VENT I feel so lonely being disabled

Mind you, my parents try to be open minded (they're my carers despite me being an adult) & my abled & able bodied friends (most of whom are neurodivergent) are lovely, but I just feel so lonely. I'm only in my twenties, my body is slowly failing itself, I'm learning about new symptoms I had previously ignored so often now, & I've been more times at the doctor's office in the past two years than most 90 year olds go in their entire lifetime. I'm coming up on 40 visits across 3 years by now. I don't want to keep bothering my friends with my complaining because they have their spoon limits too, & I'm autistic (MSN) so I get it. But I don't have anyone else to really talk to about my failing physical health. My parents are trying to hold onto some 'hope' that I will get better, but even with physical therapy my physical health isn't going anywhere, it's just getting bad slightly more slowly. I don't know who to talk to or who to turn to & i feel so lonely being physically & mentally disabled so young, without any sort of community, constantly ranting to my able bodied friends that this popped out of place or this hurts now, & then worrying that I'm being too much & they're getting tired of my constant complaining. I dunno what to do with myself sometimes

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u/Booker-DeShit — 5 days ago

Ripped audio from Infinite

Hey, does anyone have access to ripped audio files from Infinite? I need clean versions of Booker and Elizabeth talking, without all the background music present in the game, but I am a complete tech noob. Or, if anyone has an easy guide I could follow to rip the files myself, that would be awesome, because even the 'beginner' guides I'm finding online are flying right past my head.

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u/Booker-DeShit — 16 days ago

Any tips for cleaning rust from the buckles of a portable typewriter?

Hi, I'm new. I have wanted my own typewriter since I first got into writing as a hobby (& later a job), & today is finally the day! I managed to find a Remington Envoy at a charity store for a price I could afford, but it needs a lil lovin' before it can work fully. My main issue is that it's supposedly a portable one with a case, but the buckles on the case are so rusted that I can't unbuckle them.

Does anyone have any tips for a newbie on how to clean off the rust on the buckles so that they're actually usable again?

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u/Booker-DeShit — 30 days ago

[Request][Southampton/Hampshire, UK] Emergency dental surgery

Hello, I have never used this sub before but my friend encouraged me to post here. I'm in need of emergency dental surgery as soon as possible, as two of my wisdom teeth have started to rot & crumble. I went to an emergency consultation & they told me I would need to go to a private dentist, or wait months for the local hospital to see me. I have attached the referral to the hospital, but I really don't want to have to wait months.

I'm a disabled, out of work writer who had recently lost his benefits due to DWP fuckery here in the UK, & I'm going through the long & arduous process of having a tribunal look at my case to see if I can get my benefits back (I added two pictures of the most recent email I got regarding the tribunal but if need be I can also provide pictures of the tribunal booklet I received to prepare me for the court date.)

The clinic closest to me & cheapest in my area is called the Atlantic Clinic (screenshot provided of their pricing). For two teeth, I will most likely need £600 total, considering the state of them is fragile and delicate and they will require surgery. Therefore I have set the total amount to 600, to cover as much of the cost of the procedure as possible.

I do have some savings left, but with the predicted timeline for the tribunal (6-12 months just for them to set a date) I don't know how long they will last me.

Here is the link to my Ko-fi, where I have set up a goal to get my teeth removed. I hope Ko-fi is allowed, it's the website I have a better grasp of so I prefer to use that.

https://ko-fi.com/upinflameswriting/goal?g=1

u/Booker-DeShit — 2 months ago

[23/NB] looking for penpal in the UK to make my life as a disabled, mostly housebound dude more interesting

Hey, folks. I'm Booker-Garet, I'm a UK-based writer in need of a penpal on a budget. Although I'd love to chat with anyone, I'm currently fighting a long, arduous battle to get my disability benefits reinstated, so I'd prefer to get a pally in the UK to save on delivery costs.

A lil about me: I'm trans, I have a Bachelor of Science in psychology, I'm a huge gamer, and I have an adorable rabbit son whom I adore. I'm fine with long pauses between letters, for me waiting is part of the fun of things, & I'm hoping my pally is alright with printed letters, &/or with slow responses as I try to make my handwriting legible.

I'd love to talk about almost anything, really. I'm chatty and friendly, I tend to find a shared topic with anyone of any age or background, although I am autistic so excuse any improptu info dumps you may experience with me. I'm really looking to connect with someone & make friends while my disability keeps me from regularly leaving the house. Being disabled can get lonely, & talking just about disability can be even more isolated. I'd love to have someone to talk to about all the fun stuff I get up to, not just about my struggles and the barriers I face in daily life.

If you're interested in penpalling with a quirky, easily excitable, friendly (gods, I'm describing a golden retriever, aren't I?) trans guy who has a lot to say and not a lot of people to say his things to, I'd love to chat!

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u/Booker-DeShit — 2 months ago

Preparing for a pelvic floor exam as a transmasc zebra?

I just had an appointment with a physio today regarding muscle weakness in the whole vaginal area. She said she will do a proper exam on the inside (without a speculum luckily) the next time I see her, which is next month. I know it's a long way away but I'm honestly terrified. The gyno I went to a few months back was very rough with me & caused me pain, not to mention the already uncomfortable feeling I had going to such a place & being misgendered everywhere. The pelvic floor physio doesn't misgender me, she's one of the only doctors I've been too that actually pays attention to the 'preferred name' field on my patient info profile. But I'm still dreading the exam after what happened last time.

Are there any ways for me to prepare myself for it, either physically or mentally? Any tips for advocating for myself in such a space? The muscle weakness is most likely a result of my hEDS, alongside other pelvic floor dysfunction that I have, hence why I'm asking here & not in a general trans sub.

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u/Booker-DeShit — 2 months ago
▲ 16 r/eds

Tempted to get a wheelchair against my mom's wishes

I'm really tempted to get a wheelchair for work, so that I don't have to worry about debilitating pain from standing too long, because with just a cane currently I really don't have as much freedom as I want to. I found a good foldable one on ebay and I even have a coupon to make it cheaper. But my mom (my caretaker) is really against me getting a wheelchair because she believes if I get in one, I'll never get out of it again. Which is complete bullshit because I'm a very active person, but my current fatigue & pain levels are stopping me from doing most things I want to do. With a wheelchair I could better manage my fatigue & the pain in my knees (my knee joints are the weakest joints in my body) so that I had more strength to do my physiotherapy & do things I enjoy. But she won't hear it, she's againsy me getting stronger painkillers, she's against me getting a wheelchair, she thinks the only things I should do is push myself to strengthen my body even if it hurts, because that's what she does.

I don't know what to do, whether to just bite the bullet or let the opportunity pass & continue struggling to find a job I can do one handed & without walking around.

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u/Booker-DeShit — 3 months ago
▲ 1 r/eds

Tips for dealing with subluxed hip

I just had the worst hip subluxation in my life. I couldn't sit up, I could barely walk, I couldn't straight my back or my knee, I couldn't move my leg more than a few cm back & forwards. My dad had to yank on my leg to get it back in place.

Are there any ways to deal with a subluxated hip like that when I'm alone? I'm home alone a lot and I can't rely on the rabbit to yank my leg, & I plain wasn't able to do it myself considering I couldn't even sit down to grab onto it.

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u/Booker-DeShit — 3 months ago

Booker DeWitt limited edition statue circa 2020?

I'm going mad here, I swear I remember this being a thing. I remember finding an article about a limited edition statue of DeWitt, sort of like that Elizabeth one from Game Heads or whatever the company was called. I remember screenshotting it & sending it to a friend to make fun of how wrong they got the colours, we joked about him being a Booker with Comstock colours because his eyes were blue instead of green & he was paler than in game. I swear this wasn't the NECA, I swear this was one of those static statues on a stand and all. But I can't find it anywhere! The wiki page for BioShock merch doesn't say anything about it, I can't find pics of it on google, & when looking for a Booker DeWitt statue I only get the NECA figurine to pop up. Am I going mad? Did I hallucinate two different situations together (because I remember around the same time seeing someone repainting their Dragon Age Inquisition statues that also had very poor colouring on them, maybe I got that confused with the NECA??)

Someone tell me if I'm going crazy or if there was a limited edition Booker DeWitt statue that came out around 2020, because I'm going mad over this.

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u/Booker-DeShit — 3 months ago