u/martymcpieface

Has anyone had any experience with these phones?

I have sjogrens with really severe dry eyes. also chronic complex migraines (argh!) and have been using iPhones but need a new phone thats going to be easy on my eyes

Tossing up between the following as im based in the UK:

  • Motorola Edge 60 Neo (pOLED)
  • Motorola G87 (Extreme AMOLED^(4))
  • Motorola Edge 50 Neo (pOLED)
  • Motorola g56 (LCD)
  • TCL 60 SE NXTPAPER 5G (LCD)

I can't really have other ones as they're too heavy and big for my hands

Any experiences with these options?

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u/martymcpieface — 4 days ago
▲ 8 r/MCAS

Feel great first thing in the morning, then feel like crap even after meds and eating

*sigh*...this morning I woke up feeling so good. Fresh, just clear and no brain fog or heavy migraine feeling.

I had my meds and still felt good. Was doing some cleaning and stuff.

Then I made my breakfast and ate food and after that I just felt like crap and like my brain was drugged. My blood pressure was fine.

Has anyone else had this and found an MCAS med that can reduce the cognitive/mental/migraine-y side effects? Even when I take cromolyn this happens.

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u/martymcpieface — 10 days ago
▲ 96 r/cfs

Feeling really scared after the recent passing of the beloved James Strazza

kind of freaking out and scared for the future with this. I'm also a musician and artist, and it's scaring me that so many of us are suffering and dying. James was so inspiring to me and to others.

It's pissing me off to no end that the UK NHS system treats this as a psychosomatic illness with CBT, pacing and sometimes exercise therapy, whereas Germany, Australia, and Europe are investing billions into finding the immunological and mitochondrial causes and treatments for what's causing this dysfunction and destruction in our bodies. The NHS approach feels comical and terrifying because it is such a serious condition, and I constantly am thinking, "Mate, this is NOT it...you have no clue about how serious this is. It's almost like recommending CBT and rest to someone with Myasthenia Gravis. One day you'll feel like bloody idiots."

It's scaring me as I'm at the point now where if I overdo it slightly, my muscles become shaky, weak, and I can't breathe properly and have to manually make myself breathe. I am losing ability to do my art too. I don't know what to do in the meantime.

I need to work as well as I don't get enough money on Universal Credit, so I'm struggling to find the best job that would reduce both cognitive and physical decline.

I really hope that we see the day soon that they find treatments for all of this. It is incredibly scary.

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u/martymcpieface — 11 days ago

Just got an OG SE 2016 on Vinted and it's got 13.4.1 on it which I really want to keep. however I want to get my contacts and messages off icloud from my 6s I've been using on IOS15.

Is there any issue signing into my icloud on the SE 2016? I read somewhere that Apple won't allow me to use it properly due to issues signing/activating etc

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u/martymcpieface — 15 days ago
▲ 1 r/Endo

Has anyone else had anything like this?

When I get bowel cramps in my lower left abdomen, I get this sharp pain deep in my left breast. It’s a sudden sharp nerve pain and it’s only happened since my second laparoscopic excision surgery for stage 4 endometriosis.

On top of this, I’ve also had issues fully emptying my bladder and my pain is getting more often now through the month. I’ve also had problems orgasming too. When I have orgasms now, it happens but it doesn’t feel like it fully releases and it holds all the blood flow in my vagina area for a long period of time and doesn’t feel finished and it’s quite nauseating. and my blood pressure drops and I end up almost fainting if I stand up. If I keep going to have another one or to try to release it as another one, my body gets pretty distressed and sweats a lot and can’t cope.

I’ve never had these issues before until after my second surgery and honestly it’s kind of messing up my life a bit. I have stage four endometriosis and I just think it’s getting worse and worse.

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u/martymcpieface — 15 days ago

Has anyone else had anything like this?

When I get bowel cramps in my lower left abdomen, I get this sharp pain deep in my left breast. It’s a sudden sharp nerve pain and it’s only happened since my second laparoscopic excision surgery for stage 4 endometriosis.

On top of this, I’ve also had issues fully emptying my bladder and my pain is getting more often now through the month. I’ve also had problems orgasming too. When I have orgasms now, it happens but it doesn’t feel like it fully releases and it holds all the blood flow in my vagina area for a long period of time and doesn’t feel finished and it’s quite nauseating. and my blood pressure drops and I end up almost fainting if I stand up. If I keep going to have another one or to try to release it as another one, my body gets pretty distressed and sweats a lot and can’t cope.

I’ve never had these issues before until after my second surgery and honestly it’s kind of messing up my life a bit. I have stage four endometriosis and I just think it’s getting worse and worse.

reddit.com
u/martymcpieface — 15 days ago

I went to iSmash in UK 2 times now for my other iPhone 6s and both batteries are crap, manufacture date on Coconutbattery says they were manufactured in 2019 which was 7 years ago.

My battery is still depleting fast and overheating from just charging and basic usage.

Thank you so much for any recommendations!

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u/martymcpieface — 17 days ago
▲ 1 r/PMDD

Its been such a rough day. Pelvic pain and abdominal pain all day (endo pain) and Ive been legit crying constantly at everything, feeling so suicidal and existential. It's absolutely nuts.

Has anyone found anything that can help?

I'm not on any hormonal or mental health meds

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u/martymcpieface — 24 days ago
▲ 7 r/cfs

I got mestinon prescribed in AU and my gp cant continue it but has no other knowledge of who to refer to continue it

Anyone have any experience?

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u/martymcpieface — 24 days ago