u/ConfectionOutside248

Which is so weird because I thought i had a connective tissue disorder that was undiagnosed, but i went in to see a new doctor and HE HIMSELF was like yeah that sounds like EDS or "rubber man syndrome" and literally everything makes sense

I knew eds is very prevalent, and I have a lot of the comorbidities, but for some reason I was convinced theres no way, but honestly I think im just in massive denial 😭😭

I also already have RA and other health issues, so this was kinda crazy to have actually been told I may have EDS which is very famous for people/doctors not taking it seriously

He said we'll get into that another time which is fine because hes genuinely very thorough and motivated, best doctor ive EVER had :)

So were having a bit of an issue, its been like 7+ months and idk what to do for an external identity how like family and dr offices and stuff where its not really relevant to mention I have OSDD.

I was out as a Trans guy for 9+ years then we had a female host take over, but now everyone knows me differently and then I get questions about detransitioning like dawg im still here 😭 theres just more or us and I dont host anymore that much

We're all so separate though, it genuinely feels like completely other people independent of me, and a lot of them are very aggressive about having their own identities

Heres the weird kicker- I have trauma involving someone with they/them pronouns and my brain instantly gets triggered if its used for a single being, which i know is a me issue but the trauma was REALLY bad, so they them wouldn't work, and we dont like using a single alters name otherwise it makes anyone else who could be fronting linda uncomfortable and its confusing 😭 idk it feels really stupid i hope it doesnt offend anyone its just how my brain correlates stuff.

I guess, does anyone have any good ideas or share what we prks for you?? Alter dysphoria is very VERY weird

In therapy today we talked about changing my sense of control from being outward and enviroment based to internal. Because were a system weve always struggled with self soothing because we never really did that, we just endured and shut down.

Right now our central nervous system is turned up to 11, we have our emergency energy alter (theyre a persecutor but they carry our emergency energy we used to need) is co-con/co-fronting for the first time in YEARS and im out hosting (Quinn) even though Anya took the hosting position after a specific trauma that happened in december. Im sure she'll be back but shes never gone radio silent like this

What are things that help you feel like youre in control of your life even when shits hitting the fan? Anyone have any tips for anything? Idk just thought I'd ask the peanut gallery

IM SOOO HAPPY RIGHT NOW!! Im in a bad flare (RA still uncontrolled) spring time is always the worst

I went to see my Rheums PA (i love her shes great) and shes tapering me down on the steroids because they arent working anymore (thank god i hate steroids) so she put in a referral for AQUATIC THERAPY!!!!!!

Im genuinely so excited, it was just winter so I was immobile for a long time and flaring, I have not been a good RA patient in terms of exercise I also have fibro so my brain REAAALLLYYY fights me on the idea of exercise, but WATER THERAPY SOUNDS SO NICE im so excited to get mobility back and reduce stiffness and get some strength back😭❤️ hopefully some pain improvement too

Idk why im so excited but meds havent been my best friend for RA yet so im glad were going the physical route now!! I felt like she was genuinely hearing me and that means so much as a 20 year old girl who gets blown off by doctors a lot 😭 she is so nice

I have a few health issues (physical and mental) that cause me to need a significant amount of rest, however I grew up in a house where work was tied to worth and now at 20 I cant relax without feeling like im being lazy

My boyfriend points out all the time that I always keep getting up and moving around even when its super painful or when im exhausted and I genuinely do not know how to stop, id bring this up in therapy but theres stuff more urgent to work on.

Did anyone grow up in a very stressful home where resting was seen as lazy? I have relentless severely active RA and daily vestibular migraines and a whole bunch of other BS and I've felt like crap for weeks. I need to rest

Just wondering my side effects usually happen a few hours after but I just took my shot and my left hip joint in specific is screaming so loud, usually my hip pain isnt very consistent but OWIE

Does anyone else get instant reactions or could I be correlating this to the wrong thing

Edit its kicking my ass help

Hello, just thought I'd ask you guys, ive noticed my protector delta has been waaaay more active but shes also almost fighting back? Shes like oddly feral and aggressive and defiant, usually shes more cold and calculated and she does have residual rage but usually its under control, shes more against us having 1 person kinda controlling things, shes angry and its constantly leaking through

Our nervous system is fried but usually when were stressed like this everyone goes more silent, they dont start fronting more and communicating better

Oh yeah everyone's way better at communicating, we think we are going into a hypomanic episode aswell. Does anuone know good ways to approach a protector on the wild side? Im worried she may do something the rest of us dont want

We are currently hypomanic and cannot find much on this topic so I thought I'd ask here lol. So far ive noticed our protector is way more lax and almost like shes having fun which is not usual, so good for her!!! It almost feels like we have better communication? Kinda? With the racing thoughts and flight of ideas obviously its a little rough around the edges but it feels like dissociative barriers are down - which theyre not truly, not for an episode, usually I dissociate to high hell. Also weve noticed a lot more possessive switches, like one of my guys fronted/co-fronted and made it so we couldnt speak for like 20 minutes (he cant speak)

Feel free to share your own stories or mixed episode symptoms too im curious!

Okay so I dont condone anything ive been doing, but for context my biyfruend turned 21 at the end of April so weve been going kinda hard in the paint with alcohol

Well alcohol makes it so I wake up in the middle of the night and struggle to go back asleep, this time its worse because I just havent been going back to sleep at all. I have rheumatoid arthitis and fibromyalgia I cant be doing this shit lmao.

The past few days I noticed.. hmm im talking WAY more than usual, oddly euphoric or "whole" most of the time but with random brief suicidal/depressed mood swings, CPTSD symptoms are way more intrusive, super irritable

EVEN THE TIME IS SLOW AS FUCK i was laying with my boyfriend whos asleep and I thought i was there for 30 minutes,, I was there for 6

I do love how music sounds though!

Oh and I got an appointment coming up dont worry

I wish I could show a picture, I just spent 40$ and the rest of my energy for the day making a single packed bowl of ramen

Shin ramyun, hella frozen veggiee, some fresh green onions and carrots, buldak sauce, microwave pork dumplings, MY FIRST EVER SOFT BOILED EGG!!! And some yummmyyyy kimchi!!!!

I know its all microwave shit but the tiny bit of chopping and cooking I did makes it feel real!!!! :) just wanted to share!

Anyone else get a crazy hangover from enbrel? This is my 4th week and I swear to god it cripples me for 2-3days after

I know its just the biologic hangover and itll probably get better but owwwww 😭 it triggers my fibromyalgia aswell as systemic immune reactions its like blehhhh so much

Any tips? This is only my second biologic and the last one barely caused a hangover, this once is beating my ass

Hi, I usually dral with severe GI issues but I found out that a lot of my random nausea episodes have actually been severe vertigo. I had a severe episode that put me in the ER like 2 days ago because I couldnt keep any food or water down

I cant see my ENT for awhile because I owe them 50$ and they wont let me make a new appr until I pay, but I found that Meclizine helps, I was wondering why IV/IM zofran wasn't doing anything

I feel like i dont know where my body is and im falling down a bunch, does anyone have any tips to help that? I've had this vertigo for awhile but never an episode this bad and never had this much trouble walking around