Anyone post Transplant have PTSD?
I have been post-transplant for over 20 years. I was sick as a baby. I struggled throughout my whole life with nightmares, crying spells, anger issues, emotional dysregulation, weird flashbacks where I feel like something bad is happening to me, severe anxiety, and blatant depression. I get triggered if there's a difference in any blood levels, if there's a mention of a change in anything medical; overall, hypervigilant, tense all over the body.
I struggle with a sense that I was worth the sacrifices made, such as taking part of my father's liver and then my uncle's, which saved my life. Do you ever feel like no matter how much help you get? You can't be helped?
This is all while people tell you to stay grateful. When people talk about my transplants, I get extremely defensive and have immediate negative alterations in mood and cognition. I've been in therapy for the last 5 years, and even my therapists admit it's a slow progression to learning how to cope.
I often have passive SI and thoughts. I want to know if anyone else struggles like this?
I wake up with thoughts like I can't believe I survived or I'll look at my body and start hyperventilating and saying, "I can't believe they did that to me," over and over again, or "What did I do to deserve all that pain?"
I had my transplants at 6 months and 2 and 1/2 years old, with spinal taps and biopsies until I was 4 years old.
The body remembers what I don't think I can, or I remember very little.