What can we do?
I wonder if there's a way for all of us to fundraise together, remotely and virtually? A lack of funding is one of the biggest issues keeping ME research stalled out. A lack of awareness in the public is part of the problem. So few people know about ME and it's impacts on people, communities, and society as a whole. Also, people with Long Covid are getting ME now (hi 👋), more people are getting diagnosed, but no one knows about it. This is a problem! I wonder what we can do about it?
I acknowledge some of us are too ill to do any computer work whatsoever, but it seems there's plenty of us who can manage some in a day. How might we organize and be part of the change we want to see, however small?
Note: Discussion is welcome, however I'd love to try and keep this one productive. Your feelings of anger and grief are valid, and you are welcome to share them, but please, no attacking a fellow sufferer for aspiring to affect positive change or thinking they might make a difference. If you're unable to take part in something like this, my heart is with you. But please, let's try and keep discussion productive and supportive if we can 💙