Newly diagnosed
hello, maybe someone who has gone through this can help me not be so scared. I was diagnosed with myocarditis this week. I feel like maybe I have an odd presentation on how I got here 🤣 The reason why I even made a visit to my cardiologist was because I almost fainted while running. i’m not a super runner or anything but I average a 10 minute mile and I was dying at 12:30 and then 15 min pace and when it was done almost fainted in the street. I was running at night and it was cool and I was well hydrated. I had another instance where I almost had this happen as well but I was in the sun so I ignored it till this incident.
so long story short, I see my cardiologist and visit goes fine until they see my ECG and noticed new inverted T waves and new q waves in my lateral leads compared to my ecg in february. Due to this presentation they think I have myocarditis . Luckily for me (not really) I had been to the ED 2 days before because I had an immense feeling of pressure in my chest that went to my head and then made my face numb for 6 hours. They did a trop in the ED and it was negative. they chalked it up to migraines (never had before) and we went about our day. About two weeks ago I got and still getting over a crazy sinus infection that started at the base of my skull and I never had drainage or anything till after my ER visit but it was wicked one of the worst i’ve ever had. I don’t really recall any viral illnesses. but maybe I did and I was just unaware that I had one. During this time or actually before I have been experiencing some wicked anxiety, waking up in the night heart beating out of my chest. So I had went to my PCP to talk about maybe starting an SSRI, she suggest we actually do a holter monitor first. so I got that sent off the day of my cardiologist appointment and today I had my echo. I know the cMRI is next.
I’m 24 years old and I do have SVT and POTS. I don’t know a ton about this condition besides i’m suppose to rest pretty seriously. I’m in a pretty rigorous academic program that can’t really be stopped. Should I worry about what’s to come? i’ve stopped basically all movement like instructed for the time being. Guess im just not sure on what comes next, I think I also just needed to share this with someone lol. they did say this could be old and a recovering infection at this point and not necessarily active but we just won’t know till further work up is done.