta comes back. Should I be requesting an ultrasound before agreeing to methotrexate? Are my numbers low enough I can ask to skip methotrexate and just do monitored betas? Any advice would be helpful as I feel completely lost.

Thanks!

I had 1,132 HCG on Sunday at 2am. Tuesday at 11am I had 3,532 HCG. That represents a 212% growth rate in 57 hours, equal to a 161% growth rate in 48 hours.

No gestational sac seen at either time.

I understand this could be ectopic. However, I understand that a 161% growth rate in 48 hours is almost unheard of in ectopic pregnancies. At the same time, I understand that 90% of pregnancies once they reach 3,500 HCG are visible.

I am going back for a scan and bloods in 48 hours. Absolutely no pain or blood.

This feels like a special kind of torture, and I don't know what to think. Does anyone have any opinion on this situation?

irregular periods/ovulation. Clearblue Ultra Early tests were negative on August 7th then very faint positive August 9th.

I had my left tube and a small piece of uterus removed on 8/6. This morning I still tested positive for pregnancy. How long will this go on? I’m scared because before this pregnancy I had a miscarriage that was incomplete and I needed a D&C.

My doctor is phenomenal and luckily I see her later this week, but my mind and my body and my soul just wants to be done with this nightmare.

Hey everyone! I am living in a big fear right now. This is my third transfer (two transfers have already failed) and I got strong beta HCG, 269 at 9dpt5d and 1080 at 12dpt5d. But I am having left side heaviness and pain going through in my leg since 6dpt. just to add I have sciatica issue on this side but it gets sensitive in very rare occasions and goes to normal on its own. but from last week it’s very bad.

I had ectopic pregnancy previously from my natural pregnancy where I have lost my right tube and honestly I do not remember if I had any symptoms for that one. but I am very afraid at this time because of this left side shooting pain in my leg and sometime I feel in my groin area that this one might end up in ectopic too.

Could you lovely ladies gives me some hope, stories or suggestions based on your experience? My scan is schedule next week and I am so anxious right now that I can not focus on anything else.

I (25) an ectopic pregnancy surgery last week (Aug 11). My right fallopian tube was removed along with a cherry sized ectopic sac. I was 8 weeks pregnant. I don’t really know how to cope with this or if I need to really.

To be honest, the reason i found out was because I was in the process of receiving an abortion. I was crossing the border to Mexico for treatment. I found out that I was pregnant around 4 weeks (July 14). From then I got an ultrasound 2x 2 weeks apart because they wanted to confirm that it was a normal pregnancy where the sac was in the uterus. Both times i went, she couldn’t find the sac. My hCG levels were tested to be ~19,822 mIU/mL at 6 weeks. I was told to come once more a week later for definitive confirmation for treatment. Again, no sac was found in the uterus. Then I was referred to another gyno for a second opinion. He claimed it was ectopic in my right ovary. The gyno advised me if I had insurance, I should immediately make an appointment with the hospital in the US for ectopic treatment. Apparently, it wouldn’t be safe for me to in Mexico. I appreciate her honesty.

I made an appointment for the next day with the gyno listed on my insurance in the US. He told me the basically the same thing. There’s no sac in the uterus but cant find it either. My hCG levels indicate that a sac should be developed already. It might be a miscarriage (which I hoped) or an ectopic pregnancy that calls for surgery. He refers me to the hospital to be placed in postpartum.

Tbh i feel like I’ve been fine emotionally/mentally through this whole experience. Going to a new country by myself seeking for treatment. Finding out it’s ectopic most likely. And i probably need surgery. I wasn’t scared or anything. I felt like it was a procedure to get done but annoyingly dragged out. Like I just want this to be over with.

It all changed in a second. I started sobbing in the car on the way to the hospital. I was stressed. Probably because this is far more serious than I anticipated. It was supposed to be a normal medicated abortion but now has turned into an ectopic pregnancy that calls for surgery. I never had surgery before. Never got admitted to the hospital. On top of that I’m by myself. I can’t tell anyone about it fearing that I would be judged and shamed for. Normal people get pregnant just fine. How tf did you mess that up? I feel like this could’ve been prevented. That I was too negligent. That its punishment because I wanted to abort it. But im not religious enough to believe it.

I’m crying and laughing. I’m insane. It’s karma but karma isn’t real. It’s just the short end of the stick. I’m just unlucky. Maybe god is mad at me because I’ve sinned too much. BUT IM NOT RELIGIOUS. So why do I keep thinking about God? I didn’t want it anyways so why do I feel bad? I feel guilty but mad at the same time. It was supposed to be a simple and safe abortion but my body literally said no you don’t deserve a fallopian tube. Does this even make sense?

I did get surgery. I had my right fallopian tube removed as I said before. They said it was already rupturing and if I waited til tomorrow I would’ve had major complications. We caught it in time luckily. I stayed overnight for pain monitoring. But everything went well.

Other than the meltdown before the surgery, i don’t really feel anything towards the pregnancy experience nor the loss of a potential child and fallopian tube. I know it was a life threatening event. That i was lucky we caught it in time. I know the risks and complications for future pregnancies. I know it’s not going to be easy the next time around. It’s going to be actually pretty scary… but I’m not technically scared. I’m not sad either. Like I lost a whole fallopian tube. I felt all these raging emotions before the surgery but now I don’t feel anything. I feel normal.

I’m sorry if this doesn’t make any sense. I have a hard time expressing my thoughts. I also don’t know the point of this post either. I guess I just wanted to share my experience with someone

I've been processing the grief, anxiety and fear of my recently diagnosed ectopic. So many hugs to everyone here. The physical and emotional pain of this whole ordeal has really tested me.

I just took my first dose Methotrexate last Thursday. My HCG was 587. My husband and I have a big milestone anniversary trip planned for a month from now - I'm preparing that we will probably have to cancel :(

How long did it take for your HCG to reach 0, and what did your numbers look like week by week? I’d love to see examples of how HCG levels progressed after methotrexate, if anyone is willing to share.

Currently awaiting surgery for my second ectopic and will loose my last standing tube too. But did you ever find out why you had an ectopic pregnancy in the first place?

I would be 6 weeks pregnant now, and I am so scared I’m having an ectopic pregnancy.

I started bleeding the day my period was due, but it was much lighter than normal. A couple days later I had a positive pregnancy test. Because of the bleeding, I went for an ultrasound that showed nothing, but I would have only been 4 weeks pregnant then.

The bleeding has been light but ongoing for 18 days now. It changes between dark brown to pink to bright red, but only enough to use a liner (I guess less than 5 teaspoons of blood per day). I don’t have any pain.

I had another ultrasound yesterday, when I would have been 6 weeks pregnant. Again, it showed nothing. The doctor thinks it was an early loss, but the ongoing spotting is scaring me. Hcg was tested yesterday and was 96. I’ll check again tomorrow but I’m just so nervous. Help?

I am currently 6w4d pregnant, I have been told that I have a c section scar pregnancy 😢 tomorrow I am to go to theatre to have a guided ultrasound hysteroscopy to remove the pregnancy... I am absolutely devastated, terrified and am wondering if anyone on here has had this down before? I am in the UK and I genuinely can't seem to find anything that has women's experiences. Any help or advice or literally information will be so appreciated. I am losing my mind... Especially when they said that if something goes wrong they will have to remove my womb!

My brain seriously can't take all this and to be given a theatre slot the day after your finding this out is just stressful!

I had an ectopic pregnancy in the right tube of January this year - luckily had nonstop bleeding that cued me in immediately that something was wrong. It was caught early enough and successfully treated with one round of MTX. It did take quite some time to get back down to 0 HCG (started at 500 something the day I got MTX). I did not get my cycle back until the end of March.

Elected not to have further testing performed. I had no risk factors for an ectopic and 2 prior successful pregnancies without difficulties conceiving. Just wanted to see what would happen. Successfully conceived on the 3rd cycle.

Waiting for the placement scan at 6 weeks was a killer mentally. But the little dot was in the right place and the tech was fairly certain that I had ovulated from the right side (and most presumably traveled down the right tube). I'm now into my second trimester with everything looking well thus far and thankful that I work right next to the OBGYN with all of the appointments and testing this year...

hi everyone

im looking for same insight into similar experiences . My hCG levels have dropped really far, but my most recent bloodwork showed my hCG has been hovering/stalled right at 8 for a week. Over the last few days, I’ve started having light bleeding/ with mild cramps (feels like a withdrawal bleed or first period after hitting zero). not sure if it’s my period. my doctor isn’t too concerned but she wants me to do another test she said it is common for it to stall but another blood test should help.

I’m feeling very anxious about this can someone pelase tell me they have experienced this too? Appreciate it

I 23F (unmarried, living in South Asia) have been reading this sub for the past four weeks and wanted to share my story because it feels a bit different from the posts I usually read on here. Hopefully it brings comfort for someone going through a tough time as well, knowing you aren't alone.

I’ve been with my partner for 1.2 years (my first relationship). Before getting intimate, I decided to visit a Gynac for birth control and was prescribed pills (saheli) and had been taking them for two months alongside standard barrier methods (condoms). But in June, my period was delayed. A beta-hCG test came back at 14, a grey area. As the numbers started climbing, it turned out I was pregnant.

At 23, in an orthodox community, living with parents the shock, I went through. It wasn't just one contraceptive method that failed, but two.

My hCG levels kept rising, but in a sluggish manner: 24, 136, 716, 920, 650, and then 600. Because the numbers weren't doubling as expected for a viable pregnancy, the doctor recommended a trans vaginal ultrasound (TVS), which showed a pool of blood in my left fallopian tube.

I had already experienced a tubal abortion. Because the hCG levels weren't dropping quickly enough, my doctor planned for a methotrexate (MTX) injection the following week.

I thought I had time, but the very next day I fainted and experienced severe shoulder pain, on my right side. Living with my parents, I couldn't tell them what was happening. I spent the night in bed in immense pain, scrolling through this subreddit. The next morning, I rushed to the hospital in hiding. The tube had ruptured, and I had emergency surgery in July to remove my left fallopian tube. Thanks to a supportive medical team, I managed to keep the ectopic pregnancy private from my parents, telling them it was a ruptured ovarian cyst instead.

It’s now three weeks post-op, but the past 2.5 months have been the most stressful period. I haven't fully processed being pregnant despite using dual protection, losing a tube, worrying about my future chances of pregnancy and constantly worrying my parents might find out especially now with the ongoing insurance claim process.

It just feels endless, and I feel completely lost and alone in all of this.

TDLR: At 23 in South Asia, I had an ectopic pregnancy despite using pills and condoms. My tube ruptured, requiring emergency surgery. I hid it from my conservative parents, blaming a cyst. Three weeks post-op, I feel lost, fearing fertility loss and parent discovery through ongoing insurance claims.

#Use of AI for better readability.

Hi all! Just looking for hope as many of us here do. Is there anyone who had just one tube left, tried naturally, and ended up with a success story? I'm so eager to know how many rounds of trying it took others before getting that healthy intrauterine pregnancy ❤️ I am around my 4th month of trying again post-surgery. Thank you!! 😊

I had period like bleeding on 24th/25th July and a faint positive pregnancy test on 26th July. Long story short, it was ectopic and I'm awaiting pathology to confirm whether it was ovarian or a 'tubal abortion', as findings during surgery gave these two possibilities. I had internal bleeding in my abdomen, hence the surgery.

Surgery was on the 10th August and I have bloods tomorrow to confirm hCG is still dropping appropriately. It dropped from around 2500 the day before surgery to 1500 the day after surgery so I'm hoping for a big drop tomorrow so my body can start to move on as soon as possible.

However, since the bleeding in July, that came at the time my period was due exactly, I've not had any bleeding whatsoever either before or after surgery.

Comments generally while I was being investigated were that my uterine lining was thin, presumably from the period like bleed in July, so I wonder if I'm unlikely to have any until my lining rebuilds and then sheds in my first period?

I've had two previous miscarriages that came with lots of bleeding, so this is very different and I'm not really sure what to expect.

I have had LOTS of creamy while discharge today, nothing concerning, but way more than I've ever seen before at any point.

Just wondering if anyone has had a similar experience of no bleeding at all, and what I might expect in the coming weeks so I'm not caught out? I'm working from home for a few weeks when I go back, but can't stay home forever.

Thanks in advance.

I finally was brave and feeling carefree enough one random day to try again nearly 7 month post last MTX. I got pregnant on the first attempt last time, and that first pregnancy was ectopic. People try to say stuff like “at least you know you can,” or “it’s really lucky you got pregnant so fast.” Ok… well, it ended up not being lucky at all, and very traumatic if anything.

Anyways… I’m currently trying to balance a load of blind hope that everything will be ok but also paranoid at every little sensation in my lower abdomen. I feel like I’m operating on a crazy level of delulu to get me through finding out if that test will be positive or not. At the same time, the potential for another ectopic or loss is dormant deep inside, and I’m scared for it to come out. Thank god for SSRIs and therapy and a great partner. But WOOF. I just needed to vent and knew you would all understand.

I got a very faint but positive pregnancy test 7/26. The next day, the line had darkened a little, but I felt something was off. I was already spotting heavily. I asked my doctor for blood work.

hCG 7/28: 21

hCG 7/30: 68

I didn't feel relief when those results came in. I still felt like something was wrong. Spotting with clots on and off. My best friend told me to stop taking at home tests and to enjoy being pregnant. I didn't listen. The lines didn't darken. I again asked for more blood work.

hCG 8/3: 84

I knew at this point the pregnancy was not healthy. Non-viable. A chemical. A miscarriage. My doctor's office called me. They told me "it's so early" and "try not to worry", we'd wait until the next results came in. I stopped bleeding.

hCG 8/5: 68

I felt like this was just confirming what I already knew. My doctor's office said "your levels continued to fall. I'm truly sorry. I know this isn't what you wanted to hear." That's literally all they said. Nothing about follow up, about what to expect, what to look out for. I asked "do I need to follow up and can I try to get pregnant again right away?" I was told no follow up needed and to wait a cycle before trying again. I had plenty of cheap pregnancy tests to spare, so decided to take them every other day to track my hCG down. I did this so I'd be confident that the next time I got a positive it was a new pregnancy.

On Monday 8/10, I started spotting again in the evening. That morning I felt like the pregnancy test hadn't gotten any lighter- thought maybe I had just been seeing things. Reading into it too much. But when making dinner, I had sudden severe cramping on my left side. I called the on-call doctor in tears concerned about an ectopic. She said since I was having diarrhea the cramps were probably GI related, and she wasn't concerned about the still positive pregnancy test. "hCG can hang around for a while." My cramps eventually subsided and I went to bed. Maybe I was just paranoid.

More bleeding in the morning. More bleeding the next morning. On Wednesday I took another pregnancy test and it was blazing positive. The most positive test I'd had for this pregnancy. I knew something was wrong. I messaged my doctor asking for blood work and an ultrasound. They told me to come in for blood work. When I was there, I again asked for an ultrasound. They eventually agreed to schedule me for an ultrasound later that day and a telehealth appointment with the doctor a few hours after that. My husband held my hand and made me laugh while we waited.

On the call with the doctor (a different doctor than the one I spoke to Monday night), she had me tell her the whole story. She asked what side I had had that cramping on. I knew at that moment that this was actually ectopic. I wasn't crazy. I wasn't paranoid. I had known and listened to my body and essentially caught it myself. She told me it was in my left tube, 2cmX2cm. Small. She gave me the options and I asked what I wanted to do. I wanted to wait until the blood work from that morning was back.

hCG 8/12: 457

I opted for methotrexate, had the injections 8/13. Still concerned about a possible rupture. Every shift in my body brings me fear. I'm processing all of the feelings. Grief, anger, gratefulness, confusion, empowered, helpless. I want to have a conversation with my obgyn office. Tell them that I'm not sure I feel safe at this practice anymore. Ask why my hCG wasn't tracked to zero. Why my call Monday night was brushed off. Why I had to ask multiple times for an ultrasound.

Ultimately, I feel that I'm still in shock. I have a lot to process. 3 months minimum until we can try again. I'll likely use that time to seek therapy.

Dx with ectopic july 23, given MTX july 24th and discharged home from hospital. Hcg has always downtrended well, 4300, 3400, 2100, 1100, 322, then 262. However, all along having random sudden bursts of the most horrendous pains. The worst cramping, ectopic right sided pain radiating into back, lightning bolt sensations in vagina and rectum and simply couldn't escape the pains. Bleeding would ramp up during, then let up in between on my "good days". Though I was constantly tired, dizzy, weak. I would go a few days in between these pain episodes but when they struck they came out of nowhere and were completely debilitating. Even oxycodone did nothing. I was seen in the ED for one such episode August 2nd and told basically my US at that point was unchanged, and I was likely having mass effect and reabsorption pain and it was normal.

So the following several episodes i toughed out at home thinking it was still normal until the latest caused me to pass several clots and tons of blood and at this point i was at the 3 week post treatment mark. So i went in to the ER thinking i possibly had retained clots or tissue. Nope, my ectopic over doubled in its original size, despite the hcg downtrend, and needed same day surgery to remove my right tube.

All this to say, even if your hcg is going down....if you're still having significant pain events in the weeks following your MTX treatment advocate for repeat US as well. I was lucky to have not ruptured but the delay in finding this caused a lot of scarring to my ovary and uterus wall. Prayers for everyone walking through this. After a month I can finally close this chapter definitively and start to heal and move forward.

Looking for song recommendations to listen to that helped cope after your loss. Just has my third loss since Jan 2025, this time ruptured ectopic.. just trying to blast some music that feels healing/relatable…

To whoever is reading this, hi! It’s been a rough few months and wanted to share 🤍

I found out I was pregnant on the 3rd and was in surgery to have it removed on the 10th. I had one day of hope and happiness, but I had this horrible gut feeling that something wasn’t right.. From Friday to Monday my HCG levels went from 4000 to 5000 and was strongly advised to go to ED and have everything checked out and so I did.

I was so scared and worried about my pregnancy, my boyfriend stayed strong for the both of us. Once I had a room and mentioned my HGC levels, the nurses face dropped and said she would get someone from gynaecology to come see me. She then told me it was most likely ectopic and I would need to have an ultrasound to confirm it… which it did, and my heart broke. I was in agony from the vaginal ultrasound and numb from the news.

Later the surgeon came and spoke to me about my options, because of how high my HCG levels were surgery was the best option and I’m grateful I chose that route. That night the internal bleeding started, but didn’t have surgery until 10am the next morning. Supposed to be keyhole surgery, which they started but with the bleeding and finding out it was planted on my uterus muscle they decided to do a c section type cut on my stomach. They removed part of the muscle and my left tube.

I woke up in a lot of pain, drowsy but crying to the nurse about how much it hurt. It was then she told me that they’d had to do open surgery so I would be in more pain.

It’s been two months now since the surgery and without my baby. It’s been hard to say the least, it was such a traumatic experience.. I went into this survival mode while I was in the hospital, didn’t want any visitors as somehow it would make things feel more real and I was just trying to get through it.. I really don’t understand why I did it but it’s what I needed to do.

If you read this far, thank you 🤍