u/echointhemuseum

I had breast cancer so can’t use HRT.

I also have a weird condition that basically makes my sacral nerves oversensitive and creates a false sense of bladder urgency. (It’s not IC. It’s definitely related to nervous system issues.)

I went on Lynkuet a few months ago for terrible hot flashes after I stopped tamoxifen (because it was giving me chronic yeast infections).

It worked! Yay. But a few weeks later I went into a bad bladder flare—and it’s lasted two months at this point and I had a nerve block which has worked in the past and didn’t. It’s been years since I had a flare last this long & I even just started lexapro I’m so depressed. This takes over my life. It affects me more than the cancer.

I randomly realized yesterday that I had started the Lynkuet a few weeks before my flare started. I didn’t understand how it worked but it does seem to affect sacral nerves and was initially developed to try and combat OAB but it didn’t work.

I’ve decided to go off of it for a few weeks because I’m desperate. I just wondered if anyone else on Lynkuet or Vezoah had developed or had worsened bladder or pelvic pain/sensitivity issues?

Hello, I had early stage hormonal breast cancer and had 3 lymph nodes removed back in November of last year. No cancer in them. I had a very aggressive lumpectomy which became a reduction. I did not do radiation because my wound wouldn’t heal properly and I’m not on tamoxifen. (I should be but it kept giving me yeast infections and I already have chronic bladder issues.)

One of the things that used to make me feel good and help with anxiety were saunas and cold plunges and hot baths. But I’ve been told I shouldn’t do saunas anymore.

I don’t have any evidence of lymphedema but of course I don’t want to develop it. I was wondering if you have had lymph nodes removed do you go in saunas and hot baths? If so, how long out do you think you need to be to try it? I miss them.

So, I am actually going to Japan and would like to do some beauty treatments there. I did consider flying to Korea from Japan but I think I can get what I want in Tokyo for what is still much less than America. My purpose in going to Japan (2nd trip) wasn’t beauty but I realized I could do some things I wanted. There is not nearly as much info on Japan which is why I’m posting here.

I’m 50. I have done cheek and lip filler, broadband light treatments, a few microneedling treatments in America. I get Botox 2-3 times a year. I use tret & sunscreen daily.

I mostly want to try xerf for my jawline and neck (lost a lot of weight like many people on GLP 1 and neck never bounced back).

I also want to do juvelook in my neck for the crepiness.

I might also do an IPL treatment and touch up my usual Botox because it’s much cheaper. And I might also do some pure beauty treatments for hair and pampering.

What I’m unsure about is getting Juvelook for my entire face or just my neck.

I’m wondering if anyone my age has tried these treatments. If you would suggest anything else? I feel like I’ve identified a good clinic to use in Tokyo. But it is a bit scary. Still, the cost savings is amazing and we don’t even really gave Xerf or juvelook most places in America.

So, I am actually going to Japan and would like to do some beauty treatments there. I did consider flying to Korea from Japan but I think I can get what I want in Tokyo for what is still much less than America. My purpose in going to Japan (2nd trip) wasn’t beauty but I realized I could do some things I wanted. There is not nearly as much info on Japan which is why I’m posting here.

I’m 50. I have done cheek and lip filler, broadband light treatments, a few microneedling treatments in America. I get Botox 2-3 times a year. I use tret & sunscreen daily.

I mostly want to try xerf for my jawline and neck (lost a lot of weight like many people on GLP 1 and neck never bounced back).

I also want to do juvelook in my neck for the crepiness.

I might also do an IPL treatment and touch up my usual Botox because it’s much cheaper. And I might also do some pure beauty treatments for hair and pampering.

What I’m unsure about is getting Juvelook for my entire face or just my neck.

I’m wondering if anyone my age has tried these treatments. If you would suggest anything else? I feel like I’ve identified a good clinic to use in Tokyo. But it is a bit scary. Still, the cost savings is amazing and we don’t even really gave Xerf or juvelook most places in America.

I had hormone positive breast cancer and my hot flashes started after I started and then stopped tamoxifen (kept giving me yeast infections). I was literally getting hot flashes every 10 minutes. Anytime I even moved. I’m 50 so pretty sure the tamoxifen just kicked me into menopause.

I went on oxybutyinin which got rid of them quite fast. And then went on Lynkuet because I read it helped with sleep & the oxybutynin gives me bad dry mouth. I then stopped the oxybutynin.

It was working great for about 2 months but now some of the hot flashes are coming back, especially at night, and waking me up. :(

I’m sad! Did this happen to anyone else. It’s not nearly as bad as it was but I have other chronic pain conditions that get worse when I don’t sleep well. I decided to take a 2.5 my oxybutynin tonight after I got woken up and see if I do that for a few days if it will even things out.

Any suggestions? I take the Lynkuet before bed and don’t notice any side effects from them. I did just get my pneumonia vaccine and I had a really bad (I guess good but flu like) response. But I’d been having some breakthrough even before then.

Thank you.

So, I am not a sports person. I do know the World Cup is going on. I am taking my first trip to Paris and London getting into Paris on July 18th. An acquaintance noticed my dates and told me that France is quite likely to win the World Cup and that is on July 19th and if it happens it will be crazy. I couldn’t really tell if that was crazy in a good way or bad way!

I’m actually scheduled to go to Disney Paris that day. I like the idea of being there for a big celebration but will I have trouble getting back? Should I switch my Disney day because it will be exciting to be around everyone celebrating? Or a total mess as a tourist?

I just want to vent about something very specific that is driving me crazy. I’m Jewish. Raised conservative/reform but basically secular. But I was very involved in the Jewish community as a child and teenager because of my mother’s job.

Thankfully, my parents are Democrats and my mom vocally supports my daughter. My dad is by nature pretty reticent about feelings but is always respectful. They both hate Trump and MAGA.

But my mom doesn’t know what to do with her time (in her mid 80s) and she volunteers a lot with an Orthodox temple in our city because they are nice to her. And I’m glad she gets out and feels needed and we fight half the time even though I love her very much. So when I say find new friends she says do you want to spend all that time with me? Fair point?

A lot of Orthodox Jews (not just orthodox and not all orthodox) love Donald Trump because of Israel. And my mom is very up front about her feelings but she won’t renounce these people. I don’t think they hate trans people. These aren’t like ultra orthodox. But Israel is the only thing that matters to them. (I don’t want a debate about Israel’s actions. That is a separate issue.) So they just don’t care WHAT Trump is doing to America as long as he supports Israel.

So our local JCC is having a PRIDE week, which I thought was nice. And then I found out my mom’s friend who is OBSESSED with Donald Trump…like loves adores worships him…is volunteering for the event! Making rainbow bagels.

I’m just so offended. It’s so gross. I guess the JCC is happy for volunteers. I am not there all the time and have also been recovering from breast cancer issues so I could not. But I feel like this woman is delusional and it’s just gross. Like doing this makes up for her vote? Or that she doesn’t see how performative and stupid it is to volunteer for Jewish pride when she loves the people who are trying to make my Jewish kid’s life hell?

Ok. I just needed to vent!!!!

I live relatively close to NYC so have seen a lot of theater. I much prefer musicals to plays. I’m taking my first trip to London in July, and I had no idea there was SO much theater!

I’m sort of torn because a lot of my old favorites are playing like Les Mis and Matilda. I saw this version of Cabaret in NYC (didn’t love it but I’m a big Alan Cumming fan so was biased). I just saw Oh Mary and was meh on it. The best thing I’ve seen on (and off) Broadway in the last two years was Cats Jellicle Ball.

I see there are going to be some out there choices like Trainspotting the Musical? Lol. I’m tempted because I loved the book and movie as a teenager.

Then there are things I hadn’t even heard about like My Neighbor Totoro & it looks like Paddington is a huge hit. Oliver also looks good. Im not sure if I’ve ever seen the musical or just know the songs from the movie.

I also admit I love ABBA and the ABBA show looks fun!

I use show score a lot for US shows but also just kind of hear about what’s good. What resources are there to see what’s good? I’m so overwhelmed with choices! I probably can see like 4-5 shows?

Thank you!

I wrote this very long post but then decided not to bore everyone to death. 😂 So, a semi long post. No. Ok. It’s a long post now!

Basically, I am a cis straight woman who grew up with lots of gay friends and thought of being trans similarly in the sense that I was a strong and vocal advocate for gay rights and now trans rights.

My daughter, who is now a young adult, transitioned as a mid teenager. And she is not at all interested in identity or activism or deconstructing the gender binary or anything like that. She doesn’t even like Pride. She doesn’t seek out trans friends.

She’s not Blair White or a Republican or anything. She’s very liberal. And she would never label herself a transmedicalist. But honestly that’s how she lives her life. Like being trans was a medical problem she has largely fixed.

She got mad at me a few months ago because she said I made everything about being trans with her. And I realized she was right. I think there were a few reasons for this, including all the bad things on the news, but also because I was not just seeing her as my daughter. I was always seeing her as my trans daughter. And I think she picked up on that because I would want to discuss things that were happening or if I saw something funny from a trans comic or just things like that.

But I realized it’s been 4 years and she lives her life as the woman she is. And what she wanted and what I wanted for her happened. She isn’t misgendered. Being trans isn’t the main thing in her life. And that is good because that’s what she wanted and I need to just see her as my daughter.

But I admit that’s hard when I know she is trans and I know how much our government wants to take away this happiness she has and that so many people are not as lucky as she was.

I don’t feel like being trans is bad. And my gay (guy) best friend ALWAYS talks about being gay. So to me these conversations felt normal. But I realized that it’s not the same. My BFF likes being gay. My daughter doesn’t like being trans. (She is also gay and that doesn’t upset her.)

But then all these messages from the trans “community” that this is somehow bad. That she should have pride about being trans. But she was suffering and that’s why we supported her transition. I don’t know. I’m just feeling confused. I resolved to not talk about it with her as much as possible but the mixed messages are confusing when I was trying to do everything “right.”