I need hope so badly.
I’m 17(F) and for the past 8 months I’ve essentially lost myself to chronic urinary symptoms. It started as a typical UTI back in October. I’ve only had one UTI before this, so I just went about it the same way. I went to the doctor, got some antibiotics and waited for the pain to subside.
Then it didn’t. The following weeks were filled with doctors appointments where I was just thrown a different antibiotic to try, all of which did nothing for me. My samples were negative, nothing made sense and this was all very new to me. It’s just me and my dad at home and he’s not the most present, so I was navigating this whole thing alone and I had no idea what to do.
Then in February, I was hospitalised for an infection that had spread to my kidneys. This made no sense in my eyes because all of my dipstick tests were negative prior. Nonetheless, I was in hospital for three days on IV antibiotics and I thought, maybe somehow they were finally targeting the root issue. I was discharged and nothing changed. I’m living in Ireland and using the public healthcare system, so for anyone who knows what I’m talking about you already know I’m describing a straight up nightmare. I’m on a very long waiting list for a urologist and in the meantime ever since then, my samples have been negative, no medication works and I can’t find a pain relief that targets my symptoms.
I don’t see any way out of this or any light at the end of the tunnel, I don’t know how anybody is supposed to live this way. My symptoms include intense burning, sometimes signalling I need to pee, even if I do end up with a proper stream it’s followed by the worst stinging and burning sensations with a feeling of having not emptied my bladder properly, leading to voiding and forcing weaker more stinging droplets, discoloured and cloudy urine and fatigue.