u/Realistic-Bear-9027

Hello! Please be kind ❤️. I do not have typical simple constipation so please do not dismiss me. I didnt know where to post this but i need to know that im not alone. And no, it is not a pelvic floor issue that pelvic floor physical therapy will fix. I do not strain. I want to be diagnosed to know what is wrong with me. My GI doctor did try to refer me to a colorectal surgeon but insurance denied it. Insurance is denying me my care and I am stuck in HonorHealth until my doctors can argue with my insurance and tell them that i need testing. They require them to be with HonorHealth before they will accept outside specialists. I am just so tired of people saying they got this so easily because it is not easy for me.
After I got my hysterectomy in December, my bowels never woke up again. My doctors were concerned about a bowel obstruction but I have been to the ER multiple times and gotten multiple CT scans and x rays that have ruled out a bowel obstruction. I am in a difficult situation because my PCP is in HonorHealth. This is in Phoenix, Arizona by the way. He referred me to a GI doctor in HonorHealth but they do not have the equipment required to do lower GI motility tests that I need to be diagnosed.
The HonorHealth GI doctors put in my chart and label me as chronic constipation. This is not what has been happening though. I have tried every constipation medication. MiraLAX, senna, colace, milk of magnesia, enemas (water and mineral oil), suppositories, Linzess, Amitzia, and Golytely bowel prep. Fiber, walks, excercises, not straining.I have failed all of these meds and treatments that are supposed to work. Phoenix Children’s Hospital will not help me because I am 25, Banner and Mayo Clinic do not take my insurance. I am completely out of options for people who can give me tests. Nobody will take me. Yes I messaged my PCP and asked him for a referral outside of HonorHealth. I do not expect him to help much though.
I want to ask for advice on what to do and I want to find people who have been in the same situation as me. People who do not have a bowel obstruction and are having trouble finding somebody to do the tests to diagnose me. I am mostly trying to find people who relate to me and who hasn’t gotten these motility tests easily. I don’t need any minimizing posts.

Hello! This is not technically a gastroparesis post but a motility disorder post. I didn’t know where else to post this and I know that a lot of people with gastroparesis have intestinal motility issues so I decided to post it here.
After I got my hysterectomy in December, my bowels never woke up again. My doctors were concerned about a bowel obstruction but I have been to the ER multiple times and gotten multiple CT scans and x rays that have ruled out a bowel obstruction. I am in a difficult situation because my PCP is in HonorHealth. This is in Phoenix, Arizona by the way. He referred me to a GI doctor in HonorHealth but they do not have the equipment required to do lower GI motility tests that I need to be diagnosed.
The HonorHealth GI doctors put in my chart and label me as chronic constipation. This is not what has been happening though. I have tried every constipation medication. MiraLAX, senna, colace, milk of magnesia, enemas (water and mineral oil), suppositories, Linzess, Amitzia, and Golytely bowel prep. Fiber, walks, excercises, not straining.I have failed all of these meds and treatments that are supposed to work. Phoenix Children’s Hospital will not help me because I am 25, Banner and Mayo Clinic do not take my insurance. I am completely out of options for people who can give me tests. Nobody will take me. Yes I messaged my PCP and asked him for a referral outside of HonorHealth. I do not expect him to help much though.
I want to ask for advice on what to do and I want to find people who have been in the same situation as me. People who do not have a bowel obstruction and are having trouble finding somebody to do the tests to diagnose me.
Edit: is there another subreddit i can post this on? I am trying to find others in my situation not people who are dismissing me.

Hello! I am a 24 year old trans man. I have a mixture of different chronic illnesses. I had a hysterectomy in December of 2025 and got some complications from it that I am still dealing with almost 5 months after my surgery. Sorry for the long post. I have a lot to say.

First of all, I have been having GI problems. I went to the ER back in February because I was still having a lot of pain past the normal recovery time. They did a ct scan and found that I have a large amount of stool that was up to my chest. Pretty much my bowels never woke back up after my surgery. I haven’t been given a name for it but severe constipation. I have done everything I am supposed to do to fix that problem which is so many laxatives. The laxatives made my problems worse because I was having diarhea and cramping from them. I am on Linzess now and it seems to help but I still have stool stuck high up that doesn’t seem to want to pass despite me doing everything correctly like eating fiber and taking medicine and drinking so much water. I had an endoscopy which showed gastritis and GERD and a SIBO breath test which I tested positive for. I’m on pantoprozole for the acid and Bactrium for SIBO.

A couple of days ago, I went to the hospital for bladder pain. Bladder stones were seen during my hysterectomy. It was just a “dusting” of them though. I don’t know if that matters. I had severe pelvic pain in my bladder area and it was going to my groin and my back as well. I also had blood in my pee. When the hospital did a urine test on me, they didn’t find anything concerning and the blood went away. They also did a ct scan to look for bladder or kidney stones. They couldn’t find anything. Also my other symptoms went away like trouble with my urine stream. I am still having the same pain, but the other urinary symptoms went away. The doctors at the hospital said that they think I passed a small bladder stone. I am seeing a urologist soon to get a uroflow test and an ultrasound. Does anybody know how they check for small bladder stones if imaging is clear?

I was also fainting repeatedly. I am working on going to see a cardiologist to get diagnosed with POTS. The doctors at the hospital think that my symptoms definitely make them suspicious of POTS. They did a poor man’s tilt table test on me and my heart rate went up significantly when I stood. However, generic POTS treatments do not work for me such as electrolytes.

As for the pain, the care I got during this hospital visit were amazing actually. I was not dismissed. I have tried basically all different types of pain medication. I have tried NSAIDS (which I can’t take because I have gastritis), many types of muscle relaxers, gabapentin, amitriptyline and anti depressants, Tylenol, and dicyclomine. Nothing helps except for opiods, which is frustrating because doctors do not want to prescribe it or be on it for too long. I also do not want to go to pelvic floor physical therapy because I don’t feel like the pain is from tight pelvic floor muscles. My muscles loosened after my hysterectomy. I also do not want more nerve blocks. My body just reacts well to opiods and nothing else. And I do not misuse them it is just the system. I was lucky that I was given them in the hospital, but everyone is scared of them.

I’m not looking for generic advice like “ drink more water”, “ electrolytes” , “salt” , “fiber” . I have tried all the laxatives including colonoscopy prep. I absolutely cannot tolerate any of them so please do not put them in your advice. I have tried all those and they don’t help. This includes enemas, stool softeners, and mineral oil.I have tried all those and they don’t help. But you can still give advice if you would like. I am wanting to find people who connect with my story. I wouldn’t mind making friends along the way too.

Hello! I am a 24 year old trans man. I have a mixture of different chronic illnesses. I had a hysterectomy in December of 2025 and got some complications from it that I am still dealing with almost 5 months after my surgery. Sorry for the long post. I have a lot to say.

First of all, I have been having GI problems. I went to the ER back in February because I was still having a lot of pain past the normal recovery time. They did a ct scan and found that I have a large amount of stool that was up to my chest. Pretty much my bowels never woke back up after my surgery. I haven’t been given a name for it but severe constipation. I have done everything I am supposed to do to fix that problem which is so many laxatives. The laxatives made my problems worse because I was having diarhea and cramping from them. I am on Linzess now and it seems to help but I still have stool stuck high up that doesn’t seem to want to pass despite me doing everything correctly like eating fiber and taking medicine and drinking so much water. I had an endoscopy which showed gastritis and GERD and a SIBO breath test which I tested positive for. I’m on pantoprozole for the acid and Bactrium for SIBO.

A couple of days ago, I went to the hospital for bladder pain. Bladder stones were seen during my hysterectomy. It was just a “dusting” of them though. I don’t know if that matters. I had severe pelvic pain in my bladder area and it was going to my groin and my back as well. I also had blood in my pee. When the hospital did a urine test on me, they didn’t find anything concerning and the blood went away. They also did a ct scan to look for bladder or kidney stones. They couldn’t find anything. Also my other symptoms went away like trouble with my urine stream. I am still having the same pain, but the other urinary symptoms went away. The doctors at the hospital said that they think I passed a small bladder stone. I am seeing a urologist soon to get a uroflow test and an ultrasound. Does anybody know how they check for small bladder stones if imaging is clear?

I was also fainting repeatedly. I am working on going to see a cardiologist to get diagnosed with POTS. The doctors at the hospital think that my symptoms definitely make them suspicious of POTS. They did a poor man’s tilt table test on me and my heart rate went up significantly when I stood. However, generic POTS treatments do not work for me such as electrolytes.

As for the pain, the care I got during this hospital visit were amazing actually. I was not dismissed. I have tried basically all different types of pain medication. I have tried NSAIDS (which I can’t take because I have gastritis), many types of muscle relaxers, gabapentin, amitriptyline and anti depressants, Tylenol, and dicyclomine. Nothing helps except for opiods, which is frustrating because doctors do not want to prescribe it or be on it for too long. I also do not want to go to pelvic floor physical therapy because I don’t feel like the pain is from tight pelvic floor muscles. My muscles loosened after my hysterectomy. I also do not want more nerve blocks. My body just reacts well to opiods and nothing else. And I do not misuse them it is just the system. I was lucky that I was given them in the hospital, but everyone is scared of them.

I’m not looking for generic advice like “ drink more water”, “ electrolytes” , “salt” , “fiber” . I have tried all the laxatives including colonoscopy prep. I absolutely cannot tolerate any of them so please do not put them in your advice. I have tried all those and they don’t help. This includes enemas, stool softeners, and mineral oil. I don’t know if this is the best place for this post, but I wanted to connect with trans men. I have tried all those and they don’t help. But you can still give advice if you would like. I am wanting to find people who connect with my story. I wouldn’t mind making friends along the way too.

Hello! I am a 24 year old trans man. I have a mixture of different chronic illnesses. I had a hysterectomy in December of 2025 and got some complications from it that I am still dealing with almost 5 months after my surgery. Sorry for the long post. I have a lot to say.

First of all, I have been having GI problems. I went to the ER back in February because I was still having a lot of pain past the normal recovery time. They did a ct scan and found that I have a large amount of stool that was up to my chest. Pretty much my bowels never woke back up after my surgery. I haven’t been given a name for it but severe constipation. I have done everything I am supposed to do to fix that problem which is so many laxatives. The laxatives made my problems worse because I was having diarhea and cramping from them. I am on Linzess now and it seems to help but I still have stool stuck high up that doesn’t seem to want to pass despite me doing everything correctly like eating fiber and taking medicine and drinking so much water. I had an endoscopy which showed gastritis and GERD and a SIBO breath test which I tested positive for. I’m on pantoprozole for the acid and Bactrium for SIBO.

A couple of days ago, I went to the hospital for bladder pain. Bladder stones were seen during my hysterectomy. It was just a “dusting” of them though. I don’t know if that matters. I had severe pelvic pain in my bladder area and it was going to my groin and my back as well. I also had blood in my pee. When the hospital did a urine test on me, they didn’t find anything concerning and the blood went away. They also did a ct scan to look for bladder or kidney stones. They couldn’t find anything. Also my other symptoms went away like trouble with my urine stream. I am still having the same pain, but the other urinary symptoms went away. The doctors at the hospital said that they think I passed a small bladder stone. I am seeing a urologist soon to get a uroflow test and an ultrasound. Does anybody know how they check for small bladder stones if imaging is clear?

I was also fainting repeatedly. I am working on going to see a cardiologist to get diagnosed with POTS. The doctors at the hospital think that my symptoms definitely make them suspicious of POTS. They did a poor man’s tilt table test on me and my heart rate went up significantly when I stood. However, generic POTS treatments do not work for me such as electrolytes.

As for the pain, the care I got during this hospital visit were amazing actually. I was not dismissed. I have tried basically all different types of pain medication. I have tried NSAIDS (which I can’t take because I have gastritis), many types of muscle relaxers, gabapentin, amitriptyline and anti depressants, Tylenol, and dicyclomine. Nothing helps except for opiods, which is frustrating because doctors do not want to prescribe it or be on it for too long. I also do not want to go to pelvic floor physical therapy because I don’t feel like the pain is from tight pelvic floor muscles. My muscles loosened after my hysterectomy. I also do not want more nerve blocks. My body just reacts well to opiods and nothing else. And I do not misuse them it is just the system. I was lucky that I was given them in the hospital, but everyone is scared of them.

I’m not looking for generic advice like “ drink more water”, “ electrolytes” , “salt” , “fiber” . I have tried all the laxatives including colonoscopy prep. I absolutely cannot tolerate any of them so please do not put them in your advice. I have tried all those and they don’t help. This includes enemas, stool softeners, and mineral oil. I know that this might not be the best place for this post, but I wanted to get opinions from trans men as well. I have tried all those and they don’t help. But you can still give advice if you would like. I am wanting to find people who connect with my story. I wouldn’t mind making friends along the way too.

Hello! I am a 24 year old trans man. I have a mixture of different chronic illnesses. I had a hysterectomy in December of 2025 and got some complications from it that I am still dealing with almost 5 months after my surgery. Sorry for the long post. I have a lot to say.

First of all, I have been having GI problems. I went to the ER back in February because I was still having a lot of pain past the normal recovery time. They did a ct scan and found that I have a large amount of stool that was up to my chest. Pretty much my bowels never woke back up after my surgery. I haven’t been given a name for it but severe constipation. I have done everything I am supposed to do to fix that problem which is so many laxatives. The laxatives made my problems worse because I was having diarhea and cramping from them. I am on Linzess now and it seems to help but I still have stool stuck high up that doesn’t seem to want to pass despite me doing everything correctly like eating fiber and taking medicine and drinking so much water. I had an endoscopy which showed gastritis and GERD and a SIBO breath test which I tested positive for. I’m on pantoprozole for the acid and Bactrium for SIBO.

A couple of days ago, I went to the hospital for bladder pain. Bladder stones were seen during my hysterectomy. It was just a “dusting” of them though. I don’t know if that matters. I had severe pelvic pain in my bladder area and it was going to my groin and my back as well. I also had blood in my pee. When the hospital did a urine test on me, they didn’t find anything concerning and the blood went away. They also did a ct scan to look for bladder or kidney stones. They couldn’t find anything. Also my other symptoms went away like trouble with my urine stream. I am still having the same pain, but the other urinary symptoms went away. The doctors at the hospital said that they think I passed a small bladder stone. I am seeing a urologist soon to get a uroflow test and an ultrasound. Does anybody know how they check for small bladder stones if imaging is clear?

I was also fainting repeatedly. I am working on going to see a cardiologist to get diagnosed with POTS. The doctors at the hospital think that my symptoms definitely make them suspicious of POTS. They did a poor man’s tilt table test on me and my heart rate went up significantly when I stood. However, generic POTS treatments do not work for me such as electrolytes.

As for the pain, the care I got during this hospital visit were amazing actually. I was not dismissed. I have tried basically all different types of pain medication. I have tried NSAIDS (which I can’t take because I have gastritis), many types of muscle relaxers, gabapentin, amitriptyline and anti depressants, Tylenol, and dicyclomine. Nothing helps except for opiods, which is frustrating because doctors do not want to prescribe it or be on it for too long. I also do not want to go to pelvic floor physical therapy because I don’t feel like the pain is from tight pelvic floor muscles. My muscles loosened after my hysterectomy. I also do not want more nerve blocks. My body just reacts well to opiods and nothing else. And I do not misuse them it is just the system. I was lucky that I was given them in the hospital, but everyone is scared of them.

I’m not looking for generic advice like “ drink more water”, “ electrolytes” , “salt” , “fiber” . I have tried all the laxatives including colonoscopy prep. I absolutely cannot tolerate any of them so please do not put them in your advice. I have tried all those and they don’t help. But you can still give advice if you would like. I am wanting to find people who connect with my story. I wouldn’t mind making friends along the way too.

Hello! I am a 24 year old trans man. I have a mixture of different chronic illnesses. I had a hysterectomy in December of 2025 and got some complications from it that I am still dealing with almost 5 months after my surgery. Sorry for the long post. I have a lot to say.

First of all, I have been having GI problems. I went to the ER back in February because I was still having a lot of pain past the normal recovery time. They did a ct scan and found that I have a large amount of stool that was up to my chest. Pretty much my bowels never woke back up after my surgery. I haven’t been given a name for it but severe constipation. I have done everything I am supposed to do to fix that problem which is so many laxatives. The laxatives made my problems worse because I was having diarhea and cramping from them. I am on Linzess now and it seems to help but I still have stool stuck high up that doesn’t seem to want to pass despite me doing everything correctly like eating fiber and taking medicine and drinking so much water. I had an endoscopy which showed gastritis and GERD and a SIBO breath test which I tested positive for. I’m on pantoprozole for the acid and Bactrium for SIBO.

A couple of days ago, I went to the hospital for bladder pain. Bladder stones were seen during my hysterectomy. It was just a “dusting” of them though. I don’t know if that matters. I had severe pelvic pain in my bladder area and it was going to my groin and my back as well. I also had blood in my pee. When the hospital did a urine test on me, they didn’t find anything concerning and the blood went away. They also did a ct scan to look for bladder or kidney stones. They couldn’t find anything. Also my other symptoms went away like trouble with my urine stream. I am still having the same pain, but the other urinary symptoms went away. The doctors at the hospital said that they think I passed a small bladder stone. I am seeing a urologist soon to get a uroflow test and an ultrasound. Does anybody know how they check for small bladder stones if imaging is clear?

I was also fainting repeatedly. I am working on going to see a cardiologist to get diagnosed with POTS. The doctors at the hospital think that my symptoms definitely make them suspicious of POTS. They did a poor man’s tilt table test on me and my heart rate went up significantly when I stood. However, generic POTS treatments do not work for me such as electrolytes.

As for the pain, the care I got during this hospital visit were amazing actually. I was not dismissed. I have tried basically all different types of pain medication. I have tried NSAIDS (which I can’t take because I have gastritis), many types of muscle relaxers, gabapentin, amitriptyline and anti depressants, Tylenol, and dicyclomine. Nothing helps except for opiods, which is frustrating because doctors do not want to prescribe it or be on it for too long. I also do not want to go to pelvic floor physical therapy because I don’t feel like the pain is from tight pelvic floor muscles. My muscles loosened after my hysterectomy. I also do not want more nerve blocks. My body just reacts well to opiods and nothing else. And I do not misuse them it is just the system. I was lucky that I was given them in the hospital, but everyone is scared of them.

I’m not looking for generic advice like “ drink more water”, “ electrolytes” , “salt” , “fiber” . I have tried all those and they don’t help. But you can still give advice if you would like. I am wanting to find people who connect with my story. I wouldn’t mind making friends along the way too.