u/No-Suggestion-8878

Hello fellow dysplasia community. I'm 40 and after a lifetime of back and hip pain was finally diagnosed with a torn laburm, CAM impingement and bilateral dysplasia last month. I had just gone through a miscarriage and was hoping to try again when tearing my labrum. I have been using a walker since June (now August). A cortisone injection last month helped a lot but not 100%, and I'm still using a walker per PT to keep pressure off the joint. I'm mostly housebound and can't walk more than a couple mins at a time without a walker. I swim 15-20 mins daily and that's about all I've been able to do.

I was told by multiple surgeons I need a PAO + labrum repair + CAM removal. Hip arthroscopy surgeons won't operate on me. (I'm 21 degrees LCEA).

At 40 years old I still have "good" cartilage and "mild" arthritis so I'm not a hip replacement candidate.

The top PAO surgeon in the state says that I should try to have a baby before PAO due to my age & ovarian insufficiency diagnosis, and the fact that with his wait list + 6 months min recovery, it would be about 11 months before we could even try again.

The PAO surgeon also says PRP & stem cells won't help, PT only moderately helps, and that pregnancy will make all my symptoms worse!

I'm obviously totally crushed by this info. I'm already using a walker & can't imagine a year of worse pain, versus a year of surgery and recovery before being able to try and missing our window for a family.

I am wondering about women who have torn labrums and dysplasia and got through pregnancy. Did anything help? Did PRP or Stem Cells do anything for you? Is there hope for this beyond the PAO? I have also found one surgeon who is willing to arthroscopy on it but from everything I've read I am wary (he doesn't cut the joint or ligament but does remove part of the damaged labrum which I've read we need with dysplasia).

Thank you all.

Hi all. I am wondering about my low estrogen, how often we should be testing + what day of cycle to draw, and why it wasn't caught? I am still cycling but on HRT. I began having more extreme symptoms of POI in 2024 (had been since 2018 at age 32 but wasn't given HRT until 2024)

My labs were always drawn 4-6 days post ovulation. (LUTEAL)

2024: 87 pg/mL (on 0.025mg weekly patch)

2024 (a week after bumping up to 0.0375mg biweekly estradiol patch): 146 pg/mL

2025: 94pg/mL (a year on the 0.0375mg biweekly patch as it stopped working; I hadn't ovulated this month either)

2026: 56.7 pg/mL (on the oral pill at 0.75mg daily about a year)

At this point and after ME doing so much research into POI and cycling POI, my Dr. FINALLY decided I needed a physiologic replacement dose and bumped me up to 1mg topical estradiol gel and now we are exploring 1.5mg topical gel. I'm in the water daily so the patch was not consistent for me.

I'm wondering when the proper time is to draw blood when you're still cycling (on HRT)?

Also ~ WHY with low levels across YEARS AND having POI, why wasn't I given the proper dose??

I'm now having to get a DEXA scan and am really worried about osteoperosis and osteopenia. I'm 40, and have had low estrogen since age 32. What do I do?

I'm so upset. We are also TTC and I did get pregnant a few months ago after being put on a higher estrogen dose, but had a miscarriage.

Hi all. I am wondering about my low estrogen and why it wasn't caught? I am still cycling but on HRT. I began having more extreme symptoms of POI in 2024 (had been since 2018 at age 32 but wasn't given HRT until 2024)

My labs were always drawn 4-6 days post ovulation. (LUTEAL)

2024: 87 pg/mL (on 0.025mg weekly patch)

2024 (a week after bumping up to 0.0375mg biweekly estradiol patch): 146 pg/mL

2025: 94pg/mL (a year on the 0.0375mg biweekly patch as it stopped working)

2026: 56.7 pg/mL (on the oral pill at 0.75mg daily about a year)

At this point and after ME doing so much research into POI and cycling POI, my Dr. FINALLY decided I needed a physiologic replacement dose and bumped me up to 1mg topical estradiol gel and now we are exploring 1.5mg topical gel. I'm in the water daily so the patch was not consistent for me.

I'm wondering when the proper time is to draw blood when you're still cycling (on HRT)?

Also ~ WHY with low levels across YEARS AND having POI, why wasn't I given the proper dose??

I'm now having to get a DEXA scan and am really worried about osteoperosis and osteopenia. I'm 40, and have had low estrogen since age 32. What do I do? I also just tore my hip and am now waiting for surgery!

I'm so upset. We are also TTC and I did get pregnant a few months ago after being put on a higher estrogen dose, but had a miscarriage.

What is the consensus? Hello all. Curious what the consensus is for long-term labrum tear (likely around age 14/15) and "borderline" dysplasia around 25*. I am now 40. have one surgeon saying no need to worry about the dysplasia as its mild enough and to fix the labrum, with a fairly simple recovery. And another (who is a hip preservation dr) saying he hates the term "borderline" and it was invented by arthroscopic surgeons who wanted to operate, and I need to do PAO or else the labrum will re-tear. I've had bad hip & low back pain all my adult life, unable to strengthen my glutes at all, core, and constant illiacus spasm, and have had dozens of MRIs, Xrays, etc and it was never caught until I reinjured my hip a few months ago and couldn't walk, and bought myself an MRI so I could get my PCP to refer me to hip specialists due to the very visible labrum tear.

Would be very grateful for collective thoughts.

I am going through my prior labs for a new RE and am so upset. I was 32 when my body stopped making estrogen. Am 40 now & didn't get care for 8 years. I have the labs (full month-long DUTCH tests where my estradiol is post-menopausal) in 2018, again in 2023.... I was complaining at age 32 & 33 of insomnia, anxiety, crying all the time, panic attacks, chronic joint pain, exhaustion, and more. I was NEVER asked to have a blood fertility panel drawn for FSH, LH, estradiol, etc etc because I wasn't trying for babies then. No OB or PCP or ND put me on HRT. I didn't know about RE's back then. I was told to get on antidepressants, which I refused.

When I was finally put on HRT at age 37 after demanding help, I was put on the LOWEST possible dose, 0.025mg/day patches. They did nothing. I was eventually put on a 0.75mg oral tablet at age 38. It helped a lot for a while.

I was told by a prior RE clinic that too-high of estrogen would make my ovaries "lazy" and they'd stop working so I needed to stop estrogen or keep it low.

I'm 40 now and FINALLY on 1mg estrogen cream daily. I don't know if its enough and might need 1.5 or higher. I met with a new RE this week who I really like who actually spent an hour with me going over all my medical history. Who assured me we need estradiol high enough to get our brains and reproductive systems into working & communicating properly.

It has BROKEN MY HEART to review what I've suffered through for so many years without being taken seriously. The effects on my bones, heart, brain, joints, mind, and fertility. Only now that we have been trying for babies. Its just so upsetting.

I am so worried now about my bone density health, and will ask for a DEXA scan. My cholesterol has increased rapidly and my deadbeat PCP told me to stop eating butter. I will ask for a lipid panel in a few months. I am so afraid of the long-term damage of this ~ of 8 YEARS of improper care and tanked estrogen levels throughout almost my whole 30s.

How do we manage the long-term effects of misdiagnosis? The grief of the impact to our fertility and our bodies? Are there counselors who specialize in this? Labs we should have drawn regularly?

Is the damage when its that long, that young, reversible for our brains, joints, cartilage, bones and bodies? What do women do to reverse this?

Looking for some hope, guidance, camaraderie, anything. To know am not alone in this. What has worked for you?

Hi all,

I posted a few weeks ago and y'all were so supportive as I was asking how to manage my spontaneous pregnancy on HRT with DOR that's transitioned into a stronger POI (continual daily estradiol, luteal progesterone). Sadly, I just had an MMC & had to get a D&C. Heartbroken.

My RE runs more a "factory" clinic and after the procedure said "you don't need estradiol anymore" ~ but he didn't seem to want me on HRT to begin with.

I wondered about his actual expertise with DOR / POI. My ND put me on the HRT replacement protocol and I did begin ovulating again and spontaneously got pregnant on it.

What do we do after a miscarriage when on HRT to give the best chance of cycling again? Do we stay on continuous estradiol? I know I need to find another RE (I live somewhere with very limited RE options).

Thank you all <3

Hi all,

I posted a few weeks ago and y'all were so supportive as I was asking how to manage my spontaneous pregnancy on HRT (continual daily estradiol, luteal progesterone). Sadly, I just had an MMC & had to get a D&C. Heartbroken.

My RE runs more a "factory" clinic and after the procedure said "you don't need estradiol anymore" (he didn't want me on HRT in general). My ND had put me on the HRT replacement protocol and I did begin ovulating again and spontaneously got pregnant on it.

What do we do after a miscarriage when on HRT to give the best chance of cycling again? Do we stay on continuous estradiol? I know I need to find another RE (I live somewhere with very limited RE options).

Thank you all <3

UPDATE: I met with a new RE today who was very good. She said to stay on HRT (estradiol & testosterone) until period and then do progesterone (oral) in luteal.

Hi fellow DOR ladies! I am 5W (got pregnant spontaneously with cyclical HRT ~ transdermal estradiol 1mg daily & 100-200mg luteal oral progesterone). Doctor's haven't been able to fully diagnose me as I am somewhere between DOR & POI... Still get regular periods but need HRT to make everything function. I'm curious about those with DOR who got pregnant naturally ~ did you need HRT?

I'm currently on pretty high levels of vaginal progesterone (200mg vaginally 3x/day) (at 200mg total per day my progesterone was 15, which my RE says is too low).

I'm also still on transdermal estradiol (1mg/day) as when I get off of it I get night sweats, heart palpations and insomnia, so my RE said to stay on it a bit longer until placenta takes over, or at least until week 6.

I am reading all these studies about progesterone or estrogen use while pregnant causing autism, gender dysmorphia, birth defects, behavioral challenges etc. Its just so overwhelming as its not like I want to be taking hormones, but my body doesn't make enough naturally for me to carry the pregnancy to term without help. I make SOME, but not enough.

I wanted to know if some of you DOR ladies were on HRT while pregnant, and how your babies came out? Did you need HRT?

Hi fellow POI mamas! I am 5W (got pregnant spontaneously with cyclical HRT ~ transdermal estradiol 1mg daily & 100-200mg luteal oral progesterone). I am worried about how much hormone I'm on and its safety while pregnant. It feels sometimes like we are such an outlier population that even most RE don't really know how to deal with us... like we CAN get pregnant naturally but then we need HRT to sustain the pregnancy...

I'm currently on pretty high levels of vaginal progesterone (200mg vaginally 3x/day) (at 200mg total per day my progesterone was 15 which my RE says is too low).

I'm also still on transdermal estradiol (1mg/day) as when I get off of it I get night sweats, heart palpations and insomnia, so my RE said to stay on it a bit longer until placenta takes over, or at least until week 6.

I am reading all these studies about progesterone or estrogen use while pregnant causing autism, gender dysmorphia, birth defects, behavioral challenges etc. Its just so overwhelming as its not like I want to be taking hormones, but my body doesn't make enough naturally for me to carry the pregnancy to term without help.

I wanted to know if you were on HRT while pregnant how your babies came out?

It can feel so lonely to be POI and pregnant as family & friends are really worried with all the HRT I'm taking, and, as someone who generally doesn't like drugs or want to expose a baby to them, I am worried too! Although also so grateful as they are why I was able to conceive! It can feel really overwhelming as I don't think as a population we are really studied at all (like we are not IVF, we do conceive, but then need a lot of overlapping care), and I don't know if the health of our babies as a population is really studied either. Sometimes I feel defective but I know we are not!

Anyone relate? How was your pregnancy? And how did your babies turn out? Thank you so much.

TW: Sexuality & Gender Identity

I'm 5w pregnant with my first, and have POI so do not create enough hormone on my own and am on HRT (estrogen & progesterone). Since becoming pregnant (spontaneous while on HRT), I've continued 100mg oral progesterone, and then switched to 200mg vaginal progesterone per my OB. My progesterone across week 4 and week 5 blood tests has been consistent around 15. I saw an OB specialist yesterday who diagnosed a hematoma near the embryo and gave me a progesterone IM injection, and asked me to also take 400mg progesterone daily (plus the 50mg IM progesterone), to get my levels up higher.

I tend to want to do everything naturally and Googled what side effects progesterone can have on embryo and the children when they become adults, and found a (flawed) study where it increased the percentage of homosexual and bisexual sexual orientation. It scared the daylights out of me (cue questions of why more studies like this haven't been done, have pharma groups suppressed data, are we guinea pigs, etc).

I was wondering if anyone has experiences with IVF or miscarriage or otherwise needed progesterone for the pregnancy and if that affected your children across their development and puberty?

I know this is a touchy subject and I am not trying to be unkind or unaccepting. And I would feel absolutely terrible if I altered our child's orientation or sense of identity artificially through drugs while they were developing.

Thank you

I have been on 1mg topical daily systemic estradiol & 100mg luteal micronized progesterone for the last couple years following a traumatic injury that caused premature POI, endocrine collapse & menopause symptoms.

I'm receiving mixed info from my Doctors and don't know what to trust. I think cases like mine are very rare and no one seems to know what to do with me. I was told by an RE I had a less than 1% chance of conceiving and that I needed donor eggs, and to get off all hormones, which I refused to do.

I'm 4.5 weeks, with doubling HCG and stable progesterone levels per 2 blood tests.

I did contact that RE (who I've only seen once & didn't feel gave my chart the time of day) and his nurse told me to stay on the 100mg of progesterone and stop the estradiol.

My ND who prescribed the HRT for POI said to switch to 200mg vaginal progesterone suppositories (100mg twice a day) and stop the estradiol.

I booked with an OB (I didn't have one) and she told me to stop everything, but hasn't seen me as a patient yet so doesn't understand my case.

I'm terrified of stopping the estradiol before the placenta takes over since my body doesn't make enough on its own (I'm in low-normal ranges when taking daily 1mg topical cream).

I've read that many IVF and donor egg pregnancies stay on estradiol until the placenta takes over.

If my body doesn't produce enough estrogen on its own, is it truly safe for me to stop taking it before the placenta takes over? Is it dangerous to continue?

I don't want to harm this pregnancy and at the same time I don't feel like any of these doctors are actually reviewing or understand my case. The RE runs a massive clinic and he doesn't really give the time of day to anyone ~ everything is referred through his nurses via messages and they were telling me for months that i needed to stop HRT and that supplements wouldn't make a difference, which I knew was wrong. He runs an IVF business so I think he focuses mostly on that.

My ND is awesome but she doesn't specialize in pregnancy so she doesn't know for sure what to do.

And my new OB I don't see until mid-July, so she told me to stop everything via a receptionist but has never seen my chart.

I just messaged the RE's office and asked to have the Dr there review my chart and case and call me, and also messaged another RE practitioner to see if there's any chance I can get in with them asap.

I'm afraid of stopping the estradiol since I don't make enough naturally (although clearly make some as I did ovulate) but I also don't want to harm the developing fetus. This is super time-sensitive and I am so stressed. Guidance is very much appreciated!