▲ 5 r/iih

Topimax and Painful tingling/numbness

I've been on Topimax now since May. I'm on 100mg now and I know the numbness/tingling won't go away but is there anything that can help the painful pins and needles in my heels and toes (the last two specifically). My hands and face/mouth don't bother me as much but the fact that it's happening on and off all day long is just getting to be so much knowing I'll more than likely be on a form of these meds for years 😭

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u/National_Yoghurt6706 — 3 days ago
▲ 3 r/Hair

What products should I use to help the frizz when straightening?

What products can I use it to help get that silky smooth finish when I straighten it? I have wavy/curly natural hair. I think it would be described as "Irish curls"? Honestly not sure of course I can't find a picture of my hair with product in but here's my hair natural/unbrushed out of a towel after I slept on it (bad I know) and then after I brushed it. I have to straighten my hair but my issue is it feels poofy when I straighten and doesn't really lay as "flat" as I'd like most of the time. I also use a comb while straightening and don't brush it until everything has cooled. I get regular cuts and deep conditions when I color my hair, along with high quality product at home.

u/National_Yoghurt6706 — 5 days ago

Is my psychiatrist being a good provider or do I consider switching?

This is kind of long please stick with me. I want to make sure I'm making the right choice before I decide to "drop her" if that's what needs to be done. I've seen her for like a year. Currently being treated for ADD with Adderall XR (10mg) and was previously on vyvanse but had to switch due to my new insurance not covering it.

Well I've always had anxiety/depression but have managed on and off meds. But I have mentioned a twice now (once being like 3 months she said it was probably PMDD and then this past Friday) that I think I need some for my mood because I am just so ragey and angry with my kids. I'm overstimulated and snap/yell. I'm always waking up on edge and I'm just burnt out and constantly worried about what's the next issue that's gonna pop up that I'm going to have to worry about or take care of. You know the anxiety things.

Well this last visit she brushed it off again and said well I think it's you coming down off of your adderall in the evening if that's when the rage spikes (non that's when my kids come home from daycare, I've been ragey for 4 years now since I've had kids). So she said well let's switch to immediate release Adderall and get you some hydroxyzine for those times you feel rage. But she knows also knows the last thing I can do as a parent to two little kids is be ready to pass out after taking a medication mid day or evening? I just don't get why that was the first line of defense when I'm not having a panic attack or anxiety attack. And I asked if I can be treated for both my ADD and anxiety and she's like well yeah but I want to make sure it's not your ADD showing up as anxiety. But what we can do is we could just stop the Adderall and just know you won't be productive and fix the anxiety issue then you can just be unproductive then start it back up later on if that's what you need.

Like is it too much to ask to be treated for my ADD and my Anxiety? Ive never been treated for both at the same time before. If I stop my ADD meds my anxiety goes haywire because I can't function with my household duties it like paralyzes me. But she seems to think that's what would help.

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u/National_Yoghurt6706 — 18 days ago

Is my psychiatrist being a good provider or should I switch?

This is kind of long please stick with me. I want to make sure I'm making the right choice before I decide to "drop her" if that's what needs to be done. I've seen her for like a year. Currently being treated for ADD with Adderall XR (10mg) and was previously on vyvanse but had to switch due to my new insurance not covering it. Well I've always had anxiety/depression but have managed on and off meds. But I have mentioned a twice now (once being like 3 months she said it was probably PMDD and then this past Friday) that I think I need some for my mood because I am just so ragey and angry with my kids. I'm overstimulated and snap/yell. I'm always waking up on edge and I'm just burnt out and constantly worried about what's the next issue that's gonna pop up that I'm going to have to worry about or take care of. You know the anxiety things. Well this last visit she brushed it off again and said well I think it's you coming down off of your adderall in the evening if that's when the rage spikes (non that's when my kids come home from daycare, I've been ragey for 4 years now since I've had kids). So she said well let's switch to immediate release Adderall and get you some hydroxyzine for those times you feel rage. And I asked if I can be treated for both my ADD and anxiety and she's like well yeah but I want to make sure it's not your ADD showing up as anxiety. But what we can do is we could just stop the Adderall and just know you won't be productive and fix the anxiety issue then you can just be unproductive then start it back up later on if that's what you need. Like is it seriously too much to ask to be treated for my ADD and my Anxiety? Ive never been treated for both at the same time before. If I stop my ADD meds my anxiety goes haywire because I can't function with my household duties it like paralyzes me. But she seems to think that's like what would help.

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u/National_Yoghurt6706 — 18 days ago

Things to buy before surgery

Hope this is okay to ask here! My grandma (80 this Nov) will be having laminectomy and fusion of the C3-7 to my understanding ASAP per the surgeon due to the severity of symptoms and decline of her health due to them. My guess is before the end of the month so we are scrambling to get a plan in place as she lives alone. What are some things i can buy to help with her recovery? Things you found helpful once you had a little less restrictions? Things for comfort/pain? Things to help you sleep better? Did you need to buy any of the medical supplies for wound care, if so what did you like? Any advice for recovery or any part of this? We have plans in place for someone to stay with her. The surgeon was optimistic that she would not need transitional care just due to how mobile and "active" she is even with this bad symptoms but she is aware it's a possibility!

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u/National_Yoghurt6706 — 23 days ago
▲ 1 r/iih

Topimax

Started on topimax beginning of May when I first went to see my neuro-ophthalmologist. I'm currently working up to 100mg which I start next week. I'm on 75mg right now. Does the numbness/tingling in the hands and feet ever go away after being on your top dose for a while? Also what about the tiredness? My doctor mentioned once I'm at my max I could add in a morning dose if needed but it knocks me out! I've also noticed really dry eyes since being diagnosed is that part of the medication? The doctor said no or is it part of IIH or just completely unrelated to those things.

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u/National_Yoghurt6706 — 24 days ago

N30i mask fit-struggling with all my masks

Got my cpap machine beginning of May and started with the F30i. I felt so claustrophobic in it and felt the worst sleep wise I've felt since the newborn stage with my kids. Well before my 30 day (last week) called and told them I need a nasal only and I'll do mouth tape because i think im a mouth breather. I got the P30i on Monday and called today to get the N30i to trial because the P30i even on a loose fit with the head gear caused my septum to become extremely sore/swell a little on the left side. I even tried both sizes provided. My question is how could I try to make sure the N30i has minimal leaks as I'm a side sleeper and the best fit? I really need this to work!

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u/National_Yoghurt6706 — 1 month ago

I was diagnosed and had my machine order sent in middle of April and finally got the call to make an appt for the machine. I'm wondering if there's anything you've bought other for the machine, your room, yourself to help? I'm very nervous because I'm a tossed and turner, sleep on my stomach/side a lot of the time and I'm worried I'm going either rip my mask off because I really hate things being on my face (can't even use my massaging eye mask because it makes my skin crawl). Or that I'm going to sleep and get tangled up in the tube. Also that I'm now a mouth breather so I've heard you can feel like you're being drowned by air? My appt is Tuesday so hoping to get some things ordered, some questions ready, some mask options to ask about? Appreciate anything you can think of!

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u/National_Yoghurt6706 — 2 months ago
▲ 4 r/iih

Went to my eye doctor for a routine eye exam and he found I have a lot of optic nerve swelling, then proceeded to do another test and said my optic nerve pressure was off the charts for his screen. He informed me I would need to get an MRI to see if I have IIH, or possibly a Brain tumor. Referral was sent last week and I just called the neurology clinic they are out until December for consults. Called my eye clinic back and the only doctor (family practice and other provider is out on vacation) is gone until at least tomorrow so now this issue is probably going to go into another week of not knowing and just waiting around. Am I overreacting? I've had about 5 breakdowns this weekend to today. I'm scared, I feel like no one is taking this as serious as the internet makes it sound. I know I shouldn't use Dr google but it's hard when you hear that. Do I need to calm down or is this a more serious issue that I need to be taking charge of since everyone seems so laid back about? The neurology clinic told me it was just for a consult not for any testing, etc. I'm struggling even more because my husband is out of town for work the same time I get this information. I haven't been having major headaches thankfully yet, I have had what I now know is the pulsing tinnitus. I've had this for on and off for months and thought it was normal and just fluid in my ears due to allergies, and also have been have sporadic episodes of like these gray, translucent patches go across my vision that last a couple seconds.

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u/National_Yoghurt6706 — 2 months ago