▲ 2 r/neuropathy+1 crossposts

Progressive numbness right side of body now affecting ankle

30F 5'2" non smoker, Dx Ehlers Danlos / HSD, taking Clomipramine, Adderall, and bc pill

I have somehow, through overtensing my muscles, managed to do something to permanently numb both half of my right hand and halfway down my calf to my feet, causing foot drop. This was happening intermittently to my lower right leg (mostly from wearing sandals) but has now become permanent. In the beginning I was rolling my ankle constantly, but muscle memory seems to have kicked in and allowed me to walk despite the drop. I know this is probably bad for my back because of the way I am replicating flexion of the ankle by lifting instead of striding. It's that or I am walking heel toe with my left foot and toe heel with my right.

I am suspicious this all began when I tore my right rotator cuff a year ago. I currently do not have health insurance and am doing fine, but the only response from research I get is “go to the ER yesterday.” I am mostly concerned because I've completely lost grip strength in my right hand (will literally forget and drop plates/mugs lol) and now it is seemingly spreading to everything below my knee. It is a little hard to type as well unless I watch my hand whereas it used to be something I could just do. I also think adderall has me so tense all the time, but ironically it also really helps with the general fatigue - so I still feel better on it. But this is getting weird. Left side is completely fine.

This has been the case for months now. Has anyone experienced this?

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▲ 5 r/eds+2 crossposts

Progressive numbness on right side of body, now causing foot drop

30F 5'2" non smoker, Dx Ehlers Danlos / HSD, taking Clomipramine, Adderall, and bc pill

I have somehow, through overtensing my muscles, managed to do something to permanently numb both half of my right hand and halfway down my calf to my feet, causing foot drop. This was happening intermittently to my lower right leg (mostly from wearing sandals) but has now become permanent. In the beginning I was rolling my ankle constantly, but muscle memory seems to have allowed me to walk despite the drop. I know this is probably bad for my back because of the way I am replicating flexion of the ankle by lifting instead of striding. I am suspicious this all began when I tore my right rotator cuff a year ago. I currently do not have health insurance and am doing fine, but the only response from research I get is “go to the ER yesterday.” This has been the case for months now. Has anyone experienced this?

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DAE have to renew their BC every three months?

For the last four years, regardless of if I have insurance or not, my birth control prescription, which is just the regular progesterone pill, has to be renewed with a doctors appointment every three months. It's infuriating because like, why do I need to keep paying copays for an appointment I will need 4x a year until menopause? Even for somebody that was planning to have children at some point, checking in every three months for something like this feels like a way to waste women's time. But maybe I'm just paranoid lately and have a very hard time staying on top of it because ADHD. Curious to hear others' thoughts/experiences.

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u/Original-Apricot-107 — 2 months ago

Worst ever

I was doing so well. I've lost most of and grown back my hair numerous times in my life, but now is the worst. I've given up on stopping, it's just something to help me disassociate, but I don't want to. I went to the doctor because I thought I should see if I need antibiotics and they weren't concerned. I don't really trust them though. I am keeping a hat on it but it's so hot it's making me nuts. I typically wear wigs out of the house. But my husband has no idea it's this bad and I'm afraid he'll be absolutely disgusted. What really triggered this ep was new adhd meds and sewn in extensions. Photo of me before for reference :(

u/Original-Apricot-107 — 3 months ago

Weird and sudden ankle problem

Hi! I am diagnosed EDS. I am wondering if anyone has experienced this injury - I do take medication that can cause me to clench my muscles really hard and have always dealt with this with magnesium supplements. But I had to drive after a bad bout of it (probably dehydrated) and realize that when I put my foot on the gas, I can no longer "lift" my foot up at the ankle, I have to just move my whole leg. When walking, I walk weird because I can't lift from the toes. I can point my toes down, but whatever tendon that connects my brain to my "up" muscles on my right foot is not connecting. I'm looking at the foot and I can see it start to move barely but there's no way to "access" it neurologically, if that makes sense. What's worse is I feel like it may have literally been from wearing flip flops 2 days in a row, as I've gotten super sore at that join in the past from overly gripping with my toes. Is this something I need to see the doctor for? Or have others had this come and go? It's just a little unnerving looking at my foot and not being able to move it. It feels weirdly claustrophobic.

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u/Original-Apricot-107 — 3 months ago
▲ 15 r/millenials+1 crossposts

Worried my mom is getting dementia?

My mom is 63. She has consistently been unable to work consistently since 2018. She has had several incidents where her anger gets out of hand with her students and ends up blowing up on them in a way that gets her in trouble. She kind of refuses to genuinely examine that she is the problem and seems to very much believe that these kids wake up in the morning with the goal of harassing her. I understand these kids can truly be terrible, but they're like 11-13 years old and I feel like she is holding them to adult behavioral expectations.

In the last year she started doing this thing where she will appear engaged in a conversation and immediately ask a question that you just answered. If it were sometimes I'd just attribute it to age/ adhd - but it is like, all the time. I don't think she's ever been able to follow where I work or what I do. She and I have a good relationship overall, especially considering she homeschooled me and a lot of that time was spent with her either sleeping during the day or rage cleaning and saying horrible things and occasionally threatening to leave/actually leaving. It's weird because I know this is what her mother did to her, so I really don't feel angry towards her, but it does feel like she is my child vs the other way around. I've really never been able to count on her for anything. My dad is very much with it but continues to rag on her and I've told him he needs to be helping her manage doc appointments, especially because she's lately developed a tremor. Her brother died of Parkinson's at 74 and her sister has recently been diagnosed with dementia at 73.

She is on her phone constantly. Like we will be talking and I can tell she is scrolling, it's so weird. Especially because she will really brag about me and say nice things to me but I don't think she really follows my life despite the fact that we talk every day.

Anyways. My dad would rather complain about her behaviors than try to really help with the stuff that matters. He seems to prefer to do the things she should do for herself (he has to wake her up for work, make her lunch, etc) but won't help me manage referrals for neurology, audiology (she is also going deaf which is probably what's making this worse.) he likes to talk about how he's committed to "honoring his contract of marriage" but say pretty terrible things about my mom. The worst part is my mom says the are in love and he has "sexual needs" so she doesn't think he actually would want a divorce. But to me it looks like a incel guy masking as a leftist intellectual who found someone that is a victim of generational trauma (incest, etc in her mother's childhood and then potentially with an uncle).

It's just a confusing mental profile but I would like her to keep her quality of life. She has a therapist but my dad will do things like "turn off the WiFi because the box got too hot" and then she gets all turned around trying to log into her telehealth portal. It's kind of infuriating to watch, because they're both pretty smart people. They were also very hard on me about not doing stupid things, not being lazy, having a strong work ethic, not having overly emotional reactions - and then my dad will say he can't believe I don't respect myself to have a partner that he more approves of.

Sorry, this turned into a huge rant. I guess I'm just looking for commiseration and if anyone has been through this sort of set of behaviors and where I would even start to get help. They live in California and I live in MA. I do have access to her insurance portal and can book appointments/request referrals on her behalf, which she continually asks me to do and I also proactively will do it because she can't seem to spend any time that could be sent playing phone games on helping herself feel better. In my dad's defense, she has become really comfortable not making an income after they together co-signed on college and car loans and all sorts of things for my sister and I. But my dad has also egregiously lied about financial things in the past, including taking cards out in her name without her knowledge, buying a motorcycle and hiding it, not including her in decision making even when she was making money or being a full time parent. He doesn't seem to see how he has kind of continually made her a victim and that no healthy adult woman would tolerate his behavior.

I do think tapering off of lexapro could help with the disassociation and inability to focus, but my sister is worried she'll start having rage episodes again, which is. Valid concern.

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u/Original-Apricot-107 — 3 months ago

Leslie's Dog Park not being maintained?

Has anyone noticed the overgrown state of the dog park? Did we spend all that that's for landscaping on something else too?

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u/Original-Apricot-107 — 3 months ago