u/danceintheflowers

i feel like no one understands this is permanent. i could go into this so much but how do you explain to family and friends?

it feels like no one can wrap their mind around the concept. and it gets isolating and exhausting to try to keep explaining the deficits don’t go away with being in pt or speech etc for the rest of your life. i’m not going to heal by just working harder. my baseline isn’t going to come back.

i’ve noticed that consistently for many months my finch ends up 2 days behind on the events. how do i change this to match the dates? it would really help if whatever month event is going on the dates matched up because sometimes i forget what day it is and seeing the quest thing being 2 days ago confuses me lol.

does anyone have advice on this?

i’ve emailed the team plenty of times but no real answer.

thank you all.

hi not searching for medical advice because some things are out of my control!

somehow insurance decided to deny the refill and i went without for a few days… i’m on a higher dose. i got a few day supply and now i’m having so many symptoms trying to get back to my normal dose.

at first there was vertigo without the medication. now getting back on it is the migraine and anxiety. i know pharmacy explained it will take some weeks to get the body back used to it. and the whole titrating thing. so not looking for medical advice, but others personal experience.

what helped you? what did not help?

my energy is depleted, i’ve been over it and i try to care but i’m tired of not knowing what symptoms i will have each day and the side effects are brutal. i mean i’ve been through worse but still, adds on extra stress. the insomnia the vertigo and migraines, i’m ready for my body to go back to the baseline that felt like less confusion and at least stable in how my days will go

i will have to be very very vague. does anyone have advice from their TBI experience ? *apologizing in advance for typos i have dyslexia so the current setting helps me see, and voice to text is not my friend when i am unable to see. *

TW

being caused by assault

and then abusers keep piling on

like i mean even to the point of people pretending to be me in zoom meetings for a light example . then to put this in nice terms it’s watered down as “just bullying” . like i thought that was illegal? many other things illegal but TBI for some odd reason means we aren’t taken seriously ??

.why does having a TBI make us a target?

i’m also sad when people call TBI survivors stupid like we survived literal DEATH and your going to call us stupid? f off with that bs because there are TBI survivors who go on to obtain higher degrees (education) and even find accommodating jobs that lead to successful careers.

i’m sorry this turned into a TBI sucks but I can’t share much . and asking for help is difficult

edit for clarity: why do people protect known abusers or rapists?

i’m struggling to understand how survivors who see their abusers still out and being protected by their friends, and are still not given peace, how do you cope?

i’m not really into the forgive and forget thing

i don’t have to forgive, but i’m not out for revenge

and i would love to forget, but it’s an experience that i guess my brain and body are still processing

looking for advice from other survivors on coping, thank you for what you feel safe sharing

TBI sucks enough already idk why everyone was tearing me down (like calling me stupid) in the comments. yeah i wouldn’t advise anyone else with a possible concussion to go ask strangers, i would tell them to go to the dr but that was the brain fog speaking. it’s interesting, the lack of empathy expressed to another tbi survivor. but i’m going to assume i wasn’t very clear and that’s not how this entire community treats each other!

but that experience was rough to wake up to sooo:

where are some places you all find safe community?

do you feel accepted or understood in other spaces?

edit to add: even with adding the disclaimers i guess i wasn’t clear that i do have a TBI and i am surviving looking for advice from other survivors.

you can get a concussion more easily the more concussions you have gotten. you can get a concussion more easily after a TBI. i have history of both a bad TBI, less bad TBI, and concussions due to complications from the original TBI.

you can also get a concussion without hitting your head.

i fell and felt off and posted here but didn’t find the support i was looking for. if i would have posted elsewhere i felt like the advice would be the standard get another CT, maybe get an MRI. i did not feel this was severe enough for that. it’s just falling, trying to catch yourself, and hitting your face into a door no big deal? (didn’t notice my face had a mark also)

ok y’all stay safe. here’s the original post everyone was hating on me for:

disclaimer, i have had so many concussions at this point that it’s ok if i don’t go to my primary

i almost fell yesterday while doing laundry opening a door and holding the laundry at the same time. don’t remember hitting my head but caught myself with my hand and later noticed skin scratch on my knuckle where i was catching myself.

this morning i wake up with a pretty bad migraine, worse than my usual.

i thought maybe i only almost hit my nose but idk with holding everything and trying to open the door, and the falling and trying to catch myself. it’s always so fast these things, so i’m coming here for others thoughts on this

does this sound like a concussion to anyone?

or maybe a coinsidence (sorry for misspelling) since my body and brain is/was SO drained from this week and laundry is a huge energy drain for me (carrying up down and stairs, and i have pots)

remember the disclaimer my primary knows me by now and will say the same as per usual. immediate care would probably do a CT. ER might do an MRI. but those are just to detect any brain bleed. *from my understanding* . sooo it’s just self care today and maybe put myself back on concussion protocol as per my primaries recommendations the last few times lol. with history of TBI we can get a concussion more easily than those with no history of TBI.

i love eyeshadow looks but even if people say i have large eyes i feel like some of the looks i like, don’t turn out as i envisioned them. maybe it’s just my bone structure for my crease. i’ve done the less is more or clean girl look and it feels so boring lol

does anyone have advice on looks i can try outside of my regular “every day” routine?

i need to look nice for a few events coming up, and i tend to get excited and sometimes i feel i do too much compared to others . all the eyeshadow pallets are so fun. i love glitter or if i have time lots of color or dark dramatic. i love to just play around with colors and glitter but for these events i need to look less like i’m playing around and more like fitting in to a neat look maybe? idk?

would very much appreciate anyone’s advice or thoughts