u/LittleGh0stfacexo

Female in my 30s. Please bear with me, anyone with the time please read.So I have been having extreme sleepiness and low energy since 2023. I also had constipation issues. My doctor ordered a colonoscopy and everything was normal. I feel like my sleepiness has gotten worse. I did see a neurologits/ sleep doctor who thinks it could be narcolepsy without cataplexy but my fear is that will be my diagnosis without ruling anything else out.

•I did have visual changes but they affected both eyes. Random blurriness that comes and goes, saw an eye doctor got prescribed glasses for astigmatism and a Bruder mask. Bruder mask made it worse so I stopped using that. No optic neuritis noted since my last visit. Will be going again soon for my annual. Only other thing noted was lots of floaters in one of my eyes.

•Back pain, spinal xray showed slight curvature of my spine and a transverse process of a vertebrae that is rubbing against my sacrum on the side I had pain. Only issue is the pain is also bad when working out that side leg starts shaking and feels super weak. Thought it could of been a pulled muscle, let it rest a while, went to a chiropractor and now they want to do PT.

•I did have the zap sign in my early 20s when bending my neck but I had also had soreness around my cervical spine/muscles at that time and chalked it up to sleeping weird. This only lasted about 1 week and never came back and resolved after my neck pain went away. Is that sign always permanent? Or did it go away for some of you too?

•I do sometimes get numbness in my legs and hands but I chalk that up to how I'm sitting. I play alot of video games lol

•I had numbness on one side of my face, mainly around the cheek and chin that lasted about 2 days and never came back. Again chalked it up to sleeping funny. (This was more recent)

•I had 1 instance where I went out drinking in my early 20s and came home and woke up in the middle of the night to my whole left side of my body having that pins and needles feeling and it hurt bad. Thought I was having a stroke but was too tired and drunk to get myself to the ER at that time. It resolved in the morning tho.

•I do have periods where I slur my words when I talk but again I'm so tired that I chalk it up to that.

•I have had migraines with aurora but its super rare. I mainly get tension headaches and am having more recently but chalked it up to the antidepressant I am on.

•vivid dreams - chalking that up to meds. I have also had nightmares since I was younger and this more correlates with narcolepsy but I also understand this can sometimes be a symptom for some with ms.

•my arms go numb if I hold them up for too long.

•my body feels stiffer than normal, very hard to stretch and if I stretch I will sometimes get those charlie horses.

•I was diagnosed with OCD and it has been getting worse hence why I started medication now.

•heat and cold intolerance. Was mainly cold intolerance when I was younger but recently was having full on hot flashes where my face would get super red. I chalked this up to having a possible thyroid issue. Thyroid labs were fine expect high tpo which i have brought back down to normal levels by limiting gluten.

•I do take my blood pressure and it changes all the time. It was high for a good month and now has been on the normal low end. Every time I take mine it shows that little heart symbol but I know that can be sensitive to movement.

•for a good month it felt like my legs were so heavy but I was working out a lot but walking just immediately made my hamstrings so stiff that my legs felt like they were in glue or something

•sudden onset of rosacea

•brain fog, sometimes I have hard time even finding words. Notice this more at night time but does happen during the day.

•random itchiness that happens all over my body that feels like tiny bugs everywhere. This usually only lasts a couple hours and then leaves and comes back.

• I also get muscle twitches a lot. Mainly my eyes and legs. But occasionally my upper arm and thumb too.

• my eye lids look like im on drugs.. this is also a symptom of narcolepsy so not sure lol

•I did have a couple years where I had intense painful orgasms. Felt like my whole pelvis and back was cramping. This is now gone. No STDs normal pap ultrasound showed no cysts. I had bad period cramps when I was 18 and they put my on the BC pill so I dont get my period anymore.

• resting tremor in my hands sometimes worse sometimes not as bad

I feel like these symptoms come and go in waves but the tiredness has been so bad and constant as of late. It is 1000% worse if I get sick. I get home from work and immediately run to my bed and take a 5 hour nap. Wake up eat and go back to bed.

I did have an mri in 2023 through prenuvo but its a limited study and does not use contrast. They didn't report any lesions but idk if i need a specific type of mri.

My pcp is great I do have a sleep study coming up. I just dont want to be diagnosed with narcolepsy if it is something else. Can anyone please weigh in I know this was super long but its much appreciated.

I feel like it makes it worse (not trying to make anyone feel less than) but I feel when I get anxious I need reassurance and even if they offer reassurance that they do in fact care about me I still don't believe it and then starts the push cycle were i will start any type of argument to get out of the relationship

One minor thing will happen> makes me anxious > makes me have doubts> seeks reassurance> gets reassurance> reassurance temporary or isn't enough > pushes them away.

And then my depression comes in to say hi and tell me how terrible of a person I am and that they deserve someone better anyway. 🤣

I literally will start doing compulsions when things are good and moving forward but I guess its a great way of telling me my anxiety is high at the time.

This man wanted to take me on vacation and I literally told him to calm down. 🤦‍♀️ I blocked him.

My bestie passed away a couple years ago. She had a medical mystery that we thought we solved on our own (from google) doctors didn't really listen to her concerns. She was going through a lot and personally I was too at the time but I wasn't there to help advocate for her when I know she needed it. She put herself on the back burner and i feel like I failed her. Now every time I talk to her in my head I just see her shaking her head at me in silence. I feel so horrible, I let her down when she needed me most. She was always there for me always. And I just completely failed her and I never get to see her again to tell her how sorry I am. I really hate myself and my actions sometimes. Even my first dream of her after she passed away was her being upset with me. I miss her so much and I want to tell her im so sorry.

Looks like certain lot numbers of duloxetine were recalled. Called walgreens said they would send a letter if we were the affected lot number no way to tell in their computer. 🙃 recalled because there was too much of a chemical that causes cancer. Im about to spiral ✌️ i only took it for like 3 weeks because it wouldn't let me sleep but im freaking out.

Wondering if its OCD related. When you have themes happening do you hate being alone? Like I feel like i need to talk to distract myself from my brain? Does that make sense?

So i have been seeing a psychiatrist and therapist for a while. I thought i might have OCD but today my psychiatrist kind of hinted at the fact ocd isn't really real? She kind of said my symptoms overlap with generalized anxiety and depression which I do have. But I told her about my compulsions that I do when im stressed and she kind of shook her head and said she thinks im spending too much time on the internet researching whats wrong with myself and instead need to focus on what's right. I agree but I can't help feeling dismissed because I thought she agreed last time that I fit with OCD.

Do you think i should bring this up with my therapist? She does not specialize in OCD. I just felt like I was making progress with checking stuff and i actually felt like I fit with the ocd label but now im 2nd guessing myself? I read all these posts on here and see similarities. Idk what I should do in terms of getting a proper diagnosis because now im just left more confused than anything.

I absolutely hate this stupid ass condition. Everytime I feel like every time I'm closer to feeling happy my brain does this thing where it starts up again. Do you think our brains just want us to suffer?

I see people living life. Having a family having friends being social and I just feel absolutely stuck. I'm mentally and physically exhausted.

My ocd comes in different themes so its like I cannot pick a boyfriend because what if they are not right for me or what if I'm not right for them? I cannot have or keep friends because what if they secretly hate me? I don't know what's real because I obsess over my thoughts. I obsess over my health and end up sick anyways. I feel cursed and broken and im in this alone. I have no one. I'm doing everything I'm told. And the one person I vent to tells me I'm thinking negatively.. i just feel like im a horrible person and deserve all of this like I did something in a passed life and was meant to just suffer. Im bouncing from theme to theme.. i just feel like im going to be locked up in a facility.. i feel like im about to actually lose it. I'm scared and sad and alone.

Idk if this is allowed but does anyone else have an OCD theme of sleeping? I think about sleeping 24/7. I will be going to a sleep doctor soon and having a sleep study done to rule out other stuff. Just curious if it can be related to my OCD. Not looking for a diagnosis or reassurance just curious if anyone else has similarities.