u/ColdInvestment5833

There’s just been sooo much going on over the last few months. S/O had to take a month off for an IOP & almost got hospitalized for SI with a plan, I had a temporary schedule adjustment during that, S/O was diagnosed bipolar 1 and re-diagnosed with PTSD & put on medications which were mostly stable but they stopped being able to sleep solidly and started having more mood episodes so their dr upped their dosages yesterday of both their anti psychotic & their sleep meds. S/O works mornings I work nights so one of us is always home & available with our 3 year old.

Tonight I called on lunch, it wasn’t even bedtime yet 9:50 bedtime is 10 & I had been texting since 8:30 with no response. my 3 year old answered my S/Os phone And after saying hi and gibbering for a minute I ask where is my S/O & 3 y/o starts yelling trying to wake them up. They won’t wake up. I’m trying to ask questions like is S/O in the bed? Are the lights off? But 3 year old says no. So ik either they’re in bed or my S/O is just passed out on the floor or something. I texted my boss I was leaving and raced home in the rain & the dark down back ass roads with tons of wild life while keeping 3 year old talking to me, get home nearly in tears & S/O is just knocked out in bed. 3 Y/O is also in bed with them I guess they saw S/Os Apple Watch (which was on S/Os wrist so this whole time 3 y/o and I were having a conversation 2 feet from S/Os face and both of us yelling trying to wake S/O up & they didn’t even stir) light up while I was calling and answered it. What really pissed me off though is not only did S/O up their meds today they had EARPLUGS on. I get it S/O is typically a very light sleeper & even with earplugs any significant noise would wake them up but upping your meds & still using ear plugs without seeing the effects of the meds first was crazy irresponsible to me. I’m also pissed off they went to bed early cause I don’t even get home from work till 3am them putting 3 year old to bed at 10 Means I barely get 6 hours of sleep before 3Y/O wakes up but S/O can sleep till 9 so they get 11 hours. I was so exhausted last week I ended I being late to work One day cause I couldn’t even see straight while driving i was seeing double & had to pull over and take a 10 minute nap in a parking lot before I could finish my commute & that was after taking my adhd meds. I don’t take any downers. S/O knows about this & after that I reiterated 3 Y/O needs to be up till at least 10 no going to bed early cause that previous night S/O put 3 Y/O down at 8:30 cause they “had nothing to do”. So 3 Y/O woke up at like 8am. Like how do you just give that little of a crap about how those decisions are going to affect me??

On top of all this changes at work made me file for accommodations which I had to fight for a month to get approved and they’re still not right and I ended up taking a month off right after my S/O completed their IOP. I’m just so exhausted, my time off bank is running low, I was terrified for my kid, and my S/O doesn’t seem to think before doing anything.

Baby is in bed now I took the rest of the night off and idk what I’m going to do. There are technically openings on mornings I could switch but they won’t list the stupid positions for anyone to apply. (S/O works from home so technically they can watch 3 y/o while working). I’m going to try to plead my case with HR see if they’ll excuse me for the night. I can’t afford to quit cause my job is what provides us all health insurance and actually makes our mental health treatments (meds, therapy, IOP) affordable. S/Os company insurance sucks & it’s so expensive before I went back to work I just didn’t have insurance cause we couldn’t afford it. I also don’t qualify for FMLA yet it’s going to be 2-3 months before I hit the hourly requirements although I already meet the tenure requirements I started super part time up till January.

ATP the stupid crap S/O is doing is feeling like abuse trying to cause me to lose my job or be so sleep deprived I have to quit.

Hello!

I’m applying for Medicaid for myself as a working adult with disabilities (ADHD, pragmatic communication disorder, and a trauma/stress disorder). I submitted 5 years of medical records, a psychological eval and documentation from my prior psychologist & therapist for school/work accommodations, clinical notes from my PCP who’s handling my ADHD medication, proof I saw a psych for a year immediately after my psych eval and proof of recent therapy and disability related work absences.

I submitted all the requested documentation on the application (5 pay stubs, 3 bank statements, proof of costs of insurances, citizenship, identity, etc.)

I received a request for more information including

1. form 1049 with my husbands name on it asking him to detail his self employment income?? It says “if anyone on your benefits case gets money from self employment you need to (1) fill out this form and return it to us..” but he’s not on my benefits case because for Medicaid for working adults with disabilities I’m a household of 1. They don’t deem spouses income.

2. Form 1836-A which it says the person applying (me) is “federal and state regulations require that persons receiving benefits work or participate in activities to prepare them for work unless they are physically or mentally incapable of working. (I’m not) This patient claims that disability. (I don’t)” it says it is to be filled out by a “physician” but on the signature line says “physician or other health care provider signature”, it also says for the person applying (me) “you do not have to sign this form to be eligible for TANF, Food stamps, or Medicaid. However you must sign this form if you want to be eligible for an exemption from the employment services program” but I’m employed full time? I work over 80 hours a month and I make over $560 which is the new federal requirement…I’m under the income limit though for Medicaid for working adults with disabilities though. So why would I need to fill that out? Also if I do fill it out which provider do I put my PCP since that’s the only “physician” who’s seen me for any of my conditions (although he can’t and doesn’t treat 2 out of 3 cause there’s no meds for those and PCPs don’t diagnose things like trauma/stress disorders or communication disorders so he can’t even confirm those 🙄) or do I put my psychologist who diagnosed me but who isn’t a physician and who I haven’t seen in 5 years since my full psych evaluation?

3. Form H1028. This one seems like the only one that’s actually necessary but I have 2 days to return it and I work for a mega corporation with no on site HR so that’ll be interesting to attempt.

Oh and they want my pay checks from 02/08/2026-04/10/2026, I guess to see if they’ll cover my medical bills from that time.

Also they (HHS) pre filled out these forms with my name and put it wrong on every single one. I have 2 last names they only put 1, so do I correct it? 😂

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So I saw a new therapist the other day and things went well, the thing is I have a long established diagnosis F43.9 unspecified trauma and stressor related disorder from an evaluation I did 5 years ago, but the new therapist billed under F43.22 adjustment disorder,

I’m in process of applying for Medicaid buy in and consistency in my paperwork I think would help because I have to show my condition(s) last or are expected to last more than 1 year and F43.22 is a short term dx less than 6 months but the trigger and resulting symptoms are actually consistent over at least 5 years I just got good at avoiding the worst triggers tbh it’s mainly certain people and situations so I try to keep away from them. But it can also be generally challenging situations like work or major rapid fire changes in life ie moving changing jobs deaths in family etc etc which is why I just returned to therapy is I had some of all of the above happen at once and couldn’t cope. I just feel like my established DX is more accurate and it’d help in my application process. So is it weird or offensive to ask her to change it? Can she change it on my first bill since it’s already been submitted & I’ve receive the receipt? I probably should’ve brought it up before the end of that first session but I kind of forgot 😢 I also have 2 other developmental disorder dxs so those are fs permanent.

ETA I did provide her with a copy of the full eval and it’s like 13 pages long so very in depth and we kind of talked about that dx in particular our intro session cause she asked what symptoms and such we’re bringing me in rn and it was mainly those related to my trauma/stress disorder but also my ADHD.

So I submitted a request for accommodations along with pre existing documentation outlining my disabilities several weeks ago when a sudden policy change began affecting my work (this change happened in the middle of my shift and I submitted my request before the start of my next shift). I was told I should receive a determination within 1 week of providing any requested information. I provided extra requested documentation a few days later, and when HR returned with questions about specifics of what an accommodation meant they refused to speak to me about it and allow me to clarify again demanding documentation from a provider. I provided it begrudgingly within a couple days. They have repeatedly called me although one of my requests is to be contacted via email as my disabilities affect communication, emotional regulation, and stress response. This is all verified in all of my documentation. After a week I followed up again asking for the second time (I asked the first time I spoke to them) for temporary accommodations due to the delay and received a copy and paste email with an FAQ attached that said I should have received a determination on my accommodations within 2 business days of providing information. I followed up again noting that the email only raised more concerns about the delay, and did not address my request for temporary accommodations. After several days with no reply I escalated to higher up HR providing a timeline and they confirmed they would investigate.

within a few hours of their confirmation I received another request for extra documentation from regular HR this time they want me to provide documentation “from my provider” stating “the start date of my accommodation request”😂😂 a couple issues with this.

1 a provider is not part of the start of an accommodation request. An accommodation request is initiated when the employee notifies their employer that they have a disability and need accommodations. And the start date of an accommodation request is the date that that notification takes place. I do not have to talk to a provider or provide any documentation in the initial request legally. Nor did I. I provided documentation I already had for school which outlined my disabilities, affected major life activities, severity, functional limitations and suggested taking extra breaks as an accommodation which was all I initially requested.

And 2 how would my provider.. legally sign a note.. detailing when an initiating process took place that they were not a part of?.. It’s absurd. Seems like they are trying to come up with excuses to further delay accommodations.

I replied to the email requesting clarification because the date I requested accommodations is written in the email they sent me as it’s the date the HR case was opened. And the deadline in the email they sent today for giving them this new provider note is well past. But that deadline is several days after the email I received from them stating they had received all the information they had requested.

This sucks so bad. My work keeps playing SUPER LOUD MUSIC. I’ve had to leave early multiple times because of it. I try the provided ear plugs, but ear plugs hurt. They always have. Anything that gets inserted into my ear canal including ear buds, foam earplugs, loop earplugs, etc all I can think about is the uncomfortable pressure in my ears. I can take it for less than an hour before instead of being overwhelmed by the noise I’m now overwhelmed by ear pain.

Last night they kept turning it off and on and within 45 minutes of music being turned on I’d have the overwhelming urge to leave, hide in the bathroom or my car and/or cry. It doesn’t feel like anxiety it feels like GET OUT OF HERE. I start making mistakes in my work. I’m angry. Ruminating. I hate it. So I try to take a break, take my lunch, or take a bathroom break when it’s really bad. Then they’ll turn it off for a while and inevitably someone will complain about the music not being on and they turn it back on. My leader will move the speaker further away from me but it’s not enough. Then I try ear plugs for a bit. Once I can no longer take those and I’ve used all my breaks I’m screwed. I’ve had accommodations for ear defenders and extra breaks pending for weeks. I just contacted HR and asked them to expedite it as the facility provides in ear hearing protection it shouldn’t take weeks long reviews to approve an over ear option or implement temporary accommodations as temporary accommodations are also an option in our company policy.

I went from being a consistent top performer to now unreliable and I’m now figuring out at least part of it is due to sensory overwhelm. Fans blowing on me, loud ass music, after a while I notice every breeze and the noise from the AC and I suddenly hate everything and am angry and craving escape. I’m not dxed ASD so the extent of my sensory difficulties isn’t “officially” documented but my accommodations are submitted for ADHD & S(P)CD. Even if they approve over ear headphones in the long run, I’ve been looking into recs and I can’t afford $200+ headphones like the bode quiet comfort ultra everyone recommends 😢 being poor sucks and being disabled also sucks.