u/Jazzlike_Berry_323

Hi I’m just seeking guidance on anyone who has got an exemption somehow around the no renting out a room clause.

I’m in the segment of the ‘missing middle’: early retiree for health reasons with very low income but some assets.

Because I’m on low income I need to share ongoing household costs like strata, utilities, repairs/maintenance etc. through renting a spare room out.

People can be running their business from home and that’s okay, but just renting a room in your PPoR to cover some expenses puts you at risk of losing the house.

Are there any housing or residential rehab programs in Australia that takes people with mild to moderate TBI to help them? Without a SIL package?

I have been through a lot of different individual and combination medications, with limited reduction of anxiety.

What has been the med or best combination of meds for you personally?

Hi just reaching out to anyone who can share info about this, you’re also welcome to DM me.

I know very little about them so quite a few questions here:

Is there a SRS in Victoria that you would suggest to contact first because of good reputation/safety/quality?

Do they still accept DSP, non-ndis clients? (Assisted pension-level)

Do they accept GP referrals or do most referrals come from hospitals?

Who would be a good service navigator to contact to find a facility for a non-ndis client?

Hi just wanted to ask for those of you that do feel so unspeakably angry at services because you can’t get them to help, and you know your loved one is going to get worse and worse and will die from just that ongoing neglect that failure to help that failure to show up, how do you deal with it?

I’m so angry and I’m heart broken. I’ve exhausted all options.

My dad is going to die soon - he’s 82 in heart failure. My disabled sister will have nowhere safe to live when he dies as it’s not his home. She wants help they just won’t help her.

An OT assessment, her primary doctor, disability advocates (now exited as they can’t get the person help either) and support workers are all saying that she is severely disabled. She needs residential care or ongoing case management and support because she has multiple additive complex conditions. They all say that too.

Yet every single clinical specialist service that could support and sign off on disability packages, accommodation, is handballing - person is too mild, person isn’t disabled.

Here’s what I don’t need right now: have you tried doing this or that or speaking to this service or complaining or advocating or seeing an advocate or going to your local politician.

I’m not coping anymore. I can’t stop crying or the anger surging up. What outlook, what beliefs, what do I do internally to cope in a hopeless situation like this?

Perth. Don’t expect to receive mental health care here if you have PTSD.

The one psychiatry clinic focused on PTSD is wait list closed.

Due to limited PTSD services I attempted suicide and as a result have been given an adjustment disorder/BPD diagnosis as overarching on the public care system.

Without having once been asked about my symptoms or trauma history by anyone in ED. Despite being treated for 25 years on and off for major depression with anxiety and also having been previously diagnosed with PTSD in outpatient psychiatry 3 years ago.

This means that I will never be admitted in any hospital or outpatient care. I can never be prescribed medications even if admitted.

So if you have a mental health crisis just don’t have it in Perth Australia.

Hi, I’ve read the master thread on choosing a uni but just seeking a bit more specific advice, if this somehow goes into the master thread to help others that’s great 🙂

I’m looking for recommendations for part time online MSW, where the uni has a good disability inclusion reputation if anyone has experiences to share on this.

I did honours in a related area and 15 years work experience in community sector. I’m on DSP due to chronic illness so even though I’d always planned to get my MSW I would have to pace it carefully.

I need a flexible friendly course provider that wants students to succeed and that accommodates part time prac as well as part time coursework.

Thanks in advance 🙏

My nose is bleeding and congested, I have a moustache bandage and tooth pain.

This is the day after surgery.

I have lived with CFS since 2020. I have been unable to work and progressively more impaired in cog fog, cog fatigue, physical fatigue.

In April 2025, after a concussion I got a MRI. This incidentally showed a large polyp in my sinus. I shrugged it off thinking oh it’s only a polyp, lots of people have those. But actually it’s kind of misnamed…it is a tumour, usually benign but it aggressively erodes bone, and a large one about golf ball size. Remarkably invisible from outside.

It turns out that these can cause fatigue from: sleep disruption, apnea, neuro inflammation, sensitisation of facial nerves, headaches, congestion and the stress on the body of tumour eroding bone.

In 4-6 weeks I will know if it has made a difference to my CFS.

I hope it does.

Sadly it is the type that tends to recur within 2-3 years so even if it cures CFS, the condition recurs so the CFS may come back. Other sinus tumours have much better outcomes where once they are gone they are gone for good.

So I’m sharing this because we don’t know what causes CFS… and it’s probably not one thing.

I expect it’s not that rare in CFS that there is something undiagnosed lying cryptically hidden within the body that is putting a massive energy and chronic inflammatory load on the system. Where if we had those marvellous full body bioscans like in sci-fi films we would know quickly.

Hi, I’m seeing a lot of international students posting.

There was also a comment within a post recently about 80% of students in a masters course being overseas training for jobs here for residency.

Am I going to find a job at the end as a domestic student trying to qual for social work if there is oversupply of migrant graduates?

Or is it going to be like nursing where local graduates are struggling to find work due to international upskilling applicants?

Today I was sitting waiting for an appointment and kept nodding off with my head drooping like very old people do.

I also lay down to rest at 4pm and next I knew it was 8.30pm. I don’t faint but it’s immediate exhausted sleep like passing out.

Is this a normal symptom to have in severe CFS- to be unable to stay awake in an energy crash?

Fatigue for 6.5 years now I’m at my worst ever.

And yes I will be getting sleep studies but not for another couple of months.

Data Report:

https://www.aihw.gov.au/reports/disability/mental-health-service-use-disability/contents/ndis-participants

Executive Summary:

The findings below show how systemic barriers and gaps in coordination between disability supports and the health system shape NDIS participants’ mental health outcomes. When services operate in silos or are not designed to work together, people can be left without timely, preventative, or community‑based support. As a result, many NDIS participants end up seeking hospital‑based mental health services, not because these are the most appropriate options, but because other supports are unavailable, inaccessible, or not designed for people with complex needs.

In 2022–23: 

• NDIS participants had a rate of ED presentations for mental health care 10.8 times as high as people with no government disability supports after adjusting for age
• the proportion of NDIS participants arriving at the ED by police or correctional services vehicle was almost twice as high as people with no government disability supports
• the proportion of NDIS participants who had at least one hospitalisation for mental health care was 6.9 times as high as people with no government supports
• the rate of hospitalisations for mental health care for NDIS participants was 13.8 times as high as people with no government disability supports after adjusting for age
• around 3 in 5 (63%) mental health hospitalisations for NDIS participants took place in specialist psychiatric units, compared with 2 in 5 (44%) for people with no government disability supports.

Hi, sorry this just a reach out to vent as I just got declined again today. Also to share the difficulty of getting help when there is no structural damage on imaging.

I’m 9 months post injury from a car accident.

I’ve been declined 4 times now by neurology referrals over a 7 month period so I’m still on no waitlist for assessment.

A community care program has de-triaged me (switched to pretty much no care) because I’m not on uneurology waitlist. Also declined concussion program, the only one in my area for non-sports injuries.

I have severe fatigue, headaches, working memory loss (hard to sustain attention or problem solve), word recall difficulties and visual tracking injuries. I have a neurooptometry report showing post concussion syndrome. I simply cannot get any neurologist to accept referral to get mTBI diagnosis.

While im grateful not to have a severe TBI (I know no structural evidence of injury is a good thing), at the same time I’m actually at the end of my rope now as this is a complete no man’s land.

It feels like a no man’s land because there are presumably Neurologists somewhere out there that check for and diagnose mTBI but not for “people like me” whoever “people like me” is. I want to know how the decision is being made but know the transparency will never be there.

Especially after the latest knockback said “not convinced neurological evaluation warranted.

Had QEEG but they don’t do diagnostic reports. Had spect mri ct no “macro” change.

So yeh I just really need a hug and a “I see you and I get it”.

Thanks for listening.

Hi, just interested in how much me/cfs care varies by country and region.

I was severe with cfs for 6 years and been very severe almost 1 year now. Most doctors follow our guidelines to order standard fatigue blood tests and it ends there. So I don’t really get care or treatment for the condition, just that blood test screening.

So I’m curious about what a better care service would be: What does good care look like and where is it happening? Have you had good experiences?

I’m in a state where recovery accommodation (not NDIS but state based, 6 to 12 months requires:

1. a case manager in a public mental health service (very hard to acquire)

2. eligibility for public housing (often not relevant)

I’m wondering if other states and territories have different criteria from this?

Hi,

I just want to explore this as a fair few posts are around reasons for rejection and application processes.

Let’s take a step back.

If you need aged care , someone phones a number then an in-home assessor comes free of charge to assess your care package needs.

THAT is what NDIS access should look like.

Why are we settling for the other extreme experience for disability? Something so punitive, gruelling, time intensive, cost intensive, paperwork intensive.

Peiple typically NEED disability supports to apply for the ndis, from augmented technology to help with paperwork to transport support.

We also don’t say ‘well if we didn’t have that kind of process then people who didn’t need it would access it’ for aged care. Seniors want to be independent and they call for aged care when they need help. So I call a furphy on this- if seniors only don’t rort aged care entry neither do the disabled.

This scheme needs a complete overhaul to focus on the lives and journeys and needs of who it’s for , starting with how we access it.

I honestly don’t have $10,000 to $15,000 in my back pocket to fund intensive private treatments and assessments and on costs (travel). I shouldn’t need that much money and neither should you, anymore than seniors should when they need in-home care.

Make it fair and equal.

Advocacy/welfare support workers- on fee for service-where to find?

There’s a huge need for them in navigating disability experiences of NDIS, Medicare, housing and Centrelink.

They’re not on the hire platforms like mable, hireup, 5 good friends.

They might typically have a Dip Comm Services or cert iv disability plus welfare relevant experience (eg as family doing this for their loved ones).

Please 🙂

Where are they to connect up with?

I tried advertising on hire platforms. I tried direct outreach to a disability advocacy service who put it out to networks.

This is not counselling, support coordination, recovery coaching, positive behaviour support, folding washing, or floor cleans.

social workers typically will not do this work - they want the high paid counselling/SC jobs

Activities would be like:

- people finding contacts

-making calls

-clarifying facts and rights,

-walking alongside supporting the best for clients in interactions with service

-note taking/witnessing (on client request) at doctors, review meetings etc

Where to find?

I would like to understand more about the landscape in the UK for homelessness.

If there’s a better uk reddit channel for this topic please let me know.

Once someone enters homelessness (eg sleeping in their car) how long does it take to access stable ongoing shelter?

Assuming they are just low income (eg due to health conditions) not substance using, no criminal history.

Hi, in my searches for specific ndis companies I have come across a few that have high likelihood of being fraudulent. Here is the latest one:

-nation wide

-no listings in usual service finder directories

-website is dodgy (‘may try to steal your credit card’)

-no social media presence

-not registered as SDA provider but has acquired 12 ‘offices’ in various states that are standard residential homes

-not even registered as accommodation providers (the homes are called ‘offices’)- registered under a different category altogether

-one of the registered ‘offices’ ( homes) is also a beauty business

I have found out just incidentally searching while trying to find a legitimate- non fraudulent -ndis service.

I have no contract or relationship with this company

Where do I actually report this as a ‘red flag’ enterprise?

Are there any investigative journalists looking for companies worth investigating?

I’ve had 6 years of fibro with chronic fatigue, 18 months have been mostly bed bound after two concussions.

I went to a therapist Friday and my epiphany was this:

I realised that someone could pay me a world cruise with ports and trips to amazing places. I would not leave my bunker. That to me defines cfs- the most exciting or pleasurable thing that I can imagine becomes not just in achievable but intrinsically unpleasurable due to severe and overriding experience of constant exhaustion. When people say if you could be anyrhing in the world what would you be? Sleeping/resting.

I’m too tired to move, too tired to feel positive emotions. I crave sleep and rest like someone in the desert craves water and it is never enough.

I skip meals showers appointments tv anything that eats into 24/7 rest and sleep time. I’m banking sleep hours but the exhaustion doesn’t diminish.

I guess many have already had that realisation but it was a real anchoring for me in just how awful this condition is.