Hope this is allowed.
Has anyone tried leucovorin for their child? I’m curious about it as I’ve seen a lot of parents in my FB groups talking about it.
If you did, were there any improvements? Side effects?
If you considered it but decided against, what made you change your mind?
First of all, I comprehend that it’s probably usually coming from a place of kindness, like they think they’re reassuring me. But the fact of the matter is: it’s not comforting. It makes me feel alone & alienated.
My oldest (7M) was diagnosed level 2 at 4. I started expressing my concerns that he was autistic as an infant (worked with kids for 10 years prior so knew signs). Put him in Early Intervention. They said “no maybe he’s just deaf,” and sent him to be tested. I knew he wasn’t deaf. He responded to “cookies” every time. Just not his name or whatever.
Surprise. Not deaf. Labeled it “global developmental delay,” and when I stated my concerns that was a symptom, not the cause, was dismissed by EI, pediatrician, school system.
My friends always just sort of dismissed it too. They’d be like “I’m sure he’s fine,” “well, he’s smart so even if he is, whatever,” “you’re worrying too much,” etc. Meanwhile he’s getting kicked out of public preschool & nonverbal at 4.
Finally, I just said fuck it. I paid out of pocket for private testing after the school kicked him out because no one would listen to me. Brought him to a private clinic and they diagnosed him as level 2.
Then, when I told people close to me, it was “he’ll be fine,” “well you already thought he was,” or literally just so? As if it’s irrelevant completely. His dad was in denial for years & would say “he’s not autistic to me,” like it was an insult or something.
Anyway, point is. I have almost 1 year old twins. And one of them is starting to show some signs. But I won’t even mention it to anyone because I don’t want to go through that again. Dismissed, evaded, shut down, ignored. Makes it feel even more isolating. Sort of “here we go again,” but lonelier cuz I don’t even want to bother voicing it again.
I love my son so much. And my daughter. But I wish this wasn’t so lonely. I wish they didn’t struggle & I wish their struggles weren’t dismissed. I can’t stand avoiding things that make people uncomfortable. Especially when it’s such a big part of our lives. It’s isolating. Tired of feeling alone.
Posting for a friend who’s currently breastfeeding & has an excess of frozen milk. It is not suitable for feeding other infants through donation programs because of a medication she takes so needs to be adults. Craigslist? Any subreddits?