r/ureaplasmasupport

Hello all,

I (31M) did a PCR in June and it came back positive for UU(10^1.71ml) and MH (10^2.88ml), I’m mentioning the levels, because they were apparently low. I never had any symptoms.

I did 18 days of doxi, unfortunately at that time didn’t know that it needs to be followed by azithro. Then 4 weeks later did another PCR, MH came back negative, BUT UU was still positive and with a higher load 10^3.28ml.

Me and my girlfriend are living in different parts of the world, after the test I went to her country. We were trying to have a baby and we spoke with a doctor and he assured us that we should continue on trying regardless of my test result(he said that this bacteria means nothing and millions of ppl around the world aren’t having issues).

I’m now freaking out that I have infected her. I came back to my country and we are soon to be reunited. She did a culture test, because PCR wasn’t available in her city. She isn’t experiencing any symptoms. We are a little anxious because of her age and that 3weeks doxi + azithro will torment her.

If the culture test comes back negative we should test with PCR, right? Even if she is lacking symptoms, we should do the treatment? Can you please advise for some probiotics, aftercare or whatever that can help us to conceive after the treatment

Thanks in advance 🙏

After years of recurrent UTIs, BV, yeast, more UTIs, my new primary tested me for something I had never heard of. My ureaplasma and mycoplasma PCR came back abnormal.

I’ve also had years of sterile pyuria and UTI symptoms with no bacteria - and way too many doctors that see my other chronic health issues who told me it was anxiety. Lol.

I also have Ehlers-Danlos Hypermobile type and was severely floxed by Ciprofloxacin in 2021. I also have intestinal methanogen overgrowth. So a lot of GI problems and microbiome upset as-is.

I am reading about treatment for ureaplasma and mycoplasma. I guess my next question for the OBGYN I see next week will be what antibiotics are my strains sensitive to.

I’m nervous reading about so many people taking moxifloxacin or Levaquin. Those will never be an option for me because I have hEDS and Cipro permanently disabled me. I live with severe and debilitating tendonosis, nerve pain and it accelerated the connective tissue degeneration from hEDS. I’m having artificial disc replacement surgery in my neck next week. I already have pelvic organ prolapse, joint subluxations and limitations on physical capability.

Who has been able to clear these infections without the use of Fluoroquinolones? I need some encouragement :)

5 long months i suffered with this dreaded bacteria, it caught me at a time in my life where i just got out of a 7 year relationship, the very first person i slept with gave me ureaplasma after 31 years of living, never catching an std and ending up with some under studied bs demon bacteria that doctors argue about like its a youtube comment section. 🙄💀

What i thought was chlamydia or gon, and what i thought would be a quick bump in the road as traumatizing as the onset was (burning red raw penis opening, thick yellow discharge, burning when i pee, balanitis and everything you can think of including extreme pelvic pain) ended up being the most stressful, traumatizing health episode i didnt even think was possible.

I saw so many GP's, 2 urologists, 3 sexual health clinics, a genital dermatologist and lastly, a rheumatologist because i ended up getting reiters syndrome because i had the infection so long and due to a pre existing condition in my rheumatoid arthritis, my body is already wired to react aggresively to infection or viruses.

At the very beginning, i was given 1 single dose of azithromicin despite negative tests, this didnt work all the way and symptoms eventually come roaring back, a urologist suggested it was ureaplasma or mycoplasma, didnt bother testing as he said its hard to get a positive in males and prescribed 2 weeks doxy, this did help alot and the thick discharge became a mild scant clear discharge and the foul smelling urine went away however my penis still looked totally fucked, ejaculation hurt like hell and would cause INTENSE pelvic pain that would take days to subside, he refused more antibiotics and said id need to get a cystoscopy done and i said fuck that shit and didnt go back.

By this point, i did not know who or what to beleve, i told the girl from the original encounter what was going on (nearly 3 months have passed) and i told her to get tested for a full panel including ureaplasma, she maintained she had ZERO symptoms and even accused me of lying about my sexual history and tried to pin blame on my ex even though we hadnt had sex in MONTHS.

And what do you know?

She tests positive for ureaplasma ONLY, i go to see her GP and she told me to do a test first before giving me antibiotics, my test came back negative, i was so extremely pissed off because i knew i was still cooked and begged for antibiotics anyway, i referred her to CDC guidelines and even this very sub, she said she'd do two weeks dox and i said i want azith too and after some emotional black mail (i cant beleive it took me doing that 🙄) she gave me the dual treatment.

Whilst taking that, i had my dermatologist apppointment and he prescribed tacrolimus for my penis glans, i applied this around the time i started the azith and was told to apply it for a month, twice daily.

That month has now passed, it is now the current day, and i cant beleive im finally here after so long feeling like i was going to be stuck like that forever. THE DUAL TREATMENT WORKED!!! (Note, i did extend doxy by about a week as they messed the prescription up and i ended up with more than i needed so i thought hell yeah im going full send with this!!)

I now have ZERO discharge, my penis is normal looking again, ejaculation feels GREAT and doesnt trigger pelvic spasms the next day, i still have mild dry eyes from the reiters but im on seperate medication for that which is helping along with a quick pelvic floor stretch routine i do every morning and night.

You will make it out of this, refrain from sex, listen to your body, when youve finally beaten this bastard, trust me, you will just know. A key indicator for me was not waking up fatigued and exhausted, i totally forgot what that was like!! There is light at the end of the tunnel!!!

Thank you to this sub for the support over the last few months and giving me hours upon hours of obsessive reading 💀😂!!

I wish everyone good health. ❤️

Has anybody used this website to order a lab? I need to get a follow up culture done that ended up costing me over $700 when I did it through a specialist. I found it on this website for $180 but it feels too good to be true. Anyone have experience? I can just show up to LabCorp and do the test after paying and I don’t have to pay in the office or show insurance?

Can someone please help me. I have been having these symptoms for 3 years and nothing is helping. I have tried bladder installations, long term uti treatment and amitriptyline- nothing works. My symptoms include Nerve like pain in urethra (near clitoris)
Bladder pressure at times - mainly after sex or period
Nerve like pain in bottom of foot.
UTI symptoms after sex in missionary position.
Difficulty urinating after alcohol
When I wake up it’s okay then I urinate.

27F. Not sexually active in years. I have had symptoms since late January of this year. I ignored for about two months as my mom was in the ICU. Tested positive for BV first time in April (treated with metronidazole 7 days), then again in July (metronidazole 7 days) and now a third time (metrogel for 5 days). This time I finally saw my actual gyno and not a PA/NP in the practice. She tested me for ureaplasma which was positive and they said that no one ever thought to test me before because I haven’t been sexually active in years. I was given doxycycline for a week along with the MetroGel for five days. I am just so nervous that that was not enough medication, but I am also simultaneously so sick of being on medication. Did this short of treatment for the ureaplasma work for anyone??

I tested positive in June. Have tested negative 4 times since then. Both me and my partner were treated. We waited a month. No symptoms. I felt great. Then we had sex and it flared up again.

8 antibiotics, 3 doctors, no sex, white cotton underware, only water down there, scentless detergent, no tight clothing, daily pelvic floor exercises and still i have pain. Still have the urgency to pee, still have slow urination.

For my people in relationships with lingering symptoms, what does sex look like for you? Im seeing people on here that say they've been dealing with it for months, years, ect. Honestly, are yall still having sex? Are yall just dealing with the flare ups afterwards? How is this affecting ur sex life as well as ur relationship?

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Can't get rid of BV after six months.

I want to preface and apologize for the long text. But I'm truly desperate and willing to try anything at this point.

Hi everyone, I’m 18F and have been struggling with recurring BV and yeast infections for about six months, and I’m genuinely at my breaking point.
It started after having sex with my partner in a bathtub that had bath products in the water. About a week later, I developed yellowish/green discharge, itching, and discomfort. I was worried about an STI, so I went to urgent care and was tested. They initially prescribed metronidazole and fluconazole while waiting for the results. Everything came back negative except for yeast, so I was told I could stop the metronidazole.

About three weeks later, I was still having symptoms and went back. This time I tested positive for BV and was prescribed metronidazole and fluconazole again. I completed the full course, but my symptoms continued.

I eventually saw a gynecologist who examined me but didn’t swab me. He said he saw irritation and signs of yeast and prescribed an ointment. It actually helped, but the symptoms came right back afterward.

Since then, I’ve been stuck in the same cycle of being diagnosed with BV and/or yeast and being prescribed metronidazole and fluconazole, only for the symptoms to return. I eventually saw another physician and specifically asked for more extensive testing, including mycoplasma and ureaplasma. My testing once again showed BV and yeast, and I was told mycoplasma also came up. She said it was common in women and didn’t recommend treating it. I believe I was given metronidazole again and two doses of fluconazole a week apart.

Nothing has given me lasting relief, and I’m desperate to figure out what is actually causing this instead of continuing the same treatments over and over. I’m also worried that either the diagnosis is being missed or the infections aren’t responding to the medications.

This has taken such a huge toll on my mental health and confidence. I constantly worry that other people can smell me in public, and I’m scared to get close to someone because I don’t want to be intimate while dealing with this.

Has anyone dealt with recurrent BV and yeast infections like this? If so, what testing or treatment finally helped you? I’d especially appreciate advice on what I should ask my next gynecologist to test for because I really want to advocate for myself and get to the bottom of this.

I thought i’d give an update regarding the ureaplasma bacteria i’ve been dealing with for 3+ years… after taking the 14days doxy and 2.5g of azithromycin my symptoms have finally eased!

I didn’t notice a change ( as a matter of fact my symptoms got worse on the doxycycline) until a few days after the azithromycin course was over.

I still occasionally get the odd stinging sensation after urinating but it’s no where near as bad as it was before. my discharge is back to normal (i think) just very very dry ??

i’m still going to wait a few more weeks until i can get a TOC but for now i hope i can maybe give some of you hope

For those of you with ongoing symptoms after treatment are you testing negative or positive?
Has anyone continued to test negative for a long time and then randomly tested positive again with no chance of reexposure? If so how long after your initial treatment did you test positive again?

My damn husband broke my vagina. I never had any issues until we got together. We’ve been together for 5 years now. Within months of us having unprotected sex for the first time, I got chronic UTIS, BV and yeast infections. I even got fucking genital herpes. He has never had an outbreak but I can only assume he’s carrying it???!

My infections were so chronic and I had no clue what Ureaplasma was. Then suddenly a month or so before our wedding, everything went back to normal. I finally had a normal vagina.

Then while I am 16 weeks pregnant, the infections come back with vengeance. Green discharge, burning, pain, rawness, everything. I’m testing negative for bv and yeast. Finally I come across mycoplasma and ureaplasma. I test positive right away on just a urine culture. I do a Juno test and it confirms the same thing. I can’t treat it with doxy while pregnant but I’m absolutely spiralling with learning the potential complications. I took azithromycin another round of metro and about 2 months after that, my symptoms subsided completely. I was normal again!!! My son is now 1 and everything is great. I haven’t retest because I thought maybe I had balanced my biome with probiotics or maybe the azithromycin did something after all.

We decide we’re ready to try for another baby and BOOM. Symptoms are back but this time different. Luckily I am not in horrible pain the way I was, but I have dark yellow discharge and you can smell the odour on me from across the room. I’m showering multiple times a day, constantly changing my liner etc. but it’s so gross. Not to mention, I don’t want to try and get pregnant again and risk complications. Now in the time to finally treat it and BE DONE. This has been going on since June. I have been doing probiotics suppositories night for 3 months and also boquet for a month.

It did a Juno test but it got lost in the mail going to them, and it’s been tracked but might not make it to them within the 30 days of sample collection. Since I had a positive ureaplasma in my urine culture, I decided to treat it. I’m doing 7 days of doxy plus 2.5 g of azithromycin. My husband’s doing the same.

I have gut issues already, I’ve been on antibiotics so much in my life. The last year alone I did 5 rounds. UTIs, BV, mastitis, post partum stitches ripped and got infected, etc.

I am not young and it took us time to conceive our first baby and I’m so worried I’m running out of time. But I HAVE to deal with this. I’m scared I’m going to wreck my gut and vaginal biomes further so this is really my Hail Mary. I hope so badly that this works and we can just get back in focusing on planning our family and taking care of ourselves. This problem takes up so much space in my mind I’m struggling to have time to do anything for myself outside of work and baby. Any free time I have I’m going down rabbit holes and reading forms.

Looking for support and any further advice.

advise please? has anyone taken 14 days of doxycycline; 100mg 2x a day, followed by 7 day moxi. i know usually its 7 days for each med but im curious to think if 2 weeks of doxy would be better then 1. i am someone who was already treated with doxy alone and z pack, both treatment plans didnt work.

Hi, I have posted in here a couple times but wanted to make my own post about group b strep in case anyone else is dealing with that recently. I was negative for everything except Urea parvum this year, but the last 2-3 months I have been negative for urea but positive for group b strep specifically. Nothing else. Same symptoms. Constant burning and tightness are my main symptoms. Is it possible I can try to treat the strep B and that’s the reason for symptoms vs urea? I still think I have urea but usually I am not negative multiple times in a row. Very frustrating!

Info: have done doxy/azithro a lot, levifloxacin and other medications off the top of my head, Have had Ureaplasma since 2021. 5 years of fun (not)