Turns out my pain was real after years of being gaslit
I guess this is mostly a vent but also a personal experience. I am so fucking sick of this. I’ve had chronic pelvic pain since 2016. I started actively seeking medical attention in 2018. At my first appointment, they insisted I had an STD. I’d been with the same partner for years and neither of us had been unfaithful, but what do I know. Unsurprisingly, the tests came back negative.
Over the next several years, I received:
-Several more STD tests
-Several rounds of treatment for yeast infections I didn’t have
-A diagnosis of interstitial cystitis, despite none of the treatments or elimination diets helping my pain
-One ultrasound that only looked at my bladder
-A diagnosis of pudendal neuralgia
-Nerve blocks that did absolutely nothing
-Countless lectures that I just needed to go on birth control, change my diet, or relax
I did all the things they told me to do. I’ve had doctors, nurses, and techs tell me I shouldn’t be feeling the pain I was describing. I’ve had people imply I was exaggerating. I’ve been told that because they couldn’t find anything wrong, I must just have a low pain tolerance.
I actually have an extremely high pain tolerance and absolutely no desire to make a show out of being in pain. Hearing that repeatedly is incredibly invalidating.
I’ve cried so many times over this. Eventually I just accepted that I was always going to be in pain and maybe there wasn’t an explanation, I’m just supremely unlucky. Something must be wrong with me, or I was somehow doing something to cause this.
This year I got a new gynecologist. At my annual in July, I offhandedly mentioned the pelvic pain. I’d mostly given up trying to solve it about two years ago. She asked if I had ever been evaluated for endometriosis.
What do ya know, I sure fucking haven’t. She sent me for a transvaginal ultrasound. I have a 9 cm uterine fibroid. Nine fucking centimeters. Roughly the size of a small grapefruit. The phrase my gynecologist used was “a baby’s head.”
After YEARS of being told endless amounts of bullshit and essentially accepting that maybe I was just unusually sensitive to pain, there has been a massive fucking fibroid growing on my uterus. I’m relieved to finally have an answer. But I am so very, very fucking angry.
Surgery is scheduled for the end of this month. As part of the process, I needed an endometrial biopsy. I reached out the morning of the procedure specifically asking about pain management because my uterus is already extremely angry all the time. I’m in constant pain. At my annual, I could barely tolerate the speculum. I was told it would be fine and that I would experience “light cramping and spotting.”
The pain was so excruciating I almost passed out. Yes, the actual biopsy is brief. I understand not wanting to make a huge production out of a procedure that takes such a short amount of time. But holy fucking shit. I have never felt pain like that in my life.
I was uncontrollably yelling. I almost crushed every bone in my partner’s hand. It surpassed the pain of slipping a lumbar disc last summer. My reaction was so bad, the doctor said she would have to knock me out if they need another sample. All that after I had specifically asked about pain management beforehand.
I am so fucking sick of this.
I’m sick of having a uterus. I’m sick of being told what I’m feeling “shouldn’t” hurt. I’m sick of the assumption that if a doctor can’t immediately find the cause, the problem must be my perception of the pain rather than the possibility that they haven’t found the cause yet.
For years, I was made to feel like I was exaggerating pain that turned out to have a very real, very physical explanation. Even after finally finding it, when I told them I was worried that another uterine procedure would be extremely painful, I was dismissed again.
I am so fucking tired of having to prove myself.