r/Vitiligo

Hello , when you have you first spot , when does it start to grow outside ? (According to your case)

And also i ve heard some people have a spot and nothing else for years and years and years , before it s develop, is it true ? And is it common?
Thank you so much !

I did not develop vitiligo until I was 63(! ), after a very stressful time. My parents did not have it, but a niece does. I have it on my face and neck , and a little on the back of my left leg. I started using Opzelura but I’m finding repigmentation looks worse— just like melasma patches or large freckles. A dermatologist suggested I use hydroquinone for the brown patches. I’m pretty fair skinned. I’m thinking of giving up on the Opzelura. I look okay with make-up. Has anyone else experienced this? Does anyone have advice?

Hello like the title I'm wondering if it's worth trying opelzura. I'm in Canada and I believe it can be prescribed from family doctors now but open to corrections. I live in an area where there are no dermatologists taking new patients.

I was prescribed protopic on 2 occasions but it doesn't seem to do much maybe a freckle or two but not more after years of trying.

The patch is on my forehead and I've had it for over ten years now. Any hope?! Worth trying?

Thanks!

I developed vitiligo at 30 years old and have had it for a year now. Almost my entire face, underarms, and hands. It came so suddenly and spread rather quickly 😵‍💫 and to be honest although it’s been a year already, it’s still so hard accepting my “new skin”…”new face”. After living 30 years with my old complexion it’s hard to get used to this new one . (Hoping someone understands what I’m talking about lol) but I’m trying very hard to love myself still. Mine came around due to stress and ppd. My dad also has vitiligo so pretty much hereditary as well. According to my dermatologist I basically had the gene dwelling waiting for some stressful event to trigger it. I also have 3 kids and I want to set a good example for them and show them there is nothing wrong with vitiligo but I also want them to take care of their mental health and take life easy, in case it’s the same situation with them.

I’m just venting here.. also welcome to some words of encouragement 🥹

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This is not an educated answer.

The summary for Vitiligo through clinical trials is this:

Why You See Warnings for Cancer and Infection
Even though the vitiligo trial data is highly reassuring, regulatory bodies like the FDA and EMA still require upadacitinib to carry prominent warnings for serious infections, malignancies (cancer), and blood clots.

This is because these risks are recognized as a class effect of Janus kinase (JAK) inhibitors. The broader class warnings are primarily based on long-term data from older, higher-risk patients who took JAK inhibitors for rheumatoid arthritis, rather than the younger, generally healthier population typically enrolled in vitiligo trials.

Also reported in the clinical trials:

Serious Risks & Notable Absence in Trials
• Serious Infections: Occasional reports of localized or systemic infections (such as bronchitis or localized complications) that generally resolve without requiring drug discontinuation.

**•	Major Adverse Events**: Phase 3 48-week evaluations reported no cases of active tuberculosis, opportunistic infections outside of herpes zoster, major adverse cardiovascular events (MACE), venous thromboembolic events (VTE), or gastrointestinal perforations.   

Wie wil dit voor me meenemen uit Azië of Egypte of een ander land waar ze dit aanbieden.

Het is een crème tegen huidaandoeningen die in Nederland heel lastig te krijgen is en extreem duur is. In India en Egypte kost het tussen de €50 en €80 per tube.

Ik ben bereid om er naast de aanschaf een passende vergoeding voor te geven.

I have vitiligo. I have had it since when I was 12 (I'm 21 now). My parents (my father, specifically) didn't like it. So we tried so many different things. I'm brown sooo it's very evident.

I hated it. I've got it on my left leg. Just restricted up to my hip. And look, I was depressed at that time. I hated looking at my leg. I gave up competitive swimming, I hated wearing anything that could show even a bit of my legs. People would come up to me and recommend me things or look at my leg and sigh.

I grew up, no one my age had told me anything bad abt it.. except for a girl who was like "no one's gonna marry you".

I've gotten over it, mostly. I actually quite like it now tbh.

But my father told me sumn tday and it's been on my mind quite a bit. And I got onto this subreddit cuz I like seeing other people's vitiligo.

But damn I got on here after such a long time and almost everyone's only asking abt treatments.

Now I know that it's not about me but it kinda makes me.. sad? Disappointed? Like is having vitiligo really that bad?

I do not mean to belittle people's experiences.. ig I just wanted to b told its ok to have vitiligo ig. Cuz that is how I feel. And I hope everyone can see how it's alright to have vitiligo. It's ok to accept it to b a part of ur body

Hey, so two weeks ago I noticed spots on my face, brighter in color than the rest of my skin. First thing that came to mind was vitiligo simply bc I know my grandma had it, I was always scared to get it due to being born with weird skin condition where half of my neck, upperback, right arm and chest is lighter than the other half (it’s not vitiligo tho, it never grew more, skin still tans and the difference between the colors is barely noticeable)

I don’t know other conditions that would turn your skin white, but im still in the denying mode, hoping its not that. Even tho during last two weeks I noticed a big spread of spots on my face here’s what I have problem with, I suffer from rosacea and a lot of dryness, itchiness and bumpiness on my skin, on a daily basis my cheeks are pink if I’m having a good skin day or angry red on bad days. I read that skin with vitiligo is still a normal skin, prone to things like acne, eczema, getting flushed etc. Spots that appeared on my skin are mostly visible bc they’re not red at all like rest of my skin-.- there is less contrast between my normal skin and these spots than between them and flushed skin. It’s like my cheeks are flushed everywhere but there and that makes them visible. Is this normal?

Hi, i went to the dermatologist due to an unusual pink-colored patch on my face a few days ago. She used some kind of light (not wood light test? The devices look different), and basically, one side of my face practically lit up like a christmas tree. Now under the naked eye one can only see a round pink patch on my face. It looks like ringworm, but it is not.

She said i have vitiligo. I wish i could have asked her questions, but she was on a tight schedule. I will see her in november though. She prescribed me some medicine (tra something?), and i am still waiting to see if my insurance approves it or not.

That being said, i am a bit embarrassed about it. I do not mind having vitiligo, but people do stare at me for having that pink spot on my face. If it clearly looks like vitiligo, no problem. Like i said, it can pass as ringworm, and that is more embarrasing to me.

Any thoughts about that? I just wanted to talk about it with somebody so i won't feel a bit alone in this.

I hate the fact that being in the sun has become so "stigmatized" now. My dermatologist told me to stay out of the sun as much as possible, and the fact that the internet tells you it is super harmful, causes cancer and ages you quickly etc is also a fuuun bonus. I just can't seem to wrap my head around how the sun could be THAT bad for you?

Along with that, i can't decide whether to stay in the shade or enjoy sunbathing while on the beach because i don't know if i want to make my spots more visible or not.

I feel like no matter what i do i will equally regret it and i just hate that so much thought goes into a simple activity such as going to the beach.

I have recently started to buy tacro from an indiamart supplier rather than from my pharmacy and it has been a great decision. Usually I paid around 350$ cad for 60 g of the iontment now I can get the same ammount for around 10-35 bucks. It has been life changing and has made my life a lot easier. I would highly reccomend it specially if you live in the west (although you might have a chance of your package being seized)