u/Spika_7

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I have been recently diagnosed with ICE syndrome in my left eye. Iam 41 female. And the doctor told me there is no cure. Just need to manage the optic pressure and cornea swelling all my life with medication and occasional laser procedures n surgeries( implants , cornea transplantation)if needed to save my eye from vision loss. I have glaucoma too in this eye and eyedrops are needed daily to keep the IOP in control. Can anyone share some knowledge about how rare this condition is and any personal experiences and tips that would help me navigate through this tough condition. Thank you.

I have been recently diagnosed with ICE syndrome in my left eye. Iam 41 female. And the doctor told me there is no cure. Just need to manage the optic pressure and cornea swelling al my life with medication and occasional laser procedures n surgeries if needed to save my eye from vision loss. I have glaucoma too in this eye and eyedrops are needed daily to keep the pressure in control. Can anyone share some knowledge about hiw rare this condition is and the difficulty iam going to face in the future. Thanks