Stevens-Johnson Syndrome
Hi everyone,
I’m reaching out from Turkey because my family is going through an incredibly difficult time.
My grandmother was diagnosed with stage IV lymphoma. After receiving chemotherapy, she developed Stevens-Johnson Syndrome (SJS/TEN), which we were told is an extremely rare and serious reaction. She is currently in the hospital, and we are all very worried.
I’m trying to connect with anyone who has personally experienced SJS/TEN, or whose family member has gone through it, especially if it happened during cancer treatment or chemotherapy.
If you’ve been through something similar, I would be incredibly grateful if you could share your experience. I’d like to know how your recovery went, what treatments helped, whether your eyes were affected, and if there’s anything you wish you had known at the beginning.
Thank you so much for taking the time to read this. I sincerely wish everyone here good health and a full recovery.