u/Apock-

We read the title. It’s right above the body of your text. You don’t have to refer us back to it with your opening line.

I saw an article today that said in North Carolina, Medicaid billings for one type of service went from $1.4 million or so in total billings to more than $660 million.

If the government wants to stop medical fraud from being paid out, I can introduce them to my insurance company. They’re experts in not paying for claims. Hire them as consultants and Medicare billing for that service would have gone down to $700K. Everything is covered before you sign up. After that, it’s one surprise lack of coverage after another.

After a long wait I was finally tested and diagnosed with dysautonomia and small fiber neuropathy. My primary symptoms are orthostatic hypotension, physiological exercise intolerance, difficulty walking (crutches mostly, WC when needed), sudomotor dysfunction, hypocapnic hyperventilation, general fatigue, and back pain from the circulation issues.

My mobility has steadily degraded over the last two years and I’m saving for a power wheelchair. I’ve learned to be ok with this. The things that I’d really like relief from are the fatigue, and the chest pain that comes from the hypocapnic hyperventilation. My condition is complicated by the fact that I had hypertension before dysautonomia and still do when lying down.

After many calls and a year of waiting, I have an appointment Monday with the only dysautonomia expert in my six state region. I’m very grateful for this opportunity. I’ve been told that there’s not much that can be done. I’m a glass half full person though, and I still have hope for some relief.

Has anyone with similar symptoms had an appointment at a dysautonomia clinic that can share what to expect?