u/Gribblie

I got diagnosed with Eosinophilic Esophagitis (wheat/gluten as the trigger) and a more serious instant anaphylactic egg allergy in 2022.

Before then, i had only just begun to explore other countries outside the uk, having never done so ss a child. I remember studying in Quebec and loved it so much.

So far since my allergies ive been to Portugal and Spain. Being able to eat a GF macdonalds burger in Spain was the best thing ever.

I want to see more countries and I was wondering if anyone with an egg or wheat allery (or both if thats likely) had an input or country recs?

Places I really want to see:

- Italy

- Vancouver

- Australia

- North West USA (Like Oregon)

- Norway

This is a really weird one and im actually not sure if its actually allergy related or something else psychological???

For the past couple years, every time i visit my parents or when they come to visit me i end up feeling quite ill and very fatigued. Like i have a really bad head cold and immediately need to lay down.

It upsets me because I already dont get to see them that much as is since i moved out 2 years ago and i have a good relationship with them.

Worth mentioning that i do have dust allergies that also go better since i moved out, so maybe when they visit theyre brining dust? But theyre pretty clean people and i cant imagine dust following them to be and affecting me from 4 hour drive away???

Last night i very quickly developed a very sore throat that hurts when swallowing. I suspected its just a very bad throat cold but then i remembered and im taking jorveza (budesonide).

Im aware jorveza can cause fungal infections in the throat and that the only way to get rid of it is to see a doctor but how can i tell if its a fungal infection or a throat cold??

I have no white spots anywhere in my throat or mouth, its just very red. My lymphnodes are also lumpy and im very tired. All signs point to a viral infection but im so nervous that im wrong. I have health anxiety so it can be very hard to tell whats what so ive gotten myself a bit nervous.

I was diagnosed with EoE with wheat as my trigger. I also developed an anaphylactic egg allergy a few years back. I used to love sweet foods for breakfast like pain au chocolates, pop tarts etc. Ive found a good wheat and egg free pancake recipe but really wish there were pop tart alternatives out there that actually tasted nice. I liked Belvita too.

Would anyone in the uk like to share their sweet breakfasts that they either made quick and easy or bought from somewhere that are egg and wheat free?

I feel like ive done a good job with finding yummy lunch and dinner alternatives but not breakfasts. Best i got is promise bread toast with jam, which is nice but i miss my old breakfasts a lot. This is all just too hard...

In December i saw a dietician who had me try eliminating wheat, but mostly to solve gastrointestinal issues rather than my EoE. Ive been taking Jorveza for that.

I did speak to both doctors about how being on the diet and meds might make it hard to see whats working, but ultimately decided to keep doing both because GI issues massively improved my quality of life again.

This month i was told i could start reintroducing wheat again to see how much my GI track could tolerate it (confirmed im not coeliac). About a bit less than a week later i noticed swallowing issues again and went to my GP for an emergency appointment because i was afraid that bits of food were tipping near my airways instead.

She saw no issues in my mouth or tp of my throat, and acknowledged my gastroscopy in May was good, then pointed out that my symptoms started less than a week after eating wheat again and it clicked. I forget that EoE reactions take time to show up after eating a trigger so it slipped my mind. Ive eliminated it again to see what happens. Unfortunately i cant see my gastro until October now but if it doesnt get better ive got quick access to primary care.

I hope it does get better though, and i hope that maybe ive gotten a lot closer to finding my trigger and can explore that further in October.

Anyone else experience this on 1mg of Jorveza dissolvable tablets (taken twice a day)? Before starting it i would feel food goijg down my gullet slowly, but since taking it this feeling has lessened. A Gastroscopy in May saud they only saw mild furrowing that they werent concerned about, suggesting its been helping.

Two weeks ago i started to struggle to swallow again but in a different way. I have more phlegm in my throat and when i swallow, most of the food goes down super easy but tiny bits seem to stay at the very top of my food pipe and tip into the wind pipe instead. I have to clamp my windpipe shut and make sure i dont inhale to catch it before it goes in the windpipe.

My leaflet said Jorveza can cause difficulty swallowing. Maybe since last week it could be thrush? Though my throat isnt very sore. Anyone else had this before? If it doesny get bettee by the end of the month ill probably have to go to the doctor and mention it. I have an anti choking device but obviously id rather not use it...

I initially went on depo provera at age 20 because of monthly pain that would have me fainting and being sick etc. Then this year at age 27 i switched to the mini pill for a safer option (i was not happy with my doctors who had me on depo for that long without telling me the serious risks besides loss of bone density), but if im being honest, contraceptives have given me new pains and daily side effects that I also dont want. Its like i cant win 🤷‍♀️

I unfortunately think i already know the answer to this. But is there a chance my cycle wont be as painful if i come off BC or will the pain be just as debilitating as before? What happened for those of you like me who actually stopped BC after almost a decade to see what would happen?

I initially went on depo provera at age 20 because of monthly pain that would have me fainting and being sick etc. Then this year at age 27 i switched to the mini pill for a safer option (i was not happy with my doctors who had me on depo for that long without telling me the serious risks besides loss of bone density), but if im being honest, contraceptives have given me new pains and daily side effects that I also dont want. Its like i cant win 🤷‍♀️

I unfortunately think i already know the answer to this. But is there a chance my cycle wont be as painful if i come off BC or will the pain be just as debilitating as before? What happened for those of you like me who actually stopped BC after almost a decade to see what would happen?

I'm not sure if this is the right sub, but this is about EoE, which I have. I found out I had it after waiting in NHS A&E on a chair for 2 nights on an IV drip not being able to swallow my own spit. No sleep. No food.

All the nurses kept telling me it wasn't a real emergency and it was only a mild inconvenience which was why i was waiting so long. I'm currently trialling difference treatments 2 years later but that whole A&E event left me with extremely severe trauma which has caused me to be very chronically ill in other ways now. I am a shell of my former self. Never felt the same since.

I keep having flashbacks and looking up on google if there are any other A&E's near me but this is the only one. I'm looking up techniques to try before going to A&E if it ever happens again. Has anyone else here had a tough time in A&E for food obstructions and how did you have the staff take you seriously and have you seen sooner? I understand NHS A&E wait times are bad but if this happens again I cannot wait for 2 days like that on a chair again or my mental health WILL relapse full force...

I just stransferred out of an office where i was very badly alienated and bullied and I think its made a long term impact on my psychology.

Im in a new department now and its a much easier role that fits my disability adjustments and everyone seems nice.

But then one day I was training up a new person. A lady who is usually nice to me came in to ask for the work laptop. I spent a bit of time looking for it (i have a slow processing speed) and as i turned back round I very clearly saw the lady exchanging a rolling of the eyes with the lady i was training. It was very obviously about me. I recognise these things well from long term experience.

My heart dropped and now im back to being insecure and feeling rejected again. I guess people here also still see me as slow and weird. Less than human. Only difference is they try to hide it from me. I must accept that i will never be liked or accepted by neurotypicals no matter how nice i try to be.

It seems that if your cognitive abilities are below average for any reason society deems you less than human.

Ive had severe monthly pain that makes me sick and pass out since I was 16. Im 27 now but havent bled since i turned 20 due to contraception. As a teen i tried the contraceptive pill but it made me depressed. I was then put on the depo injection at 20 but i stopped taking it earlier this year when i found out they should not have had me on it for that many years and i suspected it was causing VERY bad chronic GI issues.

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I have now been on the progesterone only pill for slightly over a month and have noticed a spike in low mood and irritability. Today it is particularly terrible and distressing. Ive been locked up paralized in my room from overwhelming irritability and depressive thoughts. I dont want to eat drink or do anything today. Im scared that when i go to a GP they will take me off the mini pill and i will go back to severe menstrual pain again.

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What do you do when all contraceptives tried so far have bad side effects but without it the pain is impossible to function with?? Im on an NHS 2 year waiting list for a lap diagnostic surgery but I really would rather it be a last resort because it sounds so extreme and i dont want it to potentially leave me in an even worse state.

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Im at a loss here.

I got moved to a new quieter depertment at my workplace after months of me saying i wasnt being treated well. I bumped into a neurodiversity rep that was helping me today and they told me they were glad i got moved and that the office that bullied me would be getting a sort of lecture/presentation on treating disabled people with respect.

I said that i was grateful, but in my head i still felt dissatisfied because since i left that department and spoke to other departments, they told me that 'othering' and bullying has always been a problem there. When i was still there i also heard them all constantly saying that any equality training they were 'forced' to do was pointless and boring.

I dont think they will ever learn and i fear for the next autistic person who gets stuck there.

Ive been given a 3 month trial course ofJorveza budesonide tablets. The elimination diet couldnt find my trigger so these are being tested instead. Since being on them I have actually felt a lot better and dont feel as conscious about eating. I just had a gastroscopy to take followup biopsies. They said i only had mild furrowing.

I never really had any strong symptoms before i got a food impaction in 2024 and had to go to A&E, where i also got diagnosed. I guess what im trying to say is im scared that even though i feel reduced symptoms on these tablets, my biopsies will show no remission. I dont want to get too relaxed with my eating and get food stuck again.

Has anyone else here felt the same?

27F. All my previous work places have been very discriminatory but i was finally transferred to a department that is comfortable.

The one before my current one was the worst. I faced heavy alienation and exclusion in a large and very clicky office. They were not subtle enough about laughing behind my back whilst i was in the same space either.

I had my accommodations put in place but my managers tone felt like she HAD to do it because of legal reasons more than anything else. That office made me feel so so stupid and useless because even with my acommodations i was still very behind. I was less than human to them.

I have a special interest in spiders and one particular colleague would talk down about spiders whilst i was around as a way to insult me but just using spiders in place of me, if that makes sense? She also always referred to me but rarely spoke to me 1st person. Always in a very low irrated tone. She wasnt the only one.

Turns out they had lied about being disability confident in my case and I was finally accepted to rotate to a different, quieter and smaller department. No more working super late once a week, no more surprise work that would set me back an hour. Just a small office to myself and friendly people that willingly make small talk with me but also have a good balance of keeping to ourselves.

Tbf I got very lucky but I finally did it. I never thought I would ever be here. Now i can finally get on with an easier workload and feel like I belong.