u/My4dogs4evr

hello we submit this prayer for our elderly she has suffered three heart within two weeks. She’s unable to have surgery too much damage to her heart muscle and she has a 90% blockage. We know it probably doesn’t look good for but Lord, you are the ultimate physician please whatever you will is ease her pain and help her back home. Oh Lord, if it’s your will reunite her with her beloved husband that she has missed for 11 years since he passed away.

We prayed us in Jesus name🙏🏻❤️🙏🏻

My doctor prescribed Monjauro 2.5 We will probably stay on that amount because I am extremely sensitive to medication, but I have yet to start it out of fear of the side effects. I hear about but they also placed me on 500 mg once a day of extended release metformin. Has anyone ever been placed on two different medication’s like this a GLP and metformin?

My injections have been sitting in the fridge for a while. I started the metformin, but for some reason, I’m terrified of starting that injection. Mainly because a year or so ago when my A1c was up and I wanted to bring it down on my own, they wanted me to first try Ozempic. I got so deathly ill on it after just two injections so I wore those things off and then I just brought my A1c down alone without any medication however now things have changed and I need to be on medication.

I was just curious if anyone ever had a dual prescription for type two and I just have to figure out a way to bring myself to inject Monjauro.

Any thoughts or tips on this? Thank you so much.❤️‍🩹

hello

type 2 here

I managed it on my own for a long time with diet and exercise all while battling MS and some other health issues and I got my A1c down all the way to 5.1. Suddenly, I don’t know where blood sugar is started spiking and my A1c jumped through the roof.

My doctor prescribed Monjauro 2.5 We will probably stay on that amount because I am extremely sensitive to medication, but I have yet to start it out of fear of the side effects. I hear about but they also placed me on 500 mg once a day of extended release metformin. Has anyone ever been placed on two different medication’s like this a GLP and metformin?

My injections have been sitting in the fridge for a while. I started the metformin, but for some reason, I’m terrified of starting that injection. Mainly because a year or so ago when my A1c was up and I wanted to bring it down on my own, they wanted me to first try Ozempic. I got some deathly ill on it after just two injections so I wore those things off and then I just brought my A1c down alone without any medication however now things have changed and I need to be on medication.

I was just curious if anyone ever had a dual prescription for type two and I just have to figure out a way to bring myself to inject Monjauro.

Any thoughts or tips on this? Thank you so much.❤️‍🩹🙏🏻

This started last year. I developed it out of the blue misdiagnosed by two eye I finally found one that knew what he was doing. They relayed it to my MS neurologist and she pretty much kept an eye on things. I had an MRA that showed everything was good. My regular MRI for MS are stable as well.

This has been going on now for two days. I have my eyepatch on and off.

I think the ER out of fear and I know that was foolish. They did a CT. Cleared me of anything wrong, but ironically on the left side they found I had acute sinusitis. I literally had no symptoms of it. I have all allergies so whatever I felt I thought it was that.

I was placed on antibiotics for seven days

Waiting to hear back from my MS neurologist I’m guessing we’re going to do another MRA

This is the longest it’s ever lasted.

Wearing eye patch on/off

Anyone else have this ?? Internuclear ophthalmoplegia (INO)

i’m afraid and I’m overwhelmed. Too much is happening at once 😭❤️‍🩹

Current symptom: After horrible flair last November which resolved my pain is mild/intermittent No bladder/bowel issue outside bladder recalibrating post hysterectomy ( it was crushed x3 years under uterus 13x normal size plus huge ovarian cyst/fibroid) BUT numbness in left foot and in patchy areas of left leg. very positional. it drives me crazy. Neuro/ortho said no CES but this could be from pinched nerve or MS (dx 15 yrs ago) so I can’t tell what is what. GYN surgery was suppose to use lumbar support in OR/they forgot. laid in PACU 3 hours. Recovery I can’t recall. long story but husband shared the nightmare later. it was same day surgery but I was out of it for 2 days ( was over medicated and also given meds I was allergic too despite alerts in chart. Since surgery 12/23/25 I had this worsening numbness in left foot/leg. I pleaded with OR team not to forget the lumbar SUPPORT, and not to let me lay in the bed too long. They ignored both. now I’m dealing with this numbness that will NOT go away. They say no CES and that I just have to deal with this as a result of my lumber issues! 😭. I’m doing small walks daily, recumbent bike slowly for short periods as I want to stay as mobile as possible. No EPI as I can’t do steroids.

No PT as I really don’t trust the 21-year-old physical out of school we don’t have any season physical therapists around here and I’ve had bad experiences when I was sent for vestibular physical therapy for MS three months and I ended up feeling worse. Plus my other providers just didn’t want me to do it anymore. They could see I was not doing well with it.

Not asking for medical advice, but based on this report and from everyone’s know base I see here. Is there anything here that indicates a risk for CES? I know what the doctor told me, but I don’t trust them either. they told me to get the CES thing out of my head, but I just can’t. This comes from a real solid reason. Only provider I trust is my family nurse practitioner. She’s helping me the best she can and has put me on B12 which I start Monday. I have bad pain but from MS so I have pain medicine for that.

Something is causing this numbness but I can’t figure it out plus occasionally this tingling intermittently everywhere throughout my body..but that’s being blamed on MS doctors get tunnel vision because I have MS that’s why I went around for a year herniated disc that a neurosurgeon never told me I had it wasn’t until I had to flare that I found out a year later because he wrote my back issues off as MS related pain the orthodox are the ones that found it when I had that horrific flare

Docs say that my recent MRI is stable pretty much what they see with a lot of people, but I just can’t believe that not with these symptoms

I just cannot get this damn fear of CES out of my head on top of which if it’s so extremely rare as everyone says it is why do I see so many postings about it?

Thank you for your help🙏🏻💓

****************************************+

Lumber MRI 2/28/26 ( previous MRI 11/19/24)

LINICAL INFORMATION: M79.606 - Pain in leg unspecified / M79.89 - Other specified soft tissue disorders /

M48.061 - Spinal stenosis lumbar region without neurogenic claudication.

PROCEDURE: Routine lumbar spine MRI without contrast.

COMPARISON: MRI lumbar spine 11/19/2024.

FINDINGS:

5 nonrib-bearing lumbar-type vertebrae.

Trace anterolisthesis of L3 on L4.

Minimal levoconvex curvature with mild leftward listhesis of L4 on L5.

No acute fracture. Vertebral body heights are maintained.

Probable benign intraosseous hemangioma within the L4 vertebral body.

Mild Modic type II endplate changes at L4-L5 and L5-S1.

The conus medullaris is positioned at the L1 level.

T12-L1: Small diffuse disc bulge. No spinal canal narrowing. Mild left neural foraminal narrowing. No significant interval change

L1-L2: No disc herniation. Mild facet arthrosis and ligamentum flavum thickening. No spinal canal or neural foraminal narrowing

L2-L3: Trace diffuse disc bulge. Moderate facet arthrosis and ligamentum flavum thickening. Moderate spinal

canal narrowing. Mild left neural foraminal narrowing. No significant interval change.

L3-L4: Trace anterolisthesis with uncovering of the disc and small diffuse disc bulge. Severe facet arthrosis and

ligamentum flavum thickening. Moderate spinal canal narrowing. No neural foraminal narrowing. No significant interval change

L5-S1: Left eccentric disc osteophyte complex. No spinal canal narrowing. Severe narrowing of the left lateral

recess with impingement of the descending left S1 nerve root. Severe left and mild right neural foraminal

narrowing. No significant interval change.

Paraspinal soft tissues are unremarkable.

IMPRESSION:

1. Multilevel lumbar spondylosis, not significantly changed from the prior MRI from 2024.
2. Moderate spinal canal narrowing at L2-L3 and L3-L4.
3. Severe narrowing of the right lateral recess at L4-L5, with impingement of the descending right L5 nerve root.

Moderate left and severe right neural foraminal narrowing at this level with impingement of the exiting right L4 nerve root.

4. Severe narrowing of the left lateral recess at L5-S1, with impingement of the descending left S1 nerve root.

Severe left neural foraminal narrowing at this level with impingement of the exiting right L5 nerve root.

Current symptom: After horrible flair last November which resolved my pain is mild/intermitten. No bladder/bowel issue outside bladder recalibrating post hysterectomy ( it was crushed x3 years under uterus 13x normal size plus huge ovarian cyst/fibroid) BUT numbness in left foot and in patchy areas of left leg. very positional. it drives me crazy. Neuro/ortho said no CES but this could be from pinched nerve or MS (dx 15 yrs ago) so I can’t tell what is what. GYN surgery was suppose to use lumbar support in OR/they forgot. laid in PACU 3 hours. Recovery I can’t recall. long story but husband shared the nightmare later. it was same day surgery but I was out of it for 2 days ( was over medicated and also given meds I was allergic too despite alerts in chart.

Since surgery 12/23/25 I had this worsening numbness in left foot/leg. I pleaded with OR team not to forget the lumbar SUPPORT, and not to let me lay in the bed too long. They ignored both. now I’m dealing with this numbness that will NOT go away. They say no CES and that I just have to deal with this as a result of my lumber issues! 😭. I’m doing small walks daily, recumbent bike slowly for short periods as I want to stay as mobile as possible. No EPI as I can’t do steroids. No PT as I really don’t trust the 21-year-old physical out of school we don’t have any season physical therapists around here and I’ve had bad experiences when I was sent for vestibular physical therapy for MS three months and I ended up feeling worse. Plus my other providers just didn’t want me to do it anymore. They could see I was not doing well with it.

On top of which I don’t need more damage done to me. We came up with a good plan that I do every day here at home. I’ve noticed it does help quite a bit, but that damn numbness will not go away. Sometimes or worse than others.

Not asking for medical advice, but based on this report and from everyone’s knowledge base , I see here. Is there anything here that indicates a risk for CES? I know what the doctor told me, but I don’t trust them either. This comes from a real solid reason. Only provider I trust is my family nurse practitioner. She’s helping me the best she can and has put me on B12 which I start Monday. I have bad pain but from MS so I have pain medicine for that.

Something is causing this numbness but I can’t figure it out plus occasionally this tingling intermittently everywhere throughout my body..but that’s being blamed on MS doctors get tunnel vision because I have MS that’s why I went around for a year herniated disc that a neurosurgeon never told me I had it wasn’t until I had to flare that I found out a year later because he wrote my back issues off as MS related pain the orthodox are the ones that found it when I had that horrific flare

Docs say that my recent MRI is stable pretty much what they see with a lot of people, but I just can’t believe that not with these symptoms

I just cannot get this damn fear of CES out of my head on top of which if it’s so extremely rare as everyone says it is why do I see so many postings about it?

Thank you for your help🙏🏻💓

****************************************+

Lumber MRI 2/28/26 ( previous MRI 11/19/24)

LINICAL INFORMATION: M79.606 - Pain in leg unspecified / M79.89 - Other specified soft tissue disorders /

M48.061 - Spinal stenosis lumbar region without neurogenic claudication.

PROCEDURE: Routine lumbar spine MRI without contrast.

COMPARISON: MRI lumbar spine 11/19/2024.

FINDINGS:

5 nonrib-bearing lumbar-type vertebrae.

Trace anterolisthesis of L3 on L4.

Minimal levoconvex curvature with mild leftward listhesis of L4 on L5.

No acute fracture. Vertebral body heights are maintained.

Probable benign intraosseous hemangioma within the L4 vertebral body.

Mild Modic type II endplate changes at L4-L5 and L5-S1.

The conus medullaris is positioned at the L1 level.

T12-L1: Small diffuse disc bulge. No spinal canal narrowing. Mild left neural foraminal narrowing. No significant interval change

L1-L2: No disc herniation. Mild facet arthrosis and ligamentum flavum thickening. No spinal canal or neural foraminal narrowing

L2-L3: Trace diffuse disc bulge. Moderate facet arthrosis and ligamentum flavum thickening. Moderate spinal

canal narrowing. Mild left neural foraminal narrowing. No significant interval change.

L3-L4: Trace anterolisthesis with uncovering of the disc and small diffuse disc bulge. Severe facet arthrosis and

ligamentum flavum thickening. Moderate spinal canal narrowing. No neural foraminal narrowing. No significant interval change

L5-S1: Left eccentric disc osteophyte complex. No spinal canal narrowing. Severe narrowing of the left lateral

recess with impingement of the descending left S1 nerve root. Severe left and mild right neural foraminal

narrowing. No significant interval change.

Paraspinal soft tissues are unremarkable.

IMPRESSION:

1. Multilevel lumbar spondylosis, not significantly changed from the prior MRI from 2024.
2. Moderate spinal canal narrowing at L2-L3 and L3-L4.
3. Severe narrowing of the right lateral recess at L4-L5, with impingement of the descending right L5 nerve root.

Moderate left and severe right neural foraminal narrowing at this level with impingement of the exiting right L4 nerve root.

4. Severe narrowing of the left lateral recess at L5-S1, with impingement of the descending left S1 nerve root.

Severe left neural foraminal narrowing at this level with impingement of the exiting right L5 nerve root.

Hi

I can’t find the response I got for some reason it disappeared in my history. I had asked this question under somebody’s post, but I can’t locate it now after they responded.

Where is it on your explorer that you find the timeframe that your truck was made and what is considered to be the best time of the year that the trucks are made I know some people feel there’s certain times of the year that the trucks are constructed better than others

Hope that made sense. I’m running on a little sleep here

I just had to pick a flair. I couldn’t post this. It doesn’t have a flare for just a question.

Thanks 🚙🩶

After 25+ years with GEICO I can’t believe that I’m going to have to ditch them. One accident and 25 years. Never anything else on my record. Geico hikes my insurance premiums $130 extra a month and deemed me high risk absolutely no reason whatsoever outside this one accident/no injuries. I’m in NC. Retired Military (Combat Wounded) . Never ever missed a payment not even while deployed to combat zones nine separate times never a minute late on payments.

To say I’m shocked as beyond words

I did prepare a letter which I’m sending certified to have them explain and provide all the documentation that made them come to the conclusion they did (BECAUSE THEY CLEARLY LIST IN THE LETTER THAT I CAN REQUEST THOSE DOCUMENTS TO SEE HOW THEY CAME TO THAT CONCLUSION FOR ALL THOSE THAT ARE HAVING AN ISSUE WITH WHY I WROTE THE LETTER IN THE FIRST PLACE WHICH I HAVEN’T EVEN MAILED)

If anyone can give me any advice, I would appreciate it. Thanks

Hello. I’ve had MS many years.

i’m about to start hitting my head against a brick wall. life of me, I cannot seem to get through to my MS neurologist this symptom I’m having every time I describe it. She responds with the most idiotic comments like “oh you mean like goosebumps”.

NO!!!!

I don’t know if there’s a name for this. I have no idea at this point as long as I’ve had MS. I just don’t know what’s what anymore but this symptoms started about a month ago or so. I should mention my all MRIs (brain/Cspinr/orbits) came back stable. Nothing new. Recent things: Dec 2025 Hystetectomy everything gone but cervix. Recently diagnosed with Hasimotos Thyroid (also pending biopsy for some T4 nodules). Stable Lumber MRI but L5S1 herniated disc appears to have healed itself, but still occasionally pinches the nerve to the left also T2 diabetic I got my A1c down to 5.2 without medication. I just had recent labs and it shot up to 6.7. TPO antibodies are highly elevated, but I always have that. All other labs were perfect, including lipid panels, thyroid panel panels, iron panels. Vitamin D is finally at 31 after years of being in the toilet.

Symptom I’m having is driving me crazy it’s now every day throughout the day and if I happen to stretch, it gets even worse like if I accidentally stretch in my sleep.
I feel a constant tingling. It’s the only way I can describe it and it just varies where it ends up sometimes in my lower legs sometimes around my left hip or my upper legs it’s really strange coupled with this weird shivering spells I get even when I’m not cold. It’s like I don’t have any control over it. It lasts a few minutes and goes away. However, the tingling is practically It’s just driving me bonkers!

but somehow, I neurologist, can’t understand what I’m trying to describe with a tingling. I don’t know what other word to use. It’s like when you get that little wave of tingling from something. Oh heck I don’t even know.😵‍💫😔

Am I missing something? Is there another word to describe this or does anyone know what I’m trying to say?

Thanks so much for your time

❤️❤️ EDIT: thank you to everyone who has been responding. I appreciate it more than words can say what I didn’t share as I’m a former RN. I had to medically retire at the top of my career when MS took me out of the knees. One of the things is I really have problems remembering and a lot of my nursing knowledge seems to have vanished. I don’t share it because I feel awful about it. It’s a reminder of everything I worked hard for being gone. So I really appreciate everyone’s words and help. things come back to me when they’re mentioned, but my Neuro knows I have a hard time explaining things. That makes it even worse.😔 i’m grateful for having phenomenon support at home with my husband and this forum to come to. ❤️

Hello. new here

My father was diabetic

I worked hard to stay healthy and all of a sudden have had

Feet numbness, nerve pain, headaches, a few spells of nausea and bouts of being starving out of nowhere which nothing i eat helps my diet is good low carb NO sugar

I see my doctor next week

UGH this on top of having MS

hysterectomy last december and nothing has been right every out except cervix

Thanks 😊

I can’t give any background I end up writing a book and then deleting it. MS since 2009 Subcervical Hysterectomy or nothing has been the same since 😔 recent MS MRI‘s brain,cervical spine and orbits were all stable. Lumber Spine MRI X 2 years studies came back with back being stable first MRI had a herniated disc that was missed by the doctor that ordered it who blamed everything on MS second, MRI showed everything was stable for two years and the disc had healed itself, but there may be some residual side effects. I’m having from it. I stay as mobile as possible. I walk three small walks a day with my husband. These symptoms have just become annoying and more noticeable, but no one can figure out what the causes. ( MS Neurologis/ Ortho all reviewed everything) I’m asking here because I have very little trust doctors outside of my nurse practitioner for medicine who I see the 18th of this month

I’ll just make it easy anyone have these and how do you deal with it?

1. Tingling sensation all through your legs and arms and head? And if I happen to stretch while I’m sleeping or without thinking about it, my entire body feels like someone poured gasoline on me and lit a match so extremely painful on top of the deep bone pain I get from MS. I am given a pretty strong liquid opiate to take for those episodes, but I really wish I could figure out what exactly just changed and is causing all this.
2. Spells of shivering, super hard out of nowhere where you can’t even control it for a few minutes, but then it goes away on its own.
3. Random numbness that moves around, but never really goes away your legs and feet.

Thanks for your input. 💓

HELP 😔😭I don’t know what else to do

Hello,

Dx: MS 2009 , DX: L5S1 herniated disc that healed itself after terrible flare, but evidently pinching on a nerve due to inflammation November 2025,

12/23/26 Supracervical Hysterectomy which was done laparoscopic robotic incisions in my belly and a bikini line incision where she used these bags to cut up everything and pull it out that removing 9cm ovarian cyst, 12x12x10 Fibroid, and a uterus 13x the normal size (crushed my bladder) surgery went good except they forgot to put the lumber protocol in place in the OR which my orthodox requested and they said they would but they never did

I went to PACU I was there for three hours where they gave me two types of medication that all my surgical clearance letters stated NOT to administer (Lasix and Decadron) they also pumped me with so much pain medicine which included Dilaudid , oxycodone and a dose of fentanyl from the OR was already on board

My husband kept asking about me and they kept telling him I was fine but It was just taking a bit longer when I got to recovery I was completely incoherent. My husband raised major concerns with the Nurses and after they pumped me with more Dilaudid stating my pain level was at 10 (he saw them type it in the computer) he spoke up questioning why they were putting that in the computer when I couldn’t even speak, how did they know my pain level was at 10 when I was incoherent…. a little while later they discharged me fully in the days and outer space

I never walked for them. I never had to pee for them I never ate nothing. catheter evidently came out operating room. We got my medical records that we requested two weeks after my surgery we had every single thing even the nursing notes

They wheeled me out to our truck. My husband put me in the truck and off we went he said his main concern was getting me out of there as soon as possible. i’m so grateful he did that for me no telling what they would’ve done had I been there longer because I was in recovery for over an hour, and they had no intentions of bringing me to any sort of state of alertness

We had a hotel room because the hospital is a few hours away from home. we stayed the night before and then the night of my surgery. He would go on to tell me that I was out of it that whole night he took care of me and it was utterly heartbreaking in his words to see the condition I was in however he just wanted to get to the next morning and then get us home.

All trust was lost in that hospital. My surgical team was separate than the hospital. Once they completed everything and updated my husband I was handed off to the hospital. That’s where everything went sideways

Since then, nothing’s really been right

I was out of it for two solid days my husband had to tell me everything once I came to and that was two days later when we were at home I never remember being in the hotel that night or the next day which is when he packed us up and brought us home. He did put a call into the surgeon, but evidently she never returned it, but it was the day before Christmas Eve so I guess she was busy with the holidays.😔

Post Op

The only thing that changed is I no longer walk hunched over from the weight in my lower and pelvic area and the pain I was going through for three years. I also was no longer dragging my left leg. I was actually walking basically like a normal person a little slow but still in a way that actually made my husband tear up to see me walk so better but I was still suffering with the numbness and swelling and just everything I knew it was going to be a long recovery. Surgeon told my husband about three months for me to start feeling better.

The surgeon could not have been more wrong. I am in month five and Im struggling. The only one that has told me straight who I trust is my nurse practitioner for Family medicine/ internal medicine. She has experience with MS both professionally and personally (family member)and told me it will probably take me up to a year to feel any normalcy, but she is concerned about some of the things we just can’t pinpoint where it’s coming from.

While I was waiting for my surgery date. I had a horrific flare of my lumbar spine. I’d never experienced that before at this point, I never even knew I had an issue with my back That’s when they found the herniated disc but the worst part is I had had an MRI a year prior and the neurosurgeon signed off on telling me that my back pain was just related to MS. He never told me about the herniated disc or anything so for a whole year I just went about my business like everything was just MS stuff. Normally I get a copy of all of my records, but I failed to get it this time and it’s the one time I should have. I just blindly trusted him.

When the flare hit, I ended up in an acute care ortho clinic where the doctor flipped out. I have a very high pain tolerance, but I was in there crying like a baby in so much pain. I had to sit on ice packs to relieve the pain that was going from my lumbar spine down my left leg.. her anger was due to finding out the results of the MRI that the neurosurgeon wrote off as MS stuff!

When she brought up the MRI as they had access to it. She showed me the herniated disc. They were furious, and they made sure I had whatever medication I needed for pain which my primary care already had in place they just added a muscle relaxer. The pain was unbelievable for a few days until about a week later it stopped since and since I was due to go to surgery ORTHO canceled the epidural which I would later find out that I couldn’t have in the first place because I can’t do steroids. They also canceled PT. None of my doctors wanted anything to interfere with this much-needed critical surgery. I would also come to find out that my ovary with the huge cyst was already in the midst of torsion when I was in the OR

The past 2 months I also got a new lumber MRI nothing changed from that first MRI so two years of what they considered stability no changes the herniated disc healed itself, but it’s still a little bit there. It’s hard to explain, but they said it’s just probably occasionally pinching on my nerve when it gets inflamed when I them about the numbness, they said they expected that from that particular area of my lumbar spine, but it didn’t make much sense if it was all cleared up. Why would it still be there? I was just trying to see if it had anything to do with my back.

I have heavy duty liquid pain medicine at home that I’ve always been given because of the amount of pain I’m in from MS and I also was using it for the GYN pain and now they just kept me on it to use for the back pain whenever I need it and I’m super careful with it

Sorry this is longer than I intended it to be, but I’m trying to explain everything 😭

Ever since my surgery, I suffer from terrible swelling in my lower legs and feet. We finally found a diuretic that I don’t have a bad reaction to however I have this numbness in my feet. That is just so annoying. It’s in both feet but it’s very positional, depending how I sit or move sometimes it’s super bad sometimes it’s not. sometimes it’s in other areas of my legs, but it’s really strange and I’ve had two ultrasound Doppler studies of my veins and arteries. I was clear for any blood clots and everything looked good except both times the individual radiologist did not significant swelling was seen.

I try to stay as mobile as I can. my husband and I do three very short walks a day to keep me moving and to help with the numbness in my back. ORTHO just didn’t want me going for a long walk all at once they told me to just take it easy and do a few short walks a day.I find that seems to help it but now I noticed that my legs feel a little bit weak At times. Again, I ran this by ORTHO and Neuro and they said that everything on my MRI is stable and they would expect me to have some numbness as a result of that herniation when it gets inflamed whatever’s left over from it healing I would like to also mention I got a second ortho opinion and they agreed with my main doctors who happen to be some of the top in our state

I was told never to go back to the neurosurgeon I originally saw which really hurt me because I really trusted that doctor. He was actually taking care of me until we got an MS neurologist in the area so I felt pretty awful about that but they felt that he missed the boat terribly with my diagnosis and at this point I should just let orthopedics and my neurologist deal with this as they keep saying my back is not a surgical case and even if it was, they would not recommend me for surgery. I already have a very bad knee that has tricompartmental osteoarthritis and they said no surgery for my knee either they just treat the symptoms as they come and tell me that liquid Oxy I’m on they 100% support my staying on it as needed I can basically only try to manage the pain at this point which is unbelievably exhausting

They all feel it was a miracle I got through the hysterectomy, considering what happened afterwards.

Fast-forward to now, I’m really struggling with this numbness that comes and goes especially when I try to go to sleep. I use a pillow under my feet but nothing seems to help and my legs just haven’t felt right since surgery. The new water pill is actually slowly getting rid of fluid.

I can’t do any steroids or NSAIDs the two things I feel I need the most . I have always reacted horrifically to steroids. I wish I could. I’m sure it would help me at some level but now I’m not even sure because we really don’t know what’s causing this.

My MRIs of the brain cervical spine and orbits were just done a month ago as well and they were completely stable. Nothing new /no concerning issues and in fact, one of my lesions, the radiologist said appeared to have shrunk some.

I’m not looking for medical advice. I understand that that’s something I get from my doctors but what I’m searching for in this forum from my fellow MS folks is does any of this sound familiar, ring a bell or is there anything you could possibly think of that I could investigate further by taking it to my doctors?

i’ve had outstanding support from my husband who is phenomenal. The way he has cared for me can only be done by someone a true Angel on earth Saint he has done absolutely everything. All the cooking cleaning laundry going to the store he even keeps a logbook that he started before my surgery and has everything noted even my nurse practitioner for my family practice care was so impressed. She had never seen anything like it. It also helped her to have that information that he was logging. I started helping out around the house again, but he’s so protective in terms of wanting me to just rest and try to get through this, but I just have to keep doing as much as I can to keep my mind off all this which he understands, but I do try to take it easy

I feel so bad because I see him happy and smiling and so supportive and encouraging for any of the small wins we get but I do see in his eyes sometimes the concern of “what is going on!!!”. because everything has definitely flipped a switch ever since surgery, but we don’t know what is going on

I should say that many details. I also know because we got a copy of my entire medical records from the hospital two weeks after my surgery my husband put in for it. That’s also where we obtained exactly all of the mishaps they did. My providers that cleared me for surgery telling them not to administer a certain medication’s were absolutely livid when they found out.

OK, let me stop before I keep on rambling. I’m so sorry but I don’t know how to shorten any of this and my mind with MS ever since my diagnosis I can’t seem to summarize things like I used to.

The main weird numbness throughout my feet sometimes weird spots on my legs but then it just goes away. It’s so positional but another main thing is once I do fall asleep when I first wake up I am in excruciating pain, not back pain, but what like fire going through me and pain all the way into my bones. In addition if I accidentally stretch my legs while I’m sleeping. It starts that whole episode of the burning all the way through my body and just this deep bone pain, which I have to quickly get pain meds on board to calm it all down. Occasionally, I have to use Aprazolam because my anxiety goes through the roof and when I first wake up, my legs are so heavy and numb, but as soon as I get up and start moving it pretty much goes away but it’s still always there. Just not as severe for lack a better words.

** I forgot to mention I also did these episodes where I’m shivering out of control. I literally have no way to control it and it’s not like it’s cold or anything but my whole body just shakes or limitlessly for a good five minutes and then it just stops like it never happened.

I see my nurse practitioner in two weeks. In the meantime today I did labs. She ran everything from A-to-Z that she could think of.

Thank you to anyone that has taken the time to read this novel

We just don’t know what else to do or what else to look into. If anyone here can suggest anything. We will take it to my doctors. Thank you so much and feel free to ask any questions. 💞

Simply put….

i’m dealing with a herniated disc that has healed itself per the docs (orthopedic and neuro), but it’s still pinching a nerve L5 S1 also L4. I had a horrible flair last fall. It’s a super long story. I ended up with some residual numbing in my left foot and a tiny bit on my right foot. I’m fed up with doctors after being gaslit. My husband and I did some research and came up with a plan that’s been helping me every day to try to get better. We know it will be a long process, but slow and steady wins the race. get better as in stabilizing my back not the MS. I’m stuck with that

The problem is, I have this insanely irrational, overwhelming fear of CES! Even though my ortho/neuro people said that I should get it out of my head with regards to what’s going on with my back but their words really don’t hold much water because the neurosurgeon I believed in blew it and the Ortho people I just don’t even trust anymore. My neurologist who I have to see due to MS sadly is a flake! Believe me I have very valid reasons for feeling this way, but I would just take too much to type it all out

I can’t change doctors because where we live we already have to go a ways to see the ones I have. I would have to travel over five hours if I got new doctors and I’m not willing to do that and frankly, I don’t think they would be much better.

I have this insanely irrational, overwhelming fear of CES after reading about it here I thought it was supposed to be this extremely rare one percent of people get type of back issue and yet I keep reading so many stories about it here.

i’m really trying to work through my fear, but for some reason I have it stuck in my head that is going to happen to me five minutes from now an hour from now or tomorrow

The MS, which is so difficult and beats me up every day on top of some back issues and now recovering from a hysterectomy that went sideways I just can’t handle something else major happening to me. I’m not even a candidate for any type of surgery. I barely got through the hysterectomy.

Is there anyone that can provide some factual insight on CES? I just don’t know how to get past this fear and I’m not going to see a therapist about it. My logical brain tells me one thing, but then that fear creeps in and it completely takes over any logic that I have.

Please don’t judge me as this is really difficult for me. I really been going through a tough time with everything.

Thank you for your help or any insight 💞