Day 1 of around a 14 total stay for my Autologous Stem Cell Transplant. I didn't really taste the seasoning they put on the salmon and overall it was a decent lunch. Salt was my best friend for this one.
Breakfast (not pictured) was eggs, a sausage patty, and french toast. On par with hotel breakfast which is to say kind of bland but food is food. 5/10 for that.
edit: this is USA
Today is my rebirthday and I’m getting my stem cells in a few hours! The first two days of melphalan went well, it was more of a boring wait more than anything. Ice chips and Italian-ice got boring FAST but not sure if I ate enough to where mouth sores aren't a problem. I gave myself minute long breaks here and there. Hopefully one day there’s an easier alternative than chewing on ice/frozen treats for hours on end. I also decided to cold cap since my transplant doctor mentioned a study about cold capping for melphalan/MM patients where the results were promising for preventing hair loss. I guess I’ll have to report back on that to see how effective that was too. It was definitely cold but not as cold as I was expecting.
“This is rare” is something I’ve heard quite often throughout the past 8-9 months. I was diagnosed at 27 and was always reminded how rare it is for someone my age to get it, as well as being high-risk. However there were also positive rarities. Around cycle 5, my second bone marrow biopsy showed nearly zero trace of the myeloma. The word remission even came up. By the time the stem cell collection came along, I was able to do it in just one day with a total of 14 million collected. All of this gives me hope that recovery won’t be as bad as I thought it would be but I am planning, and have anxiety for, the worst. I had my bad days, but I was told to carry on with my can-do attitude throughout this so I will.
This group has been an incredible resource all this time so thank you all and I hope wherever you are in your MM journey it’s going well. If not I hope positivity comes soon!
Think about it they showed a furry in season 2
I'm not sorry, this should be against the rules of them asking how they can improve right before their reviews are written or playing nice guy/girl when they've been acting like the exact opposite all year, and even right after they get reviews. The extra treats in the break room are nice and all but it doesn't negate everything you've done, ESPECIALLY when they can be extra hard on us come crew review time. But maybe they know they're also kinda SOL too like us idk
I had made plans with Friend B and C to all go hiking since I’ll be getting a medial procedure done that’ll put me out for a couple months, and hiking is a mutual activity we all like to do. Sort of a final send off before I can again. We are all also really close. This is something I’ve casually brought up for the past month and a half or so, and it only became more finalized within the past two weeks with a date decided. It was only earlier this week that a time and place were chosen. But still it was known that on XYZ day this was the plan in the morning.
We also decided to attach Friend B’s apartment warming party to that evening since it’s also the only time it would really work for most of us in the larger friend group. This was also somewhat the plan but the actual party didn’t get finalized until a couple days ago as well. Meaning hike was made first, this was made second. Still no actual time for this yet.
Friend C had to cancel the hike because of being double booked which while frustrating is whatever. I'll see her that evening anyways. Now that she’s out of the plans, Friend B kinda wants to cancel as well to have enough time to clean and get ready. The hike was only a group of 3 of us while this party would be closer to 6. Again just a handful more of us in the bigger friend group are going but the dynamic and reasons for gathering are different.
What frustrates me the most is that my hike plans feel like they’ve become “less important” compared to Friend B’s plans because more people are attending. And I know I shouldn’t compare the circumstances of both get-togethers, but it’s hard not to. Like now I have to adjust my plans or outright cancel (made before) so it works out for Friend B and the larger group as a whole. I already made sure to give enough time for all of us to get ready for the apartment warming after mind you. Like it's now all about her.
This really isn’t the first time something like this happened with Friend B. I wouldn’t necessarily call it a pattern because it doesn’t happen often enough, but maybe ignorance on her end sometimes. Ignorance in that I’m now having to replan or cater to what works better for her. Or that when she doesn’t want to attend something she won’t say sorry I can’t, she’ll just ignore the texts, which she has been for the hike since her plans were finally made.
I guess what I'm saying is I don't know what the balance is between rightfully being upset or it's just unfortunately part of life and I should accept it as it is.