r/myocarditis

Hello everyone,

I’ve recently had a cardiac MRI due to frequent ectopics, chest pain and fast NSVT. My cardiologist thought this was all due to the mitral valve prolapse that I have.

When the results came back the MRI found a band of scarring in the sub epicardial to mid basal anterior and anterolateral wall. The cardiologist went on to say ‘this could represent a prior myocarditis.’ That’s all the details I have now.

I feel confused because I’ve never knowingly had myocarditis, it just seems strange…if it was bad enough to cause scarring surely I would have been aware? Has anyone else been in this position?

How are you all doing? I am 18 years old. I developed myocarditis (inflammation of the heart muscle) last year, and it has now been a year and a half since I fell ill. I would appreciate it if those who have recovered from this condition could share some advice. Is there a possibility of returning to a normal life? I wish you all good health and peace of mind.

I was wondering how many here suffered from both myocarditis and pericarditis. I'm specifically looking to see those of you that had a pericardiectomy and had symptom resolution afterwards. My imaging hasn't strongly shown pericarditis (CMRs have only shown myocardial and epicardial LGEs). I'm getting mixed advice from my cardiologists and cardiothoracic surgeon. I want to go through with the surgery but worry I'm going to have pain from my myocarditis history. I've had this condition since February 2025.

Hi everyone,

I am a 35years old male, 190cm, 74kg
Quit smoking in January when I got diagnosed.

As you might have seen my previous post, I am suffering from perimyocaritis and I am on treatment for 6 weeks now. On week 4 and 5 I was already feeling a bit better, chest pain intensity was lower, heaviness and fatigue got a bit better but since last Thursday is getting worse again, chest pain increased, along with fatigue, muscle aches and pins and tingling, mornings are especially bad. Is this normal in the heeling process? I am worried again and feel like I will never get better after they mistreated me at the beginning of the year.

Thanks a lot in advance!

First off, im sorry for everyone that had to go through this. If you have gone through a recurrence, what were the symptoms? Were they the same or did different symptoms show up? And most importantly, did the chest pain feel identical or different? Any answer is appreciated as I'm scared of a recurrence and today i ve had like 20 bursts of random 0-3 minute lasting sharp pains which is highly different than my initial presentation but feels similar

Hello everyone, I pray for complete healing for everyone who is experiencing this illness. Its almost 3 months since I was diagnosed with myocarditis. I felt improvement after my 7th week but it returned on my 9th week. I also noticed that my Blood pressure is flactuating from normal to above normal specially in the morning that I'm having a palpitations. At night my BP reached 105/60sh. I'm not sure if bisoprolol. And spironolactone is causing my normal BP anymore.

Before I was diagnosed with myo, I swear my Blood pressure is within normal ranges.

I'm scared that aside from myocarditis I'll be having a hypertension for a lifetime. Did anyone experienced this while they're recovering from Myo? Did your BP dropped to normal when you're healed from Myo?

I'm within the normal BMI range, I don't Smoke or drink. I'm an athlete of BJJ and Judo before this illness hits me.

I'm desperately need some answers.

Hi all, 22F here. I want to preface this by saying I am not trying to scare anyone or spread doubt, I just want to share my experience in the hopes that it might help someone out. Listen to your doctors first and foremost ofc!

I had been feeling shitty all summer 2025 and after a workout in Oct 2025 I started having sharp chest pains radiating down my arm and it was hard to breathe. I went to the ER, my troponin peaked at ~5000 and I had ST depressions on my EKG. After a couple days they discharged me and put me on colchicine for a myocarditis dx. My MRI was actually clean but my cardiologist figured it might have been too early to see inflammation.

Anyway the months go by and I don’t really feel much better. Colchicine was increased, I started metoprolol but nothing was helping. I was in the ER pretty much every month (usually around my period) with no answers. My trop would sometimes be kinda elevated (peaking at 250) and I had another clean MRI. In May 2026 I was hospitalized for another few days and one of the drs there suggested possible vasospasm or micro vascular disease. However I was discharged with the dx of recurring pericarditis and started on Arcalyst which really increased my symptoms and lowered my WBC (I stopped after 2 weeks). I never forgot what was said about micro vascular disease though and really pushed my cardiologist for a provocative angiogram.

After the provocative angiogram in July 2026 (after about 9 months of misdiagnosis) I was diagnosed with coronary artery vasospasm and a congenital heart defect that had been missed in my first angiogram. There was no myocarditis, I actually had two heart attacks (MINOCA) caused by spasm in the past year that led to the increased troponin.

All this to say, if you feel like your symptoms aren’t getting better or they don’t align with your diagnosis, ask questions. Know your body, push for testing, and remember there’s nothing wrong with a second opinion. Young people and young women especially are at risk of not being listened to—my symptoms were brushed off as anxiety before I wound up in the hospital. Additionally MINOCA like mine usually require more invasive testing to diagnose which is not always the first thing doctors think of or want to prescribe.

Please take care of yourself, do your research, and listen to your body ❤️

hello, maybe someone who has gone through this can help me not be so scared. I was diagnosed with myocarditis this week. I feel like maybe I have an odd presentation on how I got here 🤣 The reason why I even made a visit to my cardiologist was because I almost fainted while running. i’m not a super runner or anything but I average a 10 minute mile and I was dying at 12:30 and then 15 min pace and when it was done almost fainted in the street. I was running at night and it was cool and I was well hydrated. I had another instance where I almost had this happen as well but I was in the sun so I ignored it till this incident.

so long story short, I see my cardiologist and visit goes fine until they see my ECG and noticed new inverted T waves and new q waves in my lateral leads compared to my ecg in february. Due to this presentation they think I have myocarditis . Luckily for me (not really) I had been to the ED 2 days before because I had an immense feeling of pressure in my chest that went to my head and then made my face numb for 6 hours. They did a trop in the ED and it was negative. they chalked it up to migraines (never had before) and we went about our day. About two weeks ago I got and still getting over a crazy sinus infection that started at the base of my skull and I never had drainage or anything till after my ER visit but it was wicked one of the worst i’ve ever had. I don’t really recall any viral illnesses. but maybe I did and I was just unaware that I had one. During this time or actually before I have been experiencing some wicked anxiety, waking up in the night heart beating out of my chest. So I had went to my PCP to talk about maybe starting an SSRI, she suggest we actually do a holter monitor first. so I got that sent off the day of my cardiologist appointment and today I had my echo. I know the cMRI is next.

I’m 24 years old and I do have SVT and POTS. I don’t know a ton about this condition besides i’m suppose to rest pretty seriously. I’m in a pretty rigorous academic program that can’t really be stopped. Should I worry about what’s to come? i’ve stopped basically all movement like instructed for the time being. Guess im just not sure on what comes next, I think I also just needed to share this with someone lol. they did say this could be old and a recovering infection at this point and not necessarily active but we just won’t know till further work up is done.