r/Glaucoma

This is Glaucoma? Help me please

28M – Normal OCT and Eye Pressure, but One Visual Field Came Back Abnormal. Possible Early Glaucoma?
Hi everyone. I’m 28 years old and recently had several glaucoma-related tests done because of some concerns about my optic nerves.
Here are the main findings:
Eye pressure was measured multiple times during the day and stayed around 14 mmHg in the left eye and 16–17 mmHg in the right eye.

OCT scans (RNFL/Ganglion Cell analysis) did not show any obvious glaucomatous damage according to the reports.

Visual field test (24-2):
Left eye was within normal limits (VFI 100%, MD +1.21 dB).

Right eye came back “outside normal limits,” but the test reliability was considered low and it was my first visual field exam.

Right eye VFI was still 98% and MD was -0.16 dB.

I was told the exams overall may represent either a very mild suspicion or simply require follow-up and repeat testing.

I know nobody here can diagnose me, but based on your experience:
Does this sound more like glaucoma suspicion than confirmed glaucoma?

Have any of you had abnormal first visual field tests that later turned out normal?

How reassuring are normal OCT findings with mostly normal pressures?

Thanks in advance.

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u/Few_Proposal4521 — 1 day ago

25M Steroid Induced Pressure Spike to 45mmhg. Concerned About Glaucoma Risk.

A couple months ago I got diagnosed with Keratoconus, which for anyone unfamiliar is basically a condition of the eye where the cornea progressively thins and becomes distorted into a cone shape. I ended up getting a procedure called corneal cross-linking done in both eyes, which is meant to stop or slow the progression, and everything looks good so far.

Part of the post-op recovery was being put on dexamethasone steroid drops 4x a day for a month, with no taper. I finished the course for my left eye about a month ago and the pressure there only went up to 18 mmHg, so nothing concerning. My right eye was supposed to finish this Friday, so I'd been on the drops for just under a month.

Over the last week or so I started getting this feeling that the peripheral vision in my right eye maybe wasn't as good. Hard to explain exactly, but enough that I trusted my instincts and booked an appointment with my ophthalmologist, who also specialises in glaucoma.

They did a Humphrey visual field test and it actually came back reassuring. My right eye, which was the eye I was worried about, scored 99% VFI. Left eye was 90%, though they think the lower score was mostly just from the Keratoconus itself since that eye is much worse overall at 20/200.

Then they checked my pressure and my right eye was at 45 mmHg. Yeah...

They repeated the test twice just to confirm it, and were a bit surprised by how high it was, especially since I’d only really had vague, subjective symptoms and nothing that clearly matched a pressure spike that large. What's really confused me is that I genuinely don't think I overused the drops at all, and it seems crazy to me that one eye barely responded while the other shot up that high.

They stopped the dexamethasone immediately and started me on Azarga, which is a combination drop of brinzolamide and timolol, twice a day, morning and evening roughly 12 hours apart. I've got another consult in a week.

I guess my concern is just whether, with pressure that high even if it's been for a relatively short period, if there's any realistic scenario where very early glaucoma damage could occur that wouldn't necessarily show up yet on a visual field test. The ophthalmologist, said they’d be much more concerned if it had been 2 to 3 months at that pressure level, and overall they seemed fairly reassured given that it was a month at most, but I'm still trying to make sense of how worried I should actually be.

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u/Conscious-Garbage-35 — 2 days ago

Thick Cornea

My eye pressure's been all over the place lately. I'm on Cosopt PF (generic) twice a day, plus Vyzulta and Rhopressa at night. It brought my pressure down from 30/16 to 20/18 (~8:30a.m.)The doctor said my corneas are thick, so it's actually 16/14. I have a follow-up in a month or two. I've got some optic nerve damage, but it hasn't changed since September 2024. Recently, though, I've noticed my left eye vision changing. My most recent field vision exam showed vision loss at the bottom of my eye, which was normal last year. Has anyone else have through this?

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u/yome6789 — 3 days ago

Diabetic and glaucoma

Hi all, I recently visited my Ophthalmologists and she said I show early signs of glaucoma. She said my optic nerves are larger and asked me to come back for more tests.. I did my eye exams about 2 years (or less) ago but this was not observed back then. I also have type 1.5 LADA diabetics so things are a bit complicated as well..
Would anyone have any information or advise on this on how to stop worrying about this or what steps I should take to make things better?
Any advise is warmly welcome :)
Thank you.

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u/Emotional-Union4664 — 3 days ago

Help!

I am 24 year old...History about me..i got injured in eye bluntly at age of 6 and after that last year my doctor told me i have glocoma risk. i got visiual field test slit lap gonioscopy everything except oct. in my gonioscopy she noticed CRB in supra temporal region. though she didnt notice it at first but only after she compared it with other eye...my eye pressure ls are normal i have mild 2D myopia.

Now i got appointment for OCT after year..and got my result..i am very concerned since i got doctor appointment of one week after..can you guys see each and every part of report snd tell me its normal..coz i see red in injured eye in normative distribution..is my case eary glocoma?..

thanks

u/Working-Intention788 — 3 days ago

Mild headaches

Hey guys,

Could mild headaches be caused by high IOP? What would that feel like? Any other symptoms?

The headaches aren’t severe. I almost never get headaches, so I’m worried it could be from elevated IOP. When I tilt my head back or lean it, the pain almost disappears. The pain radiates from my jaw to my eye and into my neck.

Thanks in advance!

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u/sophisticatedkanake — 5 days ago

Exercise Tips Needed

Hello I am 6 months post open angle glaucoma diagnosis. I am also at the age where I need to increase my focus on strength, balance and flexibility. I do a modified yoga practice (no head-down movements, no legs up wall) but I want to incorporate weights in my life. Any suggestions on best things I could do that won’t aggravate my eye condition? Thanks!

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u/lewi90210 — 6 days ago

Glaucoma

39 F got diagnosed in December. Can not use any beta blocker drops. So far I have been on latanoprost, alphagan 0.1, iyuzeh...

Alphagan made my eyes feel good, less dry, less red, less pain but I was having severe panic after I used it. Did anyone else have this?

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u/Potsie0322 — 7 days ago

Glp-1 - could it be lowering IOP?

I just started Ozempic about 5 weeks ago. Low dose. Havent lost weight because of low dose, but my inflammation is markedly improved. I had my glaucoma appointment the other day and my IOP was 14-15. Usually Im lucky if it’s 17.
I was thrilled, but wondering if it could possibly be related to glp-1. In my case ozempic. Has anyone else on glp-1 noticed a difference in IOP readings?

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u/mari815 — 8 days ago
▲ 6 r/Glaucoma+1 crossposts

Monocular Vision Study Still Looking for Participants

Hi, Everyone!

I have made a few similar posts about this topic. Sharing this info again as this study is still looking for people who would like to volunteer as a participant.

My name is Stefania Moro and I am a research scientist and professor at York University in Toronto, Canada. In general, our lab (https://steeves.lab.yorku.ca) is interested in better understanding how visual and auditory perception has changed over time in people who have had one eye removed. We are also interested in seeing how their brain has developed and changed after the loss of an eye.

Currently, we are conducting an online study with 2 different activities that are geared towards helping understand the impact eye removal has on audiovisual perception and we would love for you to participate. 

Our study consists of a brief survey, followed by 2 online activities where you will be asked to respond using your keyboard to what you see and hear on your computer screen. In total, the study will take approximately 30 minutes to complete and is conducted entirely online. 

To participate:

  • Please use a computer, either desktop or laptop (the use of a tablet or cell phone will not work).
  • Please use headphones or earbuds with your volume turned up to a comfortable hearing level. 
  • Google Chrome browser is needed.

 

When you are ready, click on this link:

https://yorku.questionpro.ca/t/AB3uq7lZB3u7PT

 

Feel free to reach out if you have any questions! 

 

Thanks!

u/PNS_lab — 6 days ago

Ahmed Valve SurgerieSSS

I had one put in last month, and it failed because the iris was getting sucked into it, surgeon repositioned it, STILL not working properly, but that could be because of scarring.

Just wondering if anyone else has or knows of people needing multiple attempts to “make it work”?

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u/Intrepid-Belt-3499 — 7 days ago

Whats the chances of living a completely normal life with glaucoma?

I know glaucoma is treatable but I’m still scared of it and personally I think it’s worse than cancer. I would really appreciate if someone could share their personal experience with glaucoma, how long they’ve been diagnosed and how much vision they’ve lost

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u/Aaatt11 — 9 days ago

Why IOP lowering techniques don’t work

I have gotten so many glaucoma treatments now, and I continue to wonder how they all can not have worked? While I was on 3 different eye drops, I continued to lose visual field in both eyes, but mostly the right eye, with central vision loss.

The ophthalmologist tried SLT in the right eye, and that did nothing to lower the pressure.

During cataract surgery, 3 iStents were put in both eyes. Within about 4-6 months later, my pressures were ‘too high‘ again. The ‘bad right eye’ is back up to 23 (with thin corneas), the left eye at 20.

Could all 6 iStents have been blocked with scar tissue, at the same time, or all been dislodged? My ophthalmologist doesn’t explain why the procedure didn’t work, and doesn’t suggest whether it can be corrected somehow. Visual field is apparently continuing to worsen.

Now a 4th eye drop has been added (because I suggested it) and I am waiting to see if that does anything significant.

Is it just bad luck that nothing he tries works, even for a medium length of time? Or is this type of failure rate common? I also saw a second ophthalmologist, and he didn’t have anything new to add. He confirmed I have glaucoma. He mentioned other treatments could be available, but didn’t say what they were or when I should consider them. 🫩 I am physically active, in overall good physical condition, and extremely healthy in all other respects. I am also taking some of the supplements that are supposed to help eye health, mentioned on these forums (again, my self help my idea).

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u/Substantial-Sail6141 — 8 days ago

How many of you have High Cup-to-disk ratio in Myopia but no vision loss?

I have 0.7 C/D ratio in both eyes

Pressures were around 19-21

Myopia -4 D in both eyes

Please tell yours?

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u/Green-Indication-245 — 8 days ago

Moorfields Eye Hospital

Hi everyone.
I would really appreciate honest experiences with Moorfields Eye Hospital, especially for glaucoma treatment and high eye pressure.

How good are the doctors there?
Did the treatment or surgery help you long term?
How long did you wait for appointments?
And if you went private, was it worth it?

I’m trying to find the best option and would really value real patient experiences. Thank you.

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u/goddesszeita7 — 7 days ago

Very Narrow Angles With Acute Closure Attack Risk- Laser Iridotomy

So... It's pretty much all in the title. Had an ultrasound today to confirm the severity. I absolutely trust my doctor- he suggested Laser Iridotomy. Does anyone have experience with this procedure, etc. I'll answer questions, too.

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u/Miss-Mollynagging — 8 days ago

Is Seeing Nothing But Grey Possible With Severe Glaucoma?

Specifically with damage to the optic nerve?

Not from macula or retinal pathology.

He's being seen by a doctor.

His retina is not detached and his macula is fine.

Just the nerve cannot be judged.

They cannot see into his eye because of a mature cataract and fibrotic membrane over his small constricted stuck pupil from inflammation.

Because he cannot see anything aside from grey hazy smokey vision he is worried that maybe it is what he will see after they operate.

So here I am asking for those with severe glaucoma what it is they see or what their vision is like.

Is nothing but grey possible only from nerve damage?

Asking for a loved one.

Thank you.

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u/StayOnCourse89 — 9 days ago

How to accurately do the visual field test if you have very poor vision (like -10 myopia)?

I went to my eye doctor about six months ago, and I failed the visual field test. And by failing it, I mean that I couldn’t see anything. It was the most stressful test I’ve ever done. They made me look at a dot, and then there were the squiggly lines that would appear but I wouldn’t be able to see most of them. I feel like I couldn’t do well on the test because I was doing it without my glasses and my pupils were dilated. As someone with -10 myopia and -3 astigmatism, these tests are very hard for me to complete without any correction like glasses. Is there anything I can ask for them to accommodate my poor vision? The last test ended with me in tears and a referral to a glaucoma specialist at the hospital, which is tomorrow lol…. I feel I might have done better if things weren’t so blurry!

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u/hello5194 — 10 days ago

Has anyone tried savesightpillow?

Does it helps your glaucoma or lat least lower your IOP?

it seems that wedge pillow has some side effects https://www.reddit.com/r/Glaucoma/comments/1fr07x1/comment/lpf0qzh/?utm\_source=share&utm\_medium=web3x&utm\_name=web3xcss&utm\_term=1&utm\_content=share\_button 'wedge' pillows can kink the neck arteries reducing blood circulation which is bad (unless, the shoulders are fully engaged on the pillow) https://www.reddit.com/r/Glaucoma/comments/1mob7xq/whats\_the\_correct\_way\_to\_sleep/ wedge & stacked pillow use has a HIGH RISK of neck crimping (impeding blood flow, reducing oxygen perfusion to the retina, NOT GOOD)

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u/maiasub — 10 days ago