Reta/ fat burning

I have been on 2mg of Reta a week since March. I have lost 7kg and have hit a plateau. I know it’s a slow loss but it works for my current situation and I don’t want to increase my dose because of auto immune issues. My question is: will the fat burner in Reta continue to reduce fat even if I am not losing weight?

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u/HouseAway3681 — 2 days ago

Reta

I have been on 2mg of Reta a week since March. I have lost 7kg and have hit a plateau. I don’t want to increase my dose because of auto immune issues. My question is: will the fat burner in Reta continue to reduce fat even if I am not losing weight?

reddit.com
u/HouseAway3681 — 2 days ago
▲ 3 r/MCAS

Cold hands!

My hands get so cold in winter that I can barely function. Full finger gloves restrict my ability to work and I have tried fingerless gloves which don’t really help, and the only thing I can do is to run my hands under hot water which helps for a while.
Does anyone have a solution or product that they can suggest which will allow freedom of movement for my fingers so I can work with it on?

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u/HouseAway3681 — 2 days ago
▲ 9 r/AskZA

Cold hands!

I have two autoimmune diseases and my hands get so cold in winter that I can barely function. Full finger gloves restrict my ability to work and I have tried fingerless gloves which don’t really help, and the only thing I can do is to run my hands under hot water which helps for a while.
Does anyone have a solution or product that they can suggest which will allow freedom of movement for my fingers so I can work with it on?

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u/HouseAway3681 — 2 days ago

Remsima(infliximab)/ methotrexate

I feel like my quality of life has been severely negatively impacted by the Remsima (infliximab)/ Methotexate combination. I am nauseous most of the time, my body aches, my joints are sore, I am depressed, and it feels like my emotions have shut down. I don’t get upset but I don’t see joy either, it’s like I have become emotionally blunted. I have muscle pain and tendonitis. I feel like a shadow of my former self. I felt healthier before I was put on this drug 3 months ago despite being in a full on flare. I am in all likely switching to Entyvio in August, but even if it doesn’t get approved I am going to refuse another Remsima infusion. I can’t do this anymore.

Has anyone else had such a negative reaction?

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u/HouseAway3681 — 8 days ago
▲ 8 r/MCAS

Coping with stress?

Stress is one of my biggest triggers for an MCAS flare. I am currently going through some personal trauma and wondering what I can do to calm my mast cells down until I get through it. Are calming pills the best thing, or are there any other things that can be suggested?

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u/HouseAway3681 — 1 month ago
▲ 3 r/MCAS

Dealing with stress and MCAs

Stress is one of my biggest triggers for an MCAS flare. I am currently going through some personal trauma and wondering what I can do to calm my mast cells down until I get through it. Are calming pills the best thing, or are there any other things that can be suggested?

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u/HouseAway3681 — 1 month ago

Remsima(imfliximab) Bubbly stomach?

I injected my Methotrexate on Monday and had my 2nd Remsima infusion last Tuesday. By Saturday my stomach starting feeling ‘bubbly’ and unsettled. My bowel movements although not classic diarrhea are urgent and forceful. Kind of explosive but my poops seem to contain air as they don’t flush away on the first flush.

Any idea what is causing this or helpful tips on dealing with this?

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u/HouseAway3681 — 2 months ago

Remsima combo?

I have just gone onto Remsima (Infliximab)and my Gastro has combined it with Methotrexate (initially 1ml and now 0.5ml).

I haven’t read anybody else say that they are on this combo. Is it usual?

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u/HouseAway3681 — 2 months ago

Metallic taste in my mouth

I am on Methotrexate and Remsima and have developed a horrible metallic taste in my mouth. If anyone else has experienced this, please can you tell me if you have found some way to get rid of it? I am sucking super strong throat lozenges by the bucketload but it’s not helping!

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u/HouseAway3681 — 2 months ago

I got my first Remsina IV dose on Friday. Since then the amount of phlegm and mucus that comes out of my body has increased substantially. I blow loads out my nose all day and even cough up some. The colour is clear so not infected, and if I had to describe it, it feels like I have a bad head cold. Did anyone else get this as a side effect? Does it go away? How did you manage it?

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u/HouseAway3681 — 2 months ago

I have had 2 really bad UC flares in the last 10 years. Both times my faecal calprotectin was 2100 (vs upper range of 50). I‘ve now been put on biologics but my Dr gave me such a fright when he came to see me after the scope last week and said ‘at least we don’t need to remove your colon’. Say WHAAAAAAAT? Even though I was ill, I didn’t feel nearly sick enough for this to even be a discussion. For those who have had it done surely there is a longer process to follow? I’m going to imagine that your colon completely stops working for this to be considered? Would you mind sharing your journey with me and what led them to do something so drastic?

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u/HouseAway3681 — 2 months ago