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u/TheOtherPatient

r/dysautonomia r/StiffPersonSyndrome r/WellSpouses r/Parkinsons r/Neurofeedback r/CaregiverSupport
▲ 31 r/dysautonomia

My wife is to quick for me

Just joined. My wife has dysautonomia. She deals with gastroparesis, POTS, neurogenic bladder, etc. Today, she showed me an article about body temp control. She's always very hot or very cold. I read the article, handed back her phone and joked and said, "It's all in your head". Without missing a beat, she says, "Of course it is. It's neurological." I just can't get one over on her. And this is just one of the reasons I love her.

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u/TheOtherPatient — 2 days ago
▲ 12 r/WellSpouses+1 crossposts

I created a video w/my wife about the other side of caregiving.

I've not been a part of this sub for very long and I've already been able to learn so many things about myself here. It's a great place with so many great people. I know we all get frustrated and even angry at times. And my wife said we caregivers are not the only ones. So, I posted a Q&A with my wife about her perspective as the one being cared for. She has seen both sides of caregiving. And she's so much better in front of the camera than I am. This was a chance for me to talk about the other side of what we experience. I hope you get something from it.

https://youtu.be/Yz9TMa_8gB4

u/TheOtherPatient — 5 days ago
▲ 3 r/Neurofeedback

Baclofen Pump?

My wife has been approved for a baclofen Pump to do a continuous micro dose. Does anyone have any experience or knowledge of using a pump? What were the pros and cons for you? What, if anything, did it help? What, if anything, did it make worse? I guess I'm looking for almost any information anyone will share.

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u/TheOtherPatient — 7 days ago
▲ 4 r/Parkinsons

Baclofen Pump?

My wife has been approved for a baclofen Pump to do a continuous micro dose. Does anyone have any experience or knowledge of using a pump? What were the pros and cons for you? What, if anything, did it help? What, if anything, did it make worse? I guess I'm looking for almost any information anyone will share.

reddit.com
u/TheOtherPatient — 8 days ago