u/Muted_Insect5033

Please let me know if anyone had an ENG report like this.Thanks

I posted my symptoms today in this group and when I checked my health chart,my EMG results were posted which was done 10 days ago by a neuro muscular department.So thought of posting my results as well along with the symptoms that have progressed.I had another EMG done 1 month ago by a physiatrist and it did not show anything.Please see my previous post for the detailed EMG report by a physiatrist.Wondering why the first report did not mention anything
Summary:
The right sural and median sensory nerve response shows normal peak 
latency, normal SNAP amplitude and normal conduction velocity.

The right median, peroneal and tibial motor responses show normal distal 
latencies, normal CMAP amplitudes and normal conduction velocities.

F-wave latencies are normal.

Needle electromyography of the bilateral gastrocnemius, tibialis anterior, 
and vastus lateralis muscles demonstrates chronic neurogenic changes, most 
pronounced in the bilateral gastrocnemius muscles, characterized by 
increased motor unit action potential amplitude and duration, increased 
polyphasia, and reduced recruitment. There is no abnormal spontaneous 
activity, including fibrillation potentials or positive sharp waves. The 
remainder of the muscles examined is normal

https://www.reddit.com/r/BFS/comments/1v41x6e/my_emg_test_update/

the above link is the result of my first EMG which was done one month ago and it did not show snything

Below are my symptoms after my EMG

Hi.I had my EMG done 10 days ago and it was normal and it showed pinched nerve in the Lumbar spine.I wanted and tried to move away from this rabbit hole but the increased frequency of twitching and increased stiffness in legs and calf’s causing me not to move away from this.

I was getting twitches before but not so often.But from the past one week ,the frequency has increased and I am getting twitches in multiple parts of the body almost through out the day.

My legs have become week it seems and tight as well.I am getting more twitches in my knees ,elbows,thighs,calves,face,spine.My legs have also become very stiff and they were paining even if I walk for some time or stand for some time.My upper foot is also paining along with this.I feel like I would loose my strength to walk

If I put some pressure on any body part,I am getting twitches in that part which was not the case before.if I rest my hand with little pressure on my thigh,I am getting twitches near to that area.If I bend while working to look at the computer,I get either in chest or spine.If I raise my leg in one angle,My whole leg shivers.Twitches even increasing with movement or bending.If if I bend leg,Getting twitches in my calves/thigh
Lately,I am feeling twitches almost mist of the day

I have bulbar symptoms below which are more concerning.

constant urge to swallow even with out saliva.If I don’t swallow,I feel like some irritation feeling in the throat or need to take a breathe

1.When I lie down on my back with out any pillow or head rest,I feel difficulty swallowing as the bone in my throat feels protruding out and muscles were tight.

I feel lump in my throat when I swallow with out saliva

2.If I talk to speak fast,sonetimes words will not come or my tongue touches mid roof and makes tap tap sound as well as it feels like I am slurring few words..Lately I am observing that My tongue feels tight in the front and difficult to pronounce few words and later auto correct.

3.Pills getting stuck in the throat and some nuts

4.I am unable to talk as loud as before.If I try to talk loud,I feel like my vocal cords does not support and feels shortness of breath

5.I am unable to talk few sentences with out gasping for air.Itfeels like I should pause before proceeding to next sentence.

Hi.I had my EMG done 10 days ago and it was normal and it showed pinched nerve in the Lumbar spine.I wanted and tried to move away from this rabbit hole but the increased frequency of twitching and increased stiffness in legs and calf’s causing me not to move away from this.

I was getting twitches before but not so often.But from the past one week ,the frequency has increased and I am getting twitches in multiple parts of the body almost through out the day.

My legs have become week it seems and tight as well.I am getting more twitches in my knees ,elbows,thighs,calves,face,spine.My legs have also become very stiff and they were paining even if I walk for some time or stand for some time.My upper foot is also paining along with this.I feel like I would loose my strength to walk

If I put some pressure on any body part,I am getting twitches in that part which was not the case before.if I rest my hand with little pressure on my thigh,I am getting twitches near to that area.If I bend while working to look at the computer,I get either in chest or spine.If I raise my leg in one angle,My whole leg shivers.Twitches even increasing with movement or bending.If if I bend leg,Getting twitches in my calves/thigh
Lately,I am feeling twitches almost mist of the day

I have bulbar symptoms below which are more concerning.

constant urge to swallow even with out saliva.If I don’t swallow,I feel like some irritation feeling in the throat or need to take a breathe

1.When I lie down on my back with out any pillow or head rest,I feel difficulty swallowing as the bone in my throat feels protruding out and muscles were tight.

I feel lump in my throat when I swallow with out saliva

2.If I talk to speak fast,sonetimes words will not come or my tongue touches mid roof and makes tap tap sound as well as it feels like I am slurring few words..Lately I am observing that My tongue feels tight in the front and difficult to pronounce few words and later auto correct.

3.Pills getting stuck in the throat and some nuts

4.I am unable to talk as loud as before.If I try to talk loud,I feel like my vocal cords does not support and feels shortness of breath

5.I am unable to talk few sentences with out gasping for air.It feels like I should pause before proceeding to next sentence.

Please let me know if you have the same weird sensations on the tongue:Please please.

I did my EMG done with a neuromuscular clinic last Friday and doctor said I don’t have ALS.But he repeated the needle test in my right calf at 4 or 5 close spots and he did mention that he observed something and it’s related to the pinched nerve in my lower back ,but my sacrolytic MRI which was done 5 months ago did not show any pinched nerve.They mainly checked for arthritis or inflammation at that time.

**I really wanted to move away from this rabbit hole and wanted to start medication as well as therapy soon and even want to stay away from the Reddit forms and googling.I also suffered 4 months a lot and lost a lot of myself.**

But my below symptoms are making me believe there is something wrong with me.

a)My front portion of the tongue feels thick,tight and tinglingling/pins or needles sensation.I will have this tingling/Pins needles sensation almost thought out the day which is impossible for me to keep my mind off of the thoughts because it feels so irritating/unpleasant and weird with such sensations.

.While talking,My front portion of the tongue feels tight and it touches roof of the mouth several times and hear tap tap sound many times from the movement of the tongue which could be a neurological issue.Sometimes I have difficulty to pronounce few words as my front portion of the tongue feels tight which could be a symptom of bulb…I feel like while pronouncing few words,I trip or about to trip but can autocorrect.

i feel like I need to apply extra strength to talk few words as my front portion of the tongue feels stiff

b)I feel shortness of breath while talking and have to give pauses between sentences which was not the case before.I feel like I need to breathe between sentences and feel irritation sensation in the vocal cords which could be dysphagia ,one of the signs of bulb..

while talking I feel like I am short of breath and need to pause ,take breathe and then continue.

c)I am unable to talk louder as before.I can talk but if I want to call someone who is little far,I can’t talk as loud as I used to 4 months back

d)Calf assymetey and right calf is 2.3 cm shorter than the left calf and gets tired and pain in legs and foot even after few minutes of standing or walking.

e)I am getting weird vibration /buzzing on my back of my head few times in a day and it get worse with neck movement

My right leg shakes even after some physical activity like treadmill/cardio

d)Increased frequency of twitches with pressure.ex,if I bend ,I get twitches in my chest,stomach sometimes.

I get post nasal drip sensation in my throat and need to clear my mucus several times which could be symptom of..

.If I put pressure on my shoulders like sleeping on the sides,I get twitches.

my worries are they evaluated on my limbs thoroughly but now my main twitches and symptoms are in bulbar region.I heard that bulbar would not be picked in the EmG in the early onset and even one guy commented the same on my last week “my EMG is tomorrow”post which is worrying me more.

Below is the Reason for 2nd EMG with in 15 days gap:

I had an EMG performed by a physiatrist 15 days ago on 22July2026 and the results were normal.2 months ago ,I was referred to a neuromuscular doctor as well as to physiatrist for an EMG (atleast to get an EMG done faster)as the wait times to see a neuromuscular doctor is 6 months to an year.I first got my EMG appointment and had it done and when I called neuromuscular clinic 3 weeks ago also,they told it’s the busiest department and you would have to wait several months and still I have not been accepted yet and it’s still under review..But I got a call yesterday and told me there is a cancellation for tomorrow and if I am interested,they can book me in otherwise you need to wait until October end . so I accepted thinking not to wait

Below are the reasons what’s making me more concern after the first EMG:

However, over the past 15 days, I have developed new symptoms that have increased my concern.

I noticed that my right calf measures 2.3 cm smaller than my left calf, even though my right leg is my dominant leg. I am not currently participating in sports or going to the gym.

My right calf has become painful, stiff, and fatigues easily. After walking for 5–10 minutes, my right calf becomes tight, painful, and significantly more fatigued than my left. My left calf and foot also become tight and fatigued, but the symptoms are more pronounced on the right. Over the past few days, the stiffness and pain have worsened, and I now experience them even while standing for few minutes especially in my right leg.

When I tried doing squats today, I developed pain in my right calf and the back of both thighs for just 3 squats but not on the left side. Last week, I used an elliptical trainer at a very low resistance for two days. Immediately after getting off the machine on both occasions, my right leg shook uncontrollably for about 10 minutes.

These new symptoms, together with the smaller right calf, have made me concerned about possible muscle atrophy and weakness despite my normal EMG.

I am getting more burning sensation on my feet,thighs,face,hand

I almost came to a conclusion that It’s an early onset that’s the reason I have asymmetry/atropy/weakness in my right leg and it can’t be seen in the early EMG

Below is my twitching history:

My muscle twitching started exactly 4 months ago, on April 10, 2026. It began as a twitch in a single finger and, within one week, progressed to my shoulders, elbows, calves, and thighs.

About one month later, I developed constant eyelid twitching that lasted for a month. Around the same time, twitching also started in my cheeks, neck, and along my spine. That was when my bulbar symptoms began.

At first, I felt as though my throat was narrowing. I noticed a clicking sound in my throat and had a constant urge to swallow my saliva, even when there was no saliva to swallow. If I did not swallow, I felt short of breath.

I am no longer able to speak as loudly as I used to. When I try to raise my voice, I experience pain around my vocal cords and develop shortness of breath. I also cannot speak several sentences continuously like I used to because it becomes difficult to breathe, and I need to pause between sentences.

I experience masseter muscle twitches several times a day, each lasting briefly. I also have a quivering sensation in my lips.

I get burning sensation in different parts of the body

For the past 30 days, I have felt as though pills get stuck in my throat. I can genuinely feel them sticking, and nuts also seem to get stuck, which never happened before. My throat muscles often feel very tight. At times, my tongue feels thick, making it difficult to pronounce certain words. Although I sometimes feel like I slur a few words, I am usually able to correct my pronunciation immediately afterward.

I also have pain in my right shoulder, and the twitching is more intense around my right shoulder joint. This makes me worry that the muscle in that area is deteriorating and causing the twitching.

My right hand feels heavy compared with my left. Carrying objects feels more difficult with my right hand, while my left hand feels normal. My right wrist also feels very stiff. These symptoms are making me increasingly worried.

My worries about immediate EMG

I feel I should have waited until October end to get the next EMG so that if it’s progressed,I would get some idea.

I already have soreness in my body after 1st EMG and scared the 2nd EMG would do more damage and causes more soreness as they are very close

((Note:Hi.I posted yesterday but I realized I mentioned cm even though I measured in inches and felt like just one cm difference but the actual difference is 2.2 cm and so deleted the post and reposting with correct measurements.))

Please let me know if some one has almost close to 2.5 cm difference in calf size

I felt difference in calf size significantly and measured the calves and got petrified and spiralling into the rabbit hole and I am almost believing that I have A..

symptoms just regarding to legs from the past few weeks:

I get twitches in all parts of the body and mostly on calves,thighs,shoulder,butt.Its close to 4 months of my twitches now

While walking,I feel my legs are stiff especially the right one and gets pain if I walk for some time.I used to walk more before the fasciculations have started and it’s not the case now.

I did elliptical cardio for 20 minutes in slow pace even though I got stiffness in my legs midway on 2 days last week and on both the instances,As soon as I got off the elliptical and stood on the ground,My right leg was literally shaking for 10 minutes and got scared as I felt my muscles were weak and thats the leg where I have less muscle.I did not shakiness on my left leg though.

I am scared that I would be having early onset that’s the reason I have stiffness,tightness,pain and calf muscle difference on my right leg.

I walked yesterday and I felt pain and stiffness on my right leg and could not walk for more than 20 to 25 minutes .(I got pain and stiffness with in 5 minutes but still continued slowly for another 10 minutes).My foot also felt so much pain and became stiff.I have the stiffness and pain even now.I am worried I might wake up one day with foot drop

I am really scared and please share me the advices .Thanks

Hi.I am having twitches for the past 3.5 months and have twitches in my shoulders,calves,thighs,.

Today I just checked at my calves and felt like my right calves looked smaller and measured with a tape.To my surprise,my right calves measured 15.6 cm and my left calf measured 16.5 cm.I am worried and terrified of AL.

symptoms:

My calf feels stiff and pain.

I did elliptical cardio for 20 minutes last week for 2 days and on both the days when I got off the elliptical,My right leg shakes for 10 minutes.Its scared me more because I feel I have less strenghth in my right calf because of less muscle.I get more twitching in my right calf as well which is adding some more fear

edit:I am walking now and literally feel my right calf is stiff and clearly feel the difference between the 2 calves and gets pain sometimes in my right calf

I am spiralling again deeply and I can’t control the sadness and I feel I will leave the world soon leaving my family behind.

Please just don’t read and provide your suggestions or share if you had the same.Thanks

Hi.I have progressive symptoms and I had my EMG at 100 days mark exactly one week ago by the physiatristYou can see my previous posts for the detailed EMG report and for my symptoms.The EMG was normal

The below symptoms are after my EMG:

I started getting twitches in new areas of my hand and legs and the twitching frequency has increased then before.

I am getting frequent twitches in my left chest side area and also back of the shoulder.The frequency increases when I bend or the posture is stiff or move in a different direction.This is scaring me more as the twitching frequency been increasing if there is a pressure on that area.

Lately I am having increased twitches in my hands as well and the frequency increases if I put my hand on my desk and working on a computer or if more pressure puts on my hand while sleeping and if I sleep on my left side,I get more twitches on my left hand and vice versa

The stiffness in my calves and thighs have increased then before

I did not have EMG done on my spine and so worrying what if they had missed something as I am getting lot more twitches lately around my chest and butt area.

I want to move away from this rabbit hole and these increased frequency of twitches ,having more stiffness then before in my calves,and getting twitches in new areas and especially getting twitches if there is any pressure/posture difference worrying me more and pulling me more deeply into the rabbit hole again.

Having increased twitches with applying pressure is a symptom of AL…???This is worrying me more as I have read some where that the twitches increases in those patients with applied pressure or putting pressure on the body parts

please read my yesterday post and previous posts of mine for the symptoms I am going through

edit:yestersay my EMG was clean and got up today and was brushing my tooth.Suddenly I had twitching in my left thigh muscle just right above the knee on the left side.I never had twitching in my thighs while standing.It was little intense for 1/2 minutes as it was quite big muscle and I am scared again and thinking what if the doctor had missed this muscle or something.Please help

note:I did not understand the below line but my physiatrist did not bother

“jendrassik difficult to perform for upper extremities, limited improvement in reflexes, but palpable contraction and lack of relaxation during attempts. Jendrassik in lowers results in normal reflexes that were not present without. ”

My fears still:

*I did this EMG exactly on 100th day by a physiatrist and is it too early as I read stories of people who got diagnosed after 6 months of symptoms
*Why are the pills getting stuck from past few days and narrowing of throat feeling which I never had before

*Still scared what if they missed something

*I have lost myself in these 100 days that every inch of my body was filled with the 3 words fear and still unable to come out of the fear as it has immersed deeply in my thoughts

*I had firings and twitches several times even after the EMG.When ever I get twitches or firing,I am almost going back to the rabbit hole again.Please share me your thoughts after reading my post

BELOW is the physiatrist notes from today’s EMG visit:

Physical Exam

• Gait: Within normal limits. Romberg negative.
• Inspection: Bulk normal, no fasciculations, no scapular winging with shoulder forward flexion, abduction, or resisted protraction. No tender/trigger points palpated within peri-scapular musculature. No tongue fasciculations on protraction - subtle twitching after prolonged protraction. Psoriasis patches noted on skin. Twitching noted occasionally, but no true fasciculations
• Cervical Spine: Active range of motion within functional limits; Spurling negative.
• Motor: Upper and lower extremity tone normal. Reflexes and power as follows:

Muscle	MRC Power Grade
Right	Left
Deltoid	5
Biceps	5
Triceps	5
Infraspinatus/Teres Minor	5
Pronator Teres	5
Extensor Carpi Radialis	5
Extensor Digitorum Communis	5
Flexor Digitorum Superficialis	5
Flexor Digitorum Profundus	5
Abductor Pollicis Brevis	5
Abductor Digiti Minimi	5
First Dorsal Interosseous	5

 

Muscle	MRC Power Grade
Right	Left
Iliopsoas	5
Quadriceps	5
Gluteus Medius	5
Adductor Longus	5
Hamstrings	5
Tibialis Anterior	5
Extensor Hallucis Longus	5
Gastrocnemius	5
Tibialis Posterior	5
Peroneus Longus	5

 

Reflexes	Grade
Right	Left
Biceps	1+
Brachioradialis	1+
Triceps	1+
Quadriceps	2+
Achilles	2+

*-Jendrassik difficult to perform for upper extremities, limited improvement in reflexes, but palpable contraction and lack of relaxation during attempts. Jendrassik in lowers results in normal reflexes that were not present without.

 

• Sensory: C5-T1 dermatomal and peripheral nerve sensation normal.
• Special tests: Tinel's negative bilaterally at the carpal tunnel, cubital tunnel, and guyon's canal

 

Electrodiagnostic Tests

Sensory nerve conduction studies

Stim Site	NR	Peak (ms)	O-P Amp (µV)	Neg Area (µVms)	Site2	Dist (cm)	Vel (m/s)
NCV Right Median Anti Sensory (2nd Digit) 32.7 °C
Wrist		3.6	40.4	29.63	2nd Digit	14.0	50
NCV Right Radial Anti Sensory (Base 1st Digit) 32.7 °C
Wrist		2.1	31.3	22.25	Base 1st Digit	10.0	63
NCV Right Sup Fibular Anti Sensory (Ant Lat Mall) 32.7 °C
14 cm		3.5	12.3	19.19	Ant Lat Mall	14.0	50
NCV Right Sural Anti Sensory (Lat Mall) 32.7 °C
Calf		3.0	7.8	2.94	Lat Mall	14.0	56
NCV Right Ulnar Anti Sensory (5th Digit) 32.7 °C
Wrist		3.1	41.4	24.75	5th Digit	14.0	56

 

Motor nerve conduction studies

Stim Site	NR	Onset (ms)	O-P Amp (mV)	Neg Area (mVms)	Site1	Site2	Delta-0 (ms)	Dist (cm)	Vel (m/s)
NCV Right Fibular Motor (Ext Dig Brev) 32.7 °C
ankle		4.1	6.9	20.03	ankle	Ext Dig Brev	4.1	8.0
bhead		11.3	6.5	18.62	bhead	ankle	7.2	34.0	47
popfossa		12.7	6.5	18.40	popfossa	bhead	1.4	7.0	50
NCV Right Median Motor (Abd Poll Brev) 32.7 °C
Wrist		3.6	7.8	41.62	Wrist	Abd Poll Brev	3.6	8.0
Elbow		7.6	8.3	42.77	Elbow	Wrist	4.0	23.0	58
NCV Right Tibial Motor (Abd Hall Brev) 32.7 °C
Ankle		3.5	4.9	13.81	Ankle	Abd Hall Brev	3.5	8.0
NCV Right Ulnar Motor (Abd Dig Minimi) 32.7 °C
Wrist		3.1	11.1	39.00	Wrist	Abd Dig Minimi	3.1	8.0
B Elbow		6.7	11.1	38.31	B Elbow	Wrist	3.6	22.0	61
A Elbow		8.1	10.9	37.42	A Elbow	B Elbow	1.4	9.0	64

 

Needle EMG

Informed consent was obtained for needle electromyography, and the following muscles were sampled:

EMG (Electromyography)
Muscle
Left 1stDorInt Ulnar (C8-T1)
Left FlexCarpiUln Ulnar (C8,T1)
Left ExtIndicis Radial (Post Int) (C7-8)
Left Biceps Musculocut (C5-6)
Left Deltoid Axillary (C5-6)
Left Masseter Trigeminal (CN V)
Left Hyoglossus Hypoglossal (CN XII)
Left Gastroc Tibial (S1-2)
Left VastusLat Femoral (L2-4)
Right 1stDorInt Ulnar (C8-T1)
Right FlexCarpiUln Ulnar (C8,T1)
Right ExtIndicis Radial (Post Int) (C7-8)
Right Biceps Musculocut (C5-6)
Right Deltoid Axillary (C5-6)
Right Masseter Trigeminal (CN V)
Right Hyoglossus Hypoglossal (CN XII)
Right Gastroc Tibial (S1-2)
Right VastusLat Femoral (L2-4)
Left Triceps Radial (C6-7-8)
Right Triceps Radial (C6-7-8)
Left Add Magnus Obturator, Sciat (L2-4)
Right Add Magnus Obturator, Sciat (L2-4)

 

Electrophysiologic Summary

Sensory NCS

Sensory nerve conduction studies were performed in the median, ulnar, sural, and superficial fibular distributions of the right upper and lower extremity, which were normal.

 

Motor NCS

Motor nerve conduction studies were performed in the median, ulnar, superficial fibular and tibial distributions of the right upper and lower extremity, which were normal.

 

EMG

Needle electromyography was performed in the above mentioned muscles of the bilateral upper and lower extremities and face, all of which demonstrated normal insertional activity and voluntary motor unit recruitment.

 

Electrodiagnostic Conclusion

This was a normal electrodiagnostic evaluation without any evidence of neurophysiologic abnormalities. This includes right median, ulnar, radial, superficial/deep fibular, tibial, and sural peripheral nerves. Additionally, needle sampling of muscles correlating to bilateral C5-T1, L2-S2, whole brachial and lumbosacral plexus, axillary, musculocutaneous, radial, sciatic, femoral, obturator, tibial, fibular, trigeminal and CNXII distributions.

 

Clinical Impression

……. underwent an extensive electrophysiologic evaluation including right upper and lower extremity nerve conduction studies and four limb and face needle electromyography, which was further directed by his requests given additional muscles in which he has felt twitching. No abnormalities were identified. Typical and bulbar ALS are also ruled out and do not clinically fit with his presentation.

 

Plan

Given the exhaustive evaluation and negative findings, no additional peripheral neuromuscular testing is recommended. He has been referred to the ……….neuromuscular clinic, and is awaiting an appointment, but per documentation in …., his referral has been accepted. This can be very helpful for additional consideration and education.

 

Consideration of alternate etiologies is recommended at this time as well. This includes, but is not limited to biochemical/electrolyte workup, consideration of autoimmune workup, etc.

Note:EMG will be done by the physiatrist ,not by the neuromuscular doctor.I think what he misses something.

Please let me know if some one have these symptoms

Hi.My twitches started exactly 100 days ago on April 10,2026 started as a single finger twitch and then progressed to shoulders,elbows,calves,thighs in one week.After one month,had constant eyelid twitches for 1 month and started in cheeks,neck,spine.Thats when my bulbar symptoms have started.

first felt like my throat is narrowed down,clicking sound in throat,constant urge to swallow saliva even with out saliva otherwise I felt like shortness of breath,Unable to talk loud as I used to before.If I talk loud,I feel like my vocal cords are paining and have shortness of breath.Unable to talk few sentences as I used to ,it causes breathing difficulty and needs to give pause between sentences.Massauter twitches daily few times for a brief.Lips quivering sensation.From past 15 days,feels like pills getting stuck and I really feel them in my throat,nuts also get stuck in my throat which was never before.My throat muscles feel very tight.Sometimes tongue feels thick and difficult to pronounce few words but can pronounce later.I feel like I slur few words and can autocorrect

I have right shoulder pain and gets twitches more intense in shoulder joints which makes me think like my muscle is dying over there and causing twitches.My right hand feels heavy and if I carry an object,it feels heavy on my right hand but not on the left hand.Its scaring me even more.My right hand wrist has become stiff.

sorry for reposting

Hi.Please just don’t read the message.please provide your guidance or if you have/had similar situation.

Please let me know if someone has twitches on cheek muscles on both the sides .I don’t have twitches on both the cheeks at the same time but it’s like sometimes on my left side and sometimes on my right side,multiple times in a day.

My twitches started almost 3 months ago as a twitch in right index finger and with in no time,progressed to different parts of the body like shoulder joint,elbow joint,right calves,left calves,butt,chest.sometimes the calves and hands feels heavy

It has progressed to the bulbar region after one month like eyelids,neck,cheeks,neck,throat and started bulb symptoms like narrowing down of throat while swallowing,throat tightness,clicking sound in the throat when swallowing,constant urge to swallow even with out the saliva.I swallow almost 3 times in a minute with out saliva otherwise I feel some sort of breathing difficulty in throat.I am unable to talk as loud as before and even if I raise my pitch little high,I get irritation feeling/pain feeling in throat.I am unable to talk few sentences continuosky with out gasping for air which was not the case before.The front portion of the tongue feels heavy and sometimes get difficult to pronounce some words and fear as if I slur and stop talking and again I continue talking after small pause

From the past one week,I feel like pills are getting stuck in my throat and can clearly feel them while talking as it creates some irritation and sometimes small cough.I did upper endoscopy yesterday and gastric said he did not see any narrowing down in the throat.This made me even panic because now I feel it’s happening because of muscle weakness which is the symptoms of 3 word disease.

edit: since yesterday I am getting wheezing/shallow sound in my throat when I breath in deeply or exhale deeply

the fasciculations/twitches on my cheeks(I think masseater muscle) are coming more times in a day compared to earlier and those were like for 3 or 5 seconds every time.

I still have constant twitches on calves,shoulders,hands,palm below the small finger and sometimes jerky moments in my hand.

I am scared and convinced myself that I have bulb mostly and if not limb …

on top of that,my shoulder pain has increased on both the sides as I get twitches in shoulder joint and my hands also sometimes feels pain.

sometimes I get hot flash kind of pain in my legs and hands and it will last for almost a minute

I am crying everyday and feel like I miss my family leaving them behind.I even imagine myself being in the wheel chair with a tube in my thr in the coming days which is worse

sorry for the long post

Hi.Please let me know if someone has twitches on cheek muscles on both the sides,multiple times in a day.

My twitches started almost 3 months ago as a twitch in right index finger and with in no time,progressed to different parts of the body like shoulder joint,elbow joint,right calves,left calves,butt,chest.sometimes the calves and hands feels heavy

It has progressed to the bulbar region after one month like eyelids,neck,cheeks,neck,throat and started bulb symptoms like narrowing down of throat while swallowing,throat tightness,clicking sound in the throat when swallowing,constant urge to swallow even with out the saliva.I swallow almost 3 times in a minute with out saliva otherwise I feel some sort of breathing difficulty in throat.I am unable to talk as loud as before and even if I raise my pitch little high,I get irritation feeling/pain feeling in throat.I am unable to talk few sentences continuosky with out gasping for air which was not the case before.The front portion of the tongue feels heavy and sometimes get difficult to pronounce some words and fear as if I slur and stop talking and again I continue talking after small pause

From the past one week,I feel like pills are getting stuck in my throat and can clearly feel them while talking as it creates some irritation and sometimes small cough.I did upper endoscopy yesterday and gastric said he did not see any narrowing down in the throat.This made me even panic because now I feel it’s happening because of muscle weakness which is the symptoms of 3 word disease.

the fasciculations/twitches on my cheeks(I think masseater muscle) are coming more times in a day compared to earlier and those were like for 3 or 5 seconds every time.

I still have constant twitches on calves,shoulders,hands,palm below the small finger and sometimes jerky moments in my hand.

I am scared and convinced myself that I have bulb mostly and if not limb …

on top of that,my shoulder pain has increased on both the sides as I get twitches in shoulder joint and my hands also sometimes feels pain.

sometimes I get hot flash kind of pain in my legs and hands and it will last for almost a minute

I am crying everyday and feel like I miss my family leaving them behind.I even imagine myself being in the wheel chair with a tube in my thr in the coming days which is worse

sorry for the long post

Hi.Please let me know if someone has twitches on cheek muscles on both the sides,multiple times in a day.

My twitches started almost 3 months ago as a twitch in right index finger and with in no time,progressed to different parts of the body like shoulder joint,elbow joint,right calves,left calves,butt,chest.sometimes the calves and hands feels heavy

It has progressed to the bulbar region after one month like eyelids,neck,cheeks,neck,throat and started bulb symptoms like narrowing down of throat while swallowing,throat tightness,clicking sound in the throat when swallowing,constant urge to swallow even with out the saliva.I swallow almost 3 times in a minute with out saliva otherwise I feel some sort of breathing difficulty in throat.I am unable to talk as loud as before and even if I raise my pitch little high,I get irritation feeling/pain feeling in throat.I am unable to talk few sentences continuosky with out gasping for air which was not the case before.The front portion of the tongue feels heavy and sometimes get difficult to pronounce some words and fear as if I slur and stop talking and again I continue talking after small pause

From the past one week,I feel like pills are getting stuck in my throat and can clearly feel them while talking as it creates some irritation and sometimes small cough.I did upper endoscopy yesterday and gastric said he did not see any narrowing down in the throat.This made me even panic because now I feel it’s happening because of muscle weakness which is the symptoms of 3 word disease.

the fasciculations/twitches on my cheeks(I think masseater muscle) are coming more times in a day compared to earlier and those were like for 3 or 5 seconds every time.

I still have constant twitches on calves,shoulders,hands,palm below the small finger and sometimes jerky moments in my hand.

I am scared and convinced myself that I have bulb mostly and if not limb …

on top of that,my shoulder pain has increased on both the sides as I get twitches in shoulder joint and my hands also sometimes feels pain.

sometimes I get hot flash kind of pain in my legs and hands and it will last for almost a minute

I am crying everyday and feel like I miss my family leaving them behind.I even imagine myself being in the wheel chair with a tube in my thr in the coming days which is worse

sorry for the long post

Hi.I am having twitches from the past 2.5 months mostly in shoulder joint,elbow joint,calves,thigh,eyelids,cheeks.

From the past 1 month,I have to urge to swallow even with out saliva.I am swallowing atleast 3 to 4 times in a minute otherwise I feel breathing difficulty in my throat.The pills are getting stuck in my throat from the past 5 days.sometimes I slur the words but can autocorrect.Others are not noticing my slur because I get to know when I am about to slur and stop talking for a sec and continue.My front portion of the tongue feels little thick.Is it dysphagia?I am scared.

I almost have most of the bulbar symptoms and scared.

please let me know if someone have/had the same symptoms

Hi.I am having fasciculations for the past 2.5 months.I get twitches in calves,shoulder joint,biceps,elbow joints,eyelids,cheeks,sometimes throat.

I am scared of bulbar big bad:

from the past 3 days,I feel like pills get stuck in my throat and it’s not a feeling,I could clearly feel the pill get stuck.I was eating kurkure yesterday and suddenly small piece got stuck in the throat and I felt as if something is protruding out of my throat.I tried to eat banana ,I felt little tightness/pain/obstruction feeling at the point where the murkier got stuck.Today morning I took one pill and this pill also feels like got stuck in the throat.I am scared.

My other symptoms from the past 2. 5 months:

.I feel like I have to swallow/gulp with out saliva.

.When I talk,I feel breathing difficulty in my throat and have to give a pause after speaking a sentence to breath.This was not happening before

.I was unable to talk loud as before as I get pain/restrictive movement/vocal cord stiffness feeling

.I feel like my throat has been narrowed down while eating food.I feel tightness in my throat

.feels excess saliva secretions

.tingling/pulling/pins and needles sensations on the front sides and front edge of the tongue

Tongue feels thick in the front and sometimes feels difficult to talk.sometimes I slur but can autocorrect

.when I lie on my back and try to swallow saliva,I get clicking sound in the throat.I also feel like my throat muscles are very tight and obstructing air pathway.So I always try to avoid lying on my back.

please help me and let me know if some one felt the same

please suggest:Did anyone else have this

Hi.I am having fasciculations since 2.5 months and have twitching pretty much in many areas like shoulder,bicep,calf,hand,eyelids,cheeks.

This fasciculations always reminding me and unable to concentrate on anything.I am keeping all my works away because of the constant twitches happening in my calves and reminding me of big dad.

from the past 4 days,I am having constant twitches most of the time in my right calf and I observe them during the sleep as well if I get up for any reason and see fasciculations in my calf.
I unknowingly pressed on my calf lightly with my fingered while sitting on a chair and observed twitches internally.I could literally feel twitches with my hand when they pressed on my calf.Now I got scared that I have twitches almost 24/7 it seems on my right calf with most of the time can be clearly seen with an eye and can feel the muscle movement ,and the remaining less time would be internal ongoing twitches with out being seen outside.

I am scared and I am assuming I have The 3 letter word.I am having stiffness as well in my calf and feels tight.Did any one have this symptoms?

Hi,37M.While talking ,I feel like my tongue is thick and somewords slur but can autocorrect.I clearly feel the difference that I cannot talk fast as how I used to talk before.It feels like my tongue (especially the front portion of tongue)does not allow me to speak

I have needles and pins/vibrationss/pulling sensation in the front of the tongue.

I get twitches on my cheeks several times in a day as well as my eyes also twiches.

My throat feels stiff and feels suffocated while talking.My voice has also reduced as I can’t talk like how I used to talk before.I feel like my throat narrows down and gets stiff while talking and feels breathing difficulty.I can’t speak or read 2 sentences continuously with out taking a break for breathing which is not the case befire.My vocal cords also pains sometimes even when I am talking slow.

all these symptoms point towards bulbar and I am scared

sometimes I feel like something is moving on my cheeks

I have twitches in shoulders,calf,hands,butt,back,chest ,palm and get jerks in hands,feet.I am scared

please let me know if anyone has faced the similar issues.Thanks

Hi.When I talk,I get tak tak sound from my mouth ,probably because my tongue touches the roof and makes sound.This was never before and has started from the past 1 month.My tongue feels thick and sometimes I feel like I am slurring and can autocorrect .This makes me scared as this could be bulbar big bad.

My fasciculations have started 2.5 months ago and have wide spread twitches mostly on shoulders,thigh,calf,eyes,cheeks.

Does any ones tongue makes tak tak sound while talking?

Hi.Please let me know if anyone ever faced/facing this symptoms as I am scared of bulbar big bad As this symptoms resemble dysphasia/dysphagia/dysarrthea which are caused by Bulbar big bad.Please

my twitches have started 2.5 months ago and gradually progressed to many parts of my body with common hotspots being shoulders,biceps,thighs,left eyelids,some twitches on cheeks.

bulbar symptoms:initial to progression

*when I lie down on my back,I feel difficulty swallowing and feels throat tightness and as if something is protruding out of my throat.I also get clicking sound while swallowing.I get this feeling while standing or sitting as well now a days

*I feel narrowing down in my throat while eating

*I am unable to talk loud as I used to before

**I am unable to talk a sentence with out breathing air.I feel like I need to give a pause after speaking short sentence ,breath air and continue

*I tried to sing a small song but still I couldn’t sing one line continuously as I felt suffocation in my throat

*I feel my airways are blocked if I open my mouth to speak and cannot talk a medium sentence as I feel urge to breath and then continue the talk.

*I feel my vocal cords are stiff

*My tongue feels thick feeling in the front portion and also I always feel tingling/needles and pains/vibration sensations in the front portion of the tongue

*Sometimes I feel like I am slurring but can autocorrect the word

*sometimes I get frog sound in my throat while opening mouth or while eating/swallowing

*I feel my throat is gradually getting blocked

*My biggest concern is breathing difficulty while talking because I feel my airways are blocked when I open my mouth and can’t talk as I will be short of breath at that time

sorry for the long post

Does any one have constant tongue pulling/needles and pins/Burning sensation /vibrations on the tip of the tongue and also sides of the tongue.

I have this sensations for almost a week and it’s constant and I am scared.I do have all other symptoms which I described in my earlier posts.Its bothering me a lot and really scared

Thanks