r/Vitiligo

Howdy fellow Vitiligans. I just got diagnosed last week and so far the only discoloration I have is on my hands and fingers. I'm applying Opzelura twice daily but I find it very hard not to smear the medication after applying. I have not been able to find reliable information about how long the medication has to stay undisturbed on the skin before it's ok to wash my hands, for example. I'll ask my doctor when I see her in a couple of weeks but wondering if anyone has had the same issue.

I dye my white eyebrow to black but my non vitiligo eyebrow looks thicker, blacker than other one. Should i pluck my eyebrow or what else can i do? Thank you

Hej, Fitzpatrick typ III

Har varit hos ett par läkare som inte vill ställa diagnos, några säger att det är pityriasis, några säger vitiligo, några säger hypopigmentering. Så jag kommer att försöka köpa en handhållen nb uvb-lampa.

How do you use uvb devices in combination with protopic?

Undrar vilka apparater folk i Europa använder? och hur ser ditt schema ut?

I am 44yo F. I recently developed vitiligo. My dermatologist told me that thyroid issues are more common in people with vitiligo.

I went to my PCP and had labs drawn. I found out that I am iron deficient with a ferritin of 2.

Additionally, I was told I have Hashimoto thyroid disease.

TSH 2.494
T4, free 0.79
TPO 186

Thyroid Ultrasound Next week.

I really don’t know what to think about any of this. My doctor offered to put me on a low dose of Synthroid-if I was having symptoms. Which I find interesting, since my TSH and T4 are normal.

I am trying to process all of this information. Any advice would be appreciated

I got vitiligo on my face a few years ago. Under makeup, it's undetectable. But I was recently bare faced around family I don't see often and THREE family members made comments about my skin: "What's on your face?!"

So, I did what a lot of us do: I gave the honest answer, a joke answer, and a distraction answer.

Afterwards, I went to my bedroom and cried. I hate myself for being sensitive and superficial. I try to be grateful and think about people dealing with more in this world...

How do you all deal with (or don't) when asked about your skin?

Hi everyone,
I’m a 33-year-old woman and I’m honestly feeling overwhelmed and hoping to hear from people who may have been through something similar.
A little background:
I developed vitiligo when I was around 8 years old. It was fairly stable for many years but has progressed over the last couple of years. That has already been emotionally difficult to accept.
In 2021, I had a pilonidal sinus that required surgery (cleft lift). Thankfully the surgery was successful, although the scar still occasionally becomes sore or burns with friction, especially from underwear.
My husband and I have been planning to start trying for a baby soon, so I’ve been focusing on improving my health and losing weight.
Around April of this year, I started getting a small, tender recurring bump on the left vulvar/groin area (hair-bearing skin near the labia). It seems to flare after my period or after sex, then partially settles, only to come back again. I’ve probably had about 4 recurrences.
Initially I was treated with oral antibiotics and topical antibiotics. The bump improved, but it kept coming back.
Recently I saw a dermatologist who feels this may be hidradenitis suppurativa (HS) and is concerned there may be an underlying tract. She started me on:
topical clindamycin
benzoyl peroxide wash
and referred me to an HS specialist for a surgical consultation.
I also had a pelvic MRI, but I’m still waiting for the official results.
The colorectal surgeon previously examined me and didn’t find evidence of an obvious anal fistula on examination, but the dermatologist thinks the issue may be limited to the vulvar skin.
At the moment:
I don’t have fever.
No significant drainage.
No obvious redness or swelling.
There is still some firmness and tenderness.
Sometimes I get a burning sensation in the skin around the vulva/perineum, although it comes and goes.
Emotionally, this diagnosis has completely shaken me. After dealing with vitiligo and previous pilonidal disease, I feel like my body keeps giving me new problems just when I start to recover from the last one.
I have a few questions:
Has anyone had early or mild HS that stayed stable for years?
If you had a small sinus tract/tunnel, were you able to manage it without surgery?
Did weight loss significantly reduce your flares?
Has anyone gone through pregnancy with mild HS?
If you eventually needed surgery in the vulvar/groin area, were you able to return to a normal sex life afterward?
I know Reddit can’t diagnose me, and I’m waiting for my MRI and HS specialist appointment. I think what I’m looking for most right now is some honest experiences—especially from people who have been able to live normal, fulfilling lives with HS.
Thank you for reading.

I don’t want to give her exact age due to privacy but she is under 12 years old and was diagnosed at 18 months, that’s the first and only time we have gone to a dermatologist. She has never asked for it to be treated so we’ve never done anything for it. It doesn’t bother her, she has only asked about her “white spots” a handful of times. Her pediatrician knows that she has it, and makes a note of the spread every yearly appointment. However, I was just reading that due to the autoimmune aspect some doctors recommend a yearly blood test to check for thyroid issues. I’m not sure if that’s something I should be doing now, or wait until she starts to be exhibiting symptoms? The reason I am asking you all is due to the fact her pediatrician has never brought this to my attention so I figured your personal experience would be more helpful.

https://preview.redd.it/8w62o1rq9oah1.png?width=1137&format=png&auto=webp&s=36d67dde10d3f4923bbbefb6567b4a05979d1924

Using one of my arms as a control to see if it's doing much. Applied inconsistently (missing a week or two at a time) due to travel. Low key do not love this wax-based ointment as I have a lot more surface area to put it on but no good way to do it as it does not absorb.