u/Responsible_Froyo_21

I'm having trouble managing my nausea while recovering from my most recent flareup. This last flareup was acute pancreatitis with necrosis, two large cysts, and a severe infection. Because of this, I have been on around the clock IV broad spectrum antibiotics for the past 6 weeks and still have another two weeks to go. Fortunately, I am able to receive this treatment from home.

I am unable to take zofran due to my elevated heart rate, but I am presently taking dimenhydranate and metoclopramide and they are not helping very much. The nausea at times gets to the point where I start vomiting. Any suggestions on how to manage the nausea? I have ginger tablets, but I can't take them for very long as they start causing heartburn.

I presently am having another pancreatitis flareup, but this time involving two infection filled cysts on my liver and pancreas along with necrosis of the pancreas. We are unsure of how much damage has been done due to one of the cysts covering the entire pancreas.

It did not do enough damage to make me diabetic so I can still consume sugar, but I have a pretty bad sweet tooth. I am wondering if I could get some suggestions on simple baking recipes that are rich, sweet, and delicious, but are also pancreatitis friendly. I love cakes, custards, plain mochi, sorbet, smoothies, cookies, gelatinous deserts, pies, etc. I’m not very picky and am opened to most things.

I'm an amateur vocalist who enjoys recording and making music. I noticed during my recent acute pancreatitis flareup, my singing voice has been affected significantly and I am struggling to sing stable notes. I have idiopathic acute pancreatitis and don't smoke/drink. I am wondering if anyone else has had this issue, and if so, was it temporary or permanent?

After an ERCP, it confirmed that I have a mass that has engulfed my entire pancreas, but based on what I was able to gather from the report, it appears that the scan was inconclusive. They are speculating that this could be a pseudocyst filled with liquid, but they were also unable to rule out a solid mass. It also has internal Septations which appears in some other conditions as well.

I know all of the hate with chatGPT, but I had it summarize the report and this was one of it's main points

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>A very large fluid-filled mass replaced much of your pancreas

>The scan showed a large cystic (fluid-filled) mass measuring approximately 10.8 × 7.0 × 7.5 cm.

>It contained internal septations (thin walls) and debris, meaning it wasn't just a simple fluid cyst.

>Much of the normal pancreas was difficult to see because this cyst occupied so much of it.

>What this likely means:

>Given your history of pancreatitis, this could represent a large pancreatic pseudocyst or walled-off pancreatic necrosis (WON)—both are known complications of pancreatitis.

>Less commonly, certain pancreatic cystic tumors can look similar, which is why doctors usually continue investigating until they're confident of the diagnosis.

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Since they still cannot definitively find a cause for my pancreatitis (idiopathic acute pancreatitis), that with each flareup, the complications have become more and more serious, I've always had a bad feeling since the beginning that this could be Cancer, but since I'm not a doctor, I cannot infer if this is true or not. I have a followup MRI on August 18th, but at the same time, I want to live in blissful ignorance.

If anyone else has gone through something similar to what was mentioned above, I'm just looking for some support to help quell my worries. I hope that none of you will ever go through with something like this, but if your results were similar to mine, can you share your story and what the outcome was?

I’ve been in hospital for two weeks now and am being treated with broad spectrum antibiotics through a pic line.
This time they did an MRCP and an ERCP (to put a stent to open my bile duct) and found that not only did I have severe inflammation of the pancreas, but I also have a 10.9cm cyst around it. They also found some necrosis, but fortunately my blood sugar is still normal.

I originally came to the ER via ambulance and after bloodwork, a bunch of red flags were pointing that I was in partial liver failure as well. I’m in Ontario and I’ve never seen them move so quickly before.

The first week was horrible. Begging for pain killers around the clock. They were giving me 10mg iv morphine (I’m allergic to dilaudid) every 2 hrs and it was barely enough. Once they started the gabapentin and antibiotics, things started to improve quickly.

I’m still in the hospital, but at least I can walk short distances now and sit up for short periods of time now. I hope you are doing better than me and I wish the best for all of you.

Well… I was admitted to the hospital and this is my 4th stay in the past 12 months due to idiopathic acute pancreatitis. My lipase was around 2400 this time (unusually it’s been normal for the last two pancreatitis flareups).

Unfortunately, this time, not only did I have the severe pain associated with this condition, but severe nausea and vomiting and because of this, I had to take an ambulance to the hospital. I was in too much pain to drive myself and was too sick to sit in a cab. Also because of the vomiting I had an electrolyte balance was out of whack and they are currently trying to fix this with I believe oral sodium phosphate and IV potassium phosphate.

Pain is starting to improve at least, but the fatigue is on a whole different level. I am sleeping for 20/24hrs per day. I hope you guys are doing better today :)

I've been suffering from idiopathic acute pancreatitis for over 12 months now and have had 3 hospitalizations in that time period. Fortunately, as of my December MRI, there does not appear to be any damage to my pancreas, but the cause is still unknown.

For the past few months, I have been feeling extreme fatigue that has been progressively getting worse and now when I try standing up after laying down, I feel like there is this invisible string behind me pulling me backwards. It's not this sensation where I am going to pass out, but it's a weird feeling. I now have to sit up for about a minute before standing to avoid falling.

I have an appointment with my doctor today to inform him of this, but does anyone else feel this way? If so, how do you manage? Right now, just to stay awake, I've been using 200mg caffeine tablets twice daily and at times, I still sleep after taking them.