What they DON’T tell you about pancreatic cancer
As I have written before on this subreddit, I lost my grandma to pancreatic cancer in the last days of 2023. As I have been thinking about her final months leading up to her death in the last 3 years, I have realized that there are a number of things that people never really tell you about pancreatic cancer until you actually have the misfortune of experiencing it yourself whether it be you or your loved one:
The Literal Price of Pancreatic cancer. When people rant about how expensive pancreatic cancer is they only talk about the more obvious costs such as the chemo, hospital and almost inevitably the hospice expenses. Such as plane tickets for hospitals out of state, lost work hours spent caregiving, and surprisingly the amount of money spent on fast food because nobody in the household has the executive function needed to cook. While my mom was away in Minnesota taking care of my grandma, my younger brother (14 at the time) and I were staying behind in Maryland with our dad who can't cook AT ALL, so we could be eating fast food for as long as a fortnight at a time. And this is not only expensive, but also not the healthiest either.
Everyday is trauma Even though it took 10 hellish months for pancreatic cancer to kill my grandmother, we were ALWAYS on edge because I knew that pancreatic cancer can kill in as little as a few weeks after diagnosis. And that's the thing about pancreatic cancer. You are always living in fear and hour to hour. I really hate to admit this but by Christmas break of my freshman year of college, when my grandma was ultimately put on dialysis and intubated, I would both pray she would recover even though I knew she wouldn't. But at the same time, I was secretly hoping she would just die already. Not because I didn't love her, but because the whole year had also been so miserable as a whole and I wanted to get things over with.
It feels like you are watching the passenger revolt scene in the movie United 93. You keep telling yourself that everything will be fine and everybody on the plane will be okay, even though history has already written the ending and you know all the characters die at the end of the movie. Or like looking at a Deadman walking tornado standing still. You keep telling yourself it isn't coming your way, even though you know it is. But day to day (or even hour to hour), you are basically in the deep dark biome on Hardcore mode with the Warden walking around because there is NO respawn button in this world.
- NOBODY understands I honestly would never wish this shit on anybody. Not even on somebody as disgusting of a human as Beria or even Hitler. Going back to how I likened the whole experience of denial to watching the passenger revolt scene from United 93, well think of it like this a bit further. The metaphor breaks down because most of the audience can walk out of the movie theater and fuck off back to their OWN happy lives, meanwhile the families of pancreatic cancer patients are stuck with this shit.
Unless god forbid you have had the same experience, I don’t think people can understand what it will do not just to the patient but to the entire family.