I picked up the Bose QC SC at Sam’s for $199, the QC earbuds were $149. I saw a bunch on sale at BestBuy too Bose QC, QC ultra, Sonys xm5 all $229-$249, the Sony ultra wear I think were like $140. If you have Costco also worth checking what they have!
So I saw a new therapist the other day and things went well, the thing is I have a long established diagnosis F43.9 unspecified trauma and stressor related disorder from an evaluation I did 5 years ago, but the new therapist billed under F43.22 adjustment disorder,
I’m in process of applying for Medicaid buy in and consistency in my paperwork I think would help because I have to show my condition(s) last or are expected to last more than 1 year and F43.22 is a short term dx less than 6 months but the trigger and resulting symptoms are actually consistent over at least 5 years I just got good at avoiding the worst triggers tbh it’s mainly certain people and situations so I try to keep away from them. But it can also be generally challenging situations like work or major rapid fire changes in life ie moving changing jobs deaths in family etc etc which is why I just returned to therapy is I had some of all of the above happen at once and couldn’t cope. I just feel like my established DX is more accurate and it’d help in my application process. So is it weird or offensive to ask her to change it? Can she change it on my first bill since it’s already been submitted & I’ve receive the receipt? I probably should’ve brought it up before the end of that first session but I kind of forgot 😢 I also have 2 other developmental disorder dxs so those are fs permanent.
ETA I did provide her with a copy of the full eval and it’s like 13 pages long so very in depth and we kind of talked about that dx in particular our intro session cause she asked what symptoms and such we’re bringing me in rn and it was mainly those related to my trauma/stress disorder but also my ADHD.
So I submitted a request for accommodations along with pre existing documentation outlining my disabilities several weeks ago when a sudden policy change began affecting my work (this change happened in the middle of my shift and I submitted my request before the start of my next shift). I was told I should receive a determination within 1 week of providing any requested information. I provided extra requested documentation a few days later, and when HR returned with questions about specifics of what an accommodation meant they refused to speak to me about it and allow me to clarify again demanding documentation from a provider. I provided it begrudgingly within a couple days. They have repeatedly called me although one of my requests is to be contacted via email as my disabilities affect communication, emotional regulation, and stress response. This is all verified in all of my documentation. After a week I followed up again asking for the second time (I asked the first time I spoke to them) for temporary accommodations due to the delay and received a copy and paste email with an FAQ attached that said I should have received a determination on my accommodations within 2 business days of providing information. I followed up again noting that the email only raised more concerns about the delay, and did not address my request for temporary accommodations. After several days with no reply I escalated to higher up HR providing a timeline and they confirmed they would investigate.
within a few hours of their confirmation I received another request for extra documentation from regular HR this time they want me to provide documentation “from my provider” stating “the start date of my accommodation request”😂😂 a couple issues with this.
1 a provider is not part of the start of an accommodation request. An accommodation request is initiated when the employee notifies their employer that they have a disability and need accommodations. And the start date of an accommodation request is the date that that notification takes place. I do not have to talk to a provider or provide any documentation in the initial request legally. Nor did I. I provided documentation I already had for school which outlined my disabilities, affected major life activities, severity, functional limitations and suggested taking extra breaks as an accommodation which was all I initially requested.
And 2 how would my provider.. legally sign a note.. detailing when an initiating process took place that they were not a part of?.. It’s absurd. Seems like they are trying to come up with excuses to further delay accommodations.
I replied to the email requesting clarification because the date I requested accommodations is written in the email they sent me as it’s the date the HR case was opened. And the deadline in the email they sent today for giving them this new provider note is well past. But that deadline is several days after the email I received from them stating they had received all the information they had requested.
This sucks so bad. My work keeps playing SUPER LOUD MUSIC. I’ve had to leave early multiple times because of it. I try the provided ear plugs, but ear plugs hurt. They always have. Anything that gets inserted into my ear canal including ear buds, foam earplugs, loop earplugs, etc all I can think about is the uncomfortable pressure in my ears. I can take it for less than an hour before instead of being overwhelmed by the noise I’m now overwhelmed by ear pain.
Last night they kept turning it off and on and within 45 minutes of music being turned on I’d have the overwhelming urge to leave, hide in the bathroom or my car and/or cry. It doesn’t feel like anxiety it feels like GET OUT OF HERE. I start making mistakes in my work. I’m angry. Ruminating. I hate it. So I try to take a break, take my lunch, or take a bathroom break when it’s really bad. Then they’ll turn it off for a while and inevitably someone will complain about the music not being on and they turn it back on. My leader will move the speaker further away from me but it’s not enough. Then I try ear plugs for a bit. Once I can no longer take those and I’ve used all my breaks I’m screwed. I’ve had accommodations for ear defenders and extra breaks pending for weeks. I just contacted HR and asked them to expedite it as the facility provides in ear hearing protection it shouldn’t take weeks long reviews to approve an over ear option or implement temporary accommodations as temporary accommodations are also an option in our company policy.
I went from being a consistent top performer to now unreliable and I’m now figuring out at least part of it is due to sensory overwhelm. Fans blowing on me, loud ass music, after a while I notice every breeze and the noise from the AC and I suddenly hate everything and am angry and craving escape. I’m not dxed ASD so the extent of my sensory difficulties isn’t “officially” documented but my accommodations are submitted for ADHD & S(P)CD. Even if they approve over ear headphones in the long run, I’ve been looking into recs and I can’t afford $200+ headphones like the bode quiet comfort ultra everyone recommends 😢 being poor sucks and being disabled also sucks.
Provided images of messages and have to get ready for my appointment so I can’t go into full details but most context is in photos.
Additional details:
The day after my first message (which in my chart was sent to my DOCTOR cause I wanted their opinion not the clinical support/nurses etc I figured she’d review my chart and the indications for the ultrasound and respond based on that within a day or two..), immediately before I sent the second message I received a call to confirm my appointment from the office that does the scheduling
I told them I’d messaged and basically said on the phone exactly what I ended up explaining in my third message, that I didn’t know if there was a point doing the Ultrasound rn and if my doctor would want to postpone to get images when I haven’t had a period in a while (I do have a history of abnormally thick uterine lining during a period of amenorrhea but that was on an ultrasound like 17 years ago when I had gone over a year without a period and an extensive history of irregular menses, but this Dr is new to me I’ve only seen them once) they said they’d call the Dr office and call me back I told them pls respond via message since I’m heading in to work I can’t answer calls but I will check my messages.
After that call I get the message response from clinical support about the bleeding not affecting a trans vaginal US and send my response in photo which I felt like very accurately described my confusion and concerns regarding today’s appointment, I’ve had a lot of ultrasounds due to my issues and have always been told full bladder if they’re planning an abdominal ultrasound cause it helps push up your uterus & ovaries to the surface of the stomach, empty bladder if planning a vaginal ultrasound.
They respond telling me to call to reschedule so my deduction is yes the Dr wants me to reschedule.
Immediately when I wake up, take my Vyvanse, am planning on napping for an hour, I call them and tell them I was instructed to reschedule.
Scheduling office says they have no notes that I’m supposed to be rescheduling, who told me that? I give them nurses name (crossed out in photo). They transfer me to the Doctors office. Different nurse answers. Says she’s gonna go talk to my Dr real quick which great I’m happy about cause I wanted her opinion this whole time so she places me on hold for 10 minutes, after that she says Dr is with a patient can she call me back in like 10 minutes & I say sure.
More than 30 minutes later I get a call from the scheduling office (NOT my Drs actual office) “Hey if you want to reschedule we can or if you’d rather keep the appointment or cancel it it’s up to you” me: “what?..” them: “Well we book out a couple months in advance so if you don’t want to do it today then we can cancel but it might be better to reschedule for our next available in June so you have an appointment set up in case you don’t have a period again in May/early June the appointment is already set up because we book out so far in advance” me: *silence*, I’m unable to formulate a verbal reply, complete confusion, I know I’m about to start crying or going off if I try to talk cause still NO ONE has addressed my concerns or answered my questions and one message straight up told me to reschedule so imo that means Dr wants me to reschedule and now we’re talking about if *I* want to reschedule which I NEVER SAID I DID Her after a few seconds of silence: “do you want me to transfer you back to the nurse?” Me: “yes”
*nurse picks up* “hello is this xxxx?”
Me: “yes”
Her: “So if you want to reschedule your appointment you can do that but we won’t be able to get you in for a couple months or you can come in today”
Me: *voice cracking and hitting the bed while replying but not getting loud/yelling or cussing this lady out* “I don’t understand I don’t know why we’re talking about what *I* want to do I’ve been asking if my dr says I’m still supposed to come in today and if she still wants the ultrasound done today due to the circumstances and no one is answering me”
Her:”Oh well when I talked to your Dr she said yes she still wants you to come in today but we figured you were uncomfortable doing it while you’re bleeding and if so it’s ok to reschedule”
Me: “I’m not bleeding anymore (which I said in the messages!!) and I don’t think it’d matter anyway if I was since y’all said come with a full bladder I figure you’re doing abdominal ultrasound but ok yes I’ll be there later today”
*get off the phone now my whole morning is thrown off and I’m ruminating over this conversation instead of getting ready or hanging out with my family or eating or doing anything I want to do or what I need to do considering I have company coming tomorrow*
So I guess my question is to avoid this crap and indicate I need them to actually directly address the concern/questions I presented, should I disclose?? My PCP is in the same network so they share a system and he has my full psych eval on file so I figure they can see it anyway but maybe not or maybe they don’t look?? They definitely know I have ADHD cause I have to tell them my meds and I’m on a stimulant. And the next question my actual diagnoses is social (pragmatic) communication disorder not ASD and no one knows what the f*** that is or what it means cause it was invented in the DSM5 my psych eval even tries to say it’s likely caused by a combo of my ADHD and Trauma but in the DSM5 it’s a developmental disorder which I don’t think is actually *caused* by anything like that but whatever. Point being telling people that they’re still not likely to understand my functional limitations, telling them I’m autistic feels wrong since it’s not accurate to what’s on my report (even tho I think I’m actually autistic maybe split social level 2 RRBs level 1) and they’re a Dr and they can look at the actual diagnostic paperwork since it’s in their shared system and even then it might not accurately convey the issues ie people often think Autism= intellectual disability but my IQ is around superior range depending on the measure, saying I have Asperger’s feels wrong/ableist and also not entirely accurate cause again not on my diagnostic report but people do generally understand that it means direct communication needed and no intellectual disability just weird/off. But saying that makes me feel like I’m actually communicating “yeah I’m autistic but generally not like stupid and hand flappy” which is terrible and based on stereotypes. Or I could say my actual diagnosis/limitation like “I have pragmatic communication disorder which is basically the social side of aspergers/autism” or ““I have a developmental disorder that affects communication so I’m not going to easily understand implied communication and I’m going to get upset having to try”??