u/DeRpY_CUCUMBER

I’m in a massive flare. I stopped Cromolyn abruptly for reasons we don’t need to get into, and it caused the worst flare I’ve ever had. I am slowly climbing my way out of it, but one of the concerning newer symptoms for me is when I am sitting with my arms bent and resting on arm chair, the veins in my hands start to bulge, pressure builds up, and feels like if I don’t change arm position, my hands are going to pop.

This symptom has only started after this recent bad flare. I’m assuming to blood pooling of some sort. Just curious if anyone else has this due to mcas?

Got covid a couple months back, already had MCAS, but being sick really wrecked me. I’ve been having far more “attacks” than I ever had before. So much so that I’ve reduced my meals way down to basically protein, veggies, and a few other things that I know are low histamine.

That’s the thing, I’m eating lower histamine now than I ever have, and I’m getting worse attacks.

After typing in my diet into A.I to try and find a common denominator, I’ve come to the conclusion that although my diet is very low histamine, it’s extremely high in salicylates.

Before covid I never thought I had a salicylate intolerance because I was able to eat a few things off the avoid list and not have much of a reaction. Or at least so I thought. But now, I think it’s pretty obvious I have this intolerance and it actually makes sense now why things like cumin, black pepper, and a bunch of other spices have always been a problem for me.

My question is, when you’ve gone overboard on salicylates, can it feel exactly like an MCAS reaction? Because for me, they are identical. I’ve been eating high salicylates for a couple months now and I’ve progressively gotten worse and worse to the point it’s put me in the hospital with high heart rate and high blood pressure. I get this same kind of thing eating high histamine.

I’m very recently added dried oregano, thyme, and rosemary onto my daily chicken, and have been more reactive lately.

I’ve been experimenting and the days I don’t eat dried herbs on my food, I feel a lot better.

Curious about others experiences as the information online is that they are low histamine, but can still give MCAS sufferers a reaction.

I used to get these sometimes. Maybe like once a month. Then I got covid, and it set my MCAS on fire. Now every time I come into contact with any little thing, boom I got a 170 HR and 175/125 blood pressure and end up in ER. This is more frequent now.

I just want to know what percentage of MCAS suffers get these symptoms too.

Back when there were only a handful of firms, it seemed reasonable that they could handle paying out millions of dollars every month.

But now that there are 60-70 firms, how is it possible these companies are still making enough money every month to afford the payouts and make a profit?

Who are the people that are constantly spending on accounts month after month, year after year? Don't you think they'd eventually either give up, or be profitable?

I think I spend about $2000 on firms over the course of about 2 years and then I become profitable.

Hello, I am looking for your guys opinion. Had Mcas for years, was pretty stable for a long time. Then I got covid, and it wrecked me. I lost a bunch of safe foods, and am reacting to a loooot of stuff.

The past 3 nights, I’ve been working in the garage on an older car the spews a lot of exhaust. I usually start it to move it, and end up with a few big breathes of exhaust. Within an hour of this happening, I end up getting a massive attack, and end up having to take rescue meds, and 2 of the 3 nights I’ve ended up in the ER.

My diet has been incredibly strict, basically just chicken and veggies. And all 3 nights I’ve had attacks I hadn’t eaten in like 6 hours. I seriously doubt it’s food. Which means either I’m getting random MCAS attacks out of the blue, or I’m considering that I’m reaction bad to car exhaust.

It sounds crazy to me though, because pre covid, this was definitely not a thing for me. Just curious what you guys think and if anyone has similar issues?