I'm so fed up with doctors...

I saw my endo on August 3rd and told him that the fatigue and tiredness is coming back. He said that we would probably have to adjust the medication depending on my next test results.

My test results showed that my T3 and T4 were in normal range, but my TSH is 6.37. It was 5.53 in January and I felt fine, but lately I've been feeling really tired and run down again.

I waited and waited for him to send a message. Nothing. So yesterday I sent him a message and asked if the increase in my TSH meant I need an increase in medication (I take NP Thyroid because I can't take levo or Synthroid). He finally looked at my test results today and said that my TSH is almost in range -- initially he wanted it to be less than 2, but now >6 is close enough??

He said in his message that if I'm not having symptoms, then my current dose is fine. Not having symptoms??? I guess he wasn't present for the August 3rd appointment. He also said that if I am having symptoms to take two pills three days a week, but unless he adjusts my prescription (which needs a renewal, so I guess that will be another message), I won't have enough pills to increase.

This is the day after a neurosurgeon dismissed me, saying that my nerves are fine when I haven't been able to properly walk for 9 years because of nerve compression in my lumbar spine after Lyme disease.

I'm just so angry and fed up with these doctors who just do not care. I finally have a good PCP (who linked my leg issues to my back issues and ordered an MRI), but every specialist has become such an uncaring jerk that I just can't get anywhere.

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u/PirateJen78 — 21 hours ago
▲ 16 r/cats

I go to bed next to my husband and wake up next to our fluffy cat

Hubby works 1st shift and I work 2nd shift, so he gets up before I do and goes off to work. Works out well for our cat Sadie who likes to sleep beside me. I usually wake up to her purring beside me.

A little background: she was a stray who we took in May 2019. I got the impression back then that she just wanted to live with us, so I didn't argue. She is my husband's unofficial emotional support cat and seems to really adore me. I don't know where she came from, but I'm glad she found us.

u/PirateJen78 — 22 days ago
▲ 1 r/Epilepsy+1 crossposts

He finally had surgery, but insurance would not pay for his leave

I just need to vent a little, and I think this community will understand and sympathize.

My husband has had epilepsy for 30+ years. He had his first seizure as a teenager in high school and has been put on various medications over that time to try to suppress them. They were somewhat controlled, but not very well, even on multiple medications. He would have a rare breakthrough grand mal seizure, but he was having regular focal seizures, even on medication.

I was able to help him get into a level 4 epilepsy center and we felt like we were finally getting somewhere. A previous doctor had diagnosed his focal seizures as BPPV because he described it as vertigo, and the next doctor just went with that. The epilepsy center actually monitored his brain activity and discovered his “vertigo” was in fact a seizure, which is what I suspected the entire time.

After 2 years of testing and meeting with various doctors, they finally decided that he was a good candidate for surgery. He could get either an RNS implant or he could have a right frontal lobectomy to remove the part of his brain where his seizures originate. He opted for the lobectomy and had the surgery in February. He has not had a seizure since -- not even a focal seizure.

He became eligible for short-term disability through his employer on January 1st, so of course he signed up for it. I filed his claim for him and we focused on the surgery. His claim was denied because it was a pre-existing condition, which meant 8 weeks without a paycheck. Thankfully his parents could help us pay the rent and his job paid him for 2 sick days a week until he returned. Of course we appealed the decision, but today we finally received their final decision: rejected because of pre-existing conditions.

I am beyond angry. There was no way he could have had short-term disability before this condition started -- he was 15 when he had his first seizure! The doctor he saw at a follow-up appointment was shocked. I guess our thinking is that this wasn’t an option before the short-term disability coverage period (they look back 3 months, and the surgery option was right in the middle of that time frame), and the epilepsy wasn’t the reason for the medical leave -- surgery was. But because the surgery was for the epilepsy, they won’t pay his claim.

I feel like it’s total bullshit and it just another way to screw people who are trying to do what is right for their health. It really tarnished the fact that he has been seizure-free for nearly 4 months (he often had focal seizures multiple times a week) and that he’ll finally get his license back soon. I’m just really pissed that the system is set up to basically screw people who are already struggling because of a health issue they have no control over.

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u/PirateJen78 — 2 months ago

She was cleaning her tail and then I guess fell asleep

It's like the smell of her own tail comforted her and put her to sleep. Makes sense because she is unofficially my husband's emotional support cat and sometimes helps him sleep.

u/PirateJen78 — 3 months ago

I guess I'm done with college...

I just got my aid letter for 2026-2027. I won't even get enough to cover tuition for my graduate classes because of the new caps on student loans.

I'm over a third of the way through my Master's degree and I'm going to have to drop out because I can't afford to pay the difference.

Is anyone else struggling like this? It's really a hit to my mental state because that degree gave me hope in a bad job market. Now I have nothing.

ETA: I emailed my financial aid office before posting this and am waiting to hear back (they recommend email).

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u/PirateJen78 — 3 months ago

Bully on the Bus

Just curious, does anyone agree with Debra in this episode and that name-calling is normal for kids?

I'm 100% with Ray on this issue. I was also bullied as a kid because I had thick, curly hair. I never bullied anyone, and afaik, none of my friends did either. There were a handful of bullies who insulted others, but most kids were normal. But I'm wondering if, like Ray, I feel that way because I was bullied.

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u/PirateJen78 — 3 months ago
▲ 26 r/ReadingPA+1 crossposts

Hit and run on I-78

I know this is a long-shot, but I feel I need to try.

My mom and my husband were in a hit-and-run accident on May 10th (Mother's Day) near Hamburg on I-78 heading west.

A dark van hit the rear right quarter panel of my mom's car (basically the pit maneuver) and she spun sideways, crossed the left lane, and ended up facing east-bound. Thankfully neither was injured, but the car is totaled.

Even though there was a lot of traffic, no one who would have seen this accident stopped. If anyone witnessed this, please contact the police.

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u/PirateJen78 — 3 months ago

Feeling accomplished

417 hours and I finally finished Phase 5. Of course I did a lot of just playing around and learning by trial and error, and I have trains running everywhere because I love trains. I have 5 more trophies and then I'll probably start over on PC with a friend. (I'm definitely willing to buy this game twice because it's so good!)

I don't think I've enjoyed a game this much since...maybe RDR2. Maybe Skyrim. Definitely the early days of the N64. This game just scratches every itch. I probably would have logged more hours if I had a better chair in my game room. Someday.

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u/PirateJen78 — 3 months ago