u/myst3ryAURORA_green

Can kidney disease cause coughing of blood?

I know it could lead to pulmonary edema in late stages, but what about blood tinged cough? 5-6 times in the span of 2 months. I have pulmonology set up in 2 weeks.

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u/myst3ryAURORA_green — 3 days ago
▲ 3 r/Anemic

Update on ferritin of 6

My PCP referred me to a hematologist! My PCP and neurologist are the only ones who understand that my levels have been low for years. My nephrologist just noted green numbers on Labcorp and would say 12 ferritin is normal. But I'm finally getting treatment for iron deficiency anemia! My recent blood pressure was 260/200 (not the whole picture, but I assume the mix of low iron and my CKD is not helping it).

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u/myst3ryAURORA_green — 4 days ago

Can a rebound damage my kidneys?

I think I've established my average numbers here. Yesterday, I went 36 hours without taking my blood pressure meds (I'm resistant to them and got hopeless, but still, don't comment on how dumb I am) and my blood pressure went to 260/200. I've only seen my bottom reach 200 a few times. 😳 Plus 260/200 is the highest my machine can register, so it could've been the 300s (at least that's what it felt like). I retook my meds and I'm checking my BP in a few minutes.

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u/myst3ryAURORA_green — 5 days ago

CO2 chronically low (18-21)

I've had low CO2 for like over a year now. Is it normal to be in chronic metabolic acidosis? September 30, 2025, my lactate was dangerously high and BP ~296/190. In December 2024, it was the opposite problem, metabolic alkalosis. I don't know if the chronic low CO2 is from kidney disease or due to my malignant refractory blood pressure being so high it causes me to become out of breath and hyperventilate.

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u/myst3ryAURORA_green — 6 days ago

FND was hypertensive encephalopathy!

16F, history of chronic malignant refractory hypertension ~200/120 or more, polycystic kidney, an autoimmune disease resembling lupus, and a bunch more comorbidities. I was in the ED 2ish weeks ago for neurological symptoms that put me on a stroke alert until it was ruled out. The neuro team at the hospital suspected FND and sent me to a clinic. All of my neuro symptoms are 99.9 percent correlation and causation with my blood pressure. Today, my new neurologist ruled out FND and attributed my symptoms to severe iron deficiency anemia and hypertensive encephalopathy.

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u/myst3ryAURORA_green — 9 days ago
▲ 11 r/haematology+1 crossposts

Update on ferritin 🤣

So confused. I get iron in my diet, take ferrous sulfate 325, kidney disease/autoimmune is stable, etc. It keeps dipping and dipping! 16F, periods are also stable except for cycle lengths.

u/myst3ryAURORA_green — 9 days ago

At what point do you phone 911 for SVT, typically?

It's surprisingly been well-managed, even with how high my blood pressure is. But I was at the nephrologist doing routine CKD labs when I collapsed in the bathroom, pale and almost totally unable to breathe. Paramedics arrived and confirmed SVT, I'm unsure of the actual rate. Blood pressure was 245. Sometimes I'm SVT-ing without realizing. Sometimes it also feels like death pounding in your chest.

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u/myst3ryAURORA_green — 9 days ago

D dimer has been on and off...

One ER visit it's positive, the other's negative, etc. I'm seeing a pulmonologist next month. I had a CCTA last month which was inconclusive for pulmonary embolism and right ventricular hypertrophy. The main concern is chronic thromboembolic (CTEPH) since the d-dimer's (sometimes) there, heart attack history, severe hypertension history, and right-sided heart strain. I've been chronically very out of breath for months to years with oxygen dips and high heart rates unresolved with beta blockers. Opinions?

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u/myst3ryAURORA_green — 9 days ago

Theoretically, what's the highest dysautonomia, especially hyperadrenergic POTS, can increase blood pressure?

Salt is always on the lower end (134-135), stage 2 kidney disease, heart issues, autoimmune. No one can figure out why my blood pressure hits over 300 even if it only happens a few times a year. Would an acute dysautonomia flare do that?

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u/myst3ryAURORA_green — 11 days ago

Is the DASH diet for people with CKD?

I hear it's intentionally aiming for very high potassium amounts. I've been good about finding low-tyramine foods (I'm not on MAOIs, tyramine spikes my blood pressure for some reason). I follow the normal low salt, low protein diet, I take my meds, yet I still somehow am stuck with readings in the 200 range everyday (my most recent reading today was ~203/131). And ~235/151 yesterday during an angina episode. And I have to wait 2 more weeks for my MRA results to come back (I did it on April 24).

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u/myst3ryAURORA_green — 12 days ago