▲ 1 r/POTS

Sunday & Silly

Ok folks - this body is obviously a Wish or SHEIN knockoff so - let’s make dark jokes about it.

I am a triad zebra girly and my silliest is nausea when my heart rate rises and falls. Why?

Just like…

“hey - saw you were standing and teaching - how about you now suddenly want to vom?”

So - how about you?

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u/Sea-Improvement777 — 18 days ago

Apple Watch Bands?

I use an Apple Watch to monitor my movement and heart rate. Unfortunately, I really hate the way the way band feels. Does anyone have any good suggestions of versatile and comfortable bands?

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u/Sea-Improvement777 — 18 days ago

Game Recs

Hey friends!
I have really love Wylde Flowers and am tempted by another play through. I’m looking forward to Wylde Society whenever it comes out!

I have played Hogwarts Legacy on story mode and Stardew Valley - a lot. Looking for a similar game vibe and recs?

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u/Sea-Improvement777 — 1 month ago
▲ 3 r/MCAS

Ketofen thoughts?

I started Ketofen about a month ago. I’ve titrated up to 1 mg twice a day. But I am not feeling all that different. I am really worried about the weight gain since I can’t work out the way I’m used to. (I’m struggling with my inability to use my body as much because of my combined hEDS/ MCAS/ POTS situation.)

Anyone use this med and is it worth it to keep going? I do react well to the eye drops!

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u/Sea-Improvement777 — 2 months ago