Sharing my experience as a 26w, 900g premie - and offering to answer (reasonable) questions

Hey everyone. I was born in early 2000s, a former micro-preemie (26w, 900g) and I'm 23 now. I know a lot of parents on here are scared, and it’s a day to day struggle in the NICU, and I wanted to be honest about my experience, and share how things turned out long term for me.

My health journey hasn't been totally flawless. Everyone thought I was fine for a long time because my needs were managed well, but I have struggled with lifelong limb/joints issues that were undiagnosed in childhood, no doctor could figure out why, but with advances in medical field all the time, currently specialists hypothesize it might be due to a genetic cause, or mild CP. I can walk, and even run, but experience significant pain, trembles, and lifelong exhaustion from movement. I often use a cane of some sort now as an adult to manage it. I was also diagnosed with medium-need autism, which doctors said is a direct result of being a preemie. And I have fairly bad eyesight (around -5 approximately) which requires prescription glasses since I was around ten years old, which I was later told by my parents they expected this because of the unregulated oxygen level coming straight out of the wall in NICU, and that I was quite lucky to see.

I’m not posting this to scare anyone, but to give some big picture perspective. When you're stuck in the NICU, it feels like they’ll be a baby forever. I also want to mention it is not same for all babies, some will end up perfect and others more unfortunate. It’s scary and unpredictable and I recognize mine is one outcome among many possibilities.

But if any micro-preemie parents want to ask questions about what it was like growing up or what helped me as a kid, feel free to ask. I put “reasonable” in the title as some questions might prove too sensitive or private due to the nature of this topic, but I’ll happily answer most questions.

Sending love to everyone struggling right now.

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u/Puzzleheaded-Bed8615 — 8 hours ago

Need water/sky names

My comfort dragon is not named. It’s a gender neutral maybe leaning towards a male, and I think water or sky would be fitting, I love water a lot, and rain is my favorite weather.

All suggestions welcome!

u/Puzzleheaded-Bed8615 — 15 days ago
▲ 8 r/adultESSAhandlers+1 crossposts

Made a template instructions upon request and thought I’d share it to inspire others :)

It is my own design, wasn’t expecting anyone to see it, and decided to show the whole process. I spent a lot of effort on it and took days to make. Although I not have sell plan, I don’t want my drawing public and claimed as someone else’s art and design and sold, so I try make watermark, please ignore it and enjoy the instructions, for free.

I attach photo too of how my turn out real life. It fit for mine plushie nine different animals because it’s highly adjustable. Mine make small because hard find small gears big gears make small plushie look bad and no secure so I choose small make but you can scale and make big for any plushie. Vest base have scoop in back to allow small plushie tails but enough surface sew patch on.

u/Puzzleheaded-Bed8615 — 20 days ago

Update on the name

I tried naming this one Chichi after my retired plush to honor it. The older Chichi though is still very loved and feels too much like a replacement. The old chichi was sort of gender neutral, a wild republic tapir. This doggy is similar size and color so I tried, but it doesn’t feel right.

I was going for a non gender, or a masculine female (dressed in black gear nothing pink or frilly, isn’t my style), but I am going to name this dog Lorenzo, Enzo for short. Based on the name’s meaning, its connection to a place I love well, and ties to a movie series I like, I think this is a suitable name.

I have not yet decided if Lorenzo “Enzo” will be male or female or ungendered.

Anyways meet Lorenzo.

He says hi to all your ESSA/DSSA!

u/Puzzleheaded-Bed8615 — 1 month ago

Help name this dog

This is a Labrador pitbull cross. Ideas for names? I don’t know if I want boy or girl maybe a masculine girl personality type.

I was thinking Letty (from fast and furious movie) or Kovu (means scar from lion king), any other suggestions I like to hear too.

Personality is protective and kind and loves cuddles but quick to fight others who are unkind (that is if it did have personality I know it doesn’t).

u/Puzzleheaded-Bed8615 — 1 month ago
▲ 7 r/Nerf

Seeking nerf/Xshot group in Toronto

Hello
I am back to ask if anyone can recommend groups in Toronto that have nerf battles and events. I am not good with technology and can’t understand other social apps than Reddit, so it has been confusing trying to find groups and dates and locations to go. I would like to have more fun with my blasters because I currently only have them at home to target practice and wish to join a game.

Advice how to get into a group in Toronto?

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u/Puzzleheaded-Bed8615 — 1 month ago
▲ 16 r/Nerf

Adventure force desperado brand new out of the box and eight foot away from door experience poor velocity, help!

I got this Adventure Force desperado and it fails to shoot the promised 60 feet. It has a nasty floppy arc and I’m only 5 feet from the door. What do I do? I don’t know how to return it or if it’s a me problem.

EDIT: I HAVE GOTTEN A REFUND. I ordered two of them and only this was defective and I believe as others pointed out, a lemon. Since I wasn’t required to return it after refund I am hoping someone knows what I can do with it, if it will ever be able to fix?

https://www.reddit.com/r/Nerf/s/vJkaZy3P33

Link to more details of the hand placement above

u/Puzzleheaded-Bed8615 — 2 months ago
▲ 11 r/Nerf

Seeking advice on what model is a suitable main for a disabled hobbyist who wants to expand my involvement with nerf

EDIT: I have gotten a Xshot fury X. Incredible! I am very very happy with it. The mechanisms are just right for me and quality is impeccable. I also ordered a couple of Adventure Force Desperado, unfortunately one of them was a total lemon and I got a refund, I will need to repair it. And there’s a Nerf Hammershot on the way, I will update how that works out. So far I’m very pleased with the Xshot fury, the power is twice as much as the desperado, easier to fire, and the detailing is very nice and detailed. It feels like the Fury is bare bones detailing but with a lot of color and design contours, the desperado is quite bulky for its size and power. So I can totally and happily recommend the Xshot Fury X to anyone with similar issues. Thank you everyone for your time and patience in the comments. :)

I’m fairly new to blaster hobby, have been collecting and modding (mostly painting) for the last five years after my friend introduced me to the hobby. I wish to expand and try community games and increase my arsenal to have a competitive blaster.

I have a physical condition that means one side of my body is significantly stronger than the other (after just a few reloads my body shakes and is in pain for days so I stick the blaster between my knees, put weak hand on top and try use three limbs to hold the blaster while the strong arm pulls back the priming handle) this method isn’t very effective in a battle especially for a single dart blaster. I also have a disability that makes me severely noise sensitive and I wear hearing protection when blasting nerf with others, but it is a lower pop frequency. I’m reluctant to try anything battery powered because it is very whiny and cuts through all ear protection immediately (I can hear talking through double plugged protection).

All this means that my ideal blaster would be NOT battery powered, have a setup that is balanced (not a huge drum on the front that makes both hands far back, as the weight would be hard to manage—maybe a pump action of primer in front of handle under barrel would be good and structurally better), and able to use the blaster rapidly without having to put between knees after every shot to reprime.

I am also looking for blaster that is an average type to keep me from being underpowered or on other end having such high velocity I am unable to compete from caps at events.

My collection is comprised of:

1,000 + darts all full length (2/3 of them are Xshot air pocket with grey foam blue tip, the rest are adventure force bulk pack)

7 Xshot menace

3 Nerf junior racers

On the way:

1 Nerf Zombie Driller

1 Nerf Elite Commander.

If the ones on the way are good main blaster for an adult hobbyist looking to go to nerf battles in community I will be relieved. But if it will be underpowering me, what recommendations do you have?

Also I live in Canada and Villainator and Nexus Pro are both out of stock in Walmart. Even though both are highly praised in this community I don’t know if they will be back in stock.

I’m also reluctant to do half darts because the huge amount of full length darts I own would not be compatible in those blasters. Also would rather avoid other dart technologies like the rival ball, gelfire, or flywheel specific as I rather use the sizable number of darts I have already.

I know Xshot long shot is highly powerful and compatible with both long and short, but I read it has an easy cracked thin air compression chamber. While I also read it can be replaced I am not able to access good modding parts other than hardware store, and I do not think that hardware store would have what I need for a more complex repair.

So my question is, are either of the blasters on the way a good main blaster for battles, if not, what model can you recommend from information I provided? Lastly I’d love to see your main blasters, the ones that you carry around in battles and stomp everyone with :)

Have a lovely day.

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u/Puzzleheaded-Bed8615 — 2 months ago
▲ 14 r/Nerf

Rate my blaster - last photo next to same unmodded model

I painted my blaster. Sanded it, then used cheap acrylic (only shiny silver I could find was from dollar store) and finished it with Rustoleum clear coat which was so smelly I probably didn’t do a great cover job.

The trigger and spring loader are both original color green. The other parts are matched green paint.

Made it about a year ago, but only recently discover this community hope it’s allowed to put here to show off.

u/Puzzleheaded-Bed8615 — 2 months ago
▲ 8 r/Nerf

Question about compatibility

Hello

I seek advice because I am somewhat beginner blaster hobbyist.

I have nerf guns that use Elite 2.0 darts. They are simple pistol style with spot to manually shoot two darts (not magazines or machine type)

I also have Xshot pistol simple SKINS set. It is the type in the attached photo.

Both brands of blasters came with their own darts.

I also got two additional dart packages. One is an Adventure force pack of 200 universal darts. The second set I got is an Xshot pack in the second photo.

My question is, can I use the Xshot, Elite 2.0 and the Adventure force set of 200 on Walmart all interchangeably in my blasters?

Thanks for any advice :)

u/Puzzleheaded-Bed8615 — 2 months ago

Meet my Aurora slumpy rhino

Have had for years but never take it out because of awkward shape, now find cat harness holds. Prefer realistic animal but this one very good cuddles and texture.

u/Puzzleheaded-Bed8615 — 2 months ago
▲ 356 r/plushies

Family thinks he looks like a dog, what do you think?

My Douglas Fu Siamese cat I was told looks more like a dog than a cat. Now I’m questioning if he looks weird if he isn’t immediately recognized as a cat to other people. He’s my emotional support plushie and I’m a little devastated to think others see him as a not cat. What animal do you think he looks like?

u/Puzzleheaded-Bed8615 — 2 months ago

Ideas for gear?

This is Axl. He could do with more variety of gear. Any ideas what I could make or get for him? He has one vest with a few tiny fidget toys strung on string tied to the main back ring. He doesn’t fit well in boots, but he has a nice neck. I’m kind of happy how he looks but sometimes wonder if I should have an alternative option for him.

u/Puzzleheaded-Bed8615 — 2 months ago
▲ 64 r/adultESSAhandlers+1 crossposts

Meet Axl

This is Axl. He’s one of my favorites, and he is Tuff and Fluff brand dog plushie. His fur is delightfully silky and one directional that is lovely to pet, and he’s extremely durable (fabric is reinforced with a mesh backing).

I got him and a purple triceratops named Violet from the same brand, they replaced two dinosaurs (a blue triceratops and green stegosaurus) I had as a child that were given away when I was four years old and missed ever since.

I’d love to see some of your plushies that were a happy unexpected replacement, or even your Essa in general :)

My other favorite plushies are:

Nimba (Douglas Cuddle Toy Klaus Belgian Malinois)

Slava (Douglas Cuddle Toy Fu Siamese cat)

Violet/Izzy (Fluff and Tuff dog plushie purple triceratops)

Shadow (Wild Republic cuddlekins black panther)

Pepa (WWF 15 cm red fox)

Bongo (Jellycat tiny Livi leopard)

Reggie (Jellycat Derrick bulldog)

I have found that after over a decade the Jellycat become very clumpy haired, slightly oily no matter how many baths the texture changes, while the Wild Republic after few months of daily use gets matted and feels dryer burnt despite being acquired new and never exposed to heat. The Fluff and Tuff and Douglas Cuddle Toys retain original fur texture the best.

u/Puzzleheaded-Bed8615 — 3 months ago

Hair loss from Sinclair Aussie (Douglas cuddle toy) normal?

Hello,
I have the Douglas Sinclair model of Aussie dog, it was shedding hairs. It is over ten years old since I got it and I don’t think it should still be shedding. I decided to shave the hairs half the length for a better sensory experience, but they still shed. If I run my fingers along it and stroke tufts of hair there’s always a bunch of hairs that drift off into my hands.

Anyone else with this issue?

Is it my plush just old? I was a child when I got it so I can’t remember if it was this way all the time, but it is now.

Is it because the hairs are long?

Are the hairs glued and are break down glue? Douglas are supposed to last long time.

Pic for attention, not my photo I couldn’t get good photo of mine in the dark.

u/Puzzleheaded-Bed8615 — 3 months ago

Douglas Sinclair Aussie hair loss?

Hello,
I have the Douglas Sinclair model of Aussie dog, it was shedding hairs. It is over ten years old since I got it and I don’t think it should still be shedding. I decided to shave the hairs half the length for a better sensory experience, but they still shed. If I run my fingers along it and stroke tufts of hair there’s always a bunch of hairs that drift off into my hands.

Anyone else with this issue?

Is it my plush just old? I was a child when I got it so I can’t remember if it was this way all the time, but it is now.

Is it because the hairs are long?

Are the hairs glued and are break down glue? Douglas are supposed to last long time.

reddit.com
u/Puzzleheaded-Bed8615 — 3 months ago

Nimba by the sea

This is Nimba, a Douglas Cuddle Toys Mali. She is there for me after having to retire my real service dog too soon.

Her texture is excellent. She’s super cute. Doesn’t overheat my hands. I’d say I haven’t bonded as well as with other plushies cause she kind of reminds me of what I lost, but talking about her, sharing about her, and bringing her out helps our connection.

u/Puzzleheaded-Bed8615 — 3 months ago