Make sure you verify anything your doctor tells you.
▲ 67 r/Anemic

Make sure you verify anything your doctor tells you.

I have consistently had contradictory iron blood panel results. My ferritin is low causing low low ferritin symptoms, but at the same time my saturation and serum is high like in iron overload. I discovered I had low copper which was causing low ceruplasmin. Ceruplasmin plays a critical role in iron metabolism in the body to both transport iron where it's needed, including storage into ferritin. I saw a hematologist regarding my issue in how to address it, since iron supplementation isn't helping. He quickly dismissed my concerns regarding my low ceruplasmin as a potential culprit behind my weird iron blood results and said low ceruplasmin only plays a role in moving iron from ferritin, not into ferritin. Yet, medical texts show it helps move iron into ferritin. You can't even trust a doctor specialist these days to know what they are saying.

u/Human_weird123 — 5 days ago

Looking for wireless HDMI transmitter and receiver. To screen mirror from phone to TV.

Any good branded and reliable HDMI transmitters and receivers that don't require any apps to be installed to use?

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u/Human_weird123 — 6 days ago

If you have "IBS", it may potentially be causing your low testosterone

I have SIBO(small intestinal bacterial overgrowth), which many lazy and ignorant doctors diagnose as so called IBS. SIBO can cause various health issues and symptoms, such insomnia, skin issues, inflammation, malabsorption, hormonal issues,fatigue. Since "IBS" is quite common and if you have an "IBS" diagnosis, and also have low testosterone, it's worth ruling out SIBO. Since addressing my SIBO, I have had a significant increase in free testosterone. From 225 to 440(Range is 200-600).

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u/Human_weird123 — 15 days ago
▲ 51 r/Anemic

Anyone develop dysautonomia from their chronically low ferritin?

Every time with every single doctor I have been to, my low ferritin symptoms have been dismissed. They gaslighted me that my symptoms are nothing more than anxiety. I was stupid and naive and simply took their words over what my symptoms and low ferritin was telling me. I basically started to ignore my symptoms as I assumed it's all in my head. Any time I felt fatigue, feeling wired I simply pushed through and ignored all the sensations and discomfort. It got to a point my sleep started to suffer, waking up night and my palpitations I felt doing anything strenuous, became something I experienced constantly even at rest. I am sensitive to caffeine, but it feels like I am drinking coffee without actually drinking coffee, this constant internal wired feeling but at the same time very fatigued and it especially gets bad doing light activities like simple everyday household chore. My digestion and sleep are all messed up. Feels like my body is in a constant state of fight or flight and simple things trigger it. The name for this is dysautonomia. Anyone experience something similar?

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u/Human_weird123 — 23 days ago

How to access blood test results

I recently moved to a new area and had to find a new GP as I required some follow-up blood tests as previous ones showed some results which were out of range. All was going good until this new GP failed in her duty of care and refused to order all the required follow-up blood tests which were previously out of range and abnormal. She didn't understand the significance of the results unlike my previous GP and so didn't order these tests. I was pissed off too as this appointment wasnt even bulk billed. I expected quality of care to be same, irrespective bulk billed or not.

When I had the blood test, I simply added in myself to the pathology form the tests that needed to be followed up on.

All was good until she realised I had results in the test she didn't personally order. My appointment was cancelled and communication was ceased.

How do I get my results. It's urgent as I had markers out of range.

I was thinking of finding a new doctor and asking them to request a transfer of medical notes from this practice.

Alternatively just find a new doctor and ask them to repeat the tests? Is it possible to get a repeat of the same tests in a matter of days?

I wish this doctor was more focused on her knowledge, duty of care than her bruised ego that a patient had to step in and advocate for themselves.

If my results are out of range and there is evidence she refused to order these tests, despite prior knowledge of my abnormal results, is there grounds for disciplinary action?

This is in Australia.

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u/Human_weird123 — 2 months ago
▲ 5 r/M43

Any new or upcoming fast pancake prime lenses?

Panasonic has discontinued the 20mm f/1.7. From what I can find, there is no plan for an updated version.

Wish OM systems would offer a new 17mm f/2.8.

Anyone know of any new ones planned or coming on the market?

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u/Human_weird123 — 2 months ago
▲ 7 r/MTHFR

Weird reaction to B complex

My homocysteine levels were 9 about 7 months ago.

I thought I could get them down by optimising my B6, B9 and B12 and so started taking B complex.

I now have B6 toxicity as my active B6 levels are way above range and active B12 is 88.

My homocysteine has risen to 17.

I don't understand why my homocysteine levels levels are going up not down with high active B6 and B12 levels.

Could something else in this B sup be causing elevated homocysteine?

u/Human_weird123 — 2 months ago

Debilitating symptoms with Ferritin between 26 and 42

I don't have anemia but have debilitating symptoms such as tachycardia, palpitations, dizziness, chest pain and inability to exercise. Doctor says its anxiety but antidepressants did nothing. Cardiologist found nothing either.

I didn't have these symptoms when my ferritin was over 160. I have some lingering gut issues and don't tolerate oral iron supplements. Will an iron infusion be my only only alternative?

Are the risks of side effects high in iron infusions?

reddit.com
u/Human_weird123 — 2 months ago
▲ 2 r/Anemic

Debilitating symptoms with Ferritin between 26 and 42

I don't have anemia but have debilitating symptoms such as tachycardia, palpitations, dizziness, chest pain and inability to exercise. Doctor says its anxiety but antidepressants did nothing. Cardiologist found nothing either.

I didn't have these symptoms when my ferritin was over 160. I have some lingering gut issues and don't tolerate oral iron supplements. Will an iron infusion be my only only alternative?

Are the risks of side effects high in iron infusions?

reddit.com
u/Human_weird123 — 2 months ago