Doctors say I don't qualify
Maybe they're right, but I don't know what else it could be. Not looking for a diagnosis, just wanna see if my experience is shared by anyone here.
I have chronic deep burning pain in my hips and legs, mainly the front of my thighs, but it goes all the way into my feet. It is 100% symmetrical and bilateral, is the worst at night when lying down, but also felt when sitting or standing still. It makes me move my legs constantly, but it's not because of tickling or "itching", I choose to move my legs as movement relieves the pain momentarily. But sometimes I get a weird feeling like someone is tickling the inside of my kneecaps.
However it doesn't wake me up at night, and it's just as bad in the morning when I do wake up. Most people doesn't seem to describe rls as very physically painful either, which this is, very painful.
I have no other diagnosis as nothing fits. Tests show nothing, physical therapy doesn't help.
Could this still be rls? I have no diagnosis and thus no treatment, I am desperate.
Thanks in advance!