u/Tough_Property3833

My mom was diagnosed with glioblastoma about 5 weeks ago. She has been taking it good for someone finding out they have terminal cancer. She says she is leaving it in gods hands and that he has a plan no matter what even if something happens. This brings her peace which is what I want. But part of me gets scared because she never wants to talk about this. She tells me even me asking her how she’s feeling causes her anxiety. She doesn’t wanna talk about it at all. I try to send her survivor stories and articles for trials but she doesn’t want those either for some reason. She just doesn’t want to like acknowledge it. She’s not in denial, she knows it’s happening and she has hope but it’s just hard because I’m only 18 and I get worried and she was who I always talk to and I feel like i can’t ask questions or try to be helpful because it makes it worse for her.

I know it’s rare in general even with it being methylated but are there cases of people without the gene lasting longer

My mom is getting standard treatment at our local hospital. Luckily for us we live in a big medical town and it’s a very good hospital. We are currently patients at uofm, Md Anderson, Mayo Clinic, ivy, and Henry ford. We meet with them and we are open to all of them. So I’m wondering any personal recommendations. I also heard there’s a new drug that’s basically the same thing as cegat here in united states is that working good?

My mom was diagnosed at 54 about 5 weeks ago. Had her surgery the next day. She’s been doing really good in her chemo and radiation. It’s hard because I try to keep faith and say that the statistics are just numbers not peoples stories. And there are people that have lived long time. I would even been happy with 3 years. I guess I got so caught up on the positive stories of this disease on TikTok and instagram that I’m just being delusional. I truly believed my mom could live years. I forget that the prognosis is 14 months.

Hi, for more exact details on my mom you can read some of my other posts but basically my question is when my mom got diagnosed it was because her leg felt weird, not numb, didn’t hurt, she just said it felt off. She went to er right away and they did the scan and found the tumor. She got the brain surgery the next day. She was walking even just hours after. She went home from the hospital only 2 days later. She only needed her walker for a couple days and soon she was basically completely back to her self except a little tripping once and awhile.

She had no other symptoms like migraines, memory loss, speech difficulties, seizures, etc. and I hope it stays that way. I don’t call us lucky. I know anything can change and fast. We are about 5 weeks from surgery and 2 weeks of radiation and still going steady. Is this an indicator of maybe doing better with this disease. I’ve seen people on here say they had a seizure and brain damage and stayed in hospital after surgery for a long time.

Hope everyone on here is ok I know this sucks

My mom is really anxious about finishing her standard treatment because of the scan. She says people with this don’t get multiple rounds it’s usually if it doesn’t work the first time then there’s no more rounds. Is this true?

Does anyone know of any at home things my mom can do that will actually proven to slow growth or extended time while doing chemo and ration? I’ve seen a lot of people say stuff like keto, cannabis, etc is what helped them survive but I’ve seen so many different things people have used it almost seems like luck.

I’m sure you’ve seen my other posts, if not just a recap I’m f18 and my mom (54) was diagnosed with grade 4 little more then a month ago and had surgery exactly a month ago on may 26th. She has been very strong through this whole thing. She was walking the next day after the surgery and actually went home only 2 days after! We are about 1 and a half weeks into radiation and chemo. Before we started we actually drove 20 hours to Md Anderson for a second opinion and to see if there’s anything else they could do. They told us the best place to start is standard treatment so we went back home for that.

I’ve been feeling lost. I know survival for years is very rare. But me and my family are living and we are going to do everything we can to extended the time. The hard part is I’ve seen so many paths other patients have taken and I feel scared we might take the wrong one. I was reading off a group of survivors living 10+ years and everyone basically did something different, some did clinical trials, some did infusions, some did optune, etc. I just don’t want us to make the wrong decision. My mom says we just listen to the doctor but I do believe sometimes they could be wrong. I’ve seen a lot of people say doctor recommended end of life care but they went and did a treatment and Germany and have lived longer.

I guess my point is how do I know what path to take

My mom got diagnosed about 4 weeks ago. She is about a week into chemo and radiation and so far no side effects. She has had an increase in appetite. The oncologist said not to worry about how much she’s eating because it’s much better then not eating and losing strength, but I saw quite a few sources and reels saying fasting helps. Is this proven?

Does anyone know of any communities online that survivors post on? I need some hope

Hello, my mom was diagnosed with stage 4 glioblastoma about 4 weeks ago. She has started her radiation and chemo today. We are looking into trials and other treatments for after. I’m very interested in the Germany Cegat. My parents talked to the doctor at Md Anderson and said it’s not 100% works. Some say it worked some say it didn’t work but he said that if we do it we are not allowed any other clinical trials. I want to do more research on it but not sure where to start so if anyone could give me more info that would be great. (She doesn’t have the mutation gene if that makes a difference)

Thanks for the help

Idk what I’m looking for, honesty or truth I’m not sure. My mom was perfectly healthy up until one morning her left leg felt weird and heavy, she went to the er and they did a ct and found 2 1-2cm masses next to each other in her brain. They decided to do brain surgery the next day. They removed about 90% of the tumors. It is grade 4 glioblastoma Recovery was very good she only stayed at the hospital for about 3 days and was home doing great. She recovered at home with no issues for about 2 weeks. We are currently driving down to Md Anderson for a second opinion and treatment ideas. Obviously we are doing the standard radiation and chemo but she doesn’t have the mutation gene.

She’s 54 and has 4 kids my youngest sibling is 12. I’m only 18. I’m so scared. My mom doesn’t like talking about it. She said to trust in god and the doctors and everything will be ok no matter what. I’ve seen people on instagram and TikTok and even here on this sub saying they have lasted over 10 years. Is that just chance? Her not having the correct gene really makes me feel hopeless.

My mom was diagnosed with grade 4 glioblastoma about 2 weeks ago. She had the surgery immediately and they got about 90%. We are driving 20 hours to Md Anderson for chemo and radiation. I just turned 18, my brother is 12. I’m so scared. She is young just 54. Everyone is telling me to give up. Please give me hope.

I just graduated high school, not even a week before graduation my mom was diagnosed with grade 4 glioblastoma. I’m angry, sad, broken, confused. I didn’t go to graduation, I didn’t go in the senior trip, I didn’t go to the after graduation after party’s, I didn’t go to the kick off summer parties, I didn’t get to go on my senior trip with my friends. Everyone in my life says they are sorry and they feel bad for me yet they go live their lives having fun, partying, traveling, enjoying life after finishing high school. It makes me beyond mad. I know it’s not their fault but why does this have to happen to me. I want to do those things, I want to be happy, this was supposed to be the best summer ever. I’ll never feel true happiness or freedom again.

My mom 54f was diagnosed with glioblastoma today, grade 4. We are researching best hospitals to move to. So far we have an appointment at md Anderson, it’s quite far though and she just had surgery. We are wondering if we should sign her up for clinical trials or stick to chemo. Which hospitals have the best care for this? I don’t care where in the world. Please give me so advice and motivation. Last time I posted on here everyone told me to just give up.

I don’t know what to do. I’m 17f and my mom 54f went to the er 2 days ago because her leg felt heavy. They did a scan and found two masses in her brain next to each other. Everyone in my family was so shocked. I was so upset I couldn’t stop crying. They decided on brain surgery the next day to remove them. The surgery was today and went well, they aren’t for sure if they got it all out but are pretty confident. But the surgeon said they are sure it’s not benign because of what they saw with the frozen things idk. That was the worst news for me. They talked about how she will need additional treatment like physical therapy for her leg and chemo it radiation. We don’t even know what it is yet but I am pretty sure I do. Everyone in my family is saying it will be ok and things will work out no matter what and we don’t know what it is but from all the things I learned it points to glioblastoma. She doesn’t have any other cancer in her body just those in her brain. They said it could be a glimo. The most common type of brain cancer is glioblastoma. It has only a 10-12 month survival rate.

I don’t know why everyone in my family is saying it’s gonna be ok because it won’t. She will be leaving behind 4 kids, a husband, a sister, a mom, we have 2 dogs 2 cats a horse. She is our rock. Everyone is happy the tumor is out but it won’t matter if it is this cancer. In trying so hard not to be negative I just feel like no one is being honest with each other. We find out tomorrow what it is and I’m so anxious. This is gonna change our whole life

I don’t usually use Reddit but I need as much prayers as possible. Today my mom was admitted to the emergency room with leg numbness and they did a ct scan and found a mass in her brain. They are talking about brain surgery this week. They aren’t sure what it is yet. I’m so scared, I’m 17 and I have 3 siblings, 19,22, and 12. She is only 56. I can’t sleep or eat. She is my everything. Please please please pray for us.

So I’m 18f and have been on nikki for about a month. I started it actually for my mental health. I had been getting these random waves of deep sadness where I push everyone away and I was just miserable and then I’m fine a couple days later. I talked to my doctor and she prescribed me this. I thought it was working but the past 3 days I feel terrible, I can’t stop crying and am lashing out. This pill also is making me extremely hungry all the time. I have been eating about 6 meals a day now and have gained 10 pounds in a month. It also makes my sex drive so low and makes me unable to have sex because it makes it so uncomfortable. Honestly as stupid as it sounds I’m mostly worried about the hunger thing. Is there any ways to make the hunger stop?

I guess I’m writing this because idk what else to do. I’m f18 and have been dating my bf for about 10 months. At the beginning of our relationship we had sex a lot sometimes multiple times a day and I loved it but I was never able to really get wet but again I always made the first move and I liked doing it and eventually after starting I got wet. So it’s sorta been a problem at some points. But recently I just don’t like having sex. It hurts really bad even with lube and I just wait till it’s over. I like having it because it makes him happy but it’s just getting annoying how my body’s working. It’s not that I’m not attracted to him. I love him and I find him very attractive but I just can’t get like turned on or wet or I don’t even know. I just recently got on birth control about 2 weeks ago and ever since then it’s been the worst so painful. I guess I’m at a loss for what to do and I’m not sure if this is normal or not. I don’t mastubate often maybe once every 2 months idk.

Hello!

Me, my bf, and friend all plan on taking prom photos coming up mid may, but we aren’t sure where. The arb is usually packed and over used. Does anyone have any secret or underground locations that are beautiful for pics?

Thanks!!!