My first appointment in years

I have my first specialist appointment after years of being ok.

My anxiety is so high today.

I’m scared not to be on medication cause of the constant symptoms I’ve been facing for about 8 months.

I don’t know what to expect at this appointment today 😬

reddit.com
u/Miserable-Moment-386 — 4 days ago

Is this epilepsy

I’ve had all my hormone levels checked and they are completely normal

These are my symptoms:

Full body sweats whilst walking even on cold days.
Headaches feeling like a tight band placed in a halo around the head, pain/pressure in the frontal lobe, stabbing pain/electric shock from temple to temple and pain/tenderness around left temple and nauseous with headaches.
Significant increase in memory loss (not remembering what she was doing or was about to do or if she had already done something ie locking the front door) and spatial awareness and maintaining focus and elevated anxiety/short fuse.
Numbness, weakness, tingling/pins an needles down left side of body. One occasion of the left side of the face feeling numb.
Increased number of spaceouts with increased duration and head pain when returning from spaceouts.
Blurred vision with black specs and two occasions of everything turning blue which lasted approximately 2 minutes. Also struggling with light sensitivity.
Constant lightheadedness/room spinning and objects appearing to move closer or farther away when standing still and whilst laying on her back.
Several occasions where the room started going dark.
Headache lasting for 5 weeks with no relief from pain medication ending in a hospital visit and being given a medication for migraines via drip which eased the pain for 36hrs before it returned again.
Near fainting episodes x4.
Dizzy, nauseous overwhelming feeling of being about to pass-out.
Flashback memories during space outs.
Space outs that can't be communicated through and has no awareness of what's happening around her.
Feeling of being somewhere for the first time even tho being their several times before (not familiar with surroundings)

reddit.com
u/Miserable-Moment-386 — 5 days ago

Help

Does anyone get really off balance and extremely dizzy to the point they need to lay on the floor?

I’ve had two of these occasions tonight.

I have had absence seizures in the past, not on medication at the moment, and this doesn’t feel like absence seizures.

It’s like I’m having the symptoms of having a seizure but not have the seizure itself.

What should I do?

I have a specialist appointment at the end of this month, and was able to get in any sooner

reddit.com
u/Miserable-Moment-386 — 9 days ago

Help

Does anyone get really off balance and extremely dizzy to the point they need to lay on the floor?

I’ve had two of these occasions tonight.

I have had absence seizures in the past, not on medication at the moment, and this doesn’t feel like absence seizures.

It’s like I’m having the symptoms of having a seizure but not have the seizure itself.

What should I do?

I have a specialist appointment at the end of this month, and was able to get in any sooner

reddit.com
u/Miserable-Moment-386 — 9 days ago

This was my sleep last night

I went to bed extra early last night, as I was completely wiped out.

I have a doctors appointment, as I’m hoping to have an urgent appointment with my epilepsy specialist as I seem to getting more clusters each day

Is this good for sleeping?

u/Miserable-Moment-386 — 29 days ago

Anyone else?

Anyone that suffer focal seizures, do your seizures change? Like one day you’ll have more at night time and then the next you’ll have heaps more before waking up properly

I am not diagnosed as of yet, but what I’m experiencing sounds like focal seizures.

I had heaps last night before bed, and then this morning one after another.

I am not losing consciousness, just a lot of seizures

reddit.com
u/Miserable-Moment-386 — 30 days ago

Anyone else experienced this?

For the last week I’ve been experiencing déjà vu moments (memories from the past) as if I’m back there, not feeling like I’m in the present, and then start blankly staring for a certain amount of time.

Afterwards I have no memory of anything, but then get extremely emotional.

I have had absence seizures in the past, not on medication now and awaiting a new specialist appointment to check for epilepsy again.

Is this something anyone has experienced?

I’m getting really worried and concerned this could be something serious

reddit.com
u/Miserable-Moment-386 — 1 month ago

I know you want nothing to do with me, you made that obvious

But I want to text you more than anything. I’ve blocked you, but it’s taking everything not to reach out again. You’ve moved on to someone else and I just have to learn to accept that. This sucks 💔

reddit.com
u/Miserable-Moment-386 — 2 months ago

Not sure what to think

I had my specialist appointment last thursday.

He was on time and very quick, which I was shocked.

My friend named all the symptoms I’ve been having and saying none of them are due to my pituitary cyst. My cyst hasn’t changed when it was found 11 years ago

He suggested I get my epilepsy specialist back on the scene, and that I get my eyes re tested.

Also getting my bloods done too

Has anyone been in this situation before and the specialist being wrong

reddit.com
u/Miserable-Moment-386 — 2 months ago

I’m nervous

I have a specialist appointment this morning for my pituitary cyst which has been causing me issues.

What should I expect at the appointment?

I have written things down to tell my doctor e.g symptoms I’ve been having

reddit.com
u/Miserable-Moment-386 — 3 months ago

I have a 13mm cyst on my brain and these have been my symptoms

I have a 13mm cyst on my brain and have a specialist appointment next Thursday.

These are my current symptoms

Will the specialist do anything about it on the day cause I can’t deal with it any longer

u/Miserable-Moment-386 — 3 months ago

We had been in each other’s lives for 12 years before we got together, now I can’t think of a life without him.

I’m crazy for wanting him back, but the only issue was our communication when things went to shit, we’d both shut down and give up.

Is there a chance of fixing it, or am I just longing and holding onto the good times?

reddit.com
u/Miserable-Moment-386 — 4 months ago