r/Humira

Hi all, I’ve been on Humira for Crohn’s since Oct. I’ve always struggled with acne and would get occasionally cystic pimples before this. However, since being on Humira things have gotten weird I guess? I’ve been getting more frequent cystic pimples (mostly my neck, around my ears and on my back/shoulders). They get incredibly painful now and often don’t go away for a while. I try my hardest not to pop them.

The current situation is I have one where my shoulder meets my neck. It popped on its own, which was unusual. Did my typical treatment routine. A scab formed (also a new thing if they pop now) for about a week. Then one day I noticed it felt painful again. Checked and it was red and swollen. It progressed quickly, getting more painful til my whole shoulder and side of my neck hurt. Once I realized I had swollen lymph nodes and spiked a low grade fever, I went to MedExpress.

It measured at 6 cm x 4.5 cm. The PA didn’t want to lance it, sent me home with Bactrim and a derm referral. I had to hold my Humira dose which was due the next day. It’s started draining some with heat, but still painful obviously. The derm can’t see me til next Thursday so I may go back to MedExpress.

Anyone else deal with skin stuff like this while on Humira? What did you do if so? This is the first time I’ve gotten an abscess that wasn’t in my intestines so I’m honestly freaked out

Has anyone used them? I recently just got prescribed Humira by my GI (my first biologic) and it was sent to CVS Specialty Pharmacy. I hadn't heard anything from them in over a week, so I called today and CVS told me that they can't fill my prescription because I have Anthem Blue Cross insurance and Anthem is pushing everyone newly prescribed specialty drugs to Bioplus because Bioplus is owned by Anthem. So now I have to call either them or my doctor and get my prescription transferred over even though Anthem had already given me pre-authorization through CVS.

Do any of you use Bioplus? And if you do, do you also have Anthem insurance? I'm partially worried about going through a pharmacy owned by my insurance company. I already signed up for the Humira Complete Savings Card and am wondering if they'll take that too.

I take Humira for Crohn’s disease and ever since I started taking it (about 5 years ago) I developed rosacea. The timing is suspicious. The rosacea is resistant to all treatment. The only thing I haven’t tried for it over these 5 years is Accutane. I have pustules all over my face and severe redness. I’m trying to figure out if Humira is possibly the cause since it gave me psoriasis which I’ve just been dealing with and treating topically however the rosacea responds to nothing. Anyone else?

**Not seeking medical advice**

I already spoke with doctor and pharmacy, but curious about personal experience.

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1. When sick do you pause biologics? (I am on generic Humira.)

2. How long did you pause it for? Did you start a new “schedule” or resume the same day/schedule? I take mine every 2 weeks currently and was due on Sunday and today is Tuesday still sick.

I have a very severe case of Behcet’s effecting most organs and I started Cyltezo which is a biosimilar of Humira 6 weeks ago. I’ve done 4 injections so far and all my symptoms have been amplified, no relief with anything. My doctor put that I had RA to get it approved through insurance since it’s not a conventional treatment for Behcet’s. I asked her about starting with a loading dose but she refused and said my insurance (Cigna) probably wouldn’t cover it. How many of you are in the states and started with a loading dose higher than 40mg? Did the insurance give pushback on it?

I took my first load dose yesterday of 160mg, eight hours later I had a temp of 102.7, diarrhea, and throwing up. It lasted all night and I’m still down and out.

Anyone else experience anything like this when they started?