u/bcomingstoned

Tomorrow I’m suppose to have another 6 month check up with my specialist I’ve had for 2.5 years now and Ive been doing good the last month maybe month and a half after being in a flare for almost 4 months. This week I have had SO much anxiety around this damn specialist because My doctor doesn’t take me seriously and after reading his GI reports in April on my patient portal for the first time I’ve lost all hope of actually getting help. I had to talk to my pcp and my therapist about it, because it bothered me so much and they have been there since day one to know that what he says is not correct and they both agreed I needed an advocate OR a new specialist. Like I don’t want to see him at all, I sobbed last night in the shower to my wife because of it. I pretty much boiled it down to “what’s the point?” I have a 45-60 minute appointment with 6 months of detailed symptoms and flares … my wife literally is there with me to say yes this is actually happening and it’s intense just for him to leave the room after we speak and make his report at his desk and leave 90% of what we talked about out of his GI notes and say see you in 6 months. Literally my last report with him was 4 sentences. He dwindled 6 MONTHS, MONTHS worth of shit to that. Making his reports invalid in everything we just discussed for that whole appointment. I’m scared to be in this providers care but I can’t switch my provider. If he truly thinks my diagnosis was wrong from the previous specialist why hasn’t he redone any test in the last almost 3 years for himself to rule it out? Like…. Im 30 and should NOT have this Much anxiety and anger over a specialist that should be helping me but instead keeps hindering me. This is also the same specialist I vented about months ago that said “are you taking the pills I prescribed (I wasn’t because I couldn’t even keep water down most days) and said then there is nothing else I can do” while I was vomitting 24/7 for months and losing massive weight. His only response was are you taking the pills? And go to the ER if it’s that bad. So there is nothing else I can feel because what I am to do? Not everyone has the same problems or symptoms my case is complicated and he is just saying I’m convoluted several times in his reports and pretty much made out to be a liar about my GP, IBS, and GERD. This is my second specialist and I do not have an option for a third with my insurance unless I want to travel 4 hours one way to Nashville where there’s only one provider that takes my insurance. When I vented to my pcp in April, my PCP looked into it and found just ONE other person that takes my BCBS but I have yet to receive a call from that new specialist saying they have room for a new patients. So I’m currently stuck with this specialist and that is also making me panic. So today I sent in a reschedule form request that said

“My apologies for a reschedule but I need to wait for UT patient advocates to get back in touch with me. I called last week and left a voicemail but never had a return call. I need one present at my next appointment with ____. I have brought my wife with me before but clearly her backing me up on my flares and symptoms and what’s happening to me PERSONALLY in everyday life is still not enough for him to take me serious and actually take proper notes to Make a proper report. Instead he would rather misgender me multiple times, say my previous specialist diagnosis’s were wrong, and call me convoluted multiple times in his reports. So I need a UT Advocate to accompany me. Thank you.”

Hey everyone, please take the time to read all of this. I need some feedback or advice on this companies sensor system. Ive already read tons of reviews online but I would like to hear personal experiences if that makes more sense to get a better insight. Im a 30 yo step Dad of 3 and I’ve been in their lives almost 5 years now (they were all adopted by my wife and her ex husband in 2017 before we met). So a little back story. My oldest son has severe ADHD and Aggressive ODD and my youngest son has severe ADHD as well And running away or sneaking out when things don’t go their way has been a massive issue the last year and a half let alone the last 3 as a whole. Last week marked my oldest 3rd time sneaking out/ running away recently second time having the police throughly involved about it and his second time pressuring his little brother to join him in to cover up his lies and his stupid impulsive decisions.

We have lived in our home for 4 years and thought we had a pretty solid 24/7 camera system with Arlo Security. It’s truly been great. However we never thought about windows.. simply because the screens you have to pop out on our home can’t go back in unless you have a tool to put it back in frame before even getting out the window and to do so you end up bending the metal frame of the screen and ruining it Let alone tracking doors when we are home with our kids…

Anywho, Our house has multiple cameras in every space besides the bedrooms and bathrooms. Cameras are not the issues. Trust me. It’s extremely secure inside and out because everyone in our county knows we own several businesses so we are targeted. They are incredible and the clarity and monitoring is amazing. BUT we have come to find out that our sons especially my oldest (16 almost 17) is now recently sneaking out of his window or siblings windows to evade the motion zones set on our arlo cameras inside and outside (now that they have ruined the screens in 3 rooms) to walk 15-20minutes to his new gf house that is 3-5minutes ride by car. He got suspended from club on the 22nd and grounded from his phone because of this new immature 14yo GF of his. They have only been dating literally 2 weeks and it’s a complete digress in maturity, 180 in his demeanor and attitude toward everyone and outrageous defiance.

In turn because he wanted to be defiant after getting grounded because of that girl and I had to call 911 on the 23rd of this month because both of my sons decided to say they were going out to “play” in our yard and ended up missing for 3+ hours with no way of communication because my oldest is grounded currently so he has no phone and my youngest broke his phone screen. I have a health condition that has me in the bathroom often because of severe pain and nausea. After they asked to go play I told them I’d be checking in frequently. 10-15 minutes went by and went To check on them, they both had disappeared. I screamed for 20 minutes in the deep woods with my daughter because we have bears and coyotes on our property quite often and they know they need to be in an ear shot or within eyes view when playing In our back or front yard. So after calling 911 and waiting with deputies for 2 hours they finally came home through the woods after running away to make bad choices. My oldest was summoned to juvenile court by the deputies and us. Per judges orders today at his hearing, we now need to get a security system for all our windows and doors to keep track of him breaking his court orders set til his next appearance in over a month..when his case is reviewed again and some restrictions are lifted when he starts his junior year of hs the first week of August.

I had hoped an ADT system would resolve this problem as we use it for one of our businesses and my MIL house. But the price for it - I was Gobsmacked it’s gone way up since we installed it in 2022. But like I said per judges orders we need a system because it’s a reoccurring pattern and problem especially with this new 14yp girl. As stated previously it is also the second time he’s brought his little brother into his stupid impulsive decisions to not draw red flags to his defiant behavior which is putting his sibling in danger. I just got off of a call with ADT for a free quote and the price for a “basic bundle” (only comes with 3 sensors) was astronomically atrocious and didn’t even cover a sliver of what we actually needed. Let alone the $60 a month monitoring fee.

NOW… All that being said I looked into more options and came across this company, simplisafe. I made a custom bundle with just 14 sensors and currently it’s roughly $170 (rather than closer to $500) with the 4th of July sale going on. So I’m trying to hop at this opportunity Which is about 1/4 of the total cost of ADTs “basic bundle” let alone the $1000 I got quoted for our entire home..To boot simplisafe core monitoring is also half the price of ADT monthly monitoring. I don’t need cameras I’m covered with that, I strictly need sensors.

I’m simply (no pun intended) looking for a safe great reliable system that will chime or alarm us to catch our sons sneaking out whether it’s night or day especially if I’m stuck in the bathroom and home by myself with my kids. Again, I need reliable sensors that will alert me or my wife about their buisness but also sound alarms when it’s armed. I’ve read this is the best overall system For the basic needs I’m looking for but I’d like to hear either other parents that did the same things feedback first hand or just feedback in general for the sensors system, reliability, battery life etc. getting a new system alone and the court order for my 16 yo is hopefully a deterrent currently (fingers crossed) Bc He’s scared shitless right now after being made to tour the jail and juvenile detention center.

So honestly I don’t need cameras, I’m just looking to know if this system is indeed great for sensors and what I need it for to track my boys and cover my bases for the court order. Any advice is greatly appreciated thank you!

I don’t know what’s changed… truly. I have no clue. I’ve gone fishing a fuck ton more to get out of the house and get some sunshine and I’ve gone to therapy twice. But this last 4 weeks I have not thrown up once, came extremely close a bunch of times after my one daily meal but was fortunate enough to take a promethazine pill for once and not the topical gel and not puke it up . (Knock on wood) I also have been able to take my anxiety medication as well as some sleeping ones because I’m not in a massive world of nausea 24/7. I’m slowly adding more medications as I usually take 4 in the morning 2 in the afternoon and 3 at night. But I’m not there yet so only one in the morning and 2 at night right now. It’s been a very long time since I’ve gone a full month without anything happening. I still have pretty painful BM but that hasn’t set me off which is a blessing. I’m talking 2.5-3years since I’ve gone a full month no episode or flare. Now if I can continue this that would be great, however it’s summer now basically in TN (heat can trigger my episodes or flares) and I see my hindering care of a GI specialist in a month and I have massive anxiety and anger around that as he’s a homophobic asshole who thinks I’m convoluted, & lying about my flares and GP even though I was so malnourished right before I transferred into his care to the point I was in the hospital for 10 days and had a tube surgically placed and needed said tube for almost a year… So this visit is going to be such a pain in the ass and I know the 6 months of information I give him won’t be recorded because I transferred to his care almost 3 years ago now and I have nothing to show for it because he doesn’t think my diagnoses from the previous specialist was correct even after the slew of tests I had to go through to be diagnosed. So he has barely wrote down anything i express any concerns or my episodes and flares in his clinical notes and I only just found this out about 2 months ago when I was able to log into the UT patient portal to look at his GI reports. But anyway, I am just shocked that for once I’ve had a “recovery period”. I’m now just waiting for something to go absolutely wrong and or eat something different and it start a huge episode or turn into a flare. I hate & love these periods of complete nothingness because I get use to living not just surviving the day but being able to LIVE, being happy and healthy again with little symptoms and then reality of this condition sets back in when Im pulled back into a flare and I’m bedridden again. That’s the most painful part of GP. KNOWING I can do so many things when I’m in a good place and being quite literally debilitated , dehydrated, and malnourished in an instance by my episodes or flares for weeks or months at a time.

As the title states, I’m just curious if anyone was misdiagnosed/diagnosed with GP/CVS and then later developed an eating disorder because of the constant puking and flares so you developed a fear of food and puking? I have an immense fear of food and puking after the last 3 years of my GP journey now because I never know what’s gonna trigger me or throw me into a flare and I also don’t know if anxiety will trigger a vomiting episode either. Which in turn leaves me eating maybe a meal a day (cup of minute jasmine rice & and a Campbells soup cup) if that. I currently am dealing with becoming malnourished again and my doctor doesn’t care because “I don’t have GP” after being diagnosed with it through a previous specialist. This doctor instead of re doing the test to rule out it was a misdiagnosis has now written in his notes several times that my stories and experiences are convoluted. I’m tired of surviving day by day So I’m just wondering if it’s not GP than the only other option is CVS with ARFID due to the fear of food. I don’t make myself sick I just literally know within 45-60minutes if my food is going to digest or if I’m in for a puke fest for the next week or a flare that will last atleast 4-6 weeks. So anyone else experience this?