r/Vitiligo

I Had to do a lot of the legwork, but I did some research and found out that my insurance company covers UVB equipment for vitiligo. I had to actually google the medical code for it and ask my dermatologist to write a prior authorization and they contacted a phototherapy company and got them to write the prior authorization and finally after a couple of months of back-and-forth they are sending me something in the mail covered by my insurance! The dermatologist said they have never done that before, so I’m assuming most people don’t know about it and won’t be informed by their doctor, so I wanted to share here for anyone who is interested in trying it

⚠️NSFW content: I've had vitiligo pretty much all of my life, but I've really been monitoring it through pictures for the past 6 years. In the peak of my weight (bmi 31.9) my vitiligo was the worst. However in my lowest adult weight (bmi 26.4), most of it repigmented. I since gained ~20 pounds back, and former vitiligo spots have resurfaced, not fully to when I was heaviest, but for the most part.

For context, I've only experienced vitiligo on my anal area (which did repigment when I lost weight) and my perineum (which has never fully repigmented, just a smidge. That area is very hard to budge). So no pics will be provided bc im not that kind of redditor

The only explanation seems to be that physical stress on the body lessened, because I went through my old pictures and I was still eating sugar and dairy (the things recommended to cut out). But is there something else I'm missing? I find this really interesting

I’ve lived for 16 years and never knew I had vitiligo. Growing up, my mom just told me it was from the sun lol. After I got diagnosed, I found out she actually knew but didn’t tell me because she didn’t want me to worry about it. Mine spread pretty quickly when I was younger, especially between ages 8–13.

Hi guys, I have a question.
If I have vitiligo, do you think I’m supposed to tell the person who’s coming to propose to me?
For context, mine is very mild and the color isn’t even completely white.
And when do you think is the right time to tell him?
Also for the guys — would you personally be okay marrying a girl with vitiligo? Or someone who might have a possibility of it spreading more in the future?

I’m a 14M, and I transferred to a new school where I got bullied for my looks for about 70% of the school year. Nobody there knows I have vitiligo. At my old school, I was comfortable because people didn’t really judge me, and I was able to make friends and be open about my vitiligo, which is on the right side of my body on my arm, chest, and back. It’s getting hot now, so I can’t wear a sweater all day anymore, and soon I might have to wear shirts again. I’m afraid I’ll get judged the same way I got judged for being ugly. Has anyone else experienced this or have any tips on what I should do? I don’t want another reason for people to bully me.

Hello a year ago i worked in southeast georgia, usa, at a gas station as a college student. I had never seen so much vitiligo in my life, i looked it up because the only vitiligo i knew of was michael jackson and the model winne harlow, but suddenly many customers appeared to have this condition, knowingly and unknowingly. Is it caused by sun? Is it stress? I would say this was small poor town with many passerbys, truckers, all kinds of people, black white mexican. I think in total i saw a handful of my customers everyday that it. I look up the numbers and it says only 2% of the usa has it, any guesses as to why this sort of condition was so prevalent?

I been using Protopic on my finger and my penis for two months and it is not working. Does anything works? Any future treatment that may work and long lasting?

Hi everyone,
I’m a 31-year-old male and I was recently diagnosed with vitiligo on my face. My dermatologist prescribed me Elidel (pimecrolimus) twice a day for 4 weeks, and then to continue for another 4 weeks only in the evening.

While reading about vitiligo treatments, I also came across NB-UVB phototherapy, and I noticed that a lot of people seem to combine it with topical treatments like Elidel or tacrolimus. My dermatologist didn’t mention phototherapy, though, so I wanted to ask here if anyone has experience with combination therapy (Elidel + NB-UVB).

Did it help with repigmentation, especially on the face?
How long did it take before you started seeing results?
Any side effects or things you wish you had known earlier?

Thanks in advance to anyone willing to share their experience.

I’ve (65F) got extensive vitiligo of 10 years all over. I try not to get burned but it happens when I lose track of time and don’t apply sunscreen enough. My skin turns red but I have zero pain and it never peels- just fades back to white after a couple of days. Wondering if others noticed this too.

My vitiligo was stable, and the patches were also fading out, but suddenly, after my pregnancy, it has burst and flared up...now the 2-3 patches that I had have covered my entire stomach, breast, and are growing towards my neck. I took corticosteroids, but eventually, as I was a breastfeeding mom, I had to stop taking them. Has anyone had a similar experience? What is the best way to control growing vitiligo? I have tried almost everything, but now it is just straining my confidence.

Im always curious to know how others vitiligo has progressed!

Mine started at around 3 on my back and spread all over my right shoulder blade and around to my right armpit and chest. I do have a few splotches here and there other places.

Tenho 24 anos, sou um homem negro de pele retinta. Eu sempre quis ter vitiligo, se possível no corpo todo, mas nunca ouvi falar de alguma forma de conseguir. Minha intenção é que eu consiga perder minha melanina. O máximo possível.

E caso esteja pensando, eu não sou racista. É só uma vontade minha e sei do cuidado necessário.

Tem alguma forma de conseguir ter essa condição?