I tried searching the sub (and other areas of Reddit) for others, seen a few but nothing crazy and most anything I saw was a pretty outdated post. Reddit’s search function is shit, so maybe there’s more out there already than I was able to find. Just saying that as a little disclaimer to say I’m not lazy or trying to be repetitive if it’s brought up somewhat often. But, I figured since most of what I saw was pretty old now, maybe there was more people in the general community of autoimmune sufferers that have gotten into a clinical trial and have a “review” to share since those posts had been around.

I’m next in line with a local medical facility for a CAR T-Cell trial. My nerves are pretty shot and I’m admittedly pretty fucking scared. It’s been a long time since I last felt truly fearful about something, but after years of failed treatments for Refractory Inclusion Body Myositis… it’s the only semblance of true hope that I’ve ever been given. I’ve been put on every medication for IBM under the sun and been in more doctor’s offices, hospitals, emergency rooms, etc. than anyone should experience in 100 lifetimes. I’ve been at a point of fully accepting a life sentence to a prison within my own body for many years, being told that my only outcome would be declining with alternating rates of acceleration. A lifetime of wasting away. And then this opportunity came along. A chance to turn things around. The first time I’ve had doctors speak to me with hopeful optimism, rather than the sympathetic disappointed tone I’m so used to by now. I don’t want to be too excited about anything, but I also don’t want to be negative about the possibility of a renewed chance at life.

Anyways, sorry for my personal sob story. I really just came around trying to see if anyone could offer any firsthand experience with the treatment, and if so then how it’s going/how it went/how you’re doing now. :)

Wishing you all love, light, blessing, hope, healing and all the other good shit. Wishing for all of the bad shit to leave you all alone. Forever and ever. 🖤 Amen.

I’m being considered for a clinical study with a local hospital.

My nerves are pretty shot, although at the same time I’m cautiously optimistic/hopeful of a good outcome. I’m traditionally quite the pessimistic type, so that’s saying something at least.

Was just curious if anyone local has dealt with a trial for the therapy or is also being considered/preparing for a trial as well.

Blessings, love and light to you all. 🤍

Just curious since I thought they only did specific shit, didn’t realize they also handle the literal level up bonus after you get there.

(I got “Dahiana” as my host if anyone reading has firsthand host reviews, ha.)

I’ve maintained a few of my friendships since the worst of my issues started but for the most part I’ve just closed myself in. I need to be able to go to the bathroom at any given moment, I’m not going to wear diapers and I’m certainly not going to do so in front of others. I’m too prideful. I haven’t been outside my home in over 2 years, with the exception of hospitals/doctors. Even then, it’s less than 25x outdoors. Sitting up in my wheelchair leaves me in such ungodly pain. Trying to get anything accomplished with said doctors is a nightmare, especially with the limited availability of specialists in my area.

Namely, though… I miss dating. A lot. Watching from afar while people I love get married, have kids. Travel. Things I literally can never do again. And even if I could get out of the house, I’d never subject a woman to being with me. I’d never subject a child to even a 0.0000001% chance of suffering the way I’m suffering.

Every day hurts. I want to be happy for the people I love, and deep down I am. I think it’s just sad knowing I’ll never be able to relate. That I went from “everyone in town’s favorite bartender” to “disabled hermit that barely knows what’s wrong with him other than muscles that deteriorated overnight one random day, leaving everything below the waist barely functional and everything above waist not much better off.” I can’t even pick my fucking cats up further than above my waist anymore. Everything is HARD. Everything HURTS. Everything is EXHAUSTING. After my last doctor’s appointment, I slept for almost 72 full hours with the exception of needing to pee/hydrate so that my body doesn’t shut all the way down. Shit, even writing this post is exhausting. I used to be able to write something like this in 4-5 minutes… which I think is average. Anymore it takes me 3 hours just because I have to take so many breaks and fall asleep so much in between thoughts.

I hate this shit. I feel like everything got stolen from me in a flash and over the last several months I’ve been swallowing the bitter pill that I don’t think I’m ever going to get it back.

Spoiler for those who don’t care for replays:
>!Spoiler: $5,401.20 win on a $3 increased chance/$1 base, last spin went fucking crazy.!<

I’m trying really hard to find something that’d allow me to use custom voice models over a custom vocal track / song vocal track. I know of plenty of TTS models like Chatterbox and plenty of song-friendly AI setups… but all the song-friendly things I know have extremely generic voice models (ranging from SpongeBob to Cartman to Trump,) but nothing that’d allow me to use much more niche characters (ranging from JD to Tucker to Foster’s Home for Imaginary Friends characters) that I can train models for or have models trained for that would allow me to use my own spoken/sung vocals. I’m basically trying to find a way more custom version of something like Jammable but with more freedom and precision on my end.

Thanks!

I was seemingly mass targeted for false reporting over a video. Thing is, there was nothing:
- Threatening
- Offensive
- Crude
- Graphic
- Foul

or anything of the sort. It was genuinely the most vague video on the planet. Nothing about it could’ve been interpreted as “Bullying and Harassment,” which is what I ultimately got reported for. It was as vague as saying “I don’t like this person!” as a meme. I see thousands of videos like it but for whatever reason mine blew up hard and got pushed pretty hard by the algorithm.

I dealt with this a week ago, for the same video. I got cleared and it was back on the FYP. I was receiving hate messages, people trying to “find me,” etc. but whatever, I got +15K followers from 0 off of one video. 99.9% of the comments were positive, but the vocal minority got me pretty hard.

And then boom, video gets knocked again. This time, it was left up and just deemed ineligible for “For You Feed.” Fine, whatever. I appealed just in case and three days later it was back! I was so happy because it really would’ve sucked to lose the steam.

And then boom, once again, mass reported, this time for “Sexual Content.” Thing is… it would literally be impossible to classify ANYTHING about the video as this. This time, I appealed and it’s INSTANTLY denied. No three days, no whatever. But now, I can’t appeal again! One and done here. I contact support and they say “send us the video,” which I can’t do because they took it down! And the other reply was to appeal from the System Notifications but I used my appeal and it was denied immediately! I already handled this multiple times and won, so why are they letting the “bullies” win now? Why is it even possible? Obviously it got reviewed and cleared by a human being if it took 3 days to be approved last time I appealed. Falsely mass reporting someone is against the rules already… so THEY’RE breaking the rules. I cleared myself.

I’m really upset about this. I really just don’t want to let the bad guys win here. Can anyone advise on how to move forward from here with Support to advance my case to a human reviewer or get a second opportunity to appeal?

WEEKLY BONUS LINK - CLICK HERE + MONTHLY BONUS LINK - CLICK HERE + EDDIE'S STREAM CODES (SEE BELOW) MASTER POST - 4TH OF JULY EDITION 🇺🇸🦅💸

🔴LIVE UPDATED THREAD! WEEKLY DROPS AND THE CODE STREAM STARTS AT 5:30AM PT / 6:30AM MT / 7:30AM CT / 8:30AM ET! THREAD WILL GO LIVE AT THE SAME TIME! PLEASE READ BEFORE COMMENTING!

Hey degens and degenerettes. I am back from last week, filling in for our friend u/JimWordPress. I’m posting this thread a little earlier than the stream start time, to (hopefully) get ahead of the “Weekly Link?!” and "Monthly Link?!" posts and the like that come along with them. I will be posting ALL code drops today 🔴LIVE in real time, for both the main and post-stream drops!

I will be including the time each code was posted in Pacific, Mountain, Central and Eastern Time Zones. Please refresh your page if you’re on desktop or completely close out of your Reddit app on mobile and open it back up to this post to get the most up-to-date thread.

We're all waiting for these together, I post them the SECOND they're public!

🇺🇸🇺🇸🇺🇸4TH OF JULY MONTHLY BONUS🇺🇸🇺🇸🇺🇸 CLICK HERE

Link: CLICK HERE

Dropped at: 1:00AM PT / 2:00AM MT / 3:00AM CT / 4:00AM ET

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WEEKLY BONUS: CLICK HERE

Link: CLICK HERE

Dropped at: 5:30AM PT / 6:30AM MT / 7:30AM CT / 8:30AM ET

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MAIN STREAM CODES

CODE 1: CLICK HERE

Code: monkeybay

Amount: 4 SC

Wager: $9,029

Dropped at: 5:50AM PT / 6:50AM MT / 7:50AM CT / 8:50AM ET

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CODE 2: CLICK HERE

Code: uppercut5

Amount: 5 SC

Wager: $6,205

Dropped at: 6:04AM PT / 7:04AM MT / 8:04AM CT / 9:04AM ET

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CODE 3: CLICK HERE

Code: 33kwin

Amount: 4 SC

Wager: $6,343

Dropped at: 6:32AM PT / 7:32AM MT / 8:32AM CT / 9:32AM ET

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CODE 4: CLICK HERE

Code: 7max77

Amount: 7 SC

Wager: $8,058

Dropped at: 7:00AM PT / 8:00AM MT / 9:00AM CT / 10:00AM ET

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CODE 5: CLICK HERE

Code: stakekeno

Amount: 3 SC

Wager: $4,768

Dropped at: 7:08AM PT / 8:08AM MT / 9:08AM CT / 10:08AM ET

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HIGH ROLLER CODE (CODE 6): CLICK HERE FULLY CLAIMED!

Code: plinko120

Amount: 120 SC

Wager: $120,000

ONLY 120 TOTAL CODE CLAIMS AVAILABLE FOR .US!

Dropped at: 7:28AM PT / 8:28AM MT / 9:28AM CT / 10:28AM ET

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PARTY CODE (CODE 7): CLICK HERE

Code: july4th

Amount: 31 SC

Wager: $7,208

Dropped at: 7:41AM PT / 8:41AM MT / 9:41AM CT / 10:41AM ET

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POST-STREAM CODES: 🔴LIVE - Completed ETA 8:30-45AM PT / 9:30-45AM MT / 10:30-45AM CT / 11:30-45AM ET

CUSTOMK Codes

CODE 1: CLICK HERE 🚨🚨NEW🚨🚨

Code: customburkjj25

Amount: 4 SC

Wager: $4,000

Dropped at: 8:18AM PT / 9:18AM MT / 10:18AM CT / 11:18AM ET

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CODE 2: CLICK HERE

Code: 4thoveratstake

Amount: 5 SC

Wager: $5,000

Dropped at: 8:02AM PT / 9:02AM MT / 10:02AM CT / 11:02AM ET

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CODE 3:

6SC / 6K WAGER

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ChiTown_Chris Codes

CODE 1: CLICK HERE

Code: chris4lifeftw

Amount: 4 SC

Wager: $4,000

Dropped at: 7:50AM PT / 8:50AM MT / 9:50AM CT / 10:50AM ET

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CODE 2: 5SC / 5K WAGER CLICK HERE

Code: independenceday55

Amount: 5 SC

Wager: $5,000

Dropped at: 8:04AM PT / 9:04AM MT / 10:04AM CT / 11:04AM ET

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CODE 3: CLICK HERE 🚨🚨NEW🚨🚨

Code: stakeandburgers4th

Amount: 6 SC

Wager: $6,000

Dropped at: 8:18AM PT / 9:18AM MT / 10:18AM CT / 11:18AM ET

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🚨ALL CODES HAVE BEEN DROPPED AND ARE LISTED BELOW! Everyone have a great weekend!

PLEASE READ BEFORE COMMENTING!

I will be posting ALL drops LIVE, in real time, for both the main and post-stream drops. Please DO NOT leave codes in the comments. It just creates disorganized clutter and a mess of notifications to try to “crowd source” the codes, so I’m taking responsibility for a master post for this week. I promise to have the post updated the second each code is out. Hope Jim has a great day off, and hope you all win your hearts out.

Refresh your page if you’re on desktop, or completely close the app and re-open it if you’re on mobile to get the latest updated thread. I’m updating every ~5 minutes so you all know you’re up to date.

🚨POST LAST UPDATED 8:45AM PT / 9:45AM MT / 10:45AM CT / 11:45AM ET (FINAL EDIT)

WEEKLY - CLICK HERE

MAIN STREAM CODES (EDDIE):
CLICK HERE
Code: testybirthday
Amount: 6 SC
Wager: 3,745 SC
Dropped at: 5:40AM PT / 6:40AM MT / 7:40AM CT / 8:40AM ET

CLICK HERE
Code: kickdrop
Amount: 3 SC
Wager: 3,140 SC
Dropped at: 6:10AM PT / 7:10AM MT / 8:10AM CT / 9:10AM ET

CLICK HERE
Code: code5
Amount: 5 SC
Wager: 4,575 SC
Dropped at: 6:40AM PT / 7:40AM MT / 8:40AM CT / 9:40AM ET

CLICK HERE
Code: code5again
Amount: 5 SC
Wager: 7,365 SC
Dropped at: 7:07AM PT / 8:07AM MT / 9:07AM CT / 10:07AM ET

CLICK HERE
Code: triple5
Amount: 5 SC
Wager: 5,152 SC
Dropped at: 7:17AM PT / 8:17AM MT / 9:17AM CT / 10:17AM ET

HIGH ROLLER — CLICK HERE All claimed up. :(
Code: keno100
Amount: 100 SC
Wager: 100K SC
Dropped at: 7:17AM PT / 8:17AM MT / 9:17AM CT / 10:17AM ET

PARTY CODE — CLICK HERE
Code: finaldrop
Amount: 13 SC (lost the double 💔)
Wager: 7,867 SC
Dropped at: 7:31AM PT / 8:31AM MT / 9:31AM CT / 10:31AM ET

POST-STREAM CODES:

🚨POST LAST UPDATED 8:45AM PT / 9:45AM MT / 10:45AM CT / 11:45AM ET (FINAL EDIT)

TESTY STREAM CODES:
CLICK HERE
Code: stakewithtesty371
Amount: 4 SC
Wager: 4,000 SC
Dropped at: 7:46AM PT / 8:46AM MT / 9:46AM CT / 10:46AM ET

CLICK HERE
Code: testtesty561
Amount: 5 SC
Wager: 5,000 SC
Dropped at: 8AM PT / 9AM MT / 10AM CT / 11AM ET

CLICK HERE - 🚨FINAL TESTY CODE
Code: hbdtesty3636
Amount: 6 SC
Wager: 6,000 SC
Dropped at: 8:36AM PT / 9:36AM MT / 10:36AM CT / 11:36AM ET

BIG FOLTZ STREAM CODES:
CLICK HERE
Code: foltzftw519
Amount: 4 SC
Wager: 4,000 SC
Dropped at: 7:45AM PT / 8:45AM MT / 9:45AM CT / 10:45AM ET

CLICK HERE
Code: foltzclassic99
Amount: 5 SC
Wager: 5,000 SC
Dropped at: 7:56AM PT / 8:56AM MT / 9:56AM CT / 10:56AM ET

CLICK HERE - 🚨FINAL FOLTZ CODE
Code: bigclaimsbigfolts36
Amount: 6 SC
Wager: 6,000 SC
Dropped at: 8:36AM PT / 9:36AM MT / 10:36AM CT / 11:36AM ET

🚨ALL CODES HAVE BEEN DROPPED AND ARE LISTED ABOVE! Everyone have a great weekend!

I’m a younger guy, that was relatively active both physically and socially with a fun job that made me fall in love with life. Over and over.

I lost everything to whatever hurri-hell-quake-nado ran through my body. I’m mostly bed-ridden with the exception of medical visit. I need a wheelchair to get around, which my pride hasn’t quite caught up with yet… despite the fact that it’s been years now. I just feel insecure. Vulnerable. Stared at. An obstacle. I don’t think anyone should feel that way, including myself, but here I sit.

I needed a pit stop made after the hospital to use the bathroom, so to the gas station I had a stop added. As I got inside, I realized the door was pretty massive for the bathroom and quite heavy. The “push to open” did not work. I didn’t want to bug anyone for the help, so I was going to just turn around and hold it. I felt kind of defeated. It’s just a stupid door.

Anyways, right as I was about to let the feeling of defeat win, out runs a kid who couldn’t have been a day older than 4 from the restroom, full speed. I don’t know how in the world this kid was this level of intuitive, but he looked back at me, looked at the door, pointed at me and the door, and ran back to hulk the thing open enough that I could get it. A 4-year-old kid. Smiling ear to ear. It seemed he only spoke Spanish, too, which made it more endearing that he’d entirely worked the whole thing out via hand gestures.

Not only was I grateful that he rescued my bladder from a pointlessly painful, insecurity driven ride home… but a fucking 4-year-old kid looked at a guy in his mid-30s, covered in tattoos from neck to toe, in a wheelchair… and his first instinct was to help me without even having much of any context clue other than him seeing my proximity to the door when he’d taken a look back.

I’ve had grown adults let doors close in my face while looking me dead in the eyes. I’ve had grown adults keep plowing through traffic while I was just trying to get through a busy intersection and not leaving enough room during standstill traffic for me to get through. I’ve had grown adults have the audacity to say that maybe I’m ill/disabled “because of my sinful behavior” (referencing the aforementioned tattoos… gotta love the warm, open, loving, welcoming arms of The Bible Belt, I say as a man of faith myself.) It’s not like I look “scary,” I’m well-kept still. I just look like if your favorite cruiser weight/light heavyweight wrestler happened to have their organs go bananas on them all of a sudden. People are just cold sometimes. A lot of times.

All that being said, thank you to that young boy’s parents/caregivers. Thank you to that young boy. As bad as I had to go to the bathroom, I ugly cried for a solid 2 minutes in the stall before I could even get to maneuvering myself around to handle my business just because I was overwhelmed with gratitude, and especially gratitude that such a young kid did such a kind thing without even a full second of thought before doing so. Second nature. I pray that boy and his family are blessed 1,000-fold. I’m crying again just typing this. Thank you for instilling love into your child and thank you to him for reminding me that the world isn’t all gloom and doom. My memory bank is easily burnt over and replaced 99% of the time, but I genuinely believe I’ll remember that 12 second long interaction / act of kindness for the rest of my life. It was an act of pure selflessness.

Thanks, bud. 🫶 Made a grumpy “tough guy” remember the important stuff for a minute.

It’s fucking ridiculous, man. I just want to work. Actually, I DON’T want to work, but I need money… so it’s ESPECIALLY frustrating.

8-12 hours a day, every day, Microsoft’s little verification system wants me to take a selfie. Show my ID. Give them a code to continue working. Ope, here’s ANOTHER FUCKING CODE. Hey, hey! Another verification selfie! Pay attention!

Is this just some bullshit with my company? Is Microsoft just this abysmally horrific, to where they believe that this is “good”? It completely obliterated something I was in the middle of today and I’m seriously all of 30 seconds from saying fuck my job. It sounds so trivial but this shit is 10+ times per day and set me back quite a few hours of work for where it interrupted me at. I’ve never seen such a non-user friendly system in my fucking life.