u/lilo_and_stitch1

What happened to Jacqueline? Seems like she’s steering clear of everyone, but is also posting clap back TTs? I’ve missed a lot lol

Kind of a rant? Kind of a “thankful” post? Idk 🥺🥹

31 YOF here.

I may be placing my final Zep order in the coming days and I’m honestly so sad.

I don’t have health insurance (I work PT with the promise of a full time position soon) and it’s become too expensive for me out of pocket right now.

I’m Type 1 (diagnosed a little over 20 years ago) and have Endometriosis, and this medicine has given me my life back in so many ways that I didn’t think possible.

I started at 214.8 lbs in November and I’m now at 172.1 lbs. It was about the weight loss at first so that I felt better in my skin, but it has now become more about how I actually feel with vs without Zep (the internal side I guess you could call it).

I no longer have crazy pain and inflammation that comes along with Endometriosis, my sugar levels are so much better bc the snacking has stopped, the subtle neuropathy in my feet is gone.. to name a few. I overall feel like a completely different person this summer vs last summer (my upper lip no longer sweats, woohoo🤣🤣)

If I do stop taking Zep, I’ll still be here but just wanted to thank all of you who have contributed to posting here and ultimately providing me with info or guidance on side effects, dosing, emotions/feelings on this journey, etc.

The support yall show is top tier, and thank you again 🤍

Anyone know anything about WESCOM dispatch center in Plainfield? They’re hiring and I’m curious how the environment is.

Can anyone let me know the first step in mold removal? I recently moved in with a friend and didn’t know there was basically black mold in every corner of the house due to a roof leak several years ago. Looking for any resources I can to help her.
I’m already feeling the effects of mold exposure and I’m sure the house has black and pink mold as far as I know. It could have other types, but those are for certain.

I currently have the Medtronic 670G pump and am looking to get back on a CGM. I stopped wearing my Dexcom G6 in 2023 because it annoyed me so bad (the beeping, the inconsistent readings, the painful injection that often bled, the transmitter absolutely sucking (sorry, not sorry lol)) but my fluctuating levels have me thinking it’s time to get back on one.
If I stay on the 670, does anyone have good CGM recs? I know all of those things I complained about may still occur, but perhaps I may have better luck with a different brand CGM.

TIA!

That lamotrigine wasn’t the med / working for you?

Is this normal? Ugh lol.
And I feel like my meds make me hyper fixate so bad.

ADD/ADHD absolutely suck. I wouldn’t wish this on anyone.

I struggle even getting into the shower most days, even though I know it’s going to be quick and easy.

My bf doesn’t have ADD, but has ADHD and although we’re in the same boat, just different waves, the differences I’ve noticed between the two of us (behavior, habits, etc.) are so wild lol

Does anyone else strongly dislike doing things by themselves? Out and about type things - errands, exercise, etc. The anxious feelings I have seem to get so much worse when I think of having to do things solo. And I used to be so independent. It’s fear of a low and not being able to reach anyone for help. Anyone else?

Those without insurance.. Like me..

What does your insulin regimen look like - Do you have a pump? Or CGM?

And how often do you stress about the cost of monthly supplies?

I legit don’t know if it’s working or not? Two days ago, I upped my dose from 25mg to 50mg per my doctor, and within 10 mins, my head was pounding. My face also appeared and felt very textured with small bumps (almost like hives but not itchy and it’s normally smooth), my cheeks warm to the touch & I went to bed with a butterfly rash across my nose. Nothing else in my daily routine changed, so wondering if the med is causing it? And what does it mean?

Hi all, I just joined this sub and am looking to vent and also seek some guidance .
Before the big ‘vid, I was more outgoing and extroverted I’d say. Within the last few years, since I started WFH, it was made me struggle horribly with having to leave the house to do basic things like grocery shopping. I don’t even want to leave my house to go to family gatherings or events. Because I think something awful is going to happen to me.

I told myself, actually maybe I was lying to myself, that I was just a homebody. And I can fully say how that being home all the time has made me develop agoraphobia to the point of anxiety / panic attacks. It may be combined with OCD? To the point that I feel like if I step out onto my front porch, something awful is going to happen to me.

I’m finally facing this reality and really struggling because each time I expose myself more, although it may be helping in some way, in the moment I have extreme panic that comes in the form of heart palpitations, my vision and hearing become impaired (almost feels like I’m not in my own body), and my body seems to shut down from fight or flight that I feel so fatigued. I won’t flight, I won’t flight, I’ll freeze.

For instance, today, I had to go in to the office (I haven’t had to in months), I had to mentally prepare myself starting last night, slept horribly, and had such bad panic in the Uber on the way home that I put my head on the window and nearly fell asleep for the 45 min. Drive home.

It’s getting bad for me and I’m looking for advice on any kind of specific therapy, other than exposure therapy (feel free to include what you do with that too) that can help my body get out of fight or flight and I can feel somewhat okay again. I know it’s going to take time. But it’s effecting my life in every way - being able to take care of myself, work, relationships, etc.

I’m here because I’m lost and I don’t know where to go from here. I’d really appreciate any advice or comments 🤍

TIA

How do I kindly tell my boyfriend to do some research to learn more about T1? We’ve been together for almost year and a lot still confuses him, which is understandable, but now it’s to the point that it’s irking me because I’ve explained to him kind of “the basics” numerous times and it’s almost like he can’t recognize the patterns (when I’m low, I get shaky, sweaty, etc. When I’m high, I’m irritable, my skin feels like it’s crawling, etc.)
I know he cares, but says “I just don’t know enough about it”. Is he just not listening when I explain things to him? Or does he not care enough? I don’t know.
For context, I was telling him about how my anxiety has gotten worse when I go out and do things alone because lately my lows have been sneaking up on me.
But Google exists??? Books exist?? If he had a medical condition that affected every aspect of his daily life, I’d be reading for days on end. I just don’t know how to say it nicely that he needs to listen and take it more seriously.
This is the only thing I’ve had an issue with in our entire year together, and unfortunately, it’s a big part of my life.

I think it’s my phone. No joke. It makes my symptoms 10000x worse. All the apps, social media, texting, calls, etc. I feel like I can’t relax because my brain has programmed itself to never relax because of this damn thing. Like I always have to be doing something or going going going. And when I actually try to relax, my self worth plummets because I think I’m always supposed to be doing something productive or getting something done. Instead of just being.

Anyone else?

But, if I spend a majority of my day not on it or outside when it’s nice, my brain doesn’t feel like it’s bouncing around (I have inattentive), my evening wind down anxiety is WAY less and I actually enjoy life so much more. At a slower pace. Like it’s intended.

I’ve even adjusted so I get less blue light from my screen, and nothing compares to just being off of it.

Debating on doing a phone detox. If you’ve tried it, please provide your experience / feedback!

I just wanted to post and give everyone in here credit. Even if you’re just here to learn more and educate yourself because someone in your life has T1.

But, I wanted to put spotlight on people who have a later in life diagnosis.

I’ve been T1 for 20 years now (diagnosed at 11) and I cannot imagine being diagnosed in my 20s, 30s and even later. Because I was so young, it was less difficult for me to adapt to all of the changes. I didn’t have to alter many of my ways or the way of life that I was so used to living. And luckily, I didn’t have a problem with needles.

I see so many newly diagnosed (later in life) Type 1s posting here daily, and I just wanted to say, we’re all here for you.

I’m going through a rough spot right now with mine for some reason, and I find myself getting sick of dealing with everything that comes along with being Type 1 so often. Especially the mental side of it.
When I was diagnosed, being so young, I obviously didn’t know that every decision I’d make in my life would be affected by it. And right now, it’s been difficult.

And to the parents of children with diabetes, keep rockin’. Your kid is, and will look back, and be so grateful for you.
I’m looking back now and have no idea how my parents did it, while appearing to be so cool, calm and collected (I think they were good at hiding their panic). Seriously. When I asked my dad, he said “when it’s your child, you just do it.”

Basically, just a shout out to everyone here. As much awareness as there is about Type 1, I feel like one will never really know or grasp just how difficult and severe daily life can be unless they have it. But if you are here to learn, especially to be there for a T1 in need that you care about, you rock.

*my thoughts are all over the place, but hopefully y’all get it*

I’be been having crippling anxiety almost everyday lately, to the point that I feel physically fatigued, have heavy eyes and need to lay down after work. I have inattentive ADHD and am medicated, and I think my medication is causing it. But, lately I’ve been finding life more difficult to enjoy and I oftentimes miss life before I started taking meds. I’m going to call my doctor on Monday, but I just needed to vent. And also ask, does anyone else feel like this? It’s also mixed with some sort of existential dread.