Image 1 — Update on Disability Rights In America.
Image 2 — Update on Disability Rights In America.
Image 3 — Update on Disability Rights In America.
Image 4 — Update on Disability Rights In America.
Image 5 — Update on Disability Rights In America.
▲ 16 r/ableism

Update on Disability Rights In America.

Developmentally disabled children in Willowbrook Institution.

Two to a cart.

Willowbrook was designed to house 4,000 residents, but there were over 6,000 in 1965, when Senator Robert F.
Kennedy toured the facility and called it a "snake pit." He described the residents as "living in filth and dirt, their clothing in rags, in rooms less comfortable and cheertul than the cages in which we put animals in a zoo." In some of the deepest wards, such as Building 6, there was only one attendant for approximately 50 severely and profoundly disabled children.
Even after Geraldo Rivera's investigative report, exposing the horrific conditions on camera in 1972, Willowbrook didn't close its doors for good until 1987.
Not going back.

#developmentaldisabilities #intellectualdisabilities
#specialneeds #disability

u/Virtue_of_Kindness — 9 days ago

I No Longer Can Get Access To Facebook Since 2021 And I Do Not Miss It At All

However, someone has been impersonating me. They copied and pasted my photos, writings, and other content to make it look as though I was still happily posting on Facebook after I had already left the platform in 2021. My cable service was also compromised. Has anyone else ever had something this bizarre happen to them? Because at this point, my life has had more plot twists than a daytime soap opera.
Believe it or not, this was not even my first rodeo. Back in 2012, every time I blocked someone on Facebook, they simply created another profile, as if the Block button was just a friendly suggestion?!?! They repeatedly requested explicit photographs of my child. I reported the matter to both the FBI and ICE multiple times over the course of a year. Eventually, I decided Facebook and I needed a trial separation, so I deleted my account in 2013.
Then my brother’s house burned down, and like any good sibling, I came back to Facebook just long enough to help share his GoFundMe campaign. That was in 2014. About eight months later, my account appeared to be compromised again. This time it seemed my personal profile, photographs, private notes, and other information had been affected. So I packed my digital bags and left Facebook once more.

Then during the COVID pandemic, I gave Facebook another chance. It was Covid and I was bored at times and just needed to connect with other people. Remember that? For about a year, everything was perfectly normal. Then, sometime in the fall of 2021, my account appeared to be compromised again. I cannot remember the exact month, but apparently my Facebook account and I were destined for another dramatic breakup.

Later onnnn, things became even stranger. It seemed as though neighbors, family members, and even complete strangers were sending me cease and desist letters. I received numerous letters, including some from Canada and others from my own hometown. At one point, I started wondering if cease and desist letters had become the new version of holiday cards. The entire situation was confusing, exhausting, and honestly difficult to explain to anyone who had not lived through it. Eventually, I found myself involved in court proceedings to prove that the online activity in question was not mine. If someone had told me years ago that I’d have to defend myself against things I never posted, I probably would have laughed. Turns out, reality has a very peculiar sense of humor.

I am just glad I didn’t end up as Angela Bennett or Michelle Hadley because that is what it felt like.

reddit.com
u/Virtue_of_Kindness — 11 days ago
▲ 48 r/ableism

They just told states they can lock up disabled people. you may be on that list.

As a Deaf autistic mother of a child with autism, this terrifies me.
For 27 years, the answer was supposed to be simple: if disabled people can live in their communities, they should not be forced into institutions.
Now the DOJ is arguing that protection was never legally required.
Nothing has changed yet. Nobody is being rounded up. But when governments start questioning rights that generations fought for, people pay attention.
My son is not a burden.
I am not a burden.
Disabled people belong in our communities, not hidden away from them.

u/Virtue_of_Kindness — 17 days ago
▲ 18 r/ableism

So Donald Trump Wants To Bring Institutions Back To America For People Witn Disabilities

I currently go to college at Carnegie Mellon University and I am studying disability rights laws to become a civil rights lawyer (I am disabled myself I am Deaf along with autism) and a lot of people are saying if you are disabled and/or on Medicaid you will be institutionalized in the near foreseeable futures and it DOES state this in the Big Beautiful Bill as well as Project 2025 that people with disabilities should not live among others and should be institutionalized.

Donald Trump is very ableist and I find it disheartening that so many people with disabilities voted for this when they voted for him.

The video is there to show what people voted for, for people with disabilities, that if you voted for Donald Trump. I couldn’t find anything in America but I interviewed many older adults in the 50’s, 60’s and older who were institutionalized here in America since the 1950’s-1990’s and they are doing so well on their own in society. They even told me Donald Trump is bringing back institutions for those with disabilities and is taking away OVR too so they can no longer go to college with supports. So I just want everyone to know if you voted for Donald Trump you chose to institutionalize the younger * generation of Americans and that we are losing our rights as people with disabilities and for people who become disabled later in life.

This is how Donald Trump is trying to get rid of Medicaid and social security he thinks he is going to save a lot of money for America if people with disabilities are ignored and stored away in institutions again, to die there.

youtu.be
u/Virtue_of_Kindness — 1 month ago

Pennsylvania Parent and Disabled Adult Here: Are Other Families Seeing Problems With Medicaid Coverage or Renewals?

Pennsylvania Parent and Disabled Adult Here: Are Other Families Seeing Problems With Medicaid Coverage or Renewals?

But first (just in case here) a little about me for clarity:
I was born Deaf, and my 8 year old son was born with nonverbal autism. We are a disabled family, and our disabilities are lifelong, not temporary. My son relies on specialized services, therapies, and accommodations to help him communicate, learn, and participate in the world around him. As for me, I have spent my life navigating communication barriers as a Deaf person and have also lived with the lasting effects of severe childhood abuse, trauma, and years of ableism and discrimination. These experiences have shaped my understanding of disability, accessibility, and the importance of healthcare and support services. Like many disabled individuals and families, we depend on programs and resources that help us live with dignity, independence, and equal opportunity.)

I was born with disabilities, and so was my child. As both a disabled adult and the parent of a disabled child, I understand firsthand how important Medicaid can be for accessing healthcare, therapies, services, and supports that many families depend on every day.

I have been following reports and research suggesting that many children have lost Medicaid coverage in recent years, often because of renewal requirements, paperwork issues, or other administrative barriers. I am also concerned about how future policy changes could affect children and adults with disabilities who rely on Medicaid for essential care.

For those who receive Medicaid or care for someone who does:

➡️Have you experienced coverage disruptions?

➡️Have you had difficulty with renewals or eligibility reviews?

➡️Have you noticed changes in services, therapies, prescriptions, or medical equipment coverage?

➡️Are you concerned about future access to care?

I am especially interested in hearing from disabled adults, parents of children with disabilities, and families caring for individuals with complex medical needs. I would like to better understand what people are experiencing across different states and whether others are facing similar challenges.

P.S. I have been using AI since 1999, for college and work. It was how I was able to write my papers and work. AI had been around way before the year of 2000 but it was made for people with disabilities first like those who are paraplegic. So yes AI helps me write for my disability.

reddit.com
u/Virtue_of_Kindness — 1 month ago
▲ 6 r/pittsburgh+1 crossposts

Dear Summer Lee

Looking at racism and ableism separately can overlook those experiences. If society fails to protect disabled babies and children—by denying them dignity, autonomy, language access, and family stability—then concern for vulnerable elders rings hollow. Systems that do not respect disabled people at the beginning of life will not suddenly respect them at the end. How we treat disabled children is the truest measure of our values.

As the parent of a nonverbal autistic child, I continue to have serious concerns about how reports involving the safety of disabled children are handled. I have sought assistance and accountability regarding an incident at a Pittsburgh-area school bus stop, yet I still feel many of my questions remain unanswered.

Families of children with disabilities deserve thorough investigations, transparent communication, and equal treatment under the law. Public trust depends on the willingness of institutions to review concerns fairly, regardless of who may be involved.

I respectfully ask elected officials, law enforcement agencies, and community leaders to ensure that reports involving vulnerable and disabled children receive the attention, diligence, and accountability they deserve.

The safety and rights of children with disabilities should never be an afterthought.

UPDATE: I have already contacted Congresswoman Summer Lee’s office multiple times over the years, which is actually why I made this post. I appreciate the suggestion, but I am looking for additional ideas and resources because I have been trying many of the traditional channels since 2019 without much success.

As a disabled person, it can be incredibly difficult to find meaningful help or accountability. Too often, it feels like people assume that if you haven’t received assistance, you simply haven’t asked. In reality, many of us have spent years contacting elected officials, agencies, advocacy organizations, and other resources, only to find ourselves going in circles.

I am genuinely interested in hearing what has worked for other people. If you have suggestions, experiences, or resources that helped you navigate disability-related issues in the Pittsburgh area, I would welcome them.

I will also say that discussing disability online can be challenging. Questions about disability rights, accessibility, or discrimination are sometimes met with skepticism, hostility, or personal attacks rather than constructive discussion. That makes it even harder for disabled people to seek information and support.

I am not looking for an argument. I am looking for solutions.

Lastly, Idk why my comment won’t show so let me try this again.

Since some of you can’t read other comments let me repost this instead of having to repeat myself.

Updated: The problem is that my issue doesn’t fit neatly into a one-sentence Reddit comment. If it did, I probably wouldn’t have spent years trying to solve it. The link is there for context, not because I expect everyone to watch it. Either way, I appreciate you taking the time to respond, and I hope you enjoy the nice weather.

1.) My concerns are not about anyone’s race. They are about my experiences and the responses I received when seeking help. I understand that people may disagree with my conclusions, but I am discussing matters that I personally experienced and reported through the channels available to me.

2.)Just because people are disabled doesn’t mean we are stupid. You’re probably right that a TikTok link alone isn’t enough. I included it because it was the easiest way to share part of what I’m talking about. Unfortunately, this subreddit doesn’t allow me to post the video evidence directly. If you know of a better way to document or report concerns involving a disabled child, I’m genuinely open to suggestions.

3.) good job keeping racism alive while trying to call me racist for calling her ableist. You are just as ableist as she and that is where racism came from, ableism
As explained by Isabella Kres-Nash:
“Racism and ableism are often thought of as parallel systems of oppression that work separately to perpetuate social hierarchy. Not only does this way of looking at the world ignore the experiences of people of color with disabilities, but it also fails to examine how race is pathologized in order to create racism. Meaning that society treats people of color in specific ways to create barriers, and these poor conditions create disability. The concept of disability has been used to justify discrimination against other groups by attributing disability to them.”

u/Virtue_of_Kindness — 1 month ago

Question About Pittsburgh Leash Ordinances and Public Safety

I had a question about Pittsburgh leash ordinances because I have received mixed answers from different people. Are dogs within city neighborhoods legally required to be leashed and under control in public/shared spaces? As the parent of an autistic child, I take public safety concerns seriously, especially involving unpredictable situations involving animals in neighborhoods. I contacted animal control for clarification, but I am still trying to better understand how the ordinances are supposed to work and be enforced.

I muted the audio in the video for privacy reasons and to keep the focus on the ordinance question itself rather than individuals involved.

Genuinely asking for clarification from anyone familiar with the city rules.

u/Virtue_of_Kindness — 1 month ago

This Page Is Pretending to be me and my advocacy and it is not me. I don’t have control or ownership of this page, please help and report it. I have not been on FACEBOOK since 2021. I don’t want to go to jail because they are claiming it is me and it is not.

I don’t why but I can’t seem to make a post in here so I am gonna post this here as a comment to see if anyone can help me. I have been off of Facebook since 2021 because someone started hacking me and impersonating me. They knew of my every move and who my family, friends and neighbors were. Now there is page called Pittsburgh Disability ADAPT Network that is claiming to be me according to my neighbors. Well it is not me not ever was. How do I get it taken down as it also has been inactivate since 2024? There is a lot of legal background into this as well. It was never my page nor me and if I don’t get the page taken down I will probably be ending up in jail. The link I am providing is a reel of my neighbors and they think I made it and posted and I never did. I think it is my neighbors. Please help and report the page to get taken down Please delete this page and reel

u/Virtue_of_Kindness — 2 months ago