u/Comfortable_Nerve800

Hey all, has anyone taken Bethastine and had any reactions? It’s the only one I’m able to take for my vertigo, but It being a histamine receptor I’m quite worried.

Hey all. I just wanted to let you know If you’re in North Yorkshire, outer areas, or willing to travel there is a physiotherapist named Emma who works alongside Dr Gupta for patients with POTS, and EDS in York. Her price range Is honestly magnificent especially for those of us who have to rely on benefits, £65 for a consultation and £52-75 for follow ups depending on the time frame of the appointment! She also does home visits (York & Outer areas) which Is marvellous for those who can’t get out of the house.

The company name Is “Mobility Physiotherapy LTD”, there are other physiotherapists at her company but she’s the only one who has training within POTS and EDS patients.

I have my appointment with her in a few weeks and I’m very excited as my mobility has completely gone shot ❤️🫶🏻 Just thought I’d post this here Incase anyone has been looking for an affordable physio who actually knows and understands our condition, instead of basic phsyio which can worsen our condition and lead to flare ups!

I was just thinking about the POTs diagnosis process, the criteria and how It effects standing up to do your daily tasks etc, and how many POTsies become ambulatory wheelchair users, and my mind has now drifted off to non-ambulatory wheelchair users, and how POTs would manifest for them, how they’d discover they have POTs, how the diagnostic process would go?

Everyone with POTs knows It isn’t just a High HR upon standing that manifests with It, so would a non-ambulatory wheelchair user have a complexity of symptoms they struggle with but no way to attribute it to POTs?

TLDR: Is Gastric Vertigo a thing?

Hey all! My GP and I are currently trying to find out what exactly Is going on with me, I have a cluster fuck of symptoms that do not match up with one another. However my biggest problem Is dizziness, It’s disabled me completely for two months without It stopping, but last night I took 30mg of Lansoprazole and It’s gone this morning?

I do have acid reflux rather regularly but It’s a “Just my body” kind of symptom, my upper abdomen does swell and gets very painful, and eating feels like I’m running a marathon, non cardiac chest pain, difficulty swallowing etc but again, very much so “That’s just my body” mindset due to how many symptoms I have of different things. My entire life Is one big “I thought everyone had that? That isn’t normal?”

We were going to trial Procholorperazine for the dizziness, and the Lansaprazole was just for the acid reflux and my stomach problems, I haven’t taken the Procholorperazine (Different story lol) so I’m a little surprised this morning. We were looking at It being ear related but now I’m not so sure.

Not looking for a diagnosis as per subreddit rule but just some Insight on If this Is relatable to anyone with diagnosed Gastritis/GERD who possibly had unexplained vertigo?

Hey all! My GP and I are currently trying to find out what exactly Is going on with me, I have a cluster fuck of symptoms that do not match up with one another. However my biggest problem Is dizziness, It’s disabled me completely for two months without It stopping, but last night I took 30mg of Lansoprazole and It’s gone this morning?

I do have acid reflux rather regularly but It’s a “Just my body” kind of symptom, my upper abdomen does swell and gets very painful, and eating feels like I’m running a marathon, non cardiac chest pain, difficulty swallowing etc but again, very much so “That’s just my body” mindset due to how many symptoms I have of different things. My entire life Is one big “I thought everyone had that? That isn’t normal?”

We were going to trial Procholorperazine for the dizziness, and the Lansaprazole was just for the acid reflux and my stomach problems, I haven’t taken the Procholorperazine (Different story lol) so I’m a little surprised this morning. We were looking at It being ear related but now I’m not so sure.

Not looking for a diagnosis as per subreddit rule but just some Insight on If this Is relatable to anyone with diagnosed GERD?

OCD Symptoms 17 years, Endometriosis 17 years, POTS 4 years…now some mystery vertigo that has completely ruined my quality of life.

Out of all my years having OCD and Chronic illnesses, It’s never latched onto my health, maybe for a brief second but not everlasting. A few months back I collapsed and my OCD Is now on a rampage.

Today was a successful win, my GP appointment for my health went so much more brilliant than I expected, the bakery counted my order as cancelled once It was delivered which put me In a even more amazing mood because I got my food fixation for free after a tiring day. This is where my OCD started to seep In, that the reason why It’s going good was because I’d die, I managed to pace through It, and get out of that mindset.

After 2 months of ongoing vertigo, my GP finally prescribed me medication for It, I did my usual, checked side effects to know what to expect, then my eyes Immediately notice “Very Rare Sudden death” I’ve been completely and utterly disabled, I had so much hope today, hope my health would get better, hope my OCD would finally settle down but nope. “Very rare, that 1% will be you” so now I can’t even take the medication I’ve fought for.

I feel so defeated. I did ask my GP to also prescribe my citrolopam again, but now I’m too scared to even take that.

What started this spiral was extremely traumatic, literal medical trauma and whilst 2x Doctors and Cardiologists have reassured me I was lied to by two health professionals, It wont get out of my head. I’ve sent a complaint about that of course, and my GP has helped with It but I can’t cope.

No reassurance please, just advice and support ❤️