u/infantqueenbee

(hEDS)

i’ve had reoccurring stress fractures (in my feet) in the past…my last one was a few years ago. now that i’m finally trying to get back out into the world, my foot starts hurting again.

it feels and acts like previous ones i’ve had. the last treating doctor was my orthopedic 2 years ago who told me, “put the boot on, gradually til it gets better.”

so i do that. this goes on for two weeks until i finally give up and book with podiatrist at urging of my PT….

i dont have a fracture, i have a neuroma!!! the bones in my feet have shifted!!! (anyone else ever have this?)

omg….im feeling so much better after an injection and some extra support in my shoes. my complaints about my legs and feet have been lowest on the totem pole compared to my other pains, but today i learned that sometimes you just have to go to the dang doctor!

it was really nice to have someone address my specific concerns about my feet, and i got good advice. i don’t often have great doctor interactions like this so im soaking it in.

and im super thankful for my PT giving me the space to try my own thing before i decided it was doctor worthy, without restricting care or making it a problem.

🥰🥳

all forms of EDS welcome to comment
i am speaking from hEDS perspective 💕

i want to have more creative things i can do! feeling like all i do lately is consume things and it’s driving me crazy 👩🏻‍🎨

how are yall creating with (if any) limitations? how do you accommodate yourself?

my specific troubles are: my hands hurt (i tried pottery lol), and it’s hard to find a position for much of anything like drawing or coloring that doesn’t make me totally shrimp forward. i was coding for awhile but i can’t tolerate the computer time. need inspo ❤️‍🩹🥰

hello friends! hEDS here

i have started being active again and im swimming! i’ve never been taught so im learning form as i go.

my PT told me that my head needs to be below the water, my spine in a straight line to avoid flaring up my neck & shoulder (which i’ve going thru right now lol 🫠)

the problem is, i wear contacts so i will need goggles ideally. im blind as a bat without the contacts, so i dont really want to go to the pool blind! things around or on my head really aggravate me/cause pain & migraines - like over the ear headphones, etc.

so any recs for swim goggles!??? anyone else have this conundrum, any suggestions for swimming “form”? thank you all in advance 🙏

hi friends! i attend a virtual women’s meeting and we just got bombed again by a man coming on and off video stroking his penis. we’ve had incidents of porn playing loudly, etc. as well - “bombers”

do any of you meeting-goers have any thoughts on meeting security? or general commiseration 😔

we have been discussing closing the meeting and removing the password from the guide, but obviously that makes it harder for people in need to find it.

there’s a lot of sexual trauma in women’s meetings and it sucks to be bombarded even in our safe space.

for me, it really ate my lunch today. i just want to have one space where i can go and share and not be assaulted.

ETA - seems the consensus is the waiting room feature as a service position. we will have to continue to discuss further at group conscience, etc. love the discussion too, thank you 😊

this is an anti-protein post. i cannot stand trying to eat protein. i love fruits and vegetables all day, and im good on carbs (lol) but PROTEIN?

i don’t want to eat EGGS

i dont want to eat YOGURT

and don’t even get me started on MEAT fish red meat chicken any of it!!!!

how many more beans and nuts must i eat 😒😢😩😭😭

(i can’t eat gluten, either)

i am so mad that protein is necessary for existence

BAN PROTEIN

that is all. good night

as a curious question, who assists you on the day-to-day, especially if you consider yourself disabled by your condition(s)?

i’ve experienced a rapid decline in my physical ability since the end of last year. things like grocery shopping, cleaning, even moving things around the house have become things that require assistance and planning. i still work full time for now, so it feels especially true on those days that i feel wiped out from working!

i’m thankful to have some assistance at the moment, mostly from friends or people that i am able to pay to help me. currently, i get assistance with grocery shopping, laundry, and cleaning. still a little nervous to ask for help!

who assists you (and how, if you want to share)? examples can be a partner, family, friends, even the sometimes brutal truth of no one. i’m curious especially how it has looked for you over time. i’m 29 and nervous about it all. thank you in advance 🥰